Digital Health for Migrants, Ethnic and Cultural Minorities and the Role of Participatory Development: A Scoping Review
Abstract
:1. Introduction
2. Materials and Methodology
2.1. Defining Relevant Terms
2.2. Searching and Identifying Relevant Studies
- 1)
- The target groups of the study are ethnic or cultural minorities or migrants,
- 2)
- Digital health tools are used or developed as an intervention,
- 3)
- The intervention targets specific or general health issues (including wellbeing and health literacy).
2.3. Study Selection
3. Results
3.1. Characteristics of Included Studies
3.2. Region
3.3. Study Design and Number of Participants
3.4. Target Population
3.5. Digital Technology
3.6. Intended Use of the Digital Tools
- -
- Providing health information to a population afflicted by a particular illness or condition (22 studies, 39%).
- -
- Self-management of illness, for instance, through the rating and tracking of symptoms and medication (14 studies, 25%).
- -
- Prevention of illness (e.g., diabetes, weight gain) (seven studies, 12%).
- -
- Facilitating consultations with health professionals either through reminders for appointments or through e-consultations (six studies, 10%).
- -
- Facilitating patient support groups or patient networking (three studies, 5%).
- -
- Hybrid forms of intervention, comprising of two or more of these dimensions (three studies, 5%).
- -
- Language translation, usually during consultations (one study, 2%).
- -
- Home monitoring system to track movement (one study, 2%).
3.7. Health Focus
3.8. Degree of Participation of Target Groups in DHI Development
- Type 1: Participation at the outcome stage of intervention;
- Type 2: Participation before intervention design;
- Type 3: Participation in intervention testing;
- Type 4: Participation throughout the development process.
3.8.1. Type 1: Participation at the Outcome Stage of Intervention
3.8.2. Type 2: Participation before Design
3.8.3. Type 3: Participation in Intervention Testing
3.8.4. Type 4: Participation throughout Development Process
4. Discussion
4.1. Principal Findings
4.2. Limitations
5. Conclusions
Author Contributions
Funding
Institutional Review Board Statement
Informed Consent Statement
Data Availability Statement
Conflicts of Interest
References
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Reference | Aim | Target Population and Region | Study Design | Participation of Target Group | Health Focus | Digital Technology | Outcome |
---|---|---|---|---|---|---|---|
Type 1: Participation at the outcome stage of intervention (33 studies) | |||||||
Abu-Saad et al. [20] | Develop an Interactive Lifestyle Assessment, Counseling and Education (I-ACE) software to support dietician-delivered lifestyle counseling among the target group. | 50 overweight or obese Arab adults (aged 40–62 years) | RCT | 4 in-person, dietician-delivered counseling sessions over 6 months using the I-ACE. | Diabetes | Interactive Lifestyle Assessment | The culturally adapted software for dietician-delivered lifestyle counseling could increase the pace of acquiring diabetes-related lifestyle knowledge and showed a trend toward improving lifestyle behaviors. |
Bender et al. [21] | Assess feasibility and potential efficacy of a culturally adapted mHealth weight loss lifestyle intervention. | Overweight Filipino Americans with type 2 diabetes (T2D). | RCT | 45 Filipino American adults were enrolled and randomized. | Obesity | mHealth/ App | The PilAm Go4Health was feasible and demonstrated potential efficacy in reducing diabetes risks in overweight Filipino Americans with T2D. |
Berridge et al. [22] | Examine the experience of low-income immigrant senior residents’ family contacts and staff with remote monitoring technology. | Minority seniors (different origins) in USA | Qualitative | Experience with technology discussed in qualitative interviews. | Overall lifestyle habits | Telehealth | Resistance to use of remote monitoring technology rooted in cultural expectations of care. |
Borsari et al. [23] | Adapt the Pregnancy and Newborn Diagnostic System (PANDA) for antenatal care for a multiethnic and mobile population. | Women Asylum seekers in Italy | Feasibility study | Time spent for each visit (indirect measure), yes/no questions, questionnaire for feedback. | Pregnancy and/or postpartum | mHealth/ App | The study noted a high patient satisfaction rate (91.9%). The system was efficient in providing comprehensive and high-quality antenatal care amongst migrants, facilitating the continuity of care for a population undergoing frequent relocations. |
Chiu et al. [24] | Assess the usability of a new Internet-based Caregiver Support Service and evaluate its effects on health outcomes. | Chinese Canadians who care for a family member with dementia | Mixed Methods | Demographic and questionnaire data were collected from 28 participants, and in-depth interviews were conducted with 10 participants. | Neurological conditions | Asynchronous e-mails and website | This study showed that caregivers can benefit from receiving professional support via asynchronous e-mails and a special information website. The Model is a feasible approach for supporting caregivers who prefer an alternative service model. |
