Sign in to use this feature.

Years

Between: -

Subjects

remove_circle_outline
remove_circle_outline
remove_circle_outline
remove_circle_outline
remove_circle_outline
remove_circle_outline
remove_circle_outline

Journals

Article Types

Countries / Regions

Search Results (31)

Search Parameters:
Keywords = helpline

Order results
Result details
Results per page
Select all
Export citation of selected articles as:
13 pages, 468 KiB  
Article
Adolescent Roles and Reactions to Online Sexual Harassment: Insights from a Croatian deSHAME Study
by Tomislav Ramljak, Lucija Vejmelka and Roberta Matković
Psychol. Int. 2025, 7(1), 26; https://doi.org/10.3390/psycholint7010026 - 14 Mar 2025
Viewed by 602
Abstract
Background. This study examines the behavioral responses of adolescents to online sexual harassment based on their roles as victims, perpetrators, both, or neutral participants. Methods. Data from a national sample of Croatian high school students (N = 2016) were used to investigate the [...] Read more.
Background. This study examines the behavioral responses of adolescents to online sexual harassment based on their roles as victims, perpetrators, both, or neutral participants. Methods. Data from a national sample of Croatian high school students (N = 2016) were used to investigate the influence of these roles on reaction patterns. This study explores coping strategies among students involved in online sexual harassment as victims, perpetrators, or both. Results. Students with dual roles rarely sought help from parents, teachers, or helplines, while perpetrators avoided confiding in friends or siblings. Conversely, uninvolved students were most likely to seek support from these sources. Victims often confided in friends and responded by blocking, confronting, deleting content, or avoiding the harasser. Dual-role students commonly mirrored the harassment they experienced, suggesting a cycle of retaliation and blurred victim–perpetrator boundaries. Interestingly, no significant role-based differences were found for passive responses like ignoring harassment or reporting on social media platforms. Conclusion. These results underline the critical need for targeted interventions to foster digital resilience and tailor support mechanisms based on adolescents’ experiences and roles in online interactions. This research contributes to the understanding of role-specific behavioral dynamics in the digital sphere, offering actionable insights for educators, policymakers, and mental health professionals to enhance online safety and support systems for youth. Full article
Show Figures

Figure 1

11 pages, 884 KiB  
Article
Feasibility of Mental Health Triage Call Priority Prediction Using Machine Learning
by Rajib Rana, Niall Higgins, Kazi Nazmul Haque, Kylie Burke, Kathryn Turner and Terry Stedman
Nurs. Rep. 2024, 14(4), 4162-4172; https://doi.org/10.3390/nursrep14040303 - 20 Dec 2024
Viewed by 1063
Abstract
Background: Optimum efficiency and responsiveness to callers of mental health helplines can only be achieved if call priority is accurately identified. Currently, call operators making a triage assessment rely heavily on their clinical judgment and experience. Due to the significant morbidity and mortality [...] Read more.
Background: Optimum efficiency and responsiveness to callers of mental health helplines can only be achieved if call priority is accurately identified. Currently, call operators making a triage assessment rely heavily on their clinical judgment and experience. Due to the significant morbidity and mortality associated with mental illness, there is an urgent need to identify callers to helplines who have a high level of distress and need to be seen by a clinician who can offer interventions for treatment. This study delves into the potential of using machine learning (ML) to estimate call priority from the properties of the callers’ voices rather than evaluating the spoken words. Method: Phone callers’ speech is first isolated using existing APIs, then features or representations are extracted from the raw speech. These are then fed into a series of deep learning neural networks to classify priority level from the audio representation. Results: Development of a deep learning neural network architecture that instantly determines positive and negative levels in the input speech segments. A total of 459 call records from a mental health helpline were investigated. The final ML model achieved a balanced accuracy of 92% correct identification of both positive and negative instances of call priority. Conclusions: The priority level provides an estimate of voice quality in terms of positive or negative demeanor that can be simultaneously displayed using a web interface on a computer or smartphone. Full article
(This article belongs to the Special Issue Advancing Nursing Care through Innovative Technologies)
Show Figures

