Parents’ Challenges beyond the Pediatric Intensive Care Unit: Fraying at the Seams while Balancing between Two Worlds, Home and Hospital
Abstract
:1. Introduction
2. Methods
2.1. Design
2.2. Participants and Setting
2.3. Study Procedure
2.4. Data Analysis
3. Results
3.1. Participants
3.2. Core Category
3.3. Category 1: Bringing My Life to a Halt
3.3.1. Putting Everything on the Back Burner
3.3.2. Being Pulled Back and Forth between Here and Home
3.3.3. Strained by Finances and Separation
3.4. Category 2: Throwing Our Whole Life Off
3.4.1. Being Disruptive to Our Lives
3.4.2. Being Less of a Family
4. Discussion
5. Study Limitations
6. Conclusions
Author Contributions
Funding
Institutional Review Board Statement
Informed Consent Statement
Data Availability Statement
Acknowledgments
Conflicts of Interest
References
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Conversation Starter | Core Interview Questions | Follow-Up Probes |
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ID. | Child Age | Gender | Diagnoses | LOS (Days) | Previous PICU |
---|---|---|---|---|---|
102 | 13 months | Male | Bone marrow transplant, acute respiratory failure | 60 | Yes |
103 | 2 months | Male | Acute bronchiolitis, E. coli UTI | 4 | No |
106 | 8 years | Female | Acute respiratory failure | 4 | Yes |
108 | 8 years | Female | Respiratory distress, developmental disorder | 3 | No |
110 | 11 months | Male | Alagille syndrome, liver transplant | 11 | No |
113 | 39 months | Male | Acute respiratory failure | 81 | No |
114 | 4 months | Female | Chronic GERD | 9 | No |
117 | 9 months | Male | Acute respiratory failure, chronic illness | 4 | Yes |
119 | 35 months | Male | Wilms tumor | 4 | Yes |
122 | 16 years | Male | Kidney transplant | 4 | No |
124 | 6 months | Male | Chronic respiratory failure, chronic illness | 171 | Yes |
127 | 1 month | Female | Respiratory distress, chronic illness | 2 | No |
129 | 13 months | Male | Tracheomalacia, chronic illness | 8 | Yes |
130 | 5 years | Male | Brain tumor | 2 | No |
131 | 17 years | Female | Brain tumor | 14 | No |
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Alzawad, Z.; Lewis, F.M.; Walker, A. Parents’ Challenges beyond the Pediatric Intensive Care Unit: Fraying at the Seams while Balancing between Two Worlds, Home and Hospital. Children 2022, 9, 267. https://doi.org/10.3390/children9020267
Alzawad Z, Lewis FM, Walker A. Parents’ Challenges beyond the Pediatric Intensive Care Unit: Fraying at the Seams while Balancing between Two Worlds, Home and Hospital. Children. 2022; 9(2):267. https://doi.org/10.3390/children9020267
Chicago/Turabian StyleAlzawad, Zainab, Frances Marcus Lewis, and Amy Walker. 2022. "Parents’ Challenges beyond the Pediatric Intensive Care Unit: Fraying at the Seams while Balancing between Two Worlds, Home and Hospital" Children 9, no. 2: 267. https://doi.org/10.3390/children9020267