The Social Support Networks Scale (SSNS) for Family Caregivers of Children with Cancer: A Psychometric Evaluation
Abstract
:1. Introduction
1.1. Pediatric Cancer as a Health Problem
1.2. The Family Caregiver of a Child with Cancer
1.3. Effect of Social Support on Family Caregivers of Children with Cancer
1.4. Instruments for Measuring Social Support
1.5. Instruments for Measuring Social Support in Mexico
1.6. Problem Statement
2. Materials and Methods
2.1. Participants
2.2. Measuring Instruments
2.3. Procedure
2.4. Ethical Considerations
2.5. Statistical Analysis
3. Results
3.1. Sociodemographic Characteristics of Family Caregivers of Children with Cancer
3.2. Determining the Factorial Structure
Testing the Hypothetical Five-Factor Model
3.3. Exploration of the Factorial Structure
3.4. Reliability of the SSRS in Its Final Version (SFS-16 and RSS-4)
3.5. Description of the Distributions
3.6. Concurrent Validity
4. Discussion
5. Conclusions
Author Contributions
Funding
Acknowledgments
Conflicts of Interest
References
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Sociodemographic and Clinical Variables | Value Labels | Caregiver | Child | ||||||
---|---|---|---|---|---|---|---|---|---|
n | % | M | SD | n | % | M | SD | ||
Sex | Woman | 515 | 81 | 302 | 48 | ||||
Man | 118 | 19 | 331 | 52 | |||||
Age (years) | 1–2 | 31.70 | 7.58 | 226 | 35.7 | 5.75 | 4.92 | ||
3–10 | 279 | 44.1 | |||||||
11–17 | 128 | 20.2 | |||||||
18–29 | 266 | 42 | |||||||
30–39 | 260 | 41.1 | |||||||
40–52 | 107 | 16.9 | |||||||
Civil status | Married | 257 | 40.6 | ||||||
Cohabitant | 244 | 38.5 | |||||||
Divorced/separated | 71 | 11.2 | |||||||
Single | 55 | 8.7 | |||||||
Widowed | 6 | 1 | |||||||
Number of children | 1 | 172 | 27.2 | 2.32 | 1.17 | ||||
2 | 202 | 31.9 | |||||||
3 | 183 | 28.9 | |||||||
4–10 | 76 | 12 | |||||||
Scholarship | Unschooled | 18 | 2.8 | ||||||
Primary | 124 | 19.6 | |||||||
Lower secondary | 282 | 44.5 | |||||||
Upper secondary | 163 | 25.8 | |||||||
Higher education | 46 | 7.3 | |||||||
Occupation | Housewife | 413 | 65.2 | ||||||
Office employee | 87 | 13.7 | |||||||
Merchant | 58 | 9.2 | |||||||
Unemployed | 44 | 7 | |||||||
Manual worker | 26 | 4.1 | |||||||
Student | 5 | 0.8 | |||||||
Income | From 0–1 | 390 | 61.6 | ||||||
(minimum wages) * | From 1–2 | 140 | 22.1 | ||||||
From 2–3 | 85 | 13.4 | |||||||
From 3–4 | 9 | 1.4 | |||||||
From 4–6 | 6 | 0.9 | |||||||
From 6–8 | 2 | 0.3 | |||||||
Hospitalization time | ≤1 week | 392 | 61.9 | ||||||
≤1 month | 148 | 23.4 | |||||||
<6 months | 50 | 7.9 | |||||||
<2 years | 20 | 3.2 | |||||||
≥2 years | 23 | 3.6 | |||||||
Diagnosis | Leukemia | 280 | 44.2 | ||||||
Lymphoma | 157 | 24.8 | |||||||
CNS tumors | 83 | 13.1 | |||||||
Rhabdomyosarcoma | 44 | 6.9 | |||||||
Neuroblastoma | 33 | 5.2 | |||||||
Wilms’ tumor | 20 | 3.2 | |||||||
Retinoblastoma | 13 | 2.1 | |||||||
Bone tumors | 3 | 0.5 |
χ2 | χ2 | df | p | χ2/df | RMSEA (90% CI) | TLI | CFI | GFI | AGFI | SRMR |
---|---|---|---|---|---|---|---|---|---|---|
1. Five factors [32]. Subsample A (n = 316) | ||||||||||