Figure 1

13 pages, 257 KiB  
Article
Perspectives on Creating a Chronic Pain Support Line in Portugal: Results of a Focus Group Study among Patients and Healthcare Professionals
by Mariana Cruz, Maria Inês Durães, Patrícia Azevedo, Célia Carvalhal, Simão Pinho and Rute Sampaio
J. Clin. Med. 2024, 13(17), 5207; https://doi.org/10.3390/jcm13175207 - 2 Sep 2024
Viewed by 1185
Abstract
Background: Chronic pain (CP) patients frequently feel misunderstood and experience a lack of support. This led to the creation of support telephone lines in some countries. However, there is no scientific data grounding their development or evaluating their performance. Almost 37% of the [...] Read more.
Background: Chronic pain (CP) patients frequently feel misunderstood and experience a lack of support. This led to the creation of support telephone lines in some countries. However, there is no scientific data grounding their development or evaluating their performance. Almost 37% of the Portuguese adult population suffers from CP, with great costs for patients and the healthcare system. Methods: To determine the viability of a support line for CP in Portugal, a qualitative study was designed, and online focus group meetings, with patients and healthcare professionals, were conducted. Their perspectives, beliefs, and expectations were evaluated and described. Results: This study revealed that a CP support line is a feasible project from the participants’ perspective if its interventions are limited to active listening, emotional support, and tailored suggestions. Conclusions: It has the potential to generate a positive impact on healthcare services, while also contributing to greater equity of access to support. Full article
(This article belongs to the Special Issue Clinical Management of Chronic Pain)
10 pages, 591 KiB  
Article
Helping Frontline Workers in Texas—A Framework for Resource Development
by Karima Lalani, Meredith O’Neal, Simone Lee Joannou, Bhanumathi Gopal and Tiffany Champagne-Langabeer
Int. J. Environ. Res. Public Health 2023, 20(20), 6935; https://doi.org/10.3390/ijerph20206935 - 17 Oct 2023
Cited by 1 | Viewed by 2228
Abstract
First responders disproportionately experience occupational stress when compared to the general population, and COVID-19 has exacerbated this stress. The nature of their duties as law enforcement officers, firefighters, and medics exposes them to repeated trauma, increasing their risk of developing a broad array [...] Read more.
First responders disproportionately experience occupational stress when compared to the general population, and COVID-19 has exacerbated this stress. The nature of their duties as law enforcement officers, firefighters, and medics exposes them to repeated trauma, increasing their risk of developing a broad array of mental health issues, including post-traumatic stress disorder (PTSD), substance use disorder (SUD), and compassion fatigue. This paper describes the need for resources for frontline workers and provides a framework for creating and implementing resources. A team of interdisciplinary subject matter experts developed two major resources. The first resource was a 24/7 helpline to support first responders and healthcare workers experiencing substance use or mental health concerns. The second resource was the First Responders Educational Campaign, which developed and delivered focused training modules on useful topics covering substance use and mental health concerns as they pertain to this workforce. Utilizing core interprofessional principles, content was sourced from multiple disciplines and contrasting perspectives to provide a comprehensive understanding of mental health and substance use issues. The curriculum was designed so that the content was interdisciplinary, interprofessional, and accessible to audiences across disciplines and professions. After engaging more than 1500 individuals, resources developed here have augmented mental health and substance use support resources available to the target population. Full article
(This article belongs to the Special Issue Mental Health Care during COVID-19 Pandemic)
Show Figures

