Filial Maturity, Resolution of a Parent’s Disease, and Well-Being in Offspring of Parents Diagnosed with Alzheimer’s Disease
Abstract
:1. Introduction
1.1. Filial Maturity
1.2. Offspring’s Resolution of Their Parent’s Disease
1.3. The Current Study
2. Method
2.1. Participants
2.2. Procedure
2.3. Instruments
2.3.1. Demographic Questionnaire
2.3.2. The Louvain Filial Maturity Scale (LFMS)
2.3.3. Reaction to Diagnosis Questionnaire (RDQ) [19]
2.3.4. WHO-5 Well-Being Index
2.3.5. Mini-Mental State Examination (MMSE) [23]
2.4. Data Plan Analysis
3. Results
Preliminary Analysis
4. Discussion
4.1. Implications
4.2. Limitations and Future Studies
Funding
Institutional Review Board Statement
Informed Consent Statement
Data Availability Statement
Acknowledgments
Conflicts of Interest
References
- Alzheimer’s Association. 2019 Alzheimer’s disease facts and figures. Alzheimer’s Dement. 2019, 15, 321–387. [Google Scholar] [CrossRef]
- Blandin, K.; Pepin, R. Dementia grief: A theoretical model of a unique grief experience. Dementia 2017, 16, 67–78. [Google Scholar] [CrossRef] [PubMed]
- Nathanson, A.; Rogers, M. When ambiguous loss becomes ambiguous grief: Clinical work with bereaved dementia caregivers. Health Soc. Work. 2020, 45, 268–275. [Google Scholar] [CrossRef] [PubMed]
- Chan, D.; Livingston, G.; Jones, L.; Sampson, E.L. Grief reactions in dementia carers: A systematic review. Int. J. Geriatr. Psychiatry 2013, 28, 1–17. [Google Scholar] [CrossRef] [PubMed]
- Meichsner, F.; Köhler, S.; Wilz, G. Moving through predeath grief: Psychological support for family caregivers of people with dementia. Dementia 2019, 18, 2474–2493. [Google Scholar] [CrossRef] [PubMed]
- Noyes, B.B.; Hill, R.D.; Hicken, B.L.; Luptak, M.; Rupper, R.; Dailey, N.K.; Bair, B.D. The role of grief in dementia caregiving. Am. J. Alzheimers Dis. Other Dement. 2010, 25, 9–17. [Google Scholar] [CrossRef] [PubMed]
- Pérez-González, A.; Vilajoana-Celaya, J.; Guàrdia-Olmo, J. Alzheimer’s Disease caregiver characteristics and their relationship with anticipatory grief. Int. J. Environ. Res. Public Health 2021, 18, 8838. [Google Scholar] [CrossRef] [PubMed]
- Goldberg, A. Resolution of a parent‘s disease: Attachment and well-being in offspring of parents diagnosed with Parkinson’s Disease. J. Park. Dis. 2022, 12, 1003–1012. [Google Scholar] [CrossRef] [PubMed]
- Blenkner, M. Social work and family relations in later life with some thoughts on filial maturity. In Social Structure and the Family: Generational Relations; Shanas, E., Shanas, G.F., Eds.; Prentice Hall: Hoboken, NJ, USA, 1965; pp. 46–59. [Google Scholar]
- Marcoen, A. Filial maturity of middle-aged adult children in the context of parent care: Model and measures. J. Adult Dev. 1995, 2, 125–136. [Google Scholar] [CrossRef]
- Nydegger, C. The development of parental and filial maturity. In Parent–Child Relationships Throughout Life; Pillemer, K.A., McCartney, K., Eds.; Lawrence Erlbaum Associates: Mahwah, NJ, USA, 1991; pp. 93–110. [Google Scholar]
- Birditt, K.S.; Fingerman, K.L.; Lefkowitz, E.S.; Dush, C.M. Parents perceived as peers: Filial maturity in adulthood. J. Adult Dev. 2008, 15, 1–12. [Google Scholar] [CrossRef]
- Van Bruggen, S.; Bode, C.; Ten Klooster, P.M.; Lenferink, L.I. Reliability and validity of the Dutch translation of the Filial Maturity Measure in informal caregivers. J. Adult Dev. 2015, 22, 138–147. [Google Scholar] [CrossRef] [PubMed] [Green Version]
- Bowlby, J. Attachment and Loss: Loss, Sadness and Depression; Basic Books: New York, NY, USA, 1980; Volume 3. [Google Scholar]
- Bowlby, J. Attachment and Loss: Attachment; Basic Books: New York, NY, USA, 1982; Volume 1. [Google Scholar]
- Rando, T.A. Clinical Dimensions of Anticipatory Mourning: Theory and Practice in Working with the Dying, Their Loved Ones, and Their Caregivers; Research Press: Champaign, IL, USA, 2000. [Google Scholar]
- Davies, H.D.; Clovis, C.L.; Ingram, L.; Priddy, J.M.; Tinklenberg, J.R. Stages of resolution: Young adult children coping with an Alzheimer’s Disease parent. Clin. Gerontol. 2001, 22, 43–58. [Google Scholar] [CrossRef]
- Central Bureau of Statistics. Average Monthly Wages July 2022. 2022. Available online: https://www.cbs.gov.il/he/pages/default.aspx (accessed on 1 July 2022).
