Neglect of Children with Disabilities: A Scoping Review
Abstract
:1. Introduction
1.1. Child Neglect
1.2. Research Objective
2. Methods
2.1. Search Strategy
2.2. Selection Criteria
2.2.1. Inclusion Criteria
2.2.2. Exclusion Criteria
2.3. Selection of Studies
2.4. Data Coding
3. Results
3.1. Characteristics of Articles Included in the Review
3.2. Increased Prevalence of Neglect and Abuse Among Children with Disabilities
3.3. Differences Among Disability Types
3.4. Characteristics of Neglect
3.5. Risk Factors
3.6. Protective Factors
4. Discussion
4.1. Implications for Policy and Practice
4.2. Research Gaps and Future Studies
5. Conclusions
Funding
Conflicts of Interest
References
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Reference No. | Year | Country | Participants | Child Characteristics | Disability | Study Design |
[32] | 2016 | Hong Kong China | 424 children & parents | 86.1% parents Average age 43.60 years 16.7% children Children 10.4 years | ASD | Quantitative research |
[2] | 2018 | Canada | 5797 children | 0–14 years | Intellectual disability | Analysis of cross-sectional dataset |
[30] | 2015 | China | 180 parents | 2–5 years children 138 boys, 42 girls. Parents: 41 fathers aged 34.5, 139 mothers aged 32.5 | Autism | Cross-sectional study |
[34] | 2019 | Tennessee, USA | 387 children | 10 years of age. Have ASD | Autism spectrum disorder | Report |
[37] | 2024 | Saudi Arabia | 186 children | Aged 14–17 years (M = 15.7 years; SD = 3.41 years) | Deaf and hard-of-hearing | Quantitative research |
[35] | 2021 | Japan | 378 children | Age 6 to 18. Under institutional care. 45.2% girls, mean [SD] age = 12.6 [3.4] years | ADHD Autism spectrum | Quantitative research |
[31] | 2020 | Israel | 56,816 children | Children without disabilities (53,739) or those with a developmental disability (3077) 49.5% boys, with a mean age of 6.7 years The age range was composed of 41% up to 5 years old, 37% between 6 and 10 years old, and 22% from 11 to 15 years old. More than half were Arabs (57%), 34% were from the general sector, and 9% were Haredi (Ultra-Orthodox Jews) | Having a medical record with a developmental diagnosis (e.g., autism, intellectual disability, ADHD; developmental language disorder; developmental coordination Disorder), received a series of developmental treatments (occupational therapy, physiotherapy, language therapy) | Cohort study |
[28] | 2024 | Australia | 27 reports | 4-years-old | Intellectual disability | Foucauldian discourse analysis |
[29] | 2017 | Western Australia | Children born between 1990 and 2010 | 524,534 children in the population cohort. 4.6% had a maltreatment allegation. Overall, 25.9% of child maltreatment allegations and 29.0% of substantiated allegations involved a child with a disability | Intellectual disability Down syndrome Birth defects/cerebral palsy (all congenital malformations and cerebral palsy) Autism Conduct disorder Mental and behavioral disorder | Population-based record-linkage study |
[38] | 2022 | Maceió, Northeast Brazil | 265 children | 240 (90.6%), moderate hearing loss. 25 severe hearing loss. 189 (71.3%), were male, and 157 (59.2%) were under 10 years of age | Deaf or hard-of-hearing | Cross-sectional study |
[33] | 2019 | USA | 789 children | 2–17 years 700 children not maltreated 80 children neglected. 89 experienced neglect and/or physical or sexual abuse | Autism | Analyses conducted retrospectively on existing clinical record |
[36] | 2019 | South Carolina | 4988 children | 1992, 1994, 1996, and 1998. Children with ASD-only (n = 316), ASD+ID (n = 291), and ID-only (n = 1280) | ASD ASD+ID ID | Using record linkage between the Department of Social Services (DSS) and the Autism and Developmental Disabilities Monitoring (ADDM) network |
[4] | 2018 | Canada | 1012 children | 62 with ID | Intellectual disabilities | Secondary use of data derived |
[26] | 2023 | USA | 106 fatalities | Average age 5.9 years 74.6% were male | Attention deficit hyperactivity disorder, autism spectrum disorder, cerebral palsy, and/or traumatic brain injury | Retrospective analyses |
[39] | 2024 | Türkiye | 196 children 98 with SLD 98 control group | 60 males, 38 females 9.16 average age of child with SLD, 9.52 average age of control group | Specific learning disorders (SLDs) | Single-center cross-sectional case–control study |
[25] | 2019 | China | 5726 children | Middle and high school students aged 12–18 years old | Physical disability | Quantitative research |
Reference No. | Year | Aim of Study | Psychosocial Outcomes | Recommendations and Conclusions |
[32] | 2016 | To examine different individual and environmental influences as potential risk factors for harsh discipline among parents of children with ASD. To examine the link between psychological aggression and physical assault. | Child symptom severity, parenting stress, family economic pressure, and experienced discrimination were positively associated with parental psychological aggression. Child symptom severity and parenting stress were positively associated with parental physical assault. Parenting stress continued to be significantly linked to psychological aggression, while child symptom severity and parenting stress explained unique variance in physical assault. The effect of parenting stress on physical assault was partially mediated by psychological aggression. | Future child maltreatment intervention programs should consider teaching parents appropriate ways to respond to their children with ASD and manage their children’s atypical behaviors. |
[2] | 2018 | To gain a better understanding of maltreatment situations of children with ID. To compare maltreated children with ID to those without ID in terms of their characteristics and characteristics of their caregivers, the substantiated child maltreatment report, and child protection service provision. | Functional problems were higher among children with ID and their parents. Children with ID experienced more severe maltreatment and were more often referred to ongoing child protection services | Maltreated children with ID are facing additional challenges that must be accounted for in service planning and delivery. |
