Community Engaged Leadership to Advance Health Equity and Build Healthier Communities
Abstract
:1. Health Disparities: A Global Challenge
2. Addressing Health Disparities from a Community Perspective
3. Community Engaged Approaches to Build Healthier Communities
3.1. Understanding Community Based Participatory Approaches
3.2. Benefits of Establishing a Community Coalition Board and Engagement to Build Healthier Communities
- Engagement in effective community coalition boards is developed through multi-directional learning of each partner’s values and needs [38]
- Community coalition boards are built and sustained over time to ensure community ownership through established rules and governance structures
- Trust and relationship building are both central to having neighborhood and research experts work together to shape community-engaged research agendas
- Maintaining a community coalition board requires ongoing communication and feedback, beyond formal monthly or quarterly meetings, to keep members engaged
3.3. Strengthening Community-Academic Partnerships
- Attention to the fundamental tasks of long range planning, recruitment of members, and inter- and intra-coalition communication
- Monitoring of legislative and fiscal changes affecting the coalition and its members
- Leadership that emphasizes both task-oriented and interpersonal functions of the group
- Management of conflict within the coalition while maintaining its presence in the community
- Model whereby all members experience a sense of ownership and that they have impacted the action plan and implementation
- Diverse socialization opportunities (e.g., retreats, in-service training, workshops, etc.)
- Mentoring and training that focuses on developing leadership skills for members
- Aggressive fundraising and appropriate resource allocation
- Sabotage
- Interpersonal conflict and long standing feuds between partnering organizations
- Lack of genuine inclusion
- Hidden agendas of coalition members that can negatively influence other individuals
- Lack of group ownership
- Poor information/communication flow
- Lack of cultural competence
- Poor leadership
4. Significance of Ethical Leadership in Promoting Community Health
5. Understanding Cultural Values and Implications of Planned Community-Based Activities
6. Role of Policy, Systems, and Environmental Change Approaches to Building Healthier Communities
6.1. What Are Policy, Systems, and Environmental Change (PSE) Strategies?
6.2. A Paradigm Shift
6.3. Policy, Systems, and Environment Change Exemplars
6.4. Opportunities for Community Engaged Leadership in Policy, Systems, and Environment Changes
7. Toward Advancing Health Equity
8. Conclusions
Acknowledgments
Author Contributions
Conflicts of Interest
Abbreviations
CBPA | Community-Based Participatory Approach |
CBPR | Community-Based Participatory Research |
CCB | Community Coalition Board |
CDC | Centers for Disease Control and Prevention |
IOM | Institute of Medicine |
NIH | National Institutes of Health |
NPU | Neighborhood Planning Unit |
PRC | Prevention Research Center |
PSE | Policy, System, and Environmental |
RWJF | Robert Wood Johnson Foundation |
References
- Steven H. Woolf, and Laudan Aron, eds. U.S. Health in International Perspective: Shorter Lives, Poorer Health. Washington: National Academies Press, 2013.
- World Health Organization. “Health Manpower Requirements for the Achievement of Health for All by the Year 2000 through Primary Health Care.” In Paper presented at WHO Expert Committee, Geneva, Switzerland, 12–16 December 1983; Available online: http://apps.who.int/iris/bitstream/10665/39110/1/WHO_TRS_717.pdf (accessed on 15 November 2015).
- U.S. Department of Health and Human Services. Mental Health: Culture, Race, and Ethnicity—A Supplement to Mental Health: A Report of the Surgeon General; Rockville: U.S. Department of Health and Human Services, Substance Abuse and Mental Health Services Administration, Center for Mental Health Services, 2001.
