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Article

Partnering with First Nations in Northern British Columbia Canada to Reduce Inequity in Access to Genomic Research

by
Nadine R. Caron
1,2,3,*,
Wilf Adam
4,
Kate Anderson
5,
Brooke T. Boswell
6,
Meck Chongo
7,
Viktor Deineko
8,
Alexanne Dick
3,
Shannon E. Hall
9,*,
Jessica T. Hatcher
10,
Patricia Howard
11,
Megan Hunt
11,
Kevin Linn
3 and
Ashling O’Neill
12,13
1
UBC Northern Medical Program and Department of Surgery, The University of British Columbia, Vancouver, BC V6T 1Z4, Canada
2
UBC Centre for Excellence in Indigenous Health, The University of British Columbia, Vancouver, BC V6T 1Z4, Canada
3
First Nations Health Authority Chair in Cancer and Wellness at UBC, UBC Health and Faculty of Medicine, The University of British Columbia, Vancouver, BC V6T 1Z4, Canada
4
Elder Advisor, Burns Lake, BC V0J 1E0, Canada
5
School of Public Health, University of Queensland, Brisbane, QLD 4067, Australia
6
Community Health Sciences, University of Northern British Columbia (UNBC), Prince George, BC V2N 4Z9, Canada
7
University of Saskatchewan, Saskatoon, SK S7N 5A2, Canada
8
Northern Biobank at the University Hospital of Northern BC, Northern Health, George, BC V2M 1S2, Canada
9
First Nations Biobank, Department of Surgery, Faculty of Medicine, Vancouver Campus, University of British Columbia, Vancouver, BC V6T 1Z4, Canada
10
UBC Faculty of Medicine, The University of British Columbia, Vancouver, BC V6T 1Z4, Canada
11
First Nations Health Authority, Northern Region, Prince George, BC V2L 5R8, Canada
12
UBC Northern Medical Program, Faculty of Medicine, University of British Columbia, Vancouver, BC V6T 1Z4, Canada
13
School of Health Sciences, University of Northern British Columbia, Prince George, BC V2N 4Z9, Canada
 
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*
Authors to whom correspondence should be addressed.
Int. J. Environ. Res. Public Health 2023, 20(10), 5783; https://doi.org/10.3390/ijerph20105783
Submission received: 1 February 2023 / Revised: 8 March 2023 / Accepted: 12 March 2023 / Published: 10 May 2023
(This article belongs to the Special Issue Health and Wellness for Indigenous Peoples)
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Abstract

Indigenous-led, culturally safe health research and infrastructure are essential to address existing inequities and disparities for Indigenous Peoples globally. Biobanking, genomic research, and self-governance could reduce the existing divide and increase Indigenous participation in health research. While genomic research advances medicine, barriers persist for Indigenous patients to benefit. In northern BC, Canada, the Northern Biobank Initiative (NBI), with guidance from a Northern First Nations Biobank Advisory Committee (NFNBAC), has engaged in consultations with First Nations on biobanking and genomic research. Key informant interviews and focus groups conducted with First Nations leaders, Elders, Knowledge Keepers, and community members established culturally safe ways of biobanking and exploring genomic research. Strong support for a Northern British Columbia First Nations Biobank (NBCFNB) that will promote choice, inclusion, and access to health research opportunities emerged. The acceptance and enthusiasm for the development of this NBCFNB and its governance table highlight the shift towards Indigenous ownership and support of health research and its benefits. With engagement and partnership, community awareness, multigenerational involvement, and support from diverse and experienced healthcare leaders, the NBCFNB will establish this culturally safe, locally driven, and critically important research priority that may serve as an example for diverse Indigenous groups when designing their unique biobanking or genomic research opportunities.
Keywords: Indigenous; First Nations; biobank; genomics; indigenous governance; cultural safety; qualitative; community engagement; trust; partnership; data sovereignty; capacity building; consent Indigenous; First Nations; biobank; genomics; indigenous governance; cultural safety; qualitative; community engagement; trust; partnership; data sovereignty; capacity building; consent

Share and Cite

MDPI and ACS Style

Caron, N.R.; Adam, W.; Anderson, K.; Boswell, B.T.; Chongo, M.; Deineko, V.; Dick, A.; Hall, S.E.; Hatcher, J.T.; Howard, P.; et al. Partnering with First Nations in Northern British Columbia Canada to Reduce Inequity in Access to Genomic Research. Int. J. Environ. Res. Public Health 2023, 20, 5783. https://doi.org/10.3390/ijerph20105783

AMA Style

Caron NR, Adam W, Anderson K, Boswell BT, Chongo M, Deineko V, Dick A, Hall SE, Hatcher JT, Howard P, et al. Partnering with First Nations in Northern British Columbia Canada to Reduce Inequity in Access to Genomic Research. International Journal of Environmental Research and Public Health. 2023; 20(10):5783. https://doi.org/10.3390/ijerph20105783

Chicago/Turabian Style

Caron, Nadine R., Wilf Adam, Kate Anderson, Brooke T. Boswell, Meck Chongo, Viktor Deineko, Alexanne Dick, Shannon E. Hall, Jessica T. Hatcher, Patricia Howard, and et al. 2023. "Partnering with First Nations in Northern British Columbia Canada to Reduce Inequity in Access to Genomic Research" International Journal of Environmental Research and Public Health 20, no. 10: 5783. https://doi.org/10.3390/ijerph20105783

APA Style

Caron, N. R., Adam, W., Anderson, K., Boswell, B. T., Chongo, M., Deineko, V., Dick, A., Hall, S. E., Hatcher, J. T., Howard, P., Hunt, M., Linn, K., & O’Neill, A. (2023). Partnering with First Nations in Northern British Columbia Canada to Reduce Inequity in Access to Genomic Research. International Journal of Environmental Research and Public Health, 20(10), 5783. https://doi.org/10.3390/ijerph20105783

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