Social Determinants and Self-Care for Making Good Treatment Decisions and Treatment Participation in Older Adults: A Cross-Sectional Survey Study
Abstract
:1. Introduction
Study Rationale
2. Methods
2.1. Study Design
2.2. Study Participants
2.3. Data Collection Instruments
- The Patient Action Inventory for Self-CareThis tool was developed and validated by Tzeng and Pierson [27] based on the Engagement Behavior Framework developed by the Center for Advancing Health [28]. It encompasses 52 patient engagement behaviors grouped into 10 categories. The Cronbach alpha for the tool as a whole was 0.968 [27].For this study, we focused on 2 of the 10 categories: “making good treatment decisions” and “participating in treatment.” Participants were asked to select “yes” or “no” for each behavior statement from three perspectives: Is this important to you? Do you want to do this? Are you able to do this?Participant responses related to the 11 self-care behaviors (outcome variables) from among the 52 behaviors inventoried were analyzed: Seeking more than one expert opinion for the treatment of illness when needed; Asking about the good and bad outcomes of suggested treatments; Working with your provider(s) on your treatment plan; Knowing side effects before starting new treatments; Knowing how old and new treatments interact; Filling or refilling prescriptions on time; Keeping track of the outcomes of your treatments; Talking with your provider(s) when stopping your treatment; Maintaining all of your health devices; Discussing why tests are ordered before getting them done, and; Tracking your symptoms and health measures.
- Demographic QuestionnaireThis tool was used to gather information on age group (65 to <75 years, 75 to <85 years, and ≥85 years), sex (male and female), marital status (married, single, or separated), residential setting (urban or rural), and education level (<high school diploma; high school diploma; or ≥associate’s or bachelor’s degree). These demographic characteristics were then used as potential correlates.
2.4. Data Analysis
3. Results
3.1. Univariate Logistic Regression
3.2. Supplemental Analyses
4. Discussion
Study Limitations and Future Research Directions
5. Conclusions
Author Contributions
Funding
Institutional Review Board Statement
Informed Consent Statement
Data Availability Statement
Conflicts of Interest
References
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Variable | Responses (n [%]) | |
---|---|---|
Residential site | ||
Urban county | 47 (38.2) | |
Rural county | 76 (61.8) | |
Sex | ||
Female | 90 (73.3) | |
Male | 23 (18.7) | |
Missing | 10 (8.1) | |
Age group | ||
65 to <75 Years | 60 (48.8) | |
75 to <85 Years | 44 (35.8) | |
≥85 Years | 19 (15.4) | |
Marital status | ||
Married | 48 (39.0) | |
Single | 49 (39.9) | |
Separated | 12 (9.8) | |
Missing | 14 (11.4) | |
Education | ||
<High school diploma | 18 (14.6) | |
High school diploma | 82 (66.7) | |
≥Associate’s or bachelor’s degree | 23 (18.7) | |
Ethnic group a | ||
White, non-Hispanic | 111 (90.2) | |
White, Hispanic | 6 (4.9) | |
Black or African American | 1 (.8) | |
American Indian or Alaska Native | 5 (4.1) | |
Asian | 0 (0) | |
Native Hawaiian or Pacific Islander | 0 (0) | |
Other | 0 (0) |
Behavior | Perception of Behavior (n [%]) | ||||||||
---|---|---|---|---|---|---|---|---|---|