Figure 1

12 pages, 787 KiB  
Article
Combating Loneliness in Older Adults during the COVID-19 Pandemic: Findings from a Volunteer-Based Program in Greece
by Marianna Balta, Konstantinos Katsas, Chrysoula Grigoropoulou, Dimitrios V. Diamantis, Dimitrios Kalogiannis, Nikolaos Drougos, Eleni Fagogeni, Afroditi Veloudaki, Demosthenes Panagiotakos and Athena Linos
Behav. Sci. 2023, 13(10), 804; https://doi.org/10.3390/bs13100804 - 27 Sep 2023
Viewed by 1986
Abstract
The COVID-19 pandemic has exacerbated the feeling of loneliness, especially among older adults. This study aims to investigate any association between COVID-19 cases in Greece and the number of Loneliness Helpline calls at the Friendship at Every Age program and to assess whether [...] Read more.
The COVID-19 pandemic has exacerbated the feeling of loneliness, especially among older adults. This study aims to investigate any association between COVID-19 cases in Greece and the number of Loneliness Helpline calls at the Friendship at Every Age program and to assess whether the interconnection part of the program, which interconnects older adults with volunteers, can combat loneliness/social isolation in older adults. This is a supportive, volunteer-based, social intervention program. A total of 4033 calls were collected from July 2020 to November 2022, in Greece. Older adults who participated in the interconnection part completed baseline (n = 275) and follow-up questionnaires (n = 168), including the UCLA Loneliness Scale. A time-series analysis revealed a positive association in the number of calls with COVID-19 cases (Incidence Rate Ratio per 100 new COVID-19 cases = 1.012; Confidence Interval (95% CI) [1.002, 1.022]). A significant decrease in the Loneliness Scale was observed at follow-up [difference = −0.85; 95% CI (−1.16, −0.54)], with similar results by sex, educational level, and area of living. Loneliness Helpline calls increased during COVID-19 outbreaks, while the interconnection part had a positive impact on older adults, reducing their feeling of loneliness. Similar initiatives are required to better address the needs of the ageing population during and after health crises. Full article
(This article belongs to the Special Issue Wellness and Well-Being of Older People)
Show Figures

Figure 1

11 pages, 337 KiB  
Article
Factors Related to Psychological Distress in Suicide Prevention Supporters during the COVID-19 Pandemic
by Masana Ujihara, Hirokazu Tachikawa, Asumi Takahashi, Towa Gen and Yoshinori Cho
Int. J. Environ. Res. Public Health 2023, 20(6), 4991; https://doi.org/10.3390/ijerph20064991 - 12 Mar 2023
Viewed by 2505
Abstract
Purpose: Psychological distress and related factors in suicide prevention supporters during the COVID-19 pandemic were clarified. Methods: A web-based survey for supporters from helplines or psychiatric institutions was conducted from May to July 2021. It included items about profession, stress and anxiety, and [...] Read more.
