Best Practices to Support the Self-Determination of Indigenous Communities, Collectives, and Organizations in Health Research through a Provincial Health Research Network Environment in British Columbia, Canada
Abstract
:1. Introduction
The Need for Indigenous Leadership, Self-Determination, and Governance in Health Research
2. Methods
2.1. Overview of the BC NEIHR
2.2. Operations Team
2.3. Governance Strucutre
2.4. BC NEIHR Network Membership
2.5. ICCO-Specific Programs Offered
2.6. Data Collection
2.7. Analysis
3. Results
3.1. Best Practice 1: Creating Capacity-Bridging Initiatives to Overcome Funding Barriers
3.1.1. Supporting Community-Led Research in Funding Structures
3.1.2. Granting Support and Plain Language Applications
3.1.3. Enabling Development Projects to Be Competitive in Mainstream Funding
3.2. Best Practice 2: Building Relational Research Relationships with ICCOs: “People on the Ground”
3.2.1. Securing the Trust of ICCOs and Building Meaningful Research Relationships
3.2.2. Network Values That Support Relational Research
3.2.3. Accounting for Resources Needed for Relational Research
3.3. Best Practice 3: Establishing a Network of Partnerships and Collaborations to Support ICCO Self-Determination
3.3.1. Quality and Range of Partnerships Needed
3.3.2. Partnership Activities and Contributions to ICCO-Led Health Research
3.3.3. Impact on Organizational Readiness for Change and Creating Safer Research Environments for ICCOs
4. Discussion
5. Conclusions
Author Contributions
Funding
Institutional Review Board Statement
Informed Consent Statement
Data Availability Statement
Acknowledgments
Conflicts of Interest
References
- BC NEIHR. Indigenous Cultural Safety in Research Framework. BC NEIHR. 2022. Available online: https://onlineacademiccommunity.uvic.ca/bcneihr/wp-content/uploads/sites/4766/2022/09/FINAL_ICSR_Framework1.8.pdf (accessed on 18 February 2023).
- Government of Canada. Visions for Distinctions-Based Indigenous Health Legislation. 2023. Available online: https://www.sac-isc.gc.ca/eng/1667579335081/1667579367781 (accessed on 18 February 2023).
- Canadian Institutes of Health Research. Canadian Institutes of Health Research (CIHR) Application Administration Guide. 2020. Available online: https://cihr-irsc.gc.ca/e/documents/cihr_application_administration_guide-en.pdf (accessed on 19 July 2023).
- Auger, M.; Crooks, C.V.; Lapp, A.; Tsuruda, S.; Caron, C.; Rogers, B.J.; van der Woerd, K. The essential role of cultural safety in developing culturally-relevant prevention programming in First Nations communities: Lessons learned from a national evaluation of Mental Health First Aid First Nations. Eval. Program Plan. 2019, 72, 188–196. [Google Scholar] [CrossRef] [PubMed]
- Koster, R.; Baccar, K.; Lemelin, R.H. Moving from research ON, to research WITH and FOR Indigenous communities: A critical reflection on community-based participatory research: Moving from research. Can. Geogr. Le Géographe Can. 2012, 56, 195–210. [Google Scholar] [CrossRef]
- Morton Ninomiya, M.E.; Pollock, N.J. Reconciling community-based Indigenous research and academic practices: Knowing principles is not always enough. Soc. Sci. Med. 2017, 172, 28–36. [Google Scholar] [CrossRef]
- Blackstock, C. First Nations children count: Enveloping quantitative research in an Indigenous envelope. First Peoples Child Fam. Rev. 2009, 4, 135–143. [Google Scholar] [CrossRef]