Important to Perform | Desire to Perform | Able to Perform | |||||||
No | Yes | Missing | No | Yes | Missing | No | Yes | Missing | |
Seeking more than one expert opinion for the treatment of illness when needed | 13 (10.6) | 103 (83.7) | 7 (5.7) | 14 (11.4) | 78 (63.4) | 31 (25.2) | 11 (8.9) | 88 (71.5) | 24 (19.7) |
Asking about the good and bad outcomes of suggested treatments | 2 (1.6) | 114 (92.7) | 7 (5.7) | 5 (4.1) | 86 (69.9) | 32 (26.0) | 4 (3.3) | 95 (77.2) | 24 (19.5) |
Working with your provider(s) on your treatment plan | 2 (1.6) | 112 (91.1) | 9 (7.3) | 4 (3.3) | 86 (69.9) | 33 (26.8) | 3 (2.4) | 95 (77.2) | 25 (20.3) |
Knowing side effects before starting new treatments | 5 (4.1) | 111 (90.2) | 7 (5.7) | 6 (4.9) | 84 (68.3) | 33 (26.8) | 4 (3.3) | 93 (75.6) | 26 (21.1) |
Knowing how old and knew treatments interact | 10 (8.1) | 103 (83.7) | 10 (8.1) | 8 (6.5) | 80 (65.0) | 35 (28.5) | 15 (12.2) | 80 (65.0) | 28 (22.8) |
Filling or refilling prescriptions on time | 0 (0.0) | 116 (94.3) | 7 (5.7) | 2 (1.6) | 89 (72.4) | 32 (26.0) | 0 (0.0) | 99 (80.5) | 24 (19.5) |
Keeping track of the outcomes of your treatments | 1 (0.8) | 113 (91.9) | 9 (7.3) | 6 (4.9) | 84 (68.3) | 33 (26.8) | 3 (2.4) | 94 (76.4) | 26 (21.1) |
Talking with your provider(s) when stopping your treatment | 6 (4.9) | 108 (87.8) | 9 (7.3) | 8 (6.5) | 81 (65.9) | 34 (27.6) | 5 (4.1) | 93 (75.6) | 25 (20.3) |
Maintaining all of your health devices | 3 (2.4) | 102 (82.9) | 18 (14.6) | 8 (6.5) | 74 (60.2) | 41 (33.3) | 3 (2.4) | 89 (72.4) | 31 (25.2) |
Discussing why tests are ordered before getting them done | 3 (2.4) | 111 (90.2) | 9 (7.3) | 8 (6.5) | 84 (68.3) | 31 (25.2) | 3 (2.4) | 96 (78.0) | 24 (19.5) |
Tracking your symptoms and health measures | 5 (4.1) | 105 (85.4) | 13 (10.6) | 8 (6.5) | 80 (65.0) | 35 (28.5) | 7 (5.7) | 87 (70.7) | 29 (23.6) |
Behavior | Perception of Behavior | Comparators | β | SE | Wald | df | p Value a | OR | 95% CI |
---|---|---|---|---|---|---|---|---|---|
Seeking more than one expert opinion for the treatment of illness when needed | Important to perform | 65 to <75 Years (reference) | 4.581 | 2 | 0.101 | ||||
75 to <85 Years | −1.145 | 0.739 | 2.398 | 1 | 0.121 | 0.318 | 0.075 to 1.355 | ||
≥85 Years | −1.730 | 0.824 | 4.412 | 1 | 0.036 | 0.177 | 0.035 to 0.891 | ||
Discussing why tests are ordered before getting them done | Desire to perform | Married (reference) | 6.203 | 2 | 0.045 | ||||
Single | −1.157 | 1.180 | 0.962 | 1 | 0.327 | 0.314 | 0.031 to 3.174 | ||
Separated | −2.862 | 1.236 | 5.359 | 1 | 0.021 | 0.057 | 0.005 to 0.645 | ||
Knowing side effects before starting new treatments | Able to perform | <High school (reference) | 4.128 | 2 | 0.127 | ||||
High school diploma | 2.549 | 1.271 | 4.023 | 1 | 0.045 | 12.800 | 1.060 to 154.578 | ||
≥Associate’s or bachelor’s degree | 1.335 | 1.286 | 1.078 | 1 | 0.299 | 3.800 | 0.306 to 47.211 | ||
Knowing how old and new treatments interact | Able to perform | Married (reference) | 4.979 | 2 | 0.083 | ||||
Single | −.618 | 0.672 | 0.847 | 1 | 0.357 | 0.539 | 0.144 to 2.011 | ||
Separated | −2.169 | 0.972 | 4.977 | 1 | 0.026 | 0.114 | 0.017 to 0.768 | ||
Able to perform | 65 to <75 Years (reference) | 6.695 | 2 | 0.035 | |||||
75 to <85 Years | −1.929 | 0.830 | 5.404 | 1 | 0.020 | 0.145 | 0.029 to 0.739 | ||