Comulada et al. [25] | Examine CEMA (cell phone-based ecological momentary assessment) and PFR (photographic food records) adherence to the use of a mobile app designed to help mothers self-monitor lifestyle behaviors and stress. | Ethnic minority mothers in USA | RCT | Selection of measures tailored with focus groups before RCT | Pregnancy and/or postpartum | mHealth/ App | Variations in population and temporal characteristics should be considered for mobile assessment schedules. Neither CEMA nor PFR alone is ideal over extended periods. |
Garcia et al. [26] | Design and testing of a remote psychosocial therapy system to improve personal health via text messaging; (2) reflection on the usability and feasibility of mobile phones in psychosocial therapies. | Immigrant women claiming social assistance who use social services in Spain | Non-randomized experimental study | Women interviewed before study to reach a psychological diagnosis. Intervention compared face-to-face therapy session and text messages to face-to-face therapy and no text messages. Pre-defined message banks in Spanish are used. Women are not involved in their creation. | Mental health and wellbeing | Text messages | Messages improved women’s mood and helped them feel more connected with social environment. Acceptability was good. |
Hu et al. [27] | Examine the feasibility and acceptability and pilot test the potential efficacy of a social media-based DSME intervention among low-income Chinese immigrants with type 2 diabetes (T2D) in New York City. | Low-income Chinese immigrants in New York City | Pre- and post-test | Acceptability was assessed via a satisfaction survey at 3 months. | Diabetes | Videos and social media | The results of this study demonstrated high feasibility and acceptability of this intervention. The retention rate was comparable to or better than that previously reported in in-person diabetes interventions with Chinese immigrants. |
Johnson et al. [28] | Explore midwives’ and non-Western immigrant women’s attitudes towards and experiences of using the MAMAACT intervention. | Midwives and Non-Western immigrant women in European Union | Qualitative | Focus groups with the midwives, semi-structured interviews with the women, observation of both during consultations. Participatory approach with the midwives, but not the women. Women’s accounts only included after instrument development. | Pregnancy and/or postpartum | mHealth/ Apps | MAMAACT intervention is a tool to build knowledge and skills’ and ‘intervention experiences. Sessions promoted midwives’ reflection on practice; however, at the visits, habitual ways of interacting impacted encounters between midwives and non-Western immigrant women. |
Kharbanda et al. [29] | Evaluate targeted text message reminders for low-income, urban parents to promote influenza vaccination among children and adolescents. | Low-income, urban population, 88% publicly insured and 58% from Spanish-speaking families. | RCT | 9213 children and adolescents aged 6 months to 18 years receiving care at 4 community-based clinics. | Infectious diseases | Text message | Compared with usual care, the text messaging intervention was associated with an increased rate of influenza vaccination. |
Kiropoulos et al. [30] | Investigate the effects of multicultural information on depression literacy, depression stigma, depressive symptoms. | Greek- and Italian-born immigrants in Australia | RCT | Follow-up questionnaire about symptoms. No feedback on intervention. | Mental health and wellbeing | Website and/or informational videos | Significant differences between the intervention group and the control group were reported for depression literacy and personal stigma scores, but not for perceived stigma or level of depression scores. |
Kumar et al. [31] | Assessed whether patients would be receptive to influenza vaccination text messages. | Low-income, racial and ethnic minority primary care patients | Non-randomized experimental study | Participants completed a self-administered survey after the intervention. | Infectious diseases | Text message | Text messaging is a feasible tool to engage patients in their health and improve annual influenza vaccination rates among low-income, racial and ethnic minority patients. |
Lee et al. [32] | Explore the impact of mMammogram on changes to study participants’ screening behavior and suggest how the intervention can be improved for wide dissemination and implementation in the Korean American community. | Korean American immigrant women | Qualitative | Focus groups with Korean immigrant women who completed the mMammogram. | Cancer | mHealth/ App | A mobile app intervention that is culturally tailored, along with health navigation services, can be a feasible, effective and acceptable tool to promote breast cancer screening behaviors in underserved immigrant women. |
