April 2018 - 27 articles
Introducing the first mobile app designed specifically for the Thalassemia community; Thalime, your personalized private community. Thalime is a free app that connects patients and caregivers of Thalassemia to others who know what you’re going throug...
Access to the essential medicines is an important challenge in the developing countries. To have access to the quality and affordable medicines, the pharmaceutical decision makers try different strategies. The production of generic and copy medicines...
In response to the fundamental shift that has been taking place in the way chronic diseases are perceived and managed and the increasingly established role of patients as equal partners in the management of their condition, the Thalassaemia Internati...
Access to the essential medicines is an important challenge in the developing countries [...]
The factors determining the health behaviours may be seen in various contexts: physical, socio-economic, cultural and political. So the utilization of a health care system, public or private, formal or non-formal, may depend on socio-demographic fact...
Annual transfusion requirements in Greece exceed 600000 blood units and nearly 20% of them are used for the transfusion of 3.000 patients with Thalassemia. Thalassemia patients need to be transfused properly at the right time and with safe, fresh blo...
Chronic infection with hepatitis C virus (HCV) is a major problem for thalassaemia patients, as blood transfusions before 1990 were associated with a high risk of HCV infection [...]
In many parts of the world, research, improved technology, and better medicine have enabled people with thalassemia to live longer [...]
Although the improvements in the treatment and management of thalassemia patients in new years lead to the improved survival and quality of life (QOL) in this group of patients, QOL is still is an important dimension of care in thalassemic patients [...
The role of the Clinical Nurse Specialist (CNS) is an everdeveloping role that is integral in the care of individuals with haemoglobinopathies [...]
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