Personal Goals, Barriers to Self-Management and Desired mHealth Application Features to Improve Self-Care in Multi-Ethnic Asian Patients with Type 2 Diabetes: A Qualitative Study
Abstract
:1. Introduction
2. Materials and Methods
2.1. Study Design and Participant Recruitment
2.2. Data Collection
2.3. Data Analysis
3. Results
3.1. Participant Characteristics
3.2. Personal Goals for Diabetes Management
3.2.1. Desire to Achieve Good Glycemic Control and Lower the Number of Medications
“I’d like to keep the reading as low as possible. I mean ideally anything below 7 is good for me.”(Patient #18, F, 54, Indian)
“My goal is to reduce the number of the medications, because I’ve got a long list of medications. The other day I went to ask for prescription refill. The nurse looked at me and said I got 3 pages of medications. Hopefully all these can be reduced.”(Patient #2, M, 69, Chinese)
3.2.2. Wishing to Avoid Negative Events
“I’m trying to manage it [diabetes], trying to accept it, but my goal is that I do not want to succumb to complication of diabetes. Definitely not my foot, definitely not my eyes.”(Patient #8, F, 55, Malay)
“Medical cost here is not low, so you do not want to end up being a burden onto your family. Also, caregiving is not that easy. For me, that is important. So, my goal is you don’t want to end up being a burden [to family]. You want to be able to move and do things on your own.”(Patient #23, M, 46, Chinese)
3.2.3. Long-Term Gains through Improved Quality of Life
“I have not really discussed with my doctor on my personal goal. The consultation is short so, not much time for discussion. It [consultation] is about confirming my [sugar] level and telling me the treatment plan. It is more of a tick box type of thing.”(Patient #011, M, 62, Malay)
3.3. Barriers to Diabetes Self-Management
3.3.1. Diet
“It’s a bit difficult with your diet because when you work, you tend to go eat at a hawker center, which does not have many healthy options. I tell my endocrinologist that sometimes it’s very difficult as a diabetic patient because in hawker center, you have nothing that is low in carbs, low GI. So, you need to eat something anyway with portion control, like half of the carbs of whatever you eat.”(Patient #9, M, 50, Chinese)
“I consulted a dietician and she said, ‘you have to take only this portion, nothing more.’ When I had my meals, I strictly followed the portion recommended by the dietician. What happened was I fainted you know? I really fainted. I work in the supermarket, and I was unable to stay all day with that portion.”(Patient #5, F, 56, Chinese)
3.3.2. Physical Activity
“So, there’s this 1 h workout which is very good, so every week I always go there for exercise. But during the exercise, I fell down and my bone was broken, after that I stopped the exercise. Now I’m too apprehensive to exercise.”(Patient #4, F, 65, Chinese)
“…there was a period when I could find time to exercise, but after being more involved in work, of course the frequency to exercise has been reduced, and that has caused a spike again in the [glycemic] reading.”(Patient #25, F, 47, Indian)
3.3.3. Medication
“Especially when I go out, sometimes I forget to take my medicine. If I go out to eat, then I feel oh did I skip my medicines?”(Patient #26, F, 54, Indian)
3.4. Desired App Features Useful for Diabetes Self-Management
3.4.1. Timely Nudges
“I guess we, as diabetic patients, have an issue of compliance with medication and all that kind of thing, so I guess timely cues would actually enable compliance.”(Patient #9, M, 50, Chinese)
“If you have an app that tells you ‘at lunchtime you should eat this’, then you know what to choose for a meal. The app can also prompt you at 7 pm, ‘you should now walk 1000 steps’. Then you go and walk 1000 steps. This is good because you have a personal coach supporting you daily.”(Patient #28, M, 60, Indian)
“I have no problem sleeping, although I do not sleep early, I normally sleep at 11.30 pm, so it’s already like a lifestyle habit, and I do not want to have too many cues. Beep, you exceeded your food intake. Beep, go to sleep now. Beep, take your medicine. I think it’s becoming a nuisance to me.”(Patient #14, F, 54, Malay)
3.4.2. Tracking and Personalized Guidance Based on Logs
“The most important thing is monitoring. You monitor your own behavior and that’s how you can improve. Because you will see there’s a red dot [in HbA1C level] to show that you have not improved, you’ll understand and try to bring it down to green you see.”(Patient #29, M, 60, Indian)
“There are certain features that I find useful. One is the personalized advice. It will be good if the app tells me whether I am doing right or I need to do certain excise to lose fat, or it may be the particular food that increases my sugar level…I feel I do everything I’m supposed to do, but still my sugar level doesn’t change. So, it is important to know how to achieve my goal.”(Patient #21, F, 40, Chinese)
“It [logging] could be a bit unfair. I don’t think people have time to sit and log all that information daily. I don’t think I will log every time, like I had a cup of coffee at 12 pm and I had another cup at 2 pm and log…I know it is for your own health, but it just won’t work because I have other important things to do.”(Patient #25, F, 47, Indian)