Purpose: Psychological distress and related factors in suicide prevention supporters during the COVID-19 pandemic were clarified. Methods: A web-based survey for supporters from helplines or psychiatric institutions was conducted from May to July 2021. It included items about profession, stress and anxiety, and the Kessler Psychological Distress Scale. Results: 818 participants were analyzed. Psychological distress was significantly higher among healthcare workers in psychiatric institutions than among helpline volunteers. The factor most related to psychological distress in both professions was insufficient rest with overwork. Distress in helpline volunteers was related to their lack of ability to support people with suicidal thoughts and suicide attempts, excessive media coverage related to COVID-19, and trouble dealing with complainers. Distress in healthcare workers was related to their lack of ability to provide sufficient support to their clients due to infection prevention measures. Conclusion: Psychological distress among suicide prevention supporters during the pandemic has been affected by overwork, the fact that helpline volunteers cannot be trained in suicide prevention, and the fact that healthcare workers can only provide insufficient support to their clients due to infection prevention measures. To maintain suicide prevention during pandemics, it is necessary to implement measures that are tailored to the factors of psychological distress in supporters. Full article
13 pages, 738 KiB  
Article
Increase in Search Interest for “Suicide” and “Depression” for Particular Days of the Week and Times of Day: Analysis Based on Google Trends
by Jacek Stańdo, Żywilla Fechner, Agnieszka Gmitrowicz, Karl Andriessen, Karolina Krysinska and Adam Czabański
J. Clin. Med. 2023, 12(1), 191; https://doi.org/10.3390/jcm12010191 - 26 Dec 2022
Cited by 4 | Viewed by 3573
Abstract
Depression is the most common disorder in people who attempt suicide or die by suicide. Research review indicate that therapy of depression (including psychoeducation) is one of the main factors in the prevention of suicidal behavior. In this paper we examine the intensification [...] Read more.
Depression is the most common disorder in people who attempt suicide or die by suicide. Research review indicate that therapy of depression (including psychoeducation) is one of the main factors in the prevention of suicidal behavior. In this paper we examine the intensification of search interest for the terms “depression” and “suicide” in Google search engine with regard to the time of day and day of the week in Poland, Germany, Great Britain and Italy. The goal of the study was to determine if there are any days of the week or hours when search for “suicide” and “depression” particularly increases. Numerous studies focusing not only on the seasonality of suicidal behavior, but also on the days of the week and hours, indicate that it is most often undertaken on Mondays in the night and early morning hours. The results of the research being the basis of this paper show a certain time coincidence: first, the increase in search interest for “suicide” and “depression” and then undertaking suicidal behavior (suicide and suicide attempts). Searching for terms “suicide” and “depression” usually took place (except in Italy) at weekends and most often in the late evening hours and at night. The conclusions from the research can be used in suicide prevention activities, for example in determining the hours of operation of individual helpline numbers. Full article
(This article belongs to the Special Issue Triggers of Suicidal Ideation: Multidisciplinary Approach)
Show Figures

