Polycystic Ovary Syndrome and the Internet of Things: A Scoping Review
Abstract
:1. Introduction
2. Materials and Methods
2.1. Research Question
2.2. Eligibility Criteria
2.3. Search Strategy—Information Sources
2.4. Data Extraction and Analysis
3. Results
3.1. Mobile Apps
3.2. Social Media
3.3. Wearables
3.4. Machine Learning
3.5. Websites
3.6. Phone-Based
3.7. Participant Voices
4. Discussion
4.1. Gaps in PCOS Care and Education
4.2. Strengths and Limitations
5. Conclusions
Supplementary Materials
Author Contributions
Funding
Institutional Review Board Statement
Informed Consent Statement
Data Availability Statement
Conflicts of Interest
References
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Study ID | Source of Information | View on Source of Information | Value | Concern |
---|---|---|---|---|
Cowan et al., 2023 [97] | Internet and social media | Sources often provide inaccurate and ineffective lifestyle advice | Internet and social media are primary sources for diet and activity information | Emphasizes need to increase engagement with qualified health professionals |
Ismaylova and Yaya, 2022 [98] | Online support groups | Provides emotional support and a sense of community | Connecting with others facing similar challenges as a source of support | Absence of support before joining online groups led to feelings of isolation and depression |
Copp et al., 2021 [17] | PCOS Australia Facebook group (social media) | Peer group may not be helpful as people have unique experiences | Positive experiences were reported from connecting with others | Concerns about potential stigmatization and the anxiety caused by reading others’ negative experiences |
Lim et al., 2021 [44]; Ee et al., 2020 [45] | Internet and online support groups | Gap in supportive and specific information for PCOS management | Sense of relatability in online posts | Stories and comments can create anxiety, and it can sometimes be a source of negativity |
Holton et al., 2018 [99] | Internet and Facebook (social media) | The internet and online support groups can provide valuable information | Preference for evidence-based information in an accessible format, such as trusted websites and podcasts with health professionals | Government factsheets can lack valuable information and academic sources can be dense |
Williams et al., 2016 [100] | PCOS conference and Tumblr (social media) | Useful for healthy meal information and learning about alternative treatment options | Shared experience is valuable with alternative treatment options shared | Fear of side effects from conventional treatments led to the search for alternatives |
Holbrey and Coulson, 2013 [101] | Online support group | Helpful to connect with others facing similar challenges | Support group helpful for discussing issues and concerns with people who understand | Reading about others’ severe problems sometimes led to increased anxiety |
Avery and Braunack-Mayer, 2007 [102] | Internet | Easily accessible, private, and valuable source of information that allows for multiple information queries | Ability to access a wealth of information at any time, in privacy | Exploring information on the internet might not be suitable for everyone |
IoT | Pros | Cons |
---|---|---|
Mobile apps | Facilitates symptom tracking, menstrual cycle monitoring, and education | Concerns about data privacy, security, and the quality and reliability of the information provided |
Social media | Useful for disseminating PCOS-related information and increasing awareness | Content quality can be variable and unreliable, with the potential for spreading misinformation |
Wearables | Enables detailed symptom monitoring and real-time health data collection | Cost and accessibility issues, along with concerns about data security and patient privacy |
Machine learning | Shows promising results in PCOS diagnosis accuracy, risk prediction, and mobile app development | Requires large and diverse datasets, and implementation can be complex and resource-intensive |
Websites | Among the abundant PCOS-related content, internet forums provide emotional support and first-hand knowledge sharing between patients | User access limited by digital literacy and accessibility, whilst the content may lack quality and cultural considerations |
Phone-based | Provides direct feedback and support, aiding in behavior change and self-management | Limited to user access to technology |
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Graca, S.; Alloh, F.; Lagojda, L.; Dallaway, A.; Kyrou, I.; Randeva, H.S.; Kite, C. Polycystic Ovary Syndrome and the Internet of Things: A Scoping Review. Healthcare 2024, 12, 1671. https://doi.org/10.3390/healthcare12161671
Graca S, Alloh F, Lagojda L, Dallaway A, Kyrou I, Randeva HS, Kite C. Polycystic Ovary Syndrome and the Internet of Things: A Scoping Review. Healthcare. 2024; 12(16):1671. https://doi.org/10.3390/healthcare12161671
Chicago/Turabian StyleGraca, Sandro, Folashade Alloh, Lukasz Lagojda, Alexander Dallaway, Ioannis Kyrou, Harpal S. Randeva, and Chris Kite. 2024. "Polycystic Ovary Syndrome and the Internet of Things: A Scoping Review" Healthcare 12, no. 16: 1671. https://doi.org/10.3390/healthcare12161671