Centering Black Women’s Voices: Illuminating Systemic Racism in Maternal Healthcare Experiences
Abstract
:1. Introduction
2. Materials and Methods
- What, if any, difficulties did you experience or are you experiencing during your pregnancy?
- How did you feel about the care you received or are currently receiving from your health practitioner?
- What barriers prevented you from receiving the quality of healthcare that you wanted when you were pregnant or after you delivered your baby?
3. Results and Discussion
3.1. Institutional Barriers to Equitable Maternal Care
I was going to women’s hospital, and they accepted my insurance and then all of a sudden my doctor... switched over to a different hospital... they didn’t accept my insurance and... I had to go back to Harris Health.
...When my daughter, um, when I was being triaged, I don’t know if the nurse that I had was, uh, I had one Black lady nurse and I was cussing. I was, cuz I was in pain, <laugh>. And I still remember to this day that she told me, “Oh, no, no, no, no cussing,” you know, but she was really sweet in her approach. And, and that was my first baby and, you know, [I] didn’t know what to expect. I listened to her and I calmed down. Well, this other [White] nurse came in, she was really handling me. She was rough. Like, I don’t know if she was ready to get off of work or I’m sure she was, but I told her, I said, “You are being too rough with me, ma’am, can you like, you know, just go a little easier?”
...And then when I finally went in, I went at like three o’clock in the morning. I stayed up one night and they say, “Oh, can you come in?” I said, “Okay, I can be there.” And then the [Black] doctor that I had all this time, who knew me, who I developed a relationship, wasn’t there to deliver the baby. And I, I, selected a Black physician just because of, you know, just, you know, cuz you need a Black physician. But when I got there, I had a White lady telling me I had to have a C-section.
...I wanted to um, get a doctor, a Black doctor who could, who I’ll feel more comfortable with during my, uh, appointments. But it was kind of difficult for, for one [to be] assigned [to] me. So that was one of the major things I, I think I had a problem with.
3.2. Inequitable Clinical Care and Provider–Patient Interactions
Um, they said that there wasn’t enough time… but as soon as I got there, ... the first thing that I said is, “I want an epidural, so whatever you do, as long as I get… an epidural… this is what I want...” Because I hadn’t dilated or was only dilated maybe a half a centimeter; they just said, “Oh, you know, well, we need to see if we’re going to even admit you.” And since it was my second baby, I was like, “Well, I don’t dilate until I have the baby… I dilate that day and then I have the baby that day, so I’ve already done this…” They’re like, “We’ll check you in an hour,” and an hour came, and they’re like, “Oh my God, you’re six centimeters dilated.” I was like, “Well, yeah…” And so then they had to get… the order from the nurse… she’s gonna come down. And they checked me again. They’re like, “Oh, okay, well… you’re eight centimeters, we gotta take you upstairs.” By the time I get upstairs, they’re just like, “You’re 10 [centimeters], I’m sorry, it’s too late [for an epidural].” And that was it.
3.3. Navigating Experiences of Everyday Interpersonal Racism
…Oh. Um, like this is my first, this is my first child. So like, I feel like with me, I don’t feel like they gave me a lot of education on what to do and what not to do with a child because it’s certain stuff that like, they would tell me and then like I would ask other mothers and they’ll be like, that’s not what you’re supposed to do. Um, and I just feel like, I don’t know, I feel like the hospitals are really like, bad when it comes to pregnant women because they don’t, I feel like we are kind of like a last in choice to, like, watch over or they’ll put us in somewhere and then, like, they’ll feel, like, forget about us.
4. Conclusions
Author Contributions
Funding
Institutional Review Board Statement
Informed Consent Statement
Data Availability Statement
Conflicts of Interest
References
- Population Reference Bureau (PRB). Black Women Over Three Times More Likely to Die in Pregnancy, Postpartum, than White Women, New Research Finds; Population Reference Bureau: Washington, DC, USA, 2021; Available online: https://www.prb.org/resources/black-women-over-three-times-more-likely-to-die-in-pregnancy-postpartum-than-white-women-new-research-finds/#_ednref6 (accessed on 21 March 2024).
