Open Access Book

Forty Years of Heel Prick Screening in the Netherlands

April 2016
114 pages
  • ISBN978-3-03842-189-4 (Hardback)
  • ISBN9783038421917 (EPUB)
  • ISBN978-3-03842-190-0 (PDF)
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Summary

This book aims to provide an overview of developments in the heel prick screening programme in the Netherlands, in which similarities with the situation elsewhere in the world, where relevant, will be mentioned. In the Netherlands, the preparations for the national screening programme started in 1964. The formal launch of the programme was on September 1, 1974. In 2014, therefore, this programme had existed for 40 years.

 

The book is structured as follows. Chapter 1 describes how the programme began with one disease and over the years has continued to expand to currently cover 19 disorders. Chapter 2 focuses on the organisation of the screening programme and the agencies that have been involved over the years. Chapter 3 is intended to provide a global view of the programme in its current form. Chapter 4 describes how neonatal screening programmes elsewhere in the world developed and outlines their main differences with the Dutch programme. Finally, Chapter 5 contains a summary and conclusions. This chosen structure leads to some aspects being mentioned more than once.

 

The book is intended for a broad audience that is interested in policy-making on heel prick screening; hence, scientific depth is limited. Where possible and useful, references to the scientific literature have been included, but completeness has not been pursued. The main sources were the archives of the National Steering Committees for Phenylketonuria and Congenital Hypothyroidism (LBCs), supplemented with interviews with the persons listed in Annex 1 and, if available, their personal archives.

 

This is a translation of the book, “Veertig Jaar Hielprikscreening in Nederland”, that was published by Prelum Publishers, Houten, the Netherlands, with ISBN 978-90-8562-133-1 © 2014 Prelum, Houten; RIVM, Bilthoven; Vumc, Amsterdam.

 

The publication of this book is sponsored by the International Journal of Neonatal Screening and Labsystems Diagnositcs.

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Formats
  • Hardback
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License
© 2016 MDPI; under CC BY-NC-ND license
Keywords
heel prick; prick screening programme; neonatal screening programme
Funding
The publication of this book is sponsered by the International Journal of Neonatal Screening and Labsystems Diagnositcs.
Review mode

This book did not undergo peer review. The opinions expressed in the book are the author's own and do not reflect the view of the publisher.

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