2537.851 | 935 | <0.001 | 2.714 | 0.074 (0.070, 0.077) | 0.742 | 0.756 | 0.693 | 0.652 | 0.073 | |
2. Four factors with 33 items (EFA). Subsample A (n = 316) | ||||||||||
1441.219 | 489 | <0.001 | 2.947 | 0.079 (0.074, 0.083) | 0.806 | 0.820 | 0.773 | 0.739 | 0.063 | |
3a. Three factors for socio-family support with 16 items (CFA). Subsample A (n = 316) | ||||||||||
213.231 | 101 | <0.001 | 2.111 | 0.059 (0.048, 0.071) | 0.931 | 0.942 | 0.926 | 0.901 | 0.055 | |
3b. Single-factor model with 4 indicators for religious support. Subsample A (n = 316) | ||||||||||
4.792 | 2 | 0.091 | 2.396 | 0.067 (0, 0.146) | 0.975 | 0.992 | 0.993 | 0.964 | 0.022 | |
4a. Three factors for socio-family support with 16 items. Subsample B (n = 317) | ||||||||||
275.856 | 101 | <0.001 | 2.731 | 0.074 (0.064, 0.085) | 0.909 | 0.923 | 0.903 | 0.870 | 0.056 | |
4b. Single-factor model with 4 indicators for religious support. Subsample B (n = 317) | ||||||||||
0.378 | 2 | 0.828 | 0.189 | 0 (0, 0.066) | 1 | 1 | 0.999 | 0.997 | 0.006 |
Models | NI | Sample | ||||||
---|---|---|---|---|---|---|---|---|
Total (n = 633) | B (n = 317) | |||||||
λ2 | ω | AVE | r2Fi,F2 | r2Fi,F3 | r2Fi,F4 | r2Fi,F5 | ||
López-Peñaloza [32] | 45 | 0.926 | ||||||
F1: Friend support | 15 | 0.913 | 0.912 | 0.414 | 0.236 | 0.099 | 0.017 | 0.908 |
F2: Family support | 15 | 0.921 | 0.924 | 0.456 | 0.346 | 0.008 | 0.238 | |
F3: Lack of support | 7 | 0.703 | 0.698 | 0.272 | <0.001 | 0.079 | ||
F4: Religious support | 4 | 0.775 | 0.779 | 0.474 | 0.027 | |||
F5: Neighbor support | 4 | 0.606 | 0.576 | 0.269 | ||||
EFA—4 factors | 33 | 0.908 | ||||||
Adjusted model: 4 factors | 20 | 0.846 | ||||||
SFS-16: 3 factors | 16 | 0.875 | ||||||
F1: Family support | 6 | 0.881 | 0.888 | 0.571 | 0.130 | 0.293 | ||
F2: Friend support | 6 | 0.865 | 0.881 | 0.554 | 0.053 | |||
F3: Lack of support | 4 | 0.717 | 0.714 | 0.387 | ||||
Single-factor model for religious support | 4 | 0.775 | 0.781 | 0.476 |
Items | Statistics | Structure Loadings | ||||
---|---|---|---|---|---|---|
M | SD | FAS | FRS | RS | LS | |
1. My family cares for me as I care for them. | 4.263 | 0.975 | 0.712 | |||
3. In my family, we are all equally important. | 4.525 | 0.806 | 0.695 | |||
4. My faith in God helps me overcome any difficulty. | 4.351 | 0.855 | 0.630 | |||
7. My family trusts me, and I trust them. | 4.411 | 0.802 | 0.671 | |||
8. I feel supported by my parents. | 4.218 | 1.095 | 0.668 | |||
9. Our family is very close. | 4.174 | 1.020 | 0.788 | |||
12. I have my partner’s support. | 4.095 | 1.261 | 0.470 | |||
14. We talk about problems in our family. | 4.196 | 0.985 | 0.727 | |||
15. When a problem comes up in my family, we solve it violently. | 1.595 | 0.926 | 0.466 | |||
16. When I have problems, I go to church. | 3.266 | 1.112 | 0.510 | |||
18. My friends and I get together to talk, go to parties, go to the movies, etc. | 2.987 | 1.171 | 0.629 | |||
21. In my family, we encourage each other to improve ourselves. | 4.222 | 0.916 | 0.752 | |||
22. My friends and I know very little about each other. | 2.722 | 1.095 | 0.523 | |||