- Dan Ram-On, T.; Sher-Censor, E. The Reaction to Diagnosis Questionnaire; University of Haifa: Haifa, Israel, 2016. [Google Scholar]
- Bech, P.; Gudex, C.; Johansen, K.S. The WHO (Ten) Well-Being Index: Validation in diabetes. Psychother. Psychosom. 1996, 65, 183–190. [Google Scholar] [CrossRef] [PubMed]
- Bech, P.; Olsen, L.R.; Kjoller, M.; Rasmussen, N.K. Measuring well-being rather than the absence of distress symptoms: A comparison of the SF-36 Mental Health subscale and the WHO-Five Well-Being Scale. Int. J. Methods Psychiatr. Res. 2003, 12, 85–91. [Google Scholar] [CrossRef] [PubMed]
- Singer, J.; Levy, S.; Shimon, I. Group versus individual care in patients with long-standing type 1 and type 2 diabetes: A one-year prospective noninferiority study in a tertiary diabetes clinic. J. Diabetes Res. 2018, 2018, 1807246. [Google Scholar] [CrossRef] [PubMed] [Green Version]
- Folstein, M.F.; Folstein, S.E.; McHugh, P.R. “Mini-mental state”: A practical method for grading the cognitive state of patients for the clinician. J. Psychiatr. Res. 1975, 12, 189–198. [Google Scholar] [CrossRef] [PubMed]
- Hayes, A.F. Introduction to Mediation, and Conditional Process Analysis, 2nd ed.; Guilford Press: New York, NY, USA, 2018. [Google Scholar]
- Baron, R.M.; Kenny, D.A. The moderator–mediator variable distinction in social psychological research: Conceptual, strategic, and statistical considerations. J. Personal. Soc. Psychol. 1986, 51, 1173–1182. [Google Scholar] [CrossRef] [PubMed]
- MacKinnon, D.P. Introduction to Statistical Mediation Analysis; Taylor & Francis Group: Oxford UK; Lawrence Erlbaum Associates: Mahwah, NJ, USA, 2008. [Google Scholar] [CrossRef]
- Shrout, P.E.; Bolger, N. Mediation in experimental and nonexperimental studies: New procedures and recommendations. Psychol. Methods 2002, 7, 422–445. [Google Scholar] [CrossRef] [PubMed]
- Bollen, K.A. Structural Equations with Latent Variables; John Wiley & Sons: Hoboken, NJ, USA, 1989. [Google Scholar] [CrossRef]
- Grabher, B.J. Effects of Alzheimer Disease on patients and their family. J. Nucl. Med. Technol. 2018, 46, 335–340. [Google Scholar] [CrossRef] [PubMed]
Adult Child | M (SD)/N (%) | |
---|---|---|
Age | 24–72 | 48.99 (10.67) |
Number of children | 1–6 | 3.15 (1.16) |
Gender | Male | 20 (14.3) |
Female | 120 (85.7) | |
Marital status | Single | 20 (14.3) |
Married | 104 (74.3) | |
Divorced/other | 16 (11.4) | |
Education level | High school | 20 (14.3) |
Graduate/professional | 110 (78.6) | |
Other | 10 (7.1) | |
Income level | Below average | 24 (17.2) |
Average | 58 (41.4) | |
Above average | 58 (41.4) | |
Parent | M (SD)/N (%) | |
Age | 62–92 | 80.41 (7.06) |
Number of years since diagnosis | 1–14 | 4.56 (3.30) |
Gender | Male | 48 (34.3) |
Female | 92 (65.7) | |
Marital status | Married | 64 (45.7) |
Divorced | 16 (11.4) | |
Widowed | 56 (40.0) | |
Unknown | 4 (2.9) | |
Lives close to child | Yes | 112 (80.0) |
Severity of the disease (MMSE score) | Mild (score 21–26) | 8 (5.7) |
Moderate (score 15–20) | 38 (27.1) | |
Moderate-severe (score 10–14) | 60 (42.9) | |
Severe (score lower than 10) | 26 (18.6) | |
Unknown | 8 (5.7) |
Filial Maturity | Filial Love | Filial Obligation | Filial Helpfulness | Filial Help | Parental Consideration | Family Solidarity | RDQ Total Score |
---|---|---|---|---|---|---|---|
RDQ total score r (p) | −0.33 (0.007) | −0.43 (<0.001) | −0.40 (<0.001) | −0.40 (<0.001) | −0.18 (0.155) | −0.43 (<0.001) | - |
Well-being r (p) | −0.09 (0.468) | −0.06 (0.654) | 0.03 (0.809) | 0.05 (0.702) | 0.03 (0.810) | −0.05 (0.681) | 0.30 (0.016) |
Filial Maturity | B (SE) | 95% CI |
---|---|---|
Filial love | −2.31 (1.32) | −5.23, −0.19 |
Filial obligation | −2.96 (1.50) | −6.35, −0.52 |
Filial helpfulness | −2.92 (1.56) | −6.62, −0.47 |
Filial help | −3.10 (1.64) | −6.91, −0.55 |
Parental consideration | −1.43 (1.03) | −3.70, −0.45 |
Family solidarity | −3.37 (1.67) | −7.03, −0.49 |
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Goldberg, A. Filial Maturity, Resolution of a Parent’s Disease, and Well-Being in Offspring of Parents Diagnosed with Alzheimer’s Disease. Int. J. Environ. Res. Public Health 2023, 20, 761. https://doi.org/10.3390/ijerph20010761
Goldberg A. Filial Maturity, Resolution of a Parent’s Disease, and Well-Being in Offspring of Parents Diagnosed with Alzheimer’s Disease. International Journal of Environmental Research and Public Health. 2023; 20(1):761. https://doi.org/10.3390/ijerph20010761
Chicago/Turabian StyleGoldberg, Alon. 2023. "Filial Maturity, Resolution of a Parent’s Disease, and Well-Being in Offspring of Parents Diagnosed with Alzheimer’s Disease" International Journal of Environmental Research and Public Health 20, no. 1: 761. https://doi.org/10.3390/ijerph20010761