Linke et al. [33] | Examine participant engagement of an internet-based physical activity (PA) intervention for Latinas, adoption and maintenance of PA behavior change. | Latina women, USA | RCT | None. | Overall lifestyle/health | Website and/or informational videos | The use of a tailored, web-based PA intervention was significantly related to increased PA levels in Latinas. |
Li et al. [34] | Test the feasibility of a community health worker-led, mHealth-based diabetes self-management education and support (DSMES) intervention to reduce disparities in accessing DSMES in the target group. | Latinos living in rural South Texas | Pre- and post-test | Patient satisfaction and acceptance by questionnaire. | Diabetes | mHealth/ App | A community health worker-led mHealth-based intervention was feasible and acceptable to improve access to DSMES services for Latino adults living in rural communities. |
Liu et al. [35] | Test app usability and acceptability for Chinese immigrant caregivers. | Chinese-speaking caregivers | Qualitative | In-lab testing and at-home testing with interviews (face-to-face and phone interviews) for user experience, usability and acceptability. | Overall lifestyle/health | mHealth/ App | Positive overall experience, more in-depth feedback planned in future studies. |
Müller et al. [36] | Design and development of a digital communication assistance tool (DCAT) for 19 different languages and dialects for collecting patients’ health complaints and medical history. | Refugee patients, Germany | Qualitative | Data analysis of app use and a questionnaire on whether patients were able to use DCAT well. | Overall lifestyle/health | mHealth/ App | High acceptance and usability of the app by patients. Using digital tools for overcoming language barriers can be a feasible approach when providing health care to foreign-language patients. |
Nelson et al. [37] | Design a secure messaging service (SMS) and Interactive Voice Response (IVR)-delivered mHealth intervention to improve medication adherence among low SES, diverse adults with type 2 diabetes (T2DM), called the MED intervention. | Diverse adults with low SES | Intervention study | 80 patients with T2DM participated in a 3-month mHealth intervention called Messaging for Diabetes that leveraged a mobile communications platform. | Diabetes | mHealth/ App | Racial/ethnic minorities, older adults and persons with lower health literacy or more depressive symptoms appeared to be the least engaged in intervention. |
Nollen et al. [38] | Test a 12-week mobile technology intervention as a stand-alone tool to improve diet habits. | Racial/ethnic-minority girls | RCT | Girls randomized to the control condition received modules at Weeks 1–4 (fruits and vegetables), Weeks 5–8 (sugar-sweetened beverages) and 9–12 (screen time). No feedback from participants was provided. | Obesity | mHealth/ App | A stand-alone mobile app may produce small-to-moderate effects for fruits/vegetable consumption and reduced sugar-sweetened beverage consumption. |
Perrino et al. [39] | Participation and prediction of participation in eHealth Familias Unidas intervention, aimed at reducing substance use and other health risks among Hispanic youth. | Hispanic families with high-risk youth in USA | RCT | No feedback from participants, only secondary data analysis of the eHealth intervention. | Overall lifestyle/health | Website and/or informational videos | Participation in eHealth intervention was higher than in face-to-face intervention. This suggests that Internet-delivered, family-based interventions are a feasible and promising method for reaching Hispanic families with high-risk youth. |
Röhr et al. [40] | Evaluate effectiveness and cost-effectiveness of Sanadak-app, an app for treating post-traumatic stress syndrome. | Syrian refugees, Germany | RCT | No feedback concerning the app, only analysis of mental health scores and symptoms after each phase (effectiveness). | Mental health and wellbeing | mHealth/ App | Sanadak was not more effective in reducing mild-to-moderate post-traumatic stress in Syrian refugees than the control condition, nor was it likely to be cost-effective. Therefore, Sanadak is not suitable as a standalone treatment. However, as the app usability was very good, no harms were detected and stigma significantly reduced, Sanadak has potential as a bridging aid within a stepped and collaborative care approach. |
Schulz et al. [41] | Assessed the demographic and disease profile of refugee patients attending a telehealth clinic, calculated patient travel avoided. Assessed challenges and performance of two videoconferencing solutions. | Refugees/displaced persons/asylum seekers in Australia | Cohort study | No feedback from participants provided. | Infectious diseases | Telehealth | Effective in terms of avoiding travel and CO2 production. Technical issues in 25% of consultations. A stronger internet connection was needed to ensure quality of videoconference. |