23. My family and I cannot spend much time together because we fight. | 2.101 | 1.161 | 0.632 | |||
24. My friends support me when I need them. | 3.592 | 1.036 | 0.555 | |||
25. There is not enough trust in my family. | 2.196 | 1.232 | 0.455 | |||
26. It is difficult to work with friends because we end up fighting. | 2.203 | 1.091 | 0.596 | |||
27. At work, most of my colleagues and I form a team to stay ahead. | 3.623 | 1.005 | 0.500 | |||
28. Prayer groups help me overcome things. | 3.649 | 1.177 | 0.715 | |||
30. My friends and I know each other very well. | 3.294 | 0.972 | 0.680 | |||
31. Outside of work, my colleagues and I get together to go out. | 3.098 | 1.051 | 0.683 | |||
33. When someone gets sick in my family, everyone worries. | 4.373 | 0.963 | 0.708 | |||
34. My friends and I visit each other’s houses. | 3.307 | 1.091 | 0.694 | |||
35. At work, we hide information that is useful for everyone. | 2.373 | 1.017 | 0.457 | |||
36. My religious beliefs help me overcome any problem. | 3.899 | 1.079 | 0.850 | |||
37. Living within my family is excellent. | 3.949 | 0.914 | 0.742 | |||
38. My friends seek each other to discuss our problems. | 3.446 | 1.011 | 0.740 | |||
39. At work, we lend each other books, articles, etc. | 3.089 | 1.041 | 0.651 | |||
41. In my family, we are very communicative with each other. | 3.953 | 1.027 | 0.727 | |||
42. My friends and I think friendship comes first. | 3.589 | 0.944 | 0.689 | |||
43. It is normal to speak openly in our family. | 4.028 | 0.934 | 0.756 | |||
44. Despite our activities, we make time to spend as a family. | 4.142 | 0.927 | 0.740 | |||
45. My friends and I think that our friendship is valuable. | 3.788 | 0.954 | 0.813 | |||
Number of items | 13 | 10 | 4 | 6 | ||
Guttman’s λ2 | 0.924 | 0.887 | 0.774 | 0.721 |
Statistics | SFS-16 | FAS-6 | FRS-6 | LS-4 | RSS-4 |
---|---|---|---|---|---|
[1, 1.8) | 0.5% | 3% | 6.6% | 47.4% | 2.7% |
[1.8, 2.6) | 4% | 1.4% | 14.8% | 31.3% | 6.3% |
[2.6, 3.4) | 21.8% | 7% | 38.4% | 14.7% | 19.1% |
[3.4, 4.2) | 51% | 34.4% | 32.4% | 5.7% | 36.3% |
[4.2, 5] | 22.7% | 54.2% | 7.7% | 0.9 | 35.6% |
M | 3.756 | 4.176 | 3.166 | 1.989 | 3.773 |
SD | 0.615 | 0.790 | 0.844 | 0.810 | 0.822 |
Mdn | 3.813 | 4.333 | 3.167 | 2 | 4 |
SIQR | 0.406 | 0.500 | 0.500 | 0.625 | 0.500 |
ZSk | −6.938 | −17.711 | −3.557 | 7.361 | −7.907 |
ZK3 | 4.376 | 19.644 | 0.546 | 1.165 | 2.582 |
K2 | 67.290 *** | 699.591 *** | 12.949 *** | 55.539 *** | 69.193 *** |
Max(│D│) | 0.060 *** | 0.148 *** | 0.098 *** | 0.123 *** | 0.132 *** |
P10 | 3.000 | 3.333 | 2 | 1 | 2.750 |
P20 | 3.250 | 3.667 | 2.5 | 1 | 3 |
P25 | 3.375 | 3.833 | 2.667 | 1.250 | 3.250 |
P30 | 3.500 | 4 | 2.833 | 1.500 | 3.500 |
P40 | 3.625 | 4.167 | 3 | 1.750 | 3.750 |
P50 | 3.813 | 4.333 | 3.167 | 2 | 4 |
P60 | 4.000 | 4.500 | 3.500 | 2 | 4 |
P70 | 4.125 | 4.667 | 3.667 | 2.250 | 4.250 |
P75 | 4.188 | 4.833 | 3.667 | 2.500 | 4.250 |
P80 | 4.250 | 4.833 | 3.833 | 2.750 | 4.500 |
P90 | 4.438 | 5 | 4.167 | 3 | 4.750 |
Scale | Factor | λ2 | SFS-16 | FAS-6 | FRS-6 | LS-4 | RSS-4 |
---|---|---|---|---|---|---|---|