- Hoyert, D.L. Maternal Mortality Rates in the United States, 2021; NCHS Health E-Stats; Centers for Disease Control and Prevention (CDC): Atlanta, GA, USA, 2023. [CrossRef]
- Elias, S.; Feagin, J.R. Racial Theories in Social Science: A Systemic Racism Critique; Routledge: New York, NY, USA, 2016. [Google Scholar]
- Feagin, J.R. Systemic Racism: A Theory of Oppression; Routledge: New York, NY, USA, 2006. [Google Scholar]
- Roberts, D.E. Killing the Black Body: Race, Reproduction, and the Meaning of Liberty; Pantheon Books: New York, NY, USA, 1997. [Google Scholar]
- Washington, H.A. Medical Apartheid: The Dark History of Medical Experimentation on Black Americans from Colonial Times to the Present; Doubleday Books: New York, NY, USA, 2006. [Google Scholar]
- Taylor, J.K. Structural Racism and Maternal Health among Black Women. J. Law Med. Ethics 2020, 48, 506–517. [Google Scholar] [CrossRef] [PubMed]
- Owens, D.C. Medical Bondage: Race, Gender, and the Origins of American Gynecology; University of Georgia Press: Athens, GA, USA, 2017. [Google Scholar]
- Stern, A.M. Sterilized in the Name of Public Health: Race, Immigration, and Reproductive Control in Modern California. Am. J. Public Health 2005, 95, 1128–1138. [Google Scholar] [CrossRef] [PubMed]
- Crear-Perry, J.; Correa-de-Araujo, R.; Johnson, T.L.; McLemore, M.R.; Neilson, E.; Wallace, M. Social and Structural Determinants of Health Inequities in Maternal Health. J. Women Health 2021, 30, 230–235. [Google Scholar] [CrossRef] [PubMed]
- Hoffman, K.M.; Trawalter, S.; Axt, J.R.; Oliver, M.N. Racial Bias in Pain Assessment and Treatment Recommendations, and False Beliefs About Biological Differences Between Blacks and Whites. Proc. Natl. Acad. Sci. USA 2016, 113, 4296–4301. [Google Scholar] [CrossRef]
- Hall, W.J.; Chapman, M.V.; Lee, K.M.; Merino, Y.M.; Thomas, T.W.; Payne, B.K.; Eng, E.; Day, S.H.; Coyne-Beasley, T. Implicit Racial/Ethnic Bias Among Health Care Professionals and Its Influence on Health Care Outcomes: A Systematic Review. Am. J. Public Health 2015, 105, e60–e76. [Google Scholar] [CrossRef] [PubMed]
- Vyas, D.A.; Eisenstein, L.G.; Jones, D.S. Hidden in Plain Sight: Reconsidering the Use of Race Correction in Clinical Algorithms. N. Engl. J. Med. 2020, 383, 874–882. [Google Scholar] [CrossRef] [PubMed]
- Petersen, E.E.; Davis, N.L.; Goodman, D.; Cox, S.; Syverson, C.; Seed, K.; Shapiro-Mendoza, C.; Callaghan, W.M.; Barfield, W. Racial/Ethnic Disparities in Pregnancy-Related Deaths—United States, 2007–2016. MMWR Morb. Mortal. Wkly. Rep. 2019, 68, 762–765. [Google Scholar] [CrossRef] [PubMed]
- Smith, K.L.; Shipchandler, F.; Kudumu, M.; Davies-Balch, S.; Leonard, S.A. “Ignored and Invisible”: Perspectives from Black Women, Clinicians, and Community-Based Organizations for Reducing Preterm Birth. Matern. Child Health J. 2022, 26, 726–735. [Google Scholar] [CrossRef] [PubMed]
- Crenshaw, K. Demarginalizing the Intersection of Race and Sex: A Black Feminist Critique of Antidiscrimination Doctrine, Feminist Theory and Antiracist Politics. Univ. Chic. Leg. Forum 1989, 1, 139–167. [Google Scholar]
- Collins, P.H. Black Feminist Thought: Knowledge, Consciousness, and the Politics of Empowerment, 2nd ed.; Routledge: New York, NY, USA, 2000. [Google Scholar]
- Haraway, D.J. Situated Knowledges: The Science Question in Feminism and the Privilege of Partial Perspective. Fem. Stud. 1988, 14, 575–599. [Google Scholar] [CrossRef]
- Harding, S. The Feminist Standpoint Theory Reader: Intellectual and Political Controversies; Routledge: New York, NY, USA, 2004. [Google Scholar]
- Patel, S.; Doherty, E. Maternal Mortality Rate Spike, Disparities Continue. Axios Houston. Available online: https://www.axios.com/local/houston/2023/03/22/maternal-death-rate-spikes (accessed on 22 March 2023).