[30] | 2015 | To investigate the prevalence of child physical maltreatment in children with autism. To explore the risk factors for severe child physical maltreatment in the children with autism | Child physical maltreatment was widespread in families of children with autism. | The reality that autism is associated with child physical maltreatment probably needs to be addressed in all these areas with better services, more provision of respite, and support and training to help the parents cope with any issues without resorting to child physical maltreatment. |
[34] | 2019 | To rate maltreatment referrals, screening for further action. To examine substantiated maltreatment for children with versus without autism spectrum disorder. | Children with autism spectrum disorder were less likely than children without autism spectrum disorder to have referrals screened. Maltreatment rates were similar across groups. Girls versus boys with autism spectrum disorder were more likely to have substantiated maltreatment. | Ultimately, it is vitally important for states to know the proportion of children within their child protection systems who have ASD in order to develop systems of care inclusive of effective maltreatment prevention, response, assessment, and intervention strategies. |
[37] | 2024 | To determine the prevalence of child maltreatment and to examine its association with depression and anxiety among a sample of deaf and hard-of-hearing students in Saudi Arabia, | About 47.3% of the students were exposed to severe to very severe child maltreatment. The severity of maltreatment varied based on parents’ educational and income level, number of children in the family, the deaf and hard-of-hearing student’s gender, and parents’ hearing status. Child maltreatment was a significant predictor of depression and anxiety in this sample. | It is important to work with parents of deaf and hard-of-hearing children to improve their skills in rearing a child with special needs. Addressing the social stigma and social barriers experienced by DHH individuals through familial, institutional, and community interventions. It is important to recognize parental abuse among DHH children and adolescents as a public health concern and to develop appropriate strategies to prevent the same. |
[35] | 2021 | To investigate the severity of ADHD and ASD symptoms in institutionalized children. To examine the associations of each type of maltreatment with the severity of ADHD and ASD symptoms. To analyze the effect of hyperactivity/impulsivity symptoms and inattentive symptoms separately to determine how each symptom was related to being maltreated. | ADHD and ASD symptoms were frequent in institutionalized children, and the symptoms of ADHD and ASD were associated with the experience of being maltreated. Maltreatment experience before being institutionalized was associated with hyperactive/impulsive symptoms and inattentive symptoms but not with autistic traits. Physical abuse was associated with hyperactive/impulsive symptoms and autistic traits but not with inattentive symptoms. Psychological abuse was associated with hyperactive/impulsive symptoms. Neglect was not associated with inattentive symptoms, hyperactive/impulsive symptoms, or autistic traits. | There is a need for awareness of the range of issues faced by these children and the necessity for interagency collaboration to ensure that their complex needs are addressed. Support is required for families with children with disabilities to assist in meeting the child’s health and developmental needs, as well as to support parents in managing the more complex parenting environment. |
[31] | 2020 | To explore primary care providers reporting rates of suspected child maltreatment among children with disabilities vs. children without disabilities attending community health clinics. | Health professionals identified CM in those with a disability at a higher rate than those without a disability. | Support is necessary for families with children with disabilities to help address the child’s health and developmental needs but also to assist parents in managing the more complex parenting environment. |
[28] | 2024 | To develop an understanding of the narratives that are constructed by and influence public perceptions of people with intellectual disabilities within the context of familial neglect. | The subject positioned construct people with intellectual disabilities as different and vulnerable and presented limited consideration of suffering. The lack of news coverage hindered opportunities for people with intellectual disabilities to participate equally in society. | Social attitudes (presented through the media) about people with intellectual disabilities within the context of family neglect demonstrate social inequality and require change. |
[29] | 2017 | To report the prevalence of different disabilities within the child protection system in an Australian state. To assess the risk of maltreatment in various types of disabilities, taking into account child, family, and neighborhood risk factors. | Children with disabilities make up 10.4% of the population; they represent 25.9% of children with a maltreatment allegation and 29% of those with a substantiated allegation. Children with intellectual disabilities, mental/behavioural problems, and conduct disorders continued to have an increased risk of an allegation and substantiated allegation after adjusting for child, family, and neighborhood risk factors. | The prevalence of disabilities in the child protection system suggests a need for awareness of the scope of issues faced by these children and the need for interagency collaboration. Support is needed for families with children with disabilities to assist in meeting the child’s health and developmental needs but also to support the parents in managing the often more complex parenting environment. |
