Interest and Confidence in Death Education and Palliative Psychology in Italian and Indian University Students of Psychology: Similarities and Differences
Abstract
:1. Introduction
2. Materials and Methods
2.1. The Italian Course
2.2. The Indian Course
2.3. Participants
2.4. Data Collection
2.5. Measures
2.5.1. Quantitative
2.5.2. Qualitative
2.6. Data Analysis
2.6.1. Quantitative
2.6.2. Qualitative
3. Results
3.1. Quantitative Results
3.1.1. Country Differences
3.1.2. Course Effect Evaluation for the Italian Sample
3.2. Qualitative Results
- beliefs about life and death;
- social avoidance of the topic of death;
- areas of death education use;
- impact of the death education course.
3.2.1. First Theme: Beliefs about Life and Death
I grew up in a Catholic family and had very few doubts about the most important concepts of this faith, even throughout my adolescence (many other concepts always seemed secondary and invented by man, and I don’t particularly care about them).
For many years, I was a staunch Christian believer, so I have always conceived life as a gift to be treasured, to be made the best possible from, in a later afterlife perspective. After my distancing from faith, I have not stopped viewing life as an opportunity and have always lived considering myself fortunate with what I have. At the same time, although I no longer believed in a god, I never abandoned the idea that there might be something mystical.
My views about death and life are strongly connected with religious beliefs. I believe that it is an inevitable process that cannot be skipped. We are born alone, and we have to leave the world alone. We are here to create a connection and to make a storyline. It is up to you to do your deeds.
I think life is a journey whose destination is known and the same for everyone. A life without passion is like a journey in the fog—you arrive at your destination, and you haven’t even enjoyed the scenery. Maybe it is simple; maybe it is simplistic, but this is my philosophy of life. Accordingly, I try to cultivate some interests and to seek happiness for myself and my loved ones without harming others.
If an individual is conscious that they might or people around them might die at any given point of time, then we will be more forgiving and loving towards others and be better humans ourselves. Nobody wants their last words to someone be about something bad or rude. We would like our last words or actions to be good and kind.
I adduce a Christian–Catholic religious view and find that our souls cannot end but continue after death. Although I am not a particularly religious person, I believe in life after death, similar to what Christianity says. I do not believe in a clear-cut heaven/hell/purgatory division, because I fear and shy away from the thought of eternal damnation. I see life as the antechamber to something more beautiful and greater, as a kind of preparation for…
According to me, life is not the one that is alive [sic]. Life is also beyond death. Even if the death of the body has happened, the soul is alive. I believe our body is a vehicle that runs throughout our time on earth, and when the time for the soul to transition arrives, the vehicle is left behind, whereas the soul exists to another realm of reality.
3.2.2. Second Theme: Social Avoidance of the Topic of Death
Society as a whole perceives death as taboo. They hesitate to talk about death because they don’t want to think about their loved ones leaving them. People are very scared of death, which is the main reason they avoid talking about it.
The society in which I live is oriented by the attainment and maintenance of ephemeral standards of beauty, eternal youth, and physical fitness (=health). Therefore, it repudiates any thought that would distract them from all this, much more the thought of death that would put an end to all this.
Well, I wouldn’t say it’s not painful to witness the death of your loved one, but the aura and energy that surround you right after an individual’s death are filled with pity, sympathy, and unsolicited advice. Letting people make their journey towards grieving is something that should be allowed. One cannot expect to be all fine and live life just like the day before.
In society, death is perceived as a very demotivating and sad concept. They always react to it very negatively and make it feel like everything is about to end … They lose hope and don’t look at the situation in a positive manner to give them strength. The individuals in society would cry, sympathise; some might even state that it is the end of life for the person and there is no hope. So, they end the source of any hope or space for improvement in the individual.
COVID-19 had a major impact on me, and I think a little bit on everyone. I personally faced it badly and with fear and dread. I think people are unlikely to get over this past period easily, and we are still carrying on. There has been so much loss, and the fear of losing loved ones has been strong and painful and not at all easy to live with. Over time, I learned to deal with it, but I remembered back in the day how difficult it was and how unprepared the Italian population was.
In the last two difficult years, I have witnessed a lot of deaths. After this experience, I tend to avoid any and all topics of death. As a future psychologist, this would be difficult for me professionally, as I might be unable to aid those experiencing grief or handle any topic surrounding death.
