*No*

	- # *Yes*
	- # *Maybe*
	- # *No*
	- # *Daily*
	- # *Multiple times per week*
	- # *Once per week*
	- # *Once every two weeks*
	- # *Once per month*

#### **Appendix B** *Brain Sci.* **2021**, *11*, x FOR PEER REVIEW 25 of 27

In case of fixed possible answers, see italic. *Brain Sci.* **2021**, *11*, x FOR PEER REVIEW 25 of 27

	- How often do you get an MRI for your MS, on average? Please disregard any recent delays in getting an MRI that you may have experienced due to the COVID-19 pandemic. Check all that apply. ● Have you ever received or been given access to an electronic copy of your MRI? Check all that apply. ○ *Not sure/prefer not to say*  ● Have you ever received or been given access to an electronic copy of your MRI?
	- When did you last get an MRI of your brain? ○ *CD/disc*  Check all that apply. ○ *Not sure/prefer not to say*
	- When did you last get an MRI of your neck or spinal column? ○ *USB drive/thumb drive*  ○ *CD/disc*  ● Have you ever received or been given access to an electronic copy of your MRI?
	- Have you ever received or been given access to an electronic copy of your MRI? Check all that apply. ○ *Direct download into my computer or other device*  ○ *USB drive/thumb drive*  ○ *Direct download into my computer or other device*  ○ *CD/disc*  ○ *USB drive/thumb drive*  Check all that apply.
		- # *Yes, my clinic or radiology lab gave it to me without my requesting it* ○ *Access through my clinic's patient portal*  ○ *Direct download into my computer or other device*  ○ *CD/disc*
		- # *Yes, my clinic or radiology lab gave it to me after I requested it* ○ *Other—Write In*  ○ *Access through my clinic's patient portal*  ○ *USB drive/thumb drive*
		- # *Yes, I got one from participating in a research study* ○ *Not sure/prefer not to say*  ○ *Other—Write In*  ○ *Access through my clinic's patient portal*  ○ *Direct download into my computer or other device*
		- # *No* ○ *Not sure/prefer not to say*  ○ *Other—Write In*
		- # *Not sure/prefer not to say* ● Have you ever looked at your own MRI images on your own, without your ○ *Not sure/prefer not to say*  ○ *Access through my clinic's patient portal*
	- Have you ever received or been given access to an electronic copy of your MRI? Check all that apply. healthcare provider present? ○ [in case of Yes] Did you find it helpful in any way to view your MRI images on ● Have you ever looked at your own MRI images on your own, without your healthcare provider present? ● Have you ever looked at your own MRI images on your own, without your healthcare provider present? ○ *Other—Write In*  ○ *Not sure/prefer not to say* 
		- # *CD/disc* your own? If so, how? ○ [in case of Yes] Did you find it helpful in any way to view your MRI images on ● Have you ever looked at your own MRI images on your own, without your
			- # *USB drive/thumb drive* your own? If so, how? ○ [in case of Yes] Did you find it helpful in any way to view your MRI images on healthcare provider present?
			- # *Direct download into my computer or other device* ○ [in case of Yes] Did you find it unhelpful in any way to view your MRI images ○ [in case of Yes] Did you find it unhelpful in any way to view your MRI images your own? If so, how?
			- # *Access through my clinic's patient portal* on your own? If so, how? ○ [in case of Yes] Did you find it unhelpful in any way to view your MRI images ○ [in case of Yes] Did you find it helpful in any way to view your MRI images on
			- # *Other—Write In* ○ [in case of Yes] How well did you understand the images on your MRI? on your own? If so, how? your own? If so, how?

Why or why not?

Why or why not?

Why or why not?

Why or why not?

Why or why not?

Why or why not?

Why or why not?

Why or why not?

Why or why not?

Why or why not?

Why or why not?