Family functioning scale | 0.888 | 0.642 ** | 0.616 ** | 0.309 ** | −0.600 ** | 0.020 ns | |
Positive family environment | 0.789 | 0.584 ** | 0.579 ** | 0.304 ** | −0.467 ** | 0.037 ns | |
Cohesion | 0.804 | 0.536 ** | 0.597 ** | 0.251 ** | −0.439 ** | 0.073 ns | |
Hostility | 0.679 | −0.394 ** | −0.422 ** | −0.156 ** | 0.409 ** | −0.037 ns | |
Troubles with rules/feelings | 0.695 | −0.481 ** | −0.368 ** | −0.243 ** | 0.533 ** | 0.043 ns | |
Quality of life scale | Quality of life scale | 0.866 | 0.411 ** | 0.385 ** | 0.233 ** | −0.316 ** | −0.078 ns |
Physical health | 0.529 | 0.182 ** | 0.159 ** | 0.102 * | −0.123 ** | −0.086 * | |
Psychological health | 0.568 | 0.330 ** | 0.341 ** | 0.174 ** | −0.263 ** | 0.020 ns | |
Social relationships | 0.680 | 0.418 ** | 0.357 ** | 0.258 ** | −0.344 ** | −0.039 ns | |
Environment | 0.763 | 0.397 ** | 0.354 ** | 0.245 ** | −0.310 ** | −0.102 ** | |
General quality of life | - | 0.385 ** | 0.407 ** | 0.174 ** | −0.267 ** | −0.006 ns | |
Health condition | - | 0.346 ** | 0.330 ** | 0.182 ** | −0.271 ** | −0.014 ns | |
Resilience scale | 0.952 | 0.438 ** | 0.493 ** | 0.234 ** | −0.329 ** | 0.070 ns | |
Strength and confidence | 0.938 | 0.263 ** | 0.329 ** | 0.100 * | −0.231 ** | −0.024 ns | |
Social competence | 0.863 | 0.343 ** | 0.288 ** | 0.291 ** | −0.226 ** | 0.103 ** | |
Family support | 0.893 | 0.493 ** | 0.590 ** | 0.181 ** | −0.391 ** | 0.061 ns | |
Social support | 0.917 | 0.526 ** | 0.546 ** | 0.297 ** | −0.377 ** | 0.125 ** | |
Structure | 0.760 | 0.172 ** | 0.216 ** | 0.152 ** | −0.033ns | 0.070 ns |
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Toledano-Toledano, F.; Moral de la Rubia, J.; Reyes Frometa, R.; González Betanzos, F.; Villavicencio Guzmán, L.; Salazar García, M. The Social Support Networks Scale (SSNS) for Family Caregivers of Children with Cancer: A Psychometric Evaluation. Int. J. Environ. Res. Public Health 2020, 17, 7820. https://doi.org/10.3390/ijerph17217820
Toledano-Toledano F, Moral de la Rubia J, Reyes Frometa R, González Betanzos F, Villavicencio Guzmán L, Salazar García M. The Social Support Networks Scale (SSNS) for Family Caregivers of Children with Cancer: A Psychometric Evaluation. International Journal of Environmental Research and Public Health. 2020; 17(21):7820. https://doi.org/10.3390/ijerph17217820
Chicago/Turabian StyleToledano-Toledano, Filiberto, José Moral de la Rubia, René Reyes Frometa, Fabiola González Betanzos, Laura Villavicencio Guzmán, and Marcela Salazar García. 2020. "The Social Support Networks Scale (SSNS) for Family Caregivers of Children with Cancer: A Psychometric Evaluation" International Journal of Environmental Research and Public Health 17, no. 21: 7820. https://doi.org/10.3390/ijerph17217820
APA StyleToledano-Toledano, F., Moral de la Rubia, J., Reyes Frometa, R., González Betanzos, F., Villavicencio Guzmán, L., & Salazar García, M. (2020). The Social Support Networks Scale (SSNS) for Family Caregivers of Children with Cancer: A Psychometric Evaluation. International Journal of Environmental Research and Public Health, 17(21), 7820. https://doi.org/10.3390/ijerph17217820