≥85 Years | −2.193 | 0.898 | 5.960 | 1 | 0.015 | 0.112 | 0.019 to 0.649 | ||
Tracking your symptoms and health measures | Able to perform | 65 to <75 Years (reference) | 6.062 | 2 | 0.048 | ||||
75 to <85 Years | −1.133 | 1.248 | 0.824 | 1 | 0.364 | 0.322 | 0.028 to 3.717 | ||
≥85 Years | −2.628 | 1.162 | 5.119 | 1 | 0.024 | 0.072 | 0.007 to 0.704 |
Behavior | Perception of Behavior | Reference | Comparator | β | SE | Wald | df | p Value a | OR | 95% CI |
---|---|---|---|---|---|---|---|---|---|---|
Seeking more than one expert opinion for the treatment of illness when needed | Able to perform | Rural | Urban | 0.898 | 0.826 | 1.183 | 1 | 0.277 | 2.455 | 0.487 to 12.384 |
Female | Male | 0.657 | 1.187 | 0.306 | 1 | 0.580 | 1.929 | 0.188 to 19.773 | ||
65 to <75 Years | 4.344 | 2 | 0.114 | |||||||
75 to <85 Years | −2.109 | 1.012 | 4.341 | 1 | 0.037 | 0.121 | 0.017 to 0.882 | |||
≥85 Years | −1.096 | 1.199 | 0.836 | 1 | 0.360 | 0.334 | 0.032 to 3.502 | |||
Married | 0.288 | 2 | 0.866 | |||||||
Single | −0.478 | 0.904 | 0.280 | 1 | 0.597 | 0.620 | 0.105 to 3.648 | |||
Separated | −0.379 | 1.272 | 0.089 | 1 | 0.766 | 0.684 | 0.057 to 8.279 | |||
<High school | 2.019 | 2 | 0.364 | |||||||
High school diploma | 1.157 | 1.008 | 1.317 | 1 | 0.251 | 3.180 | 0.441 to 22.932 | |||
≥Associate’s or bachelor’s degree | −0.060 | 1.335 | 0.002 | 1 | 0.964 | 0.942 | 0.069 to 12.888 | |||
Knowing how old and new treatments interact | Able to perform | Rural | Urban | −0.061 | 0.777 | 0.006 | 1 | 0.937 | 0.941 | 0.205 to 4.312 |
Female | Male | −0.093 | 0.975 | 0.009 | 1 | 0.924 | 0.911 | 0.135 to 6.160 | ||
65 to <75 Years | 6.652 | 2 | 0.036 | |||||||
75 to <85 Years | −2.422 | 1.007 | 5.792 | 1 | 0.016 | 0.089 | 0.012 to 0.638 | |||
≥85 Years | −2.251 | 1.038 | 4.699 | 1 | 0.030 | 0.105 | 0.014 to 0.806 | |||
Married | 1.907 | 2 | 0.385 | |||||||
Single | −0.415 | 0.795 | 0.273 | 1 | 0.601 | 0.660 | 0.139 to 3.133 | |||
Separated | −1.800 | 1.306 | 1.900 | 1 | 0.168 | 0.165 | 0.013 to 2.137 | |||
>High school | 2.123 | 2 | 0.346 | |||||||
High school diploma | 1.266 | 0.955 | 1.758 | 1 | 0.185 | 3.545 | 0.546 to 23.024 | |||
≥Associate’s or bachelor’s degree | 0.396 | 1.297 | 0.093 | 1 | 0.760 | 1.486 | 0.117 to 18.878 |
Behavior Classification and Analysis Type | Significant Associations a of Demographics with Perceptions of the Self-Care Behaviors | ||
---|---|---|---|
Important to Perform | Desire to Perform | Able to Perform | |
Making good treatment decisions (univariate) | |||
Seeking more than one expert opinion for the treatment of illness when needed | Compared with adults 65 to less than 75 years of age, adults 85 years of age and older were less likely to perceive this self-care behavior as being important. | — | — |
Asking about the good and bad outcomes of suggested treatments | — | — | — |
Working with your provider(s) on your treatment plan | — | — | — |
Participating in treatment (univariate) | |||
Knowing side effects before starting new treatments | — | — | Compared with older adults having less than a high school education, those with a high school diploma were more likely to report being able to perform this self-care behavior. |
Knowing how old and new treatments interact | — | — | Compared with married older adults, separated older adults were less likely to report being able to perform this self-care behavior. |