- Berger, R. Now I See It, Now I Don’t: Researcher’s Position and Reflexivity in Qualitative Research. Qual. Res. 2015, 15, 219–234. [Google Scholar] [CrossRef]
- Braun, V.; Clarke, V. Using Thematic Analysis in Psychology. Qual. Res. Psychol. 2006, 3, 77–101. [Google Scholar] [CrossRef]
- Bower, K.M.; Geller, R.J.; Perrin, N.A.; Alhusen, J. Experiences of Racism and Preterm Birth: Findings from a Pregnancy Risk Assessment Monitoring System, 2004 Through 2012. Women Health Issues 2018, 28, 495–501. [Google Scholar] [CrossRef]
- Mainous, A.G., 3rd; Baker, R.; Love, M.M.; Gray, D.P.; Gill, J.M. Continuity of Care and Trust in One’s Physician: Evidence from Primary Care in the United States and the United Kingdom. Fam Med. 2001, 33, 22–27. [Google Scholar]
- Renfrew, M.J.; McFadden, A.; Bastos, M.H.; Campbell, J.; Channon, A.A.; Cheung, N.F.; Silva, D.R.A.P.; Downe, S.; Kennedy, H.P.; Malata, A.; et al. Midwifery and Quality Care: Findings from a New Evidence-Informed Framework for Maternal and Newborn Care. Lancet 2014, 384, 1129–1145. [Google Scholar] [CrossRef]
- Force, W.R. Consumption Styles and the Fluid Complexity of Punk Authenticity. Symb. Interact. 2009, 342, 289–309. [Google Scholar] [CrossRef]
- Thornton, S. Club Cultures: Music, Media, and Subcultural Capital; Wesleyan University Press: Middletown, CT, USA, 1996. [Google Scholar]
- LaVeist, T.A.; Nuru-Jeter, A.; Jones, K.E. The Association of Doctor-Patient Race Concordance with Health Services Utilization. J. Public Health Policy 2003, 24, 312–323. [Google Scholar] [CrossRef]
- Meghani, S.H.; Byun, E.; Gallagher, R.M. Time to Take Stock: A Meta-analysis and Systematic Review of Analgesic Treatment Disparities for Pain in the United States. Pain Med. 2012, 13, 150–174. [Google Scholar] [CrossRef]
- Sakala, C.; Declercq, E.R.; Turon, J.M.; Corry, M.P. Listening to Mothers in California: A Population-based Survey of Women’s Childbearing Experiences, Full Survey Report; National Partnership for Women & Families: Washington, DC, USA, 2018. [Google Scholar]
- Charles, C.; Gafni, A.; Whelan, T. Decision-making in the Physician–Patient Encounter: Revisiting the Shared Treatment Decision-making Model. Soc. Sci. Med. 1999, 49, 651–661. [Google Scholar] [CrossRef] [PubMed]
- Declercq, E.R.; Sakala, C.; Corry, M.P.; Applebaum, S.; Herrlich, A. Major Survey Findings of Listening to Mothers(SM) III: Pregnancy and Birth. J. Perinat. Educ. 2014, 23, 9–16. [Google Scholar] [CrossRef]
- Madula, P.; Kalembo, F.W.; Yu, H.; Kaminga, A.C. Healthcare Provider-Patient Communication: A Qualitative Study of Women’s Perceptions during Childbirth. Reprod Health. 2018, 15, 135. [Google Scholar] [CrossRef]
- National Academies of Sciences, Engineering, and Medicine. The Surgeon General’s Call to Action to Improve Maternal Health; The National Academies Press: Washington, DC, USA, 2021. [Google Scholar]
- Galletta, M.; Portoghese, I.; Carta, M.G.; D’Aloja, E.; Campagna, M. The Effect of Nurse-Physician Collaboration on Job Satisfaction, Team Commitment, and Turnover Intention in Nurses. Res. Nurs. Health. 2016, 39, 375–385. [Google Scholar] [CrossRef]
- Attanasio, L.; Kozhimannil, K.B. Patient-Reported Communication Quality and Perceived Discrimination in Maternity Care. Med. Care. 2015, 53, 863–871. [Google Scholar] [CrossRef]
- Howell, E.A. Reducing Disparities in Severe Maternal Morbidity and Mortality. Clin. Obstet. Gynecol. 2018, 61, 387–399. [Google Scholar] [CrossRef]