- Michael Marmot, Sharon Friel, Ruth Bell, Tanja A.J. Houweling, and Sebastian Taylor. “Closing the gap in a generation: Health equity through action on the social determinants of health.” The Lancet 372 (2008): 1661–69. [Google Scholar] [CrossRef]
- Centers for Disease Control and Prevention. “Health Disparities and Inequalities Report.” Morbidity and Mortality Weekly Report 62 (2013): 1–187. [Google Scholar]
- Annelle B. Primm, Melba J.T. Vasquez, Robert A. Mays, Doreleena Sammons-Posey, Lela R. McKnight-Eily, Letitia R. Presley-Cantrell, Lisa C. McGuire, Daniel P. Chapman, and Geraldine S. Perry. “The role of public health in addressing racial and ethnic disparities in mental health and mental illness.” Preventing Chronic Disease 7 (2010): A20. Available online: http://www.cdc.gov/pcd/issues/2010/jan/09_0125.htm (accessed on 15 November 2015). [Google Scholar] [PubMed]
- Andrew L. Dannenberg, Howard Frumkin, and Richard J. Jackson. Making Healthy Places: Designing and Building for Health, Well-Being, and Sustainability, 1st ed. Washington: Island Press, 2011. [Google Scholar]
- Mary M. Lee. “Promising Strategies for Building Healthy Communities for All.” National Civic Review 103 (2014): 13–17. [Google Scholar] [CrossRef]
- U.S. Department of Health & Human Services. “HHS Action Plan to Reduce Racial and Ethnic Health Disparities: A Nation Free of Disparities in Health and Health Care.” 2011. Available online: http://minorityhealth.hhs.gov/npa/files/plans/hhs/hhs_plan_complete.pdf (accessed on 15 November 2015). [Google Scholar]
- Jennifer H. Lee, Ritu Sadana, and the Commission on Social Determinants of Health Knowledge Networks, eds. Improving Equity in Health by Addressing Social Determinants. Geneva: World Health Organization, 2011.
- Centers for Disease Control and Prevention. National Diabetes Statistics Report: Estimates of Diabetes and Its Burden in the United States, 2014; Atlanta: US Department of Health and Human Services, 2014.
- Centers for Disease Control and Prevention. National Diabetes Fact Sheet: National Estimates and General Information on Diabetes and Prediabetes in the United States, 2011; Atlanta: U.S. Department of Health and Human Services, Centers for Disease Control and Prevention, 2011.
- American Diabetes Association. “Economic costs of diabetes in the U.S. in 2002.” Diabetes Care 26 (2003): 917–32. [Google Scholar] [CrossRef]
- American Diabetes Association. “Economic costs of diabetes in the U.S. in 2007.” Diabetes Care 31 (2008): 596–615. [Google Scholar] [CrossRef]
- Meredith Minkler, and Nina Wallerstein, eds. Community-Based Participatory Research for Health: From Process to Outcomes. Hoboken: John Wiley & Sons, 2011.
- Judith K. Ockene, Elizabeth A. Edgerton, Steven M. Teutsch, Lucy N. Marion, Therese Miller, Janice L. Genevro, Carol J. Loveland-Cherry, Jonathan E. Fielding, and Peter A. Briss. “Integrating evidence-based clinical and community strategies to improve health.” American Journal of Preventive Medicine 32 (2007): 244–52. [Google Scholar] [CrossRef] [PubMed]
- Ilene Morof Lubkin, and Pamala D. Larsen. Chronic Illness: Impact and Interventions. Burlington: Jones & Bartlett Learning, 2006. [Google Scholar]
- Jerome Sarris, Steven Moylan, David A. Camfield, M.P. Pase, David Mischoulon, Michael Berk, F.N. Jacka, and Isaac Schweitzer. “Complementary medicine, exercise, meditation, diet, and lifestyle modification for anxiety disorders: A review of current evidence.” Evidence-Based Complementary and Alternative Medicine 2012 (2012): 1–20. [Google Scholar] [CrossRef] [PubMed]
- Felice N. Jacka, Julie A. Pasco, Arnstein Mykletun, Lana J. Williams, Allison Hodge, Sharleen O’Reilly, Mark A. Kotowicz, Michael Berk, and Geoffrey C. Nicholson. “Association of Western and traditional diets with depression and anxiety in women.” American Journal of Psychiatry 167 (2010): 305–11. [Google Scholar] [CrossRef] [PubMed]