- Saini, M. Systematic Review of Western and Aboriginal Research Designs: Assessing Cross-Validation to Explore Compatibility and Convergence; National Collaborating Centre for Aboriginal Health: Prince George, BC, Canada, 2012. [Google Scholar]
- Alcock, D.; Elgie, J.; Richmond, C.; White, J. Developing ethical research practices between institutional and community partners: A look at the current base of literature surrounding memorandums of understanding in Canada. Int. Indig. Policy J. 2017, 8, 1–37. [Google Scholar] [CrossRef] [Green Version]
- Hyett, S.; Marjerrison, S.; Gabel, C. Improving health research among Indigenous Peoples in Canada. Can. Med. Assoc. J. 2018, 190, E616–E621. [Google Scholar] [CrossRef] [PubMed] [Green Version]
- Robinson-Settee, H.; Settee, C.; King, M.; Beaucage, M.; Smith, M.; Desjarlais, A.; Chiu, H.H.-L.; Turner, C.; Kappel, J.; McGavock, J.M. Wabishki Bizhiko Skaanj: A learning pathway to foster better Indigenous cultural competence in Canadian health research. Can. J. Public Health 2021, 112, 912–918. [Google Scholar] [CrossRef] [PubMed]
- White, T.; Murphy, K.; Branje, K.; McKibbon, S.; Cunsolo, A.; Latimer, M.; McMillan, J.; Sylliboy, J.; Martin, D. How has Indigenous Health Research changed in Atlantic Canada over two decades? A scoping review from 2001 to 2020. Soc. Sci. Med. 2021, 279, 113947. [Google Scholar] [CrossRef] [PubMed]
- Latulippe, N.; Klenk, N. Making room and moving over: Knowledge co-production, Indigenous knowledge sovereignty and the politics of global environmental change decision-making. Curr. Opin. Environ. Sustain. 2020, 42, 7–14. [Google Scholar] [CrossRef]
- Hayward, A.; Sjoblom, E.; Sinclair, S.; Cidro, J. A new era of Indigenous research: Community-based Indigenous research ethics protocols in Canada. J. Empir. Res. Hum. Res. Ethic 2021, 16, 403–417. [Google Scholar] [CrossRef] [PubMed]
- Canadian Institutes, of Health Research. NEIHR Overview. Government of Canada. December 2018. Available online: https://cihr-irsc.gc.ca/e/51162.html (accessed on 19 July 2023).
- Richmond, C.; Martin, D.; Dean, L.; Castleden, H.; Marsden, N. Transformative Networks: How ACADRE/NEAHR Support for Graduate Students Has Impacted Aboriginal Health Research in Canada. 2013. Available online: http://hdl.handle.net/1828/5419 (accessed on 18 February 2023).
- Richmond, C.A.M.; Cook, C. Creating conditions for Canadian aboriginal health equity: The promise of healthy public policy. Public Health Rev. 2016, 37, 2. [Google Scholar] [CrossRef] [PubMed] [Green Version]
- West, K.; Hudson, M.; Kukutai, T. Chapter 5. Data Ethics and Data Governance from a Māori World View. In Indigenous Research Ethics: Claiming Research Sovereignty beyond Deficit and the Colonial Legacy, 1st ed.; George, L., Tauri, J., MacDonald, L.T.A.T., Eds.; Emerald Publishing: Bingley, UK, 2020; pp. 67–81. [Google Scholar]
- Bull, J. Research with Aboriginal peoples: Authentic relationships as a precursor to ethical research. J. Empir. Res. Hum. Res. Ethic 2010, 5, 13–22. [Google Scholar] [CrossRef] [PubMed]
- Ermine, W.; Sinclair, R.; Jeffery, B. The Ethics of Research Involving Indigenous Peoples. Indigenous Peoples’ Health Research Centre. 2004. Available online: https://deslibris.ca/ID/221369 (accessed on 17 October 2022).