- Janevic, T.; Zeitlin, J.; Egorova, N.; Hebert, P.L.; Balbierz, A.; Howell, E.A. Neighborhood Racial and Economic Polarization, Hospital of Delivery, and Severe Maternal Morbidity. Health Aff. (Millwood) 2020, 39, 768–776. [Google Scholar] [CrossRef] [PubMed]
- Bailey, Z.D.; Krieger, N.; Agénor, M.; Graves, J.; Linos, N.; Bassett, M.T. Structural Racism and Health Inequities in the USA: Evidence and Interventions. Lancet 2017, 389, 1453–1463. [Google Scholar] [CrossRef]
- Giurgescu, C.; Zenk, S.N.; Templin, T.N.; Engeland, C.G.; Kavanaugh, K.; Misra, D.P. The Impact of Neighborhood Conditions and Psychological Distress on Preterm Birth in African-American Women. Public Health Nurs. 2017, 34, 256–266. [Google Scholar] [CrossRef] [PubMed]
- Rosenthal, L.; Lobel, M. Explaining Racial isparities in Adverse Birth Outcomes: Unique Sources of Stress for Black American Women. Soc. Sci. Med. 2011, 72, 977–983. [Google Scholar] [CrossRef] [PubMed]
- Wishart, D.; Cruz Alvarez, C.; Ward, C.; Danner, S.; O’Brian, C.A.; Simon, M. Racial and Ethnic Minority Pregnant Patients with Low-Income Experiences of Perinatal Care: A Scoping Review. Health Equity. 2021, 5, 554–568. [Google Scholar] [CrossRef]
- Richman, L.S.; Jonassaint, C. The Effects of Race-Related Stress on Cortisol Reactivity in the Laboratory: Implications of the Duke Lacrosse Scandal. Ann. Behav. Med. 2008, 35, 105–110. [Google Scholar] [CrossRef]
- Nuru-Jeter, A.; Chae, D.H.; Price, M.; Telesford, J.; Mendoza-Denton, R.; Woods-Giscombe, C. Abstract 9550: Anticipatory Racism Threat and Superwoman Schema: Elucidating the Relationship Between Racial Discrimination and Chronic Inflammation. Circulation 2018, 128, A9550. [Google Scholar] [CrossRef]
- Geronimus, A.T.; Hicken, M.; Keene, D.; Bound, J. “Weathering” and Age Patterns of Allostatic Load Scores Among Blacks and Whites in the United States. Am. J. Public Health 2006, 96, 826–833. [Google Scholar] [CrossRef] [PubMed]
- Hammond, W.P. Psychosocial Correlates of Medical Mistrust Among African American Men. Am. J. Community Psychol. 2010, 45, 87–106. [Google Scholar] [CrossRef] [PubMed]
- Novacek, D.M.; Hampton-Anderson, J.N.; Ebor, M.T.; Loeb, T.B.; Wyatt, G.E. Mental Health Ramifications of the COVID-19 Pandemic for Black Americans: Clinical and Research Recommendations. Psychol. Trauma Theory Res. Pract. Policy. 2020, 12, 449–451. [Google Scholar] [CrossRef] [PubMed]
- Chambers, B.D.; Taylor, B.; Nelson, T.; Harrison, J.; Bell, A.; O’Leary, A.; Arega, H.A.; Hashemi, S.; McKenzie- Sampson, S.; Scott, K.A.; et al. Clinicians’ Perspectives on Racism and Black Women’s Maternal Health. Womens. Health Rep. 2022, 3, 476–482. [Google Scholar] [CrossRef] [PubMed]
- Scott, K.A.; Britton, L.; McLemore, M.R. The Ethics of Perinatal Care for Black Women: Dismantling the Structural Racism in ‘Mother Blame’ Narratives. J. Perinat. Neonatal Nurs. 2019, 33, 108–115. [Google Scholar] [CrossRef]
- Williams, D.R.; Lawrence, J.A.; Davis, B.A. Racism and Health: Evidence and Needed Research. Annu. Rev. Public Health 2019, 40, 105–125. [Google Scholar] [CrossRef] [PubMed]
- Alsan, M.; Garrick, O.; Graziani, G. Does Diversity Matter for Health? Experimental Evidence from Oakland. Am. Econ. Rev. 2019, 109, 4071–4111. [Google Scholar] [CrossRef]
- Baptiste, D.-L.; Caviness-Ashe, N.; Josiah, N.; Commodore-Mensah, Y.; Arscott, J.; Wilson, P.R.; Starks, S. Henrietta Lacks and America’s Dark History of Research Involving African Americans. Nurs. Open 2022, 9, 2236–2238. [Google Scholar] [CrossRef]