- Bruce Bolam, Robert West, and David Gunnell. “Does smoking cessation cause depression and anxiety? Findings from the ATTEMPT cohort.” Nicotine & Tobacco Research 13 (2011): 209–14. [Google Scholar] [CrossRef] [PubMed]
- Michael J. Zvolensky, Laura E. Gibson, Anka A. Vujanovic, Kristin Gregor, Amit Bernstein, Christopher Kahler, C.W. Legues, Richard A. Brown, and Matthew T. Feldner. “Impact of posttraumatic stress disorder on early smoking lapse and relapse during a self-guided quit attempt among community-recruited daily smokers.” Nicotine & Tobacco Research 10 (2008): 1415–27. [Google Scholar] [CrossRef] [PubMed]
- Justin Jagosh, Ann C. Macaulay, Pierre Pluye, Jon Salsberg, Paula L. Bush, Jim Henderson, Erin Sirett, Geoff Wong, Margaret Cargo, Carol P. Herbert, and et al. “Uncovering the benefits of participatory research: Implications of a realist review for health research and practice.” Milbank Quarterly 90 (2012): 311–46. [Google Scholar] [CrossRef] [PubMed]
- Margaret Cargo, and Shawna L. Mercer. “The value and challenges of participatory research: Strengthening its practice [Review].” Annual Review of Public Health 29 (2008): 325–50. [Google Scholar] [CrossRef] [PubMed]
- Barbara A. Israel, Amy J. Schulz, Edith A. Parker, and Adam B. Becker. “Review of community-based research: Assessing partnership approaches to improve public health.” Annual Review of Public Health 19 (1998): 173–202. [Google Scholar] [CrossRef] [PubMed]
- Barbara A. Israel, Eugenia Eng, Amy J. Schulz, Edith A. Parker, and David Satcher. Methods in Community-Based Participatory Research for Health. San Francisco: Jossey-Bass, 2005. [Google Scholar]
- Ann C. Macaulay, Treena Delormier, Alex M. McComber, Edward J. Cross, Louise P. Potvin, Gilles Paradis, Rhonda L. Kirby, Chantal Saad-Haddad, and Serge Desrosiers. “Desrosiers. Participatory research with native community of Kahnawake creates innovative code of research ethics.” Canadian journal of public health 89 (1998): 105–8. [Google Scholar] [PubMed]
- Liam R. O’Fallon, and Allen Dearry. “Community-based participatory research as a tool to advance environmental health sciences.” Environmental Health Perspectives 110 (2002): 155–59. [Google Scholar] [CrossRef] [PubMed]
- Sarena D. Seifer, and Sarah Sisco. “Mining the challenges of CBPR for improvements in urban health.” Journal of Urban Health 83 (2006): 981–84. [Google Scholar] [CrossRef] [PubMed]
- Michele L. Allen, Kathleen Culhane-Pera, Shannon Pergament, and Kathleen T. Call. “Facilitating research faculty participation in CBPR: Development of a model based on key informant interviews.” Clinical and Translational Science 3 (2010): 233–38. [Google Scholar] [CrossRef] [PubMed]
- Jennifer A. Sandoval, Julie Lucero, John Oetzel, Magdalena Avila, Lorenda Belone, Marjorie Mau, Cynthia Pearson, Greg Tafoya, Bonnie Duran, Lisbeth Iglesias Rios, and et al. “Process and outcome constructs for evaluating community-based participatory research projects: A matrix of existing measures.” Health Education Research 27 (2012): 680–90. [Google Scholar] [CrossRef] [PubMed]
- Nina Wallerstein, and Bonnie Duran. “Community-based participatory research contributions to intervention research: The intersection of science and practice to improve health equity.” American Journal of Public Health 100 (2010): S40–46. [Google Scholar] [CrossRef] [PubMed]
- Rebecca S. Miller, Larry A. Green, Paul A. Nutting, Lyle Petersen, Linda Stewart, Guillermo Marshall, and Deborah S. Main. “Human immunodeficiency virus seroprevalence in community-based primary care practices, 1990–1992. A report from the Ambulatory Sentinel Practice Network.” Archives of Family Medicine 4 (1995): 1042–47. [Google Scholar] [CrossRef] [PubMed]
- Daniel S. Blumenthal. “A community coalition board creates a set of values for community-based research.” Preventing Chronic Disease 3 (2006): A16. [Google Scholar] [PubMed]