- Muru-Lanning, M. Chapter 4. Vision Mātauranga, Eclectic Anthropology and the Fading Empire. In Indigenous Research Ethics: Claiming Research Sovereignty beyond Deficit and the Colonial Legacy, 1st ed.; George, L., Tauri, J., MacDonald, L.T.A.T., Eds.; Emerald Publishing: Bingley, UK, 2020; pp. 53–65. [Google Scholar]
- Ball, J.; Janyst, P. Enacting research ethics in partnerships with Indigenous communities in Canada: “Do it in a good way”. J. Empir. Res. Hum. Res. Ethic 2008, 3, 33–51. [Google Scholar] [CrossRef] [PubMed]
- Battiste, M. Research ethics for protecting Indigenous knowledge and heritage: Institutional and researcher responsibilities. In Handbook of Critical and Indigenous Methodologies; Lincoln, Y., Denzin, N., Smith, L., Eds.; SAGE Publications, Inc.: Thousand Oaks, CA, USA, 2008; pp. 497–510. [Google Scholar]
- Brant Castellano, M. Ethics of Aboriginal research. J. Aborig. Health 2004, 1, 98–114. [Google Scholar]
- Bargallie, D.; Cunneen, C.; Marchetti, E.; Tauri, J.; Williams, M. Chapter 3. Developing ethical standards in criminology and criminal justice research: A focus on Indigenous Australian peoples. In Indigenous Research Ethics: Claiming Research Sovereignty beyond Deficit and the Colonial Legacy, 1st ed.; George, L., Tauri, J., MacDonald, L.T.A.T., Eds.; Emerald Publishing: Bingley, UK, 2020; pp. 41–52. [Google Scholar]
- Windchief, S.; Polacek, C.; Munson, M.; Ulrich, M.; Cummins, J.D. In reciprocity: Responses to critiques of Indigenous methodologies. Qual. Inq. 2017, 24, 532–542. [Google Scholar] [CrossRef]
- Prior, D. Decolonising research: A shift toward reconciliation. Nurs. Inq. 2007, 14, 162–168. [Google Scholar] [CrossRef] [PubMed]
- Wilson, S. Research Is Ceremony: Indigenous Research Methods; Fernwood Publishing: Black Point, NS, Canada, 2008; 144p. [Google Scholar]
- Smith, L.T. Decolonizing Methodologies: Research and Indigenous Peoples, 3rd ed.; Bloomsbury Publishing: London, UK, 2021; 302p. [Google Scholar]
- Government of Canada CI of HR. Pre-Announcement: Operating Grant of the Network Environments for Indigenous Health Research (NEIHR) Program—CIHR. 2018. Available online: https://cihr-irsc.gc.ca/e/51262.html (accessed on 9 July 2023).
- Ermine, W. The Ethical Space of Engagement. Indig. Law J. 2007, 6, 193–203. [Google Scholar]
- Absolon, K.E.; Willet, C. Chapter 4. Putting ourselves forward: Location in Aboriginal research. In Research as Resistance: Revisiting Critical, Indigenous, and Anti-Oppressive Approaches, 2nd ed.; Brown, L.A., Strega, S., Eds.; Canadian Scholars’ Press: Toronto, ON, Canada, 2015; pp. 97–126. [Google Scholar]
- Datta, R. Decolonizing both researcher and research and its effectiveness in Indigenous research. Res. Ethics 2018, 14, 1–24. [Google Scholar] [CrossRef]
- Ward, L.M.; Hill, M.J.; Chreim, S.; Poker, C.; Olsen Harper, A.; Wells, S. Developing an Innu framework for health research: The canoe trip as a metaphor for a collaborative approach centered on valuing Indigenous knowledges. Soc. Sci. Med. 2020, 266, 113409. [Google Scholar] [CrossRef] [PubMed]
- Stelkia, K.; Manshadi, A.; Adams, E.; Wieman, C.; Reading, J. Weaving Promising Practices to Transform Indigenous Population Health and Wellness Reporting by Indigenizing Indicators in First Nations Health. Int. J. Indig. Health 2023, 18, 1–11. [Google Scholar] [CrossRef]
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Erb, T.; Stelkia, K. Best Practices to Support the Self-Determination of Indigenous Communities, Collectives, and Organizations in Health Research through a Provincial Health Research Network Environment in British Columbia, Canada. Int. J. Environ. Res. Public Health 2023, 20, 6523. https://doi.org/10.3390/ijerph20156523
Erb T, Stelkia K. Best Practices to Support the Self-Determination of Indigenous Communities, Collectives, and Organizations in Health Research through a Provincial Health Research Network Environment in British Columbia, Canada. International Journal of Environmental Research and Public Health. 2023; 20(15):6523. https://doi.org/10.3390/ijerph20156523
Chicago/Turabian StyleErb, Tara, and Krista Stelkia. 2023. "Best Practices to Support the Self-Determination of Indigenous Communities, Collectives, and Organizations in Health Research through a Provincial Health Research Network Environment in British Columbia, Canada" International Journal of Environmental Research and Public Health 20, no. 15: 6523. https://doi.org/10.3390/ijerph20156523