- Denzin, N.K.; Lincoln, Y.S. The SAGE Handbook of Qualitative Research; Sage Publications: Thousand Oaks, CA, USA, 2018. [Google Scholar]
- Dwyer, S.C.; Buckle, J.L. The Space Between: On Being an Insider-Outsider in Qualitative Research. Int. J. Qual. Methods 2009, 8, 54–63. [Google Scholar] [CrossRef]
- Creswell, J.W.; Clark, V.L.P. Designing and Conducting Mixed Methods Research; Sage Publications: Thousand Oaks, CA, USA, 2017. [Google Scholar]
Characteristic | Respondents (n=27) |
---|---|
Age Range | |
19–40 | |
Education | |
Less than high school diploma | 1 |
High school or GED | 6 |
Some college | 5 |
Associate degree | 3 |
Bachelor’s degree | 6 |
Graduate | 6 |
Number of Weeks Pregnant | |
27–40 | 6 |
14–26 | 4 |
13 or less | 3 |
Post-pregnancy | 14 |
Chronic Health Conditions | |
Yes | 4 |
No | 23 |
Doula | |
Yes | 2 |
No | 25 |
Midwife | |
Yes | 7 |
No | 20 |
Type of Birth (All pregnancies) | |
Vaginal with medication | 6 |
Vaginal without medication | 8 |
C-Section | 11 |
Both | 1 |
Not yet delivered | 1 |
Themes | Subthemes | Number of Participants |
---|---|---|
1. Institutional barriers to equitable maternal care: Systemic obstacles limiting Black women’s access to quality maternal healthcare. | ||
Lack of diversity among healthcare providers | 6 | |
Insurance and financial barriers | 8 | |
Lack of hospital resources and staff | 5 | |
Total | 19 | |
2. Inequitable clinical care and provider-patient interactions: Disparities in care quality and communication between providers and Black women. | ||
Inadequate pain management | 4 | |
Disregard for patient autonomy | 4 | |
Communication breakdowns | 7 | |
Provider absence and unavailability | 1 | |
Total | 16 | |
3. Navigating experiences of everyday, interpersonal racism: The pervasive impact of racism on Black women’s daily lives and healthcare experiences. | ||
Medical mistrust, neglect, and exploitation | 6 | |
Weathering and chronic stress | 2 | |
Distressing and dismissive interactions with providers | 3 | |
Total | 11 |
Disclaimer/Publisher’s Note: The statements, opinions and data contained in all publications are solely those of the individual author(s) and contributor(s) and not of MDPI and/or the editor(s). MDPI and/or the editor(s) disclaim responsibility for any injury to people or property resulting from any ideas, methods, instructions or products referred to in the content. |
© 2024 by the authors. Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https://creativecommons.org/licenses/by/4.0/).
Share and Cite
Brailey, C.; Slatton, B.C. Centering Black Women’s Voices: Illuminating Systemic Racism in Maternal Healthcare Experiences. Societies 2024, 14, 70. https://doi.org/10.3390/soc14050070
Brailey C, Slatton BC. Centering Black Women’s Voices: Illuminating Systemic Racism in Maternal Healthcare Experiences. Societies. 2024; 14(5):70. https://doi.org/10.3390/soc14050070
Chicago/Turabian StyleBrailey, Carla, and Brittany C. Slatton. 2024. "Centering Black Women’s Voices: Illuminating Systemic Racism in Maternal Healthcare Experiences" Societies 14, no. 5: 70. https://doi.org/10.3390/soc14050070
APA StyleBrailey, C., & Slatton, B. C. (2024). Centering Black Women’s Voices: Illuminating Systemic Racism in Maternal Healthcare Experiences. Societies, 14(5), 70. https://doi.org/10.3390/soc14050070