Figure 1

9 pages, 274 KiB  
Article
Childhood Predictors of Healthcare Use and Health Status in Early Adulthood: Findings from the Twins Early Development Study
by Paul McCrone and Janet Boadu
Int. J. Environ. Res. Public Health 2022, 19(23), 16349; https://doi.org/10.3390/ijerph192316349 - 6 Dec 2022
Viewed by 1698
Abstract
The use of healthcare services is likely to be associated with need but also the factors relating to the care system and the ability to negotiate around it. Healthcare use and health status may also be associated with the factors that exist in [...] Read more.
The use of healthcare services is likely to be associated with need but also the factors relating to the care system and the ability to negotiate around it. Healthcare use and health status may also be associated with the factors that exist in childhood. This study aims to identify the demographic, clinical, and cognitive characteristics of children at age 4 that impact healthcare use and health status at age 21. The data from the Twins Early Development Study were used. Health problems, healthcare use, and cognitive ability at age 4 were entered into generalised estimating equations to predict the use of general practitioners, outpatient services, counselling, emergency clinic visits, and a healthcare helpline at age 21. Similar models existed for the prediction of whether problems were recorded on the EQ-5D-5L EuroQol instrument. The data on up to 6707 individuals were available for analysis. Sex was a significant predictor of service use, with boys being more likely than girls to later use all services, except for emergency clinic visits. Certain health conditions at age 4 predicted the use of services with models differing according to service type. Greater general cognitive ability predicted higher use of general practitioners, outpatient care, and health helplines. The current health status was strongly predictive of service use. Service use in young adulthood was significantly related to concurrent health status as well as health conditions in childhood. General cognitive ability was significantly associated with the use of general practitioner contacts, outpatient visits, and the use of a health helpline. Full article
12 pages, 310 KiB  
Article
Supporting Traumatic Grief: A Qualitative Analysis of Helper’s Lived Experience
by Diego De Leo, Marta Torres, Andrea Viecelli Giannotti, Josephine Zammarrelli, Laura Tassara and Michela D’Ambros
Int. J. Environ. Res. Public Health 2022, 19(23), 16002; https://doi.org/10.3390/ijerph192316002 - 30 Nov 2022
Cited by 1 | Viewed by 2021
Abstract
Background: Usually managed by trained volunteers, crisis helplines services are of primary importance in community care. However, literature has shown that volunteers may be exposed to a high risk of developing negative psychological consequences in relation to the service performed. Although there [...] Read more.
Background: Usually managed by trained volunteers, crisis helplines services are of primary importance in community care. However, literature has shown that volunteers may be exposed to a high risk of developing negative psychological consequences in relation to the service performed. Although there are numerous studies dedicated to the use of helplines, evidence regarding the experiences of helpers in the context of traumatic losses is still limited. Objective: This study aimed to explore lived experiences of the operators of a crisis line supporting traumatic bereavement. Specifically, it analyzed the psychological impact of interacting with the caller, and the resources and strategies used by the operators themselves. Methods: The study considered 35 operators of the helpline provided by the Italian NGO De Leo Fund, which offers psychological support to survivors of traumatic bereavement. The inclusion criteria were: (a) currently being or having been a helper at the De Leo Fund helpline; and (b) having completed at least 10 shifts in the helpline service. Data were collected through an ad hoc questionnaire, filled online. The thematic analysis technique used Atlas.ti software 8. Results: Four thematic areas emerged from the transcription of the semi-structured interviews. These were: (a) motivation and expectations; (b) emotional and relational impact of the experience as a helper; (c) strategies adopted by operators; and (d) criticalities and strengths. Conclusions: Monitoring helpers’ emotional experiences and the impact of their work overtime emerged in a marked way. The analysis of the strategies and experiences of the operators represents a fundamental factor for the implementation of specific training programs for the management of emergency situations. Full article
(This article belongs to the Section Mental Health)
11 pages, 593 KiB  
Article
Calling for Help—Peer-Based Psychosocial Support for Medical Staff by Telephone—A Best Practice Example from Germany
by Dominik Hinzmann, Andrea Forster, Marion Koll-Krüsmann, Andreas Schießl, Frederick Schneider, Tanja Sigl-Erkel, Andreas Igl and Susanne Katharina Heininger
Int. J. Environ. Res. Public Health 2022, 19(23), 15453; https://doi.org/10.3390/ijerph192315453 - 22 Nov 2022
Cited by 3 | Viewed by 2147
Abstract
Background: A telephone support hotline (PSU-HELPLINE) was established at the beginning of the pandemic due to the burden on health professionals and the lack of support at the workplace. The aim of this study was to evaluate the telephone support service for health [...] Read more.
Background: A telephone support hotline (PSU-HELPLINE) was established at the beginning of the pandemic due to the burden on health professionals and the lack of support at the workplace. The aim of this study was to evaluate the telephone support service for health professionals in terms of its burden, benefits, and mechanisms of action. Methods: Data collection was conducted during and after calls by PSU-HELPLINE counsellors. In addition to the socio-demographic data evaluation, burdens of the callers and the benefits of the calls were collected. The content-analytical evaluation of the stresses as well as the effect factors were based on Mayring’s (2022). Results: Most of the callers were highly to very highly stressed. The usefulness of the conversation was rated as strong to very strong by both callers and counsellors. The PSU-HELPLINE was used primarily for processing serious events and in phases of overload. The support work was carried out through the following aspects of so-called effect factors, among others: psychoeducation, change of perspective, resource activation, problem actualization, connectedness, information, problem solving, self-efficacy, and preservation of resources. Conclusions: The expansion of local peer support structures and the possibility of a telephone helpline are recommended. Further research is needed. Full article
Show Figures