Spanhel et al. [42] | Examined feasibility, acceptance and preliminary effectiveness of a culturally adapted digital sleep intervention for refugees. | Refugees | RCT | Baseline assessment (T1), follow-up assessments took place 1 month (T2) and 3 months after randomization (T3). | Mental health and wellbeing | Website and/or informational videos | Low-threshold, viable access to mental healthcare can be offered to multiple burdened refugees by culturally adapting an intervention, providing it in a scalable format and addressing transdiagnostic symptom, such as sleep disturbances. |
Tanner et al. [43] | To develop and implement weCare, a bilingual mHealth intervention to support HIV care engagement among racially/ethnically diverse young GBMSM and transgender women. | Racially diverse gay, bisexual and other men who have sex with men (GBMSM) and transgender women | Cohort study | Interviews with intervention participants and HIV clinic providers and staff. | HIV and/or other STDs | mHealth/ App | Informed messages targeted to GBMSM and transgender women using tailored bidirectional messaging from a “real” person with whom participants have a relationship and personalized to participants. Outcomes become essential to ensure engagement in care and support health outcomes. |
Thompson et. al. [44] | Investigate whether educational modules online increase immediate nutrition and feeding knowledge in low-income Spanish-speaking Latino immigrant parents. | Low-income Spanish-speaking latino immigrant parents, USA | RCT | No feedback from participants provided. Evaluation of knowledge change after use of intervention. | Overall lifestyle/health | Website and/or informational videos | Immediate parental knowledge was enhanced. |
Tomita et al. [45] | Feasibility of depression screening by SMS among refugees in South Africa who attend mental health services. | Refugees, South Africa | Cohort study | Analysis of statistics and feedback to SMS-based intervention (overall evaluation, interest in future use, comfort of use). | Mental health and wellbeing | Text messages | Intervention is feasible for assessment of depression symptoms, comfort of use rated high. Face-to-face preferred for consultations. |
Ünül Ince et al. [46] | Evaluate effectiveness of a culturally sensitive self-help intervention for reducing depressive symptoms. | Turkish migrants, Netherlands | RCT | No feedback from participants provided. Data analysis of depression scores. | Mental health and wellbeing | Website and/or informational videos | No significant effect on reduction of depressive symptoms. |
Van der Veen et al. [47] | Effectiveness of a culturally tailored internet intervention promoting Hepatitis B virus (HBV) screening in Turkish migrants. | Turkish migrants | RCT | Participation in an online intervention. No feedback from participants. | Infectious diseases | Website and/or informational videos | The study was not able to demonstrate the added value of behaviorally plus culturally tailored information on screening uptake. |
Wollersheim et al. [48] | Improve the psychosocial health of and facilitate settlement by mobile phone-based peer support. | Nuer (southern Sudanese) women, Australia | Qualitative | Fifth and final sessions were focus groups to evaluate the intervention. | Mental health and wellbeing | mHealth/ App | Women’s cognitive social capital was increased through intervention, with potential of using technology to bridge health inequities in a marginalized group. |
Ye et al. [49] | Establish a telepsychiatry services that connect Korean mental health patients in Georgia with psychiatrists in California. | Asian Americans, USA | Mixed methods | Upon completion of the program, 16 patients completed a questionnaire. | Mental health and wellbeing | Telehealth | Participants appreciated cultural sensitivity of intervention and interaction with provider, but technical issues affect the quality of clinical interaction. |
Yeung et al. [50] | Evaluate the effectiveness of a telepsychiatry-based culturally sensitive collaborative treatment (T-CSCT) intervention to improve treatment outcomes for Chinese American immigrants with major depressive disorder (MDD). | Chinese American Immigrants, USA | RCT | Eligible patients were randomized to receive either T-CSCT or treatment as usual (TAU) for 6 months. | Mental health and wellbeing | Telehealth | T-CSCT is effective in improving treatment outcomes of Chinese immigrants with MDD. |
Young et al. [51] | Examined whether and how an HIV-prevention diffusion-based intervention spread throughout participants’ online social networks and whether changes in social network ties were associated with increased HIV prevention and testing behaviors. | Racial/ethnic minority men who have sex with men (MSM) | RCT | 112 participants received peer-delivered HIV (intervention) or general health (control) information over 12 weeks through closed Facebook groups. | HIV and/or other STDs | Social media | Among high-risk MSM, peer-led social media HIV prevention interventions can increase community cohesion. |