**References** 

**References** 

**References** 

**References** 

	- # [in case of Yes] Did you find it helpful in any way to view your MRI images on your own? If so, how? ■ *I wasn't sure how to view the images* ■ *I didn't have a software program or application for viewing the files* ■ *I wasn't sure how to view the images* Check all that apply. ■ *I wasn't sure how to view the images* ○ [in case of Yes] How well did you understand the images on your MRI? ○ [in case of No] Why haven't you looked at your MRI images on your own?
	- # [in case of Yes] Did you find it unhelpful in any way to view your MRI images on your own? If so, how? ■ *I couldn't load the images onto my computer or another device where I could view them* ■ *I didn't know how to interpret the images* ■ *I didn't have a software program or application for viewing the files* ■ *I couldn't load the images onto my computer or another device where I could view them* ■ *I didn't have a software program or application for viewing the files* Check all that apply. ■ *I wasn't sure how to view the images*
	- # [in case of Yes] How well did you understand the images on your MRI? ■ *I didn't know how to interpret the images* ■ *I couldn't load the images onto my computer or another device where I could view them*
	- # [in case of No] Why haven't you looked at your MRI images on your own? Check all that apply. ■ *I wasn't interested in viewing my MRI images on my own* ■ *Not sure/prefer not to say:* ■ *I wasn't interested in viewing my MRI images on my own* ■ *I didn't know how to interpret the images* ■ *I didn't have a software program or application for viewing the files* ■ *I couldn't load the images onto my computer or another device where I could view them*
		- *Other—Write In I wasn't sure how to view the images* ■ *Not sure/prefer not to say:* ■ *I wasn't interested in viewing my MRI images on my own* ■ *I didn't know how to interpret the images*
		- *[in case of No] Would you like to view your MRI images on your own? Why or why not?*  ■ *Other—Write In I didn't have a software program or application for viewing the files* ■ *Not sure/prefer not to say:* ■ *I wasn't interested in viewing my MRI images on my own*

● If you have or had access to your own MRIs, would you be interested in knowing whether there were any changes between one MRI and the next (such as new lesions

● If you have or had access to your own MRIs, would you be interested in knowing whether the MRI was performed according to the current clinical guidelines for MS?

● If you have or had access to your own MRIs, would you be interested in knowing whether the MRI was performed according to the current clinical guidelines for MS?

○ *[in case of No] Would you like to view your MRI images on your own? Why or why not?* 

● If you have or had access to your own MRIs, would you be interested in knowing whether there were any changes between one MRI and the next (such as new lesions

● If you have or had access to your own MRIs, would you be interested in knowing whether there were any changes between one MRI and the next (such as new lesions

whether the MRI was performed according to the current clinical guidelines for MS?

● If you have or had access to your own MRIs, would you be willing to share your

● If you have or had access to your own MRIs, would you be interested in knowing whether there were any changes between one MRI and the next (such as new lesions

● If you have or had access to your own MRIs, would you be willing to share your

● If you have or had access to your own MRIs, would you be willing to share them with iConquerMS, if asked, and allow iConquerMS to share them with researchers?

● If you have or had access to your own MRIs, would you be willing to share your

● If you have or had access to your own MRIs, would you be willing to share them with iConquerMS, if asked, and allow iConquerMS to share them with researchers?

● If you have or had access to your own MRIs, would you be willing to share your

● If you have or had access to your own MRIs, would you be willing to share them with iConquerMS, if asked, and allow iConquerMS to share them with researchers?

● If you have or had access to your own MRIs, would you be willing to share them with iConquerMS, if asked, and allow iConquerMS to share them with researchers?


electronic MRI with a researcher, if asked? Why or why not?

electronic MRI with a researcher, if asked? Why or why not?

electronic MRI with a researcher, if asked? Why or why not?

electronic MRI with a researcher, if asked? Why or why not?

or loss of brain volume)? Why or why not?

or loss of brain volume)? Why or why not?

or loss of brain volume)? Why or why not?

or loss of brain volume)? Why or why not?

1. Coetzee, T.; Thompson, A.J. Atlas of MS 2020: Informing Global Policy Change. *Mult. Scler.* **2020**, *26*, 1807–1808.

1. Coetzee, T.; Thompson, A.J. Atlas of MS 2020: Informing Global Policy Change. *Mult. Scler.* **2020**, *26*, 1807–1808.

1. Coetzee, T.; Thompson, A.J. Atlas of MS 2020: Informing Global Policy Change. *Mult. Scler.* **2020**, *26*, 1807–1808.

1. Coetzee, T.; Thompson, A.J. Atlas of MS 2020: Informing Global Policy Change. *Mult. Scler.* **2020**, *26*, 1807–1808.