- Robert G. Bringle, and Julie A. Hatcher. “Campus-Community Partnerships: The Terms of Engagement.” Journal of Social Issues 58 (2002): 503–16. [Google Scholar] [CrossRef]
- George Caspar Homans. Social Behavior. New York: Harcourt Brace and World, 1961. [Google Scholar]
- John W. Thibaut, and Harold H. Kelley. The Social Psychology of Groups. New York: Wiley, 1959. [Google Scholar]
- Daniel Blumenthal. “‘How do you start working with a community?’ Section 4a of ‘Challenges in Improving Community Engagement in Research’, Chapter 5 of The Clinical and Translational Science Awards Community Engagement Key Function Committee Task Force on the Principles of Community Engagement.” In Principles of Community Engagement, 2nd ed.Washington: U.S. Department of Health and Human Services, 2011. [Google Scholar]
- Akintobi T. Henry, Lisa Goodin, Ella H. Trammel, David Collins, and Daniel Blumenthal. “‘How do you set up and maintain a community advisory board?’ Section 4b of ‘Challenges in Improving Community Engagement in Research’, Chapter 5 of The Clinical and Translational Science Awards Community Engagement Key Function Committee Task Force on the Principles of Community Engagement.” In Principles of Community Engagement, 2nd ed.Washington: U.S. Department of Health and Human Services, 2011. [Google Scholar]
- Tabia Henry Akintobi, Nazeera Dawood, and Daniel S. Blumenthal. “An Academic-Public Health Department Partnership for Education, Research, Practice and Governance.” Journal of Public Health Management & Practice 20 (2014): 310–14. [Google Scholar] [CrossRef] [PubMed]
- Tabia Henry Akintobi, Lisa Goodin, and LaShawn Hoffman. “Morehouse School of Medicine Prevention Research Center: Collaborating with neighborhoods to develop community-based participatory approaches to address health disparities in Metropolitan Atlanta.” Atlanta Medicine: Journal of the Medical Association of Atlanta 84 (2013): 14–17. [Google Scholar]
- Kirsten C. Rodgers, Tabia Henry Akintobi, Winifred Wilkins Thompson, Donoria Evans, Cam Escoffery, and Michelle C. Kegler. “A model for strengthening collaborative research capacity: Illustrations from the Atlanta Clinical Translational Science Institute.” Health Education and Behavior 41 (2014): 267–74. [Google Scholar] [CrossRef] [PubMed]
- John Hatch, Nancy Moss, Ama Saran, and Letitia Presley-Cantrell. “Community research: Partnership in black communities.” American Journal of Preventive Medicine 9 (1993): 27–31. [Google Scholar] [PubMed]
- Ronald L. Braithwaite, Sandra E. Taylor, and John N. Austin. Building Health Coalitions in the Black Community. Thousand Oaks: Sage Publications, 1999. [Google Scholar]
- Bailus Walker Jr. “The future of public health: The institute of medicine’s 1988 report.” Journal of Public Health Policy 10 (1989): 19–31. [Google Scholar] [CrossRef] [PubMed]
- Walter E. Fluker. Ethical Leadership: The Quest for Character, Civility, and Community. Minneapolis: Augsburg Fortress, 2009. [Google Scholar]
- Fitzhugh Mullan, Candice Chen, Stephen Petterson, Gretchen Kolsky, and Michael Spagnola. “The social mission of medical education: Ranking the schools.” Annals of Internal Medicine 152 (2010): 804–11. [Google Scholar] [CrossRef] [PubMed]
- J. Scott Carter, and Shannon K. Carter. “Place matters: The impact of place of residency on racial attitudes among regional and urban migrants.” Social Science Research 47 (2014): 165–77. [Google Scholar] [CrossRef] [PubMed]
- Katherine Schaff, Alexandra Desautels, Rebecca Flournoy, Keith Carson, Teresa Drenick, Darlene Fujii, Anna Lee, Jessica Luginbuhl, Mona Mena, Amy Shrago, and et al. “Addressing the social determinants of health through the Alameda County, California, place matters policy initiative.” Public Health Reports 128 (2013): 48–53. Available online: http://www.ncbi.nlm.nih.gov/pubmed/24179279 (accessed on 15 November 2015). [Google Scholar] [PubMed]