Figure 1

12 pages, 314 KiB  
Article
Assessing and Responding to Suicide Risk in Children and Young People: Understanding Views and Experiences of Helpline Staff
by A. Jess Williams, Juliane A. Kloess, Chloe Gill and Maria Michail
Int. J. Environ. Res. Public Health 2022, 19(17), 10887; https://doi.org/10.3390/ijerph191710887 - 1 Sep 2022
Cited by 4 | Viewed by 4145
Abstract
Introduction: Suicide is a key issue impacting children and young people. Helplines offer unique benefits, such as anonymity, varied communication avenues and low cost, which help to promote help-seeking behaviour. The aim of this study was to explore the views and experiences of [...] Read more.
Introduction: Suicide is a key issue impacting children and young people. Helplines offer unique benefits, such as anonymity, varied communication avenues and low cost, which help to promote help-seeking behaviour. The aim of this study was to explore the views and experiences of helpline organisations of identifying, assessing, and managing suicide risk among children and young people. Methods: Thirteen professionals from three UK-based helplines and online counselling services took part in semi-structured interviews between November 2020 and January 2021 via Zoom. Interviews were transcribed verbatim and analysed using Thematic Analysis. Results: Three superordinate themes were identified: (i) Starting conversations about suicide; (ii) Identifying and responding to “imminent” suicide risk; and (iii) Responses to suicide risk in relation to safeguarding. Limitations: Recruitment was limited by COVID-19 due to the demands needed from helplines at this time. Conclusions: Our findings highlight not only the different types and range of services helpline organisations offer to young people who might be at risk of suicide, but most importantly the distinct role they have in young people’s help-seeking pathway. Full article
17 pages, 383 KiB  
Article
“I Called When I Was at My Lowest”: Australian Men’s Experiences of Crisis Helplines
by Katherine Trail, Michael J. Wilson, Simon M. Rice, Tara Hunt, Jane Pirkis and Zac E. Seidler
Int. J. Environ. Res. Public Health 2022, 19(15), 9143; https://doi.org/10.3390/ijerph19159143 - 27 Jul 2022
Cited by 4 | Viewed by 2888
Abstract
Background: Helplines are an accessible form of support for people struggling with difficulties in their lives and are key services in suicide prevention and intervention. Men’s experiences of telephone helplines are not well understood, despite high male suicide rates. Methods: We conducted an [...] Read more.
Background: Helplines are an accessible form of support for people struggling with difficulties in their lives and are key services in suicide prevention and intervention. Men’s experiences of telephone helplines are not well understood, despite high male suicide rates. Methods: We conducted an online cross-sectional survey with N = 684 Australian men (aged 17–83 years, M = 50.13) using open- and closed-ended questions about their experiences of helplines during the COVID-19 pandemic. Descriptive statistics were analysed to investigate differences between men using and not using helplines. Qualitative responses were analysed using thematic analysis. Results: Within the sample, 100 men (14.6%) had used a helpline service. Men using helplines were more likely to be unemployed and in younger age brackets than those not using helplines. They were also more likely to report experiencing stressors related to COVID-19, including financial stress and job loss, perceived impact on mental health and relationship breakdown. Qualitative analysis indicated varied experiences of helplines, with men shedding light on how their interaction with a counsellor, the structure of services and their expectations of the service impacted their experience. Conclusions: Further in-depth qualitative enquiry in this space is required, with the objective of understanding how helpline services may seek to better engage with male callers. Full article
(This article belongs to the Section Mental Health)
17 pages, 1381 KiB  
Article
Exploring Trauma and Resilience among NYS COVID-19 Pandemic Survivors
by Kip V. Thompson, Elizabeth Eder-Moreau, Sara Cunningham, Yuki Yamazaki and Hang-Yi Chen
Behav. Sci. 2022, 12(8), 249; https://doi.org/10.3390/bs12080249 - 23 Jul 2022
Cited by 3 | Viewed by 2134
Abstract
The New York State (NYS) Office of Mental Health created the NYS COVID-19 Emotional Support Helpline and enlisted graduate students to provide phone-based emotional support initially to the NYS community. This NYS-funded initiative transformed into providing psychosocial support for callers across the United [...] Read more.
The New York State (NYS) Office of Mental Health created the NYS COVID-19 Emotional Support Helpline and enlisted graduate students to provide phone-based emotional support initially to the NYS community. This NYS-funded initiative transformed into providing psychosocial support for callers across the United States. Four NYS doctoral students acted as the helpline agents and received 251 individual calls from May–August 2020. The agents documented the calls with clinical notes which cannot be traced back to specific callers. The purpose of this retrospective qualitative study was to explore the themes that emerged from the calls to give voice to the trauma that callers were reporting during the early phases of the pandemic, and the resilience they demonstrated as they engaged with the Helpline. The agents’ clinical transcripts were converted into codes using a critical-constructivist grounded theory approach with the NVIVO qualitative data analysis software. A second research team audited the initial codes for construct clarity. Emergent themes detailed the unique traumas that helpline callers divulged, how the agents provided support, and the callers’ capacities for resilience. Recommendations are suggested to inform clinicians working with pandemic survivors, to offer guidance on providing distance or virtual interventions as well as to enhance policymakers’ understanding of addressing mental health needs across populations served via the NYS COVID-19 Emotional Support Helpline. Full article
(This article belongs to the Special Issue Frontiers in Resilience Psychology)
Show Figures