■ *Other—Write In I wasn't interested in viewing my MRI images on my own* ■ *Not sure/prefer not to say:* ■ *I wasn't interested in viewing my MRI images on my own*

■ *I wasn't interested in viewing my MRI images on my own*

■ *I wasn't interested in viewing my MRI images on my own*

■ *I didn't have a software program or application for viewing the files*

■ *I didn't have a software program or application for viewing the files*

■ *I didn't have a software program or application for viewing the files*

○ *[in case of No] Would you like to view your MRI images on your own? Why or why not?*  ■ *Other—Write In Not sure/prefer not to say:* ■ *Not sure/prefer not to say:*

■ *I wasn't sure how to view the images*

■ *I wasn't sure how to view the images*

■ *I wasn't sure how to view the images*

■ *I didn't know how to interpret the images*

■ *I didn't know how to interpret the images*

■ *I didn't know how to interpret the images*

○ *[in case of No] Would you like to view your MRI images on your own? Why or why not?*  ■ *Other—Write In Other—Write In*

■ *Not sure/prefer not to say:*

○ *Not sure/prefer not to say* 

○ *Not sure/prefer not to say* 

○ *Not sure/prefer not to say* 

Check all that apply.

Check all that apply.

Check all that apply.

○ *Other—Write In* 

○ *Other—Write In* 

○ *Other—Write In* 

○ *USB drive/thumb drive* 

○ *USB drive/thumb drive* 

○ *USB drive/thumb drive* 

○ *Not sure/prefer not to say* 

○ *Not sure/prefer not to say* 

○ *Not sure/prefer not to say* 

healthcare provider present?

healthcare provider present?

healthcare provider present?

your own? If so, how?

your own? If so, how?

your own? If so, how?

Check all that apply.

Check all that apply.

Check all that apply.

on your own? If so, how?

on your own? If so, how?

on your own? If so, how?

○ *Direct download into my computer or other device* 

○ *Direct download into my computer or other device* 

○ *Direct download into my computer or other device* 

*Brain Sci.* **2021**, *11*, x FOR PEER REVIEW 25 of 27

*Brain Sci.* **2021**, *11*, x FOR PEER REVIEW 25 of 27

○ *Access through my clinic's patient portal* 

○ *Access through my clinic's patient portal* 

○ *Access through my clinic's patient portal* 

○ *CD/disc* 

○ *CD/disc* 

○ *CD/disc* 

● Would you be interested in having your own copy of your MRI images to view? Why or why not? ● Would you be interested in having your own copy of your MRI images to view? ○ *[in case of No] Would you like to view your MRI images on your own? Why or why not?*  ● Would you be interested in having your own copy of your MRI images to view? # [in case of No] Would you like to view your MRI images on your own? Why or why not?

● Have you ever received or been given access to an electronic copy of your MRI?

● Have you ever received or been given access to an electronic copy of your MRI?

● Have you ever received or been given access to an electronic copy of your MRI?

● Have you ever looked at your own MRI images on your own, without your

● Have you ever looked at your own MRI images on your own, without your

● Have you ever looked at your own MRI images on your own, without your

○ [in case of Yes] Did you find it helpful in any way to view your MRI images on

○ [in case of Yes] Did you find it helpful in any way to view your MRI images on

○ [in case of Yes] Did you find it unhelpful in any way to view your MRI images

○ [in case of Yes] Did you find it helpful in any way to view your MRI images on

○ [in case of Yes] Did you find it unhelpful in any way to view your MRI images

○ [in case of Yes] Did you find it unhelpful in any way to view your MRI images

■ *I couldn't load the images onto my computer or another device where I could view them*

■ *I couldn't load the images onto my computer or another device where I could view them*

■ *I couldn't load the images onto my computer or another device where I could view them*

○ [in case of Yes] How well did you understand the images on your MRI? ○ [in case of No] Why haven't you looked at your MRI images on your own?

○ [in case of Yes] How well did you understand the images on your MRI? ○ [in case of No] Why haven't you looked at your MRI images on your own?

○ [in case of Yes] How well did you understand the images on your MRI? ○ [in case of No] Why haven't you looked at your MRI images on your own?


with iConquerMS, if asked, and allow iConquerMS to share them with researchers?

● If you have or had access to your own MRIs, would you be willing to share them

## **References**

Why or why not? with iConquerMS, if asked, and allow iConquerMS to share them with researchers? 1. Coetzee, T.; Thompson, A.J. Atlas of MS 2020: Informing Global Policy Change. *Mult. Scler.* **2020**, *26*, 1807–1808. [CrossRef]

Why or why not?


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*Brain Sciences* Editorial Office E-mail: brainsci@mdpi.com www.mdpi.com/journal/brainsci

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