3.2.3. Third Theme: Areas of Use of Death Education
I think it is important to promote paths inherent in death and mourning, to increase sensitivity to the pain and suffering of others and to recognise and look at them as human beings and not as targets to be done away with.
I think that promoting the study of issues of death, bereavement, and palliative care would be very important, which can also help people dig into themselves to find out what they really think, and to remove the taboo of death by making it “public” again but in a healthy way, not only through crime news and violence in movies and video games.
As we celebrate birth, death should also be celebrated. But it’s easy to say, and it’s hard for someone who goes through it. That’s where the importance of promoting the study of death education comes. Just as we take sex education and related classes, death education should also be provided.
I also believe that it is essential in the fields of medicine, nursing, and psychology to study to acquire death competence, which is necessary to take responsibility for dealing with the person, even before dealing with the patient. The role of these figures is essential from the first meeting with the person who brings a request for help—whether physical and/or psychological—but also at the time of diagnosis, breaking bad news, for the communication of prognosis and possible interventions and for informing [those involved] on the course of the disease, including the sick person and family members. Here, then, the university and specialist pathways should include training in this regard for each respective course of study.
Regarding psychological accompaniment to dying, I think it is really inevitable to ensure the presence of a psychologist in that final process of life. I am convinced that this is the most suitable figure to enhance the life lived by the person who is ending his journey and to help him express his experiences and his emotions, but above all, the professional figure capable of authentic and sincere listening.
I chose this course merely because my uncle was suffering from cancer and because I wanted to help him and my cousins in every way possible. I assumed that learning the course would act as a practical education where I would be able to help my family. I couldn’t be farther from my assumptions, and this course truly helped me handle it in certain ways.
I discovered the existence of palliative psychologists and their importance in supporting dying persons and their families during this journey, and I find that it is crucial in that it can both help dying persons carry out their last developmental task in a dignified manner and help their families process this grief.
Yes, I believe that society has a very negative notion about death, and courses like palliative and hospice care would help people understand it better. Just as when we are aware that death is certain, and it is still difficult to accept that, this course will help others understand and accept death in a more positive manner.
Less importance is given to the concept and to the people fighting death. Hence, there are significantly fewer palliative care centres in the country. The introduction of the course would help individuals fighting with life-and-death situations to gain faith and strength and deal with them without compromising their well-being, which, in turn, will increase the will to fight their illnesses.
3.2.4. Fourth Theme: Impact of the Death Education Course
I also think that having the opportunity to reflect and talk about death is an important opportunity to become more familiar with the topic and with one’s own emotions and fears, just like what happened to me as a result of attending the course.
I believe that taking up palliative care has made me open up as a person about the sensitive issues that I used to run away from, mainly death. I can now accommodate my feelings from the perspective of what death means to different people at different times and its essence.
Today, I speak about it with a different awareness, certainly more mature, about how true it is that knowledge makes one free. This course helped me confront [the topic] often with my own pain, past and present, and with that of my family members. I learned to understand and not to judge the reactions in the face of pain because no one had taught me how to do so, neither my family nor other people.
It has indeed influenced my opinion because when you learn palliative psychology, you learn compassion. You understand how terrible the client and their family feel, and that makes you more eager to understand their emotions and thoughts and try to ease their pain. The difference that I see now is that I have a different perspective towards helping people with a terminal illness. Before this, I might have been a little reluctant about this field, but now, after learning about it, I feel how important this course is.
The course greatly influenced my opinion on the subject. It has enabled me to gain knowledge and develop an awareness of and serenity in dealing with a subject that I personally used to fear in an anguished way. I now feel able to talk about death with greater peace of mind and spend the skills I have acquired offering psychological support or advocacy to people who may need it.
For me, death was a negative concept—something that I would voluntarily hide from. Even when informed about a death, if near and dead, my emotions either flare up or shut down because I was too scared of the idea of death. Being in this course has helped me in all aspects. I feel more inclined towards helping in providing care and comfort [to those who may need it].
I believe now, however, that I am not yet fully ready to work in this area, as I still need to fully understand my thoughts and fears with respect to death. However, I do not exclude the possibility of working in this area one day tomorrow. The course helped me understand how important the work can be.
This course, in some sense, has helped me become more comfortable with the topic of dying and not just death as something that happens to everyone. So, yes, I do feel more competent compared to what I was five months ago.
The motivation became tremendous through this course. This has made my understanding much broader in terms of the different opportunities and methods to help people in need. Before the course, I was not sure about how the whole process operates, but now that I have completed the course, it is all clear to me. It is an amazing field to work in.