- Vedette R. Gavin, Eileen L. Seeholzer, Janeen B. Leon, Sandra Byrd Chappelle, and Ashwini R. Sehgal. “If we build it, we will come: A model for community-led change to transform neighborhood conditions to support healthy eating and active living.” American Journal of Public Health 105 (2015): 1072–77. [Google Scholar] [CrossRef] [PubMed]
- Sandra A. Austin, and Nancy Claiborne. “Faith wellness collaboration: A community-based approach to address type II diabetes disparities in an African-American community.” Social Work in Health Care 50 (2011): 360–75. [Google Scholar] [CrossRef] [PubMed]
- Carolyn Cannuscio, Eva Bugos, Shari Hersh, David A. Asch, and Eve E. Weiss. “Using art to amplify youth voices on housing insecurity.” American Journal of Public Health 102 (2012): 10–12. [Google Scholar] [CrossRef] [PubMed]
- Laura Horne, Katie Miller, Sandra Silva, and Lori Anderson. “Implementing the ACHIEVE model to prevent and reduce chronic disease in rural Klickitat County, Washington.” Preventing Chronic Disease 10 (2013): E56. [Google Scholar] [CrossRef] [PubMed]
- Samina Raja, Michael Ball, Justin Booth, Philip Haberstro, and Katherine Veith. “Leveraging neighborhood-scale change for policy and program reform in Buffalo, New York.” American Journal of Preventive Medicine 37 (2009): S352–60. [Google Scholar] [CrossRef] [PubMed]
- Thomas A. LaVeist, William C. Richardson, Nancy F. Richardson, Rachel Relosa, and Nadia Sawaya. “The COA360: A tool for assessing the cultural competency of health care organizations.” Journal of Healthcare Management 53 (2008): 257–66. [Google Scholar] [PubMed]
- Ronald L. Braithwaite, Sandra E. Taylor, and Henrie M. Treadwell, eds. Health Issues in the Black Community. Hoboken: John Wiley & Sons, Inc., 2009.
- Phyllis Nichols, Ann Ussery-Hall, Shannon Griffin-Blake, and Alyssa Easton. “The evolution of the steps program, 2003–2010: Transforming the federal public health practice of chronic disease prevention.” Preventing Chronic Disease 9 (2012): 11–22. [Google Scholar] [CrossRef]
- American Cancer Society. “Policy, Systems, and Environmental Change: Resource Guide.” 2015. Available online: http://smhs.gwu.edu/cancercontroltap/sites/cancercontroltap/files/PSE_Resource_Guide_FINAL_05.15.15.pdf (accessed on 15 November 2015).
- The Health Trust. “What Is Policy, Systems and Environmental (PSE) Change? ” 2012. Available online: http://healthtrust.org/wp-content/uploads/2013/11/2012-12-28-Policy_Systems_and_Environmental_Change.pdf (accessed on 8 November 2015).
- Institute of Medicine of the National Academies. The Future of the Public’s Health in the 21st Century. Washington: The National Academies Press, 2003. [Google Scholar]
- Centers for Disease Control and Prevention. “Investments in Community Health: Racial & Ethnic Approaches to Community Health (REACH).” 2014. Available online: http://www.cdc.gov/nccdphp/dch/programs/reach/pdf/2-reach_factsheet-for-web.pdf (accessed on 15 November 2015). [Google Scholar]
- Robin P. Newhouse, and Bonnie Spring. “Interdisciplinary evidence-based practice: Moving from silos to synergy.” Nursing Outlook 58 (2010): 309–17. [Google Scholar] [CrossRef] [PubMed]
- Hannah G. Lawman, Stephanie Vander Veur, Giridhar Mallya, Tara A. McCoy, Alexis Wojtanowski, Lisa Colby, Timothy A. Sanders, Michelle R. Lent, Brianna A. Sandoval, and Sandy Sherman. “Changes in quantity, spending, and nutritional characteristics of adult, adolescent and child urban corner store purchases after an environmental intervention.” Preventive Medicine 74 (2015): 81–85. [Google Scholar] [CrossRef] [PubMed]
- Erica Cavanaugh, Sarah Green, Giridhar Mallya, Ann Tierney, Colleen Brensinger, and Karen Glanz. “Changes in food and beverage environments after an urban corner store intervention.” Preventive Medicine 65 (2014): 7–12. [Google Scholar] [CrossRef] [PubMed]