[33] | 2019 | To determine if autism symptoms differed between children with autism who were and were not maltreated and if the duration of and number of years since removal from neglect were related to symptoms. | Symptoms of autism were likely independent of maltreatment. | Autism in maltreated children should not be considered as “quasi-autism” or possibly temporary because these children may then be denied. Evidence-based intervention that can improve outcomes in children with autism. |
[36] | 2019 | To evaluate the odds of experiencing maltreatment among children with ASD and/or ID in comparison to population controls. | All groups were more likely to experience reported and substantiated physical neglect. Children with ASD+ID and ID-only were more likely to experience reported sexual, physical, and emotional abuse, whereas children with ASD-only were only more likely to experience reported physical abuse. | There is an urgent need for empirically supported assessment and intervention approaches to identify and address trauma-related stress associated with abuse in ASD. |
[38] | 2022 | To verify the frequency of physical assault and psychological aggression, and associated factors experienced by DHH children living in low socioeconomic settings. | 221 children (83.4%) experienced physical assault; 238 (89.8%) experienced psychological aggression. Both physical and psychological aggression were reported for 94.3%. Most mothers (98.1%) reported using nonviolent discipline. Maltreatment was associated with male children, mothers’ job dissatisfaction, religiously nonobservant families, and children born of unintended pregnancy. | There is a need for efforts to address this important problem in low socioeconomic settings. Raising awareness of possible child maltreatment among certain populations of DHH children and developing strategies to reduce maltreatment are needed. It is important to reduce social isolation and the stigma associated with DHH children, to educate caregivers on issues related to deafness, and to provide significant community and educational resources. |
[4] | 2018 | To identify the individual, environmental, and service-related factors that distinguish maltreated children with ID from those without ID. | Neglect was the most common form of substantiated maltreatment of children with ID. | Children with disabilities do not receive the attention to which they are entitled, in terms of public policy, research, and practice. |
[26] | 2023 | To identify and characterize child maltreatment-related deaths among CWD using surveillance data, including case narratives. To define the relationship between suspected perpetrators and victims. | Statistically significant relationship between fatalities caused by neglect and diagnoses of attention deficit hyperactivity disorder, autism spectrum disorder, cerebral palsy, and/or traumatic brain injury. Physical abuse and/or neglect resulting in a fatality among children with disabilities were significantly correlated with the relationship of the perpetrator to the victim. | It is important to address educating CWD who have the capacity to understand how to seek help if they are being abused or neglected. |
[39] | 2024 | To compare the rates of neglect and abuse exposure between children diagnosed with SLDs and those with typical development. | Children with SLDs more often came from families with lower parental education levels and were more likely to experience physical and emotional abuse, particularly from peers and family members. The presence of extended family was more common in the SLD group, and over half of these children also had ADHD. No significant difference between the groups in terms of neglect. | Both clinical and educational interventions from the early childhood period would be beneficial for children and for raising awareness in children’s social circles about SLDs in light of the finding that these children were abused by individuals who were close to them and by their peers. |
[25] | 2019 | To identify whether childhood maltreatment mediated the relationship between physical disabilities or long-term health problems and depression. | There were significant differences in childhood maltreatment and depression between adolescents with childhood physical disabilities or long-term health problems and those without. Physical abuse, sexual abuse, emotional abuse, physical neglect, and emotional neglect mediated the association between childhood physical disabilities or long-term health problems and depression. | More attention is needed to be paid to adolescents who experience emotional abuse. To improve the mental health and well-being of children with physical disabilities, we should attach importance to identifying those children who experience childhood maltreatment and provide them with appropriate help. |
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Makhoul Khoury, S.; Cohen, A.; Fabris, M.A.; Gur, A. Neglect of Children with Disabilities: A Scoping Review. Children 2025, 12, 386. https://doi.org/10.3390/children12030386
Makhoul Khoury S, Cohen A, Fabris MA, Gur A. Neglect of Children with Disabilities: A Scoping Review. Children. 2025; 12(3):386. https://doi.org/10.3390/children12030386
Chicago/Turabian StyleMakhoul Khoury, Siwar, Ayala Cohen, Matteo Angelo Fabris, and Ayelet Gur. 2025. "Neglect of Children with Disabilities: A Scoping Review" Children 12, no. 3: 386. https://doi.org/10.3390/children12030386
APA StyleMakhoul Khoury, S., Cohen, A., Fabris, M. A., & Gur, A. (2025). Neglect of Children with Disabilities: A Scoping Review. Children, 12(3), 386. https://doi.org/10.3390/children12030386