Figure A1

15 pages, 284 KiB  
Article
Unselected Population Genetic Testing for Personalised Ovarian Cancer Risk Prediction: A Qualitative Study Using Semi-Structured Interviews
by Faiza Gaba, Samuel Oxley, Xinting Liu, Xin Yang, Dhivya Chandrasekaran, Jatinderpal Kalsi, Antonis Antoniou, Lucy Side, Saskia Sanderson, Jo Waller, Munaza Ahmed, Andrew Wallace, Yvonne Wallis, Usha Menon, Ian Jacobs, Rosa Legood, Dalya Marks and Ranjit Manchanda
Diagnostics 2022, 12(5), 1028; https://doi.org/10.3390/diagnostics12051028 - 19 Apr 2022
Cited by 6 | Viewed by 3620
Abstract
Unselected population-based personalised ovarian cancer (OC) risk assessments combining genetic, epidemiological and hormonal data have not previously been undertaken. We aimed to understand the attitudes, experiences and impact on the emotional well-being of women from the general population who underwent unselected population genetic [...] Read more.
Unselected population-based personalised ovarian cancer (OC) risk assessments combining genetic, epidemiological and hormonal data have not previously been undertaken. We aimed to understand the attitudes, experiences and impact on the emotional well-being of women from the general population who underwent unselected population genetic testing (PGT) for personalised OC risk prediction and who received low-risk (<5% lifetime risk) results. This qualitative study was set within recruitment to a pilot PGT study using an OC risk tool and telephone helpline. OC-unaffected women ≥ 18 years and with no prior OC gene testing were ascertained through primary care in London. In-depth, semi-structured and 1:1 interviews were conducted until informational saturation was reached following nine interviews. Six interconnected themes emerged: health beliefs; decision making; factors influencing acceptability; effect on well-being; results communication; satisfaction. Satisfaction with testing was high and none expressed regret. All felt the telephone helpline was helpful and should remain optional. Delivery of low-risk results reduced anxiety. However, care must be taken to emphasise that low risk does not equal no risk. The main facilitators were ease of testing, learning about children’s risk and a desire to prevent disease. Barriers included change in family dynamics, insurance, stigmatisation and personality traits associated with stress/worry. PGT for personalised OC risk prediction in women in the general population had high acceptability/satisfaction and reduced anxiety in low-risk individuals. Facilitators/barriers observed were similar to those reported with genetic testing from high-risk cancer clinics and unselected PGT in the Jewish population. Full article
15 pages, 725 KiB  
Article
In Search for Comparability: The PECUNIA Reference Unit Costs for Health and Social Care Services in Europe
by Susanne Mayer, Michael Berger, Alexander Konnopka, Valentin Brodszky, Silvia M. A. A. Evers, Leona Hakkaart-van Roijen, Mencia R. Guitérrez-Colosia, Luis Salvador-Carulla, A-La Park, William Hollingworth, Lidia García-Pérez, Judit Simon and on behalf of the PECUNIA Group
Int. J. Environ. Res. Public Health 2022, 19(6), 3500; https://doi.org/10.3390/ijerph19063500 - 16 Mar 2022
Cited by 16 | Viewed by 3685
Abstract
Improving the efficiency of mental healthcare service delivery by learning from international best-practice examples requires valid data, including robust unit costs, which currently often lack cross-country comparability. The European ProgrammE in Costing, resource use measurement and outcome valuation for Use in multi-sectoral National [...] Read more.
Improving the efficiency of mental healthcare service delivery by learning from international best-practice examples requires valid data, including robust unit costs, which currently often lack cross-country comparability. The European ProgrammE in Costing, resource use measurement and outcome valuation for Use in multi-sectoral National and International health economic evaluAtions (PECUNIA) aimed to harmonize the international unit cost development. This article presents the methodology and set of 36 externally validated, standardized reference unit costs (RUCs) for five health and social care services (general practitioner, dentist, help-line, day-care center, nursing home) in Austria, England, Germany, Hungary, The Netherlands, and Spain based on unambiguous service definitions using the extended DESDE PECUNIA coding framework. The resulting PECUNIA RUCs are largely comparable across countries, with any causes for deviations (e.g., country-specific scope of services) transparently documented. Even under standardized methods, notable limitations due to data-driven divergences in key costing parameters remain. Increased cross-country comparability by adopting a uniform methodology and definitions can advance the quality of evidence-based policy guidance derived from health economic evaluations. The PECUNIA RUCs are available free of charge and aim to significantly improve the quality and feasibility of future economic evaluations and their transferability across mental health systems. Full article
Show Figures

Figure 1

Back to TopTop