Attending the course helped me find structure to the subject. It exposed me to many more concepts, learnings and workings of the field. I definitely do want to contribute to the palliative field; however, I do not see it as a career for myself. Nevertheless, I would love volunteering in the field, as I recognise how my work could aid individuals.
4. Discussion
5. Limitations and Future Directions
Author Contributions
Funding
Institutional Review Board Statement
Informed Consent Statement
Data Availability Statement
Conflicts of Interest
References
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Before the Course | After the Course | |||||
---|---|---|---|---|---|---|
Italy | India | Country Differences | Italy | India | Country Differences | |
Variables | (N = 63) | (N = 25) | p-Value | (N = 51) | (N = 36) | p-Value |
Demographic variables | ||||||
Age | 25.44 (7.32) | 23.20 (1.66) | 0.025 | 25.71 (8.19) | 23.33 (1.94) | 0.051 |
Gender: | 0.055 | 0.051 | ||||
Female | 60 (95%) | 20 (80%) | 48 (94%) | 29 (81%) | ||
Male | 3 (5%) | 4 (16%) | 3 (6%) | 7 (19%) | ||
Missing | 0 (0%) | 1 (4%) | 0 (0%) | 0 (0%) | ||
Marital status: | 0.241 | 0.213 | ||||
Single | 26 (41%) | 16 (64%) | 22 (43%) | 22 (61%) | ||
In a relationship | 31 (49%) | 7 (28%) | 25 (49%) | 11 (31%) | ||
Married | 5 (8%) | 2 (8%) | 4 (8%) | 3 (8%) | ||
Missing | 1 (2%) | 0 (0%) | ||||
Religion: | <0.001 | <0.001 | ||||
Christian | 32 (51%) | 1 (4%) | 27 (53%) | 1 (3%) | ||
Hinduism | 0 (0%) | 14 (56%) | 0 (0%) | 18 (50%) | ||
Other | 0 (0%) | 7 (28%) | 0 (0%) | 12 (33%) | ||
None | 31 (49%) | 3 (12%) | 24 (47%) | 5 (14%) | ||
Religious level | 1.71 (0.77) | 2.72 (0.89) | <0.001 | 1.82 (0.87) | 2.81 (0.62) | <0.001 |
Experience variables | ||||||
Formal caregiver to end-of-life clients (Yes) | 7 (11%) | 4 (16%) | 0.532 | 4 (8%) | 7 (19%) | 0.109 |
Lost someone close to you in the last 2 years (Yes) | 34 (54%) | 8 (32%) | 0.063 | 23 (45%) | 14 (39%) | 0.564 |
Terminal illness of someone close to you—currently (Yes) | 9 (14%) | 3 (12%) | 0.778 | 9 (18%) | 0 (0%) | 0.008 |
Read something about end-of-life, bereavement and/or palliative care (Yes) | 18 (29%) | 20 (80%) | <0.001 | 47 (92%) | 30 (83%) | 0.204 |
Master Year: | <0.001 | <0.001 | ||||
1st | 47 (75%) | 1 (4%) | 41 (80%) | 0 (0%) | ||
2nd | 16 (25%) | 24 (96%) | 10 (20%) | 36 (100%) |
Target Variables | |||||
---|---|---|---|---|---|
Predictor | Interest Total | Confidence Total | Death Is Terminal | Death Is a Passage | Intolerance of Ambiguity |
Before the course (N = 88) | |||||
Age | −0.00 (0.01) | 0.02 (0.02) | 0.04 (0.03) | −0.02 (0.03) | −0.02 (0.02) |
Gender (Female = 0, Male = 1) | −0.42 ~ (0.22) | 0.03 (0.33) | 0.47 (0.52) | −0.75 (0.49) | −0.47 (0.41) |
Religious level | −0.12 (0.08) | −0.21 ~ (0.11) | −0.79 *** (0.18) | 0.81 *** (0.17) | 0.01 (0.14) |
Formal caregiver to end-of-life clients (No = 0, Yes = 1) | 0.38 ~ (0.20) | 0.31 (0.31) | −0.33 (0.48) | 0.13 (0.46) | 0.25 (0.38) |
Lost someone close to you in the last 2 years (No = 0, Yes = 1) | −0.01 (0.13) | −0.04 (0.19) | 0.46 (0.30) | 0.04 (0.28) | 0.22 (0.24) |