Compared with adults 65 to less than 75 years of age, adults in the 75 to less than 85 years and the 85 years and older age groups were less likely to report being able to perform this self-care behavior. | |||
Filling or refilling prescriptions on time | — | — | — |
Keeping track of the outcomes of your treatments | — | — | — |
Talking with your provider(s) when stopping your treatment | — | — | — |
Maintaining all of your health devices | — | — | — |
Discussing why tests are ordered before getting them done | — | Compared with married older adults, separated older adults were less likely to report desiring to perform this self-care behavior. | — |
Tracking your symptoms and health measures | — | — | Compared with adults 65 to less than 75 years of age, adults 85 years of age and older were less likely to report being able to perform this self-care behavior. |
Making good treatment decisions (multivariate) | |||
Seeking more than one expert opinion for the treatment of illness when needed | — | — | Compared with adults 65 to less than 75 years of age, adults 75 to less than 85 years of age were less likely to report being able to perform this self-care behavior. |
Asking about the good and bad outcomes of suggested treatments | — | — | — |
Working with your provider(s) on your treatment plan | — | — | — |
Participating in treatment (exploratory multivariate) | |||
Knowing side effects before starting new treatments | — | — | — |
Knowing how old and new treatments interact | — | — | Compared with adults 65 to less than 75 years of age, adults in the 75 to less than 85 years and the 85 years and older age groups were less likely to report being able to perform this self-care behavior. |
Filling or refilling prescriptions on time | — | — | — |
Keeping track of the outcomes of your treatments | — | — | — |
Talking with your provider(s) when stopping your treatment | — | — | — |
Maintaining all of your health devices | — | — | — |
Discussing why tests are ordered before getting them done | — | — | — |
Tracking your symptoms and health measures | — | — | — |
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Okpalauwaekwe, U.; Li, C.-Y.; Tzeng, H.-M. Social Determinants and Self-Care for Making Good Treatment Decisions and Treatment Participation in Older Adults: A Cross-Sectional Survey Study. Nurs. Rep. 2022, 12, 198-209. https://doi.org/10.3390/nursrep12010020
Okpalauwaekwe U, Li C-Y, Tzeng H-M. Social Determinants and Self-Care for Making Good Treatment Decisions and Treatment Participation in Older Adults: A Cross-Sectional Survey Study. Nursing Reports. 2022; 12(1):198-209. https://doi.org/10.3390/nursrep12010020
Chicago/Turabian StyleOkpalauwaekwe, Udoka, Chih-Ying Li, and Huey-Ming Tzeng. 2022. "Social Determinants and Self-Care for Making Good Treatment Decisions and Treatment Participation in Older Adults: A Cross-Sectional Survey Study" Nursing Reports 12, no. 1: 198-209. https://doi.org/10.3390/nursrep12010020
APA StyleOkpalauwaekwe, U., Li, C. -Y., & Tzeng, H. -M. (2022). Social Determinants and Self-Care for Making Good Treatment Decisions and Treatment Participation in Older Adults: A Cross-Sectional Survey Study. Nursing Reports, 12(1), 198-209. https://doi.org/10.3390/nursrep12010020