- Daniela Guitart, Catherine Pickering, and Jason Byrne. “Past results and future directions in urban community gardens research.” Urban Forestry & Urban Greening 11 (2012): 364–73. [Google Scholar] [CrossRef]
- Rebecca Bunnell, Dara O’Neil, Robin Soler, Rebecca Payne, Wayne H. Giles, Janet Collins, Ursula Bauer, and Communities Putting Prevention to Work Program Group. “Fifty communities putting prevention to work: Accelerating chronic disease prevention through policy, systems and environmental change.” Journal of Community Health 37 (2012): 1081–90. [Google Scholar] [CrossRef] [PubMed]
- Nicole Coxe, Whitney Webber, Janie Burkhart, Bonnie Broderick, Ken Yeager, Laura Jones, and Marty Fenstersheib. “Use of tobacco retail permitting to reduce youth access and exposure to tobacco in Santa Clara County, California.” Preventive Medicine 67 (2014): S46–50. [Google Scholar] [CrossRef] [PubMed]
- Robina Josiah Willock, Robert M. Mayberry, Fengxia Yan, and Pamela Daniels. “Peer Training of Community Health Workers to Improve Heart Health among African American Women.” Health Promotion Practice 16 (2015): 63–71. [Google Scholar] [CrossRef] [PubMed]
- Sarah Klein, Martha Hostetter, and Douglas McCarthy. “A Vision for using digital health technologies to empower consumers and transform the US Health Care System.” 2014. Available online: http://www.commonwealthfund.org/~/media/files/publications/fund-report/2014/oct/1776_klein_vision_using_digital_hlt_tech_v2.pdf (accessed on 15 November 2015).
- Daniel S. Blumenthal. Community-Based Participatory Health Research: Issues, Methods, and Translation to Practice. New York: Springer Publishing Company, 2013. [Google Scholar]
- Rodney Lyn, Semra Aytur, Tobey A. Davis, Amy A. Eyler, Kelly R. Evenson, Jamie F. Chriqui, Angie L. Cradock, Karin Valentine Goins, Jill Litt, and Ross C. Brownson. “Policy, systems, and environmental approaches for obesity prevention: A framework to inform local and state action.” Journal of Public Health Management and Practice 19 (2013): S23–33. [Google Scholar] [CrossRef] [PubMed]
- Moises Perez, Sally E. Findley, Miriam Mejia, and Jacqueline Martinez. “The impact of community health worker training and programs in NYC.” Journal of Health Care for the Poor and Underserved 17 (2006): 26–43. [Google Scholar] [CrossRef] [PubMed]
- Amy M. Bauer, Vanessa Azzone, Howard H. Goldman, Laurie Alexander, Jürgen Unützer, Brenda Coleman-Beattie, and Richard G. Frank. “Implementation of Collaborative Depression Management at Community-Based Primary Care Clinics: An Evaluation.” Psychiatric Services 62 (2011): 1047–53. [Google Scholar] [CrossRef] [PubMed]
© 2015 by the authors; licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons by Attribution (CC-BY) license (http://creativecommons.org/licenses/by/4.0/).
Share and Cite
Holden, K.; Akintobi, T.; Hopkins, J.; Belton, A.; McGregor, B.; Blanks, S.; Wrenn, G. Community Engaged Leadership to Advance Health Equity and Build Healthier Communities. Soc. Sci. 2016, 5, 2. https://doi.org/10.3390/socsci5010002
Holden K, Akintobi T, Hopkins J, Belton A, McGregor B, Blanks S, Wrenn G. Community Engaged Leadership to Advance Health Equity and Build Healthier Communities. Social Sciences. 2016; 5(1):2. https://doi.org/10.3390/socsci5010002
Chicago/Turabian StyleHolden, Kisha, Tabia Akintobi, Jammie Hopkins, Allyson Belton, Brian McGregor, Starla Blanks, and Glenda Wrenn. 2016. "Community Engaged Leadership to Advance Health Equity and Build Healthier Communities" Social Sciences 5, no. 1: 2. https://doi.org/10.3390/socsci5010002
APA StyleHolden, K., Akintobi, T., Hopkins, J., Belton, A., McGregor, B., Blanks, S., & Wrenn, G. (2016). Community Engaged Leadership to Advance Health Equity and Build Healthier Communities. Social Sciences, 5(1), 2. https://doi.org/10.3390/socsci5010002