Terminal illness of someone close to you—currently (No = 0, Yes = 1) | 0.03 (0.18) | −0.26 (0.27) | 0.43 (0.43) | −0.27 (0.41) | 0.67 (0.34) |
Read something about end-of-life, bereavement and/or palliative care (No = 0, Yes = 1) | 0.38 * (0.17) | 0.59 * (0.25) | −0.24 (0.39) | 0.07 (0.37) | −0.05 (0.31) |
Master year (1st = 1, 2nd = 2) | −0.08 (0.17) | 0.43 ~ (0.25) | −0.16 (0.39) | 0.21 (0.37) | −0.22 (0.31) |
Country (Italy = 0, India = 1) | 0.32 (0.21) | 1.32 *** (0.32) | 1.00 * (0.50) | −0.38 (0.47) | 0.02 (0.40) |
R-square | 25% ** | 57% *** | 29% ** | 30% *** | 12% |
After the course (N = 87) | |||||
Age | 0.01 (0.01) | 0.03 ~ (0.01) | 0.03 (0.02) | 0.01 (0.02) | 0.01 (0.02) |
Gender (Female = 0, Male = 1) | −0.20 (0.27) | −0.08 (0.30) | 1.32 ** (0.44) | −1.18 ** (0.37) | −0.37 (0.34) |
Religious level | −0.03 (0.11) | −0.06 (0.13) | −0.52 ** (0.18) | 0.62 *** (0.15) | 0.06 (0.14) |
Formal caregiver to end-of-life clients (No = 0, Yes = 1) | 0.63 * (0.26) | 0.44 (0.29) | 0.49 (0.42) | −0.27 (0.35) | −0.50 (0.33) |
Lost someone close to you in the last 2 years (No = 0, Yes = 1) | 0.28 ~ (0.17) | −0.03 (0.19) | 0.48 ~ (0.28) | −0.42 ~ (0.23) | −0.11 (0.22) |
Terminal illness of someone close to you—currently (No = 0, Yes = 1) | 0.04 (0.29) | −0.08 (0.33) | −0.50 (0.48) | 0.43 (0.40) | 0.03 (0.37) |
Read something about end-of-life, bereavement and/or palliative care (No = 0, Yes = 1) | 0.24 (0.26) | 0.36 (0.30) | −0.28 (0.43) | 0.02 (0.36) | −0.70 (0.34) |
Master year (1st = 1, 2nd = 2) | 0.17 (0.28) | 0.08 (0.32) | −0.07 (0.46) | 0.17 (0.39) | 0.21 (0.36) |
Country (Italy = 0, India = 1) | −0.44 (0.33) | 0.60 (0.38) | 0.88 (0.55) | −0.37 (0.46) | −0.39 (0.43) |
R-square | 18% ~ | 20% * | 30% *** | 31% *** | 11% |
Target Variable | Before Course | After Course | Course Effect | |||
---|---|---|---|---|---|---|
M | SD | M | SD | t | Cohen’s d | |
Interest total | 4.24 | 0.58 | 4.15 | 0.63 | −1.01 | −0.17 |
Confidence total | 2.49 | 0.90 | 3.16 | 0.76 | 4.80 *** | 0.81 |
Death is terminal | 3.46 | 1.40 | 2.89 | 1.45 | −2.95 ** | −0.50 |
Death is a passage | 2.91 | 1.31 | 3.40 | 1.31 | 3.68 ** | 0.62 |
Intolerance of ambiguity | 3.57 | 0.95 | 3.63 | 0.82 | 0.41 | 0.07 |
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Biancalani, G.; Wagani, R.; Ronconi, L.; Cornacchini, M.; Testoni, I. Interest and Confidence in Death Education and Palliative Psychology in Italian and Indian University Students of Psychology: Similarities and Differences. Behav. Sci. 2023, 13, 183. https://doi.org/10.3390/bs13020183
Biancalani G, Wagani R, Ronconi L, Cornacchini M, Testoni I. Interest and Confidence in Death Education and Palliative Psychology in Italian and Indian University Students of Psychology: Similarities and Differences. Behavioral Sciences. 2023; 13(2):183. https://doi.org/10.3390/bs13020183
Chicago/Turabian StyleBiancalani, Gianmarco, Rekha Wagani, Lucia Ronconi, Matteo Cornacchini, and Ines Testoni. 2023. "Interest and Confidence in Death Education and Palliative Psychology in Italian and Indian University Students of Psychology: Similarities and Differences" Behavioral Sciences 13, no. 2: 183. https://doi.org/10.3390/bs13020183