3.4.3. In-App Resources
“It would be good if the app can provide advice on appropriate type of exercise or diet in view of the [health] problem that I have. I’m doing it [exercise] in my own way, but there might be something that the app could help me how to go about doing your daily routine.”(Patient #1, F, 79, Chinese)
“I can easily go to the internet to check exactly how to manage my condition because there’s so much information on the internet. But you don’t know whether the information is reliable. If there’s this app that guides you with steps verified by professionals or doctors, that will be great. Then, we can safely follow the advice.”(Patient #12, F, 60, Malay)
3.4.4. App-Based Peer Support and Built-in Chat with Health Coaches
“Peer support is a source of motivation. You can use the app to chat ‘so how do you maintain your sugar level? How do you go about doing it?’ So, it’s not just one-way system. I mean if the app is just technical, it’s dead and the information you get from it is very fixed. But when you chat with a fellow diabetic patient, you can learn and support each other.”(Patient #17, F, 47, Chinese)
4. Discussion
Strengths and Limitations
5. Conclusions
Supplementary Materials
Author Contributions
Funding
Institutional Review Board Statement
Informed Consent Statement
Data Availability Statement
Acknowledgments
Conflicts of Interest
References
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n | % | |
---|---|---|
Number of focus groups | 9 | |
Number of one-one-one interviews | 2 | |
Age (years) | ||
mean (SD) | 57.8 (9.38) | |
Range | 40–79 | |
Gender | ||
Male | 16 | (55.2) |
Female | 13 | (44.8) |
Ethnicity | ||
Chinese | 18 | (62.1) |
Malay | 6 | (20.7) |
Indian | 5 | (17.2) |
Education | ||
Primary or Lower | 1 | (3.4) |
Secondary | 15 | (51.7) |
Tertiary or above | 13 | (44.8) |
Marital Status | ||
Single/Never married | 3 | (10.3) |
Married | 23 | (79.3) |
Divorced/Widowed | 3 | (10.3) |
Employment Status | ||
Employed | 17 | (58.6) |
Unemployed | 3 | (10.3) |
Retired | 9 | (31.0) |
Theme/Domain | Subtheme | |
---|---|---|
Personal goals | Desire to achieve good glycemic control and lower the number of medications | Having good glycemic control |
Reducing the number of medications | ||
Wishing to avoid negative events | Circumventing death, prompted by witnessing the suffering of family and friends | |
Keeping away from T2DM complications | ||
Long-term gains through improved quality of life | Staying well in later years of life | |
Maintaining independence so as not to be a burden to family | ||
Barriers to self-management | Diet | Unable to comply with regular meal timing |
Limited healthy food options at work | ||
One-size-fits-all advice felt to be inadequate engendering loss of motivation | ||
Physical activity | Existing ailments hinder exercise | |
Insufficient time to exercise due to competing priorities | ||
Medication | Work schedules hampering adherence | |
Tendency to forget regular regimen | ||
App features | Timely nudges (cues) | Nudges felt to be helpful for enhancing compliance |
Utilizing nudges as a form of personal coaching | ||
Too many nudges perceived as a nuisance and desire for customization | ||
Tracking and personalized guidance based on logs | Tracking allows one to learn progress and enhance self-awareness | |
Personalized feedback viewed helpful particularly for those who followed generic recommendations but did not work | ||
Daily logging can be a burden | ||
In-app resources | Desire to receive customized suggestions for alternative exercise and diet | |
Credible and clinically accurate information seen as crucial | ||
App-based peer support and built-in chat with health coaches | App-based activity as a source of motivation and information-sharing |
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Yoon, S.; Kwan, Y.H.; Phang, J.K.; Tan, W.B.; Low, L.L. Personal Goals, Barriers to Self-Management and Desired mHealth Application Features to Improve Self-Care in Multi-Ethnic Asian Patients with Type 2 Diabetes: A Qualitative Study. Int. J. Environ. Res. Public Health 2022, 19, 15415. https://doi.org/10.3390/ijerph192215415
Yoon S, Kwan YH, Phang JK, Tan WB, Low LL. Personal Goals, Barriers to Self-Management and Desired mHealth Application Features to Improve Self-Care in Multi-Ethnic Asian Patients with Type 2 Diabetes: A Qualitative Study. International Journal of Environmental Research and Public Health. 2022; 19(22):15415. https://doi.org/10.3390/ijerph192215415
Chicago/Turabian StyleYoon, Sungwon, Yu Heng Kwan, Jie Kie Phang, Wee Boon Tan, and Lian Leng Low. 2022. "Personal Goals, Barriers to Self-Management and Desired mHealth Application Features to Improve Self-Care in Multi-Ethnic Asian Patients with Type 2 Diabetes: A Qualitative Study" International Journal of Environmental Research and Public Health 19, no. 22: 15415. https://doi.org/10.3390/ijerph192215415
APA StyleYoon, S., Kwan, Y. H., Phang, J. K., Tan, W. B., & Low, L. L. (2022). Personal Goals, Barriers to Self-Management and Desired mHealth Application Features to Improve Self-Care in Multi-Ethnic Asian Patients with Type 2 Diabetes: A Qualitative Study. International Journal of Environmental Research and Public Health, 19(22), 15415. https://doi.org/10.3390/ijerph192215415