Zheng and Woo [52] | Compare YouTube against traditional talk-based workshops in delivering dementia knowledge to the target group. | Chinese American population | Quantitative | Data collected from YouTube viewing data and talk-based workshop participants’ demographics were analyzed. | Mental health and wellbeing | YouTube | Internet-based websites such as YouTube are no substitute for dementia education, but for the target group and their health, it is promising. However, talk-based workshops are still more desired for dementia education. |
Type 2: Participation before design (8 Studies) | |||||||
Blackwell et al. [53] | Develop an SMS program (T4B-SMS program) as a source of information and resources for prenatal care at an urban health center in New York City. | Pregnant African American and African Caribbean immigrant women, USA | Mixed methods | Focus groups, key informants, interviews and observations. Qualitative themes used to develop a survey instrument. | Pregnancy and/or postpartum | Text messages | Receiving prenatal health electronic messages through texting is a positive avenue to provide pregnant women in NYC with information. More research is needed with a larger population and direct modeling of testing of the theoretical constructs is needed to fully assess the perceived usefulness and relative advantage of T4B in this population. |
DeStephano et al. [54] | Evaluate acceptability of video prenatal education in an obstetric clinic for Somali refugee women. | Somali refugee women, USA | Mixed methods | Focus groups were used to develop the videos. | Pregnancy and/or postpartum | Website/informational videos | Videos were acceptable to target group with a preference for videos in Somali. Increased interaction during appointments according to providers. |
Lee et al. [55] | Address the need for enhanced access to HIV prevention for Latinx immigrant sexual minority men. Development and piloting of a culturally sensitive technology-based campaign focused on HIV testing and pre-exposure prophylaxis (PrEP) uptake. | Latinx immigrant sexual minority men, USA | Mixed Methods | 3 focus groups with 15 Latinx immigrant sexual minority men were used to refine the HIV prevention content, which was then piloted on social media platforms. | HIV and other STD | Social Media | Culturally relevant social media and web-based outreach strategies that are informed and developed by the community can reach Latinx immigrant sexual minority men for HIV prevention. |
McBride et al. [56] | Pilot and evaluation of a low-cost mobile health (mHealth) intervention called mMom utilizing behavior change communication (BCC) to improve access to maternal, newborn and child health (MNCH) services and health equity among the target group living in remote areas. | Ethnic minority women (EMW), Vietnam | Qualitative | A pre- and post-intervention survey was administered to all participants. | Pregnancy and/or postpartum | Text messages | The messages promoted increased contact between participants and health providers, which holds potential to address the marginalization of ethnic minority women from the health system. |
Nollen et al. [57] | Develop a personal digital assistant (PDA) program to promote increased intake of fruits and vegetables (FV) to the target group. | Low-income, ethnic minority girls | Mixed Methods | Focus groups and Health Technology Questionnaire. | Obesity | mHealth/ App | The findings suggest that adolescent girls like and will use a device that prompts actions toward specified goals. Early engagement of youth in development allowed for redesign that enhanced usability and had an impact on short-term consumption. |
Raymond et al. [58] | Adapt the CoYoT1 Clinic model to address the needs of a low socioeconomic status (SES), racially/ethnically diverse YA population with type 1 diabetes (T1D). Assess the effects on access to care, follow-up frequency, psychosocial outcomes and patient and provider satisfaction. | Young adults (YA) from racial/ethnic minorities and low socioeconomic backgrounds | Mixed Methods | Patient advisory board, focus groups, survey. | Diabetes | Telehealth | The original CoYoT1 Clinic model was successfully adapted to serve a low SES, publicly insured, racial/ethnic minority YA population with type 1-diabetes. Better management of psychological co-morbidities apparent. |
Umaefulam and Premkumar [59] | Explore utilizing mobile health (mHealth) via text messages to provide diabetic retinopathy awareness and improve diabetic-eye-care behavior. | Indigenous women with or at risk of diabetes | Cohort study | Sharing circle and survey. | Diabetes | Text messages | The mHealth education intervention increased diabetic retinopathy awareness and fostered a change in diabetes-eye-care behavior. Health information via text messaging can motivate, provide support and empower individuals as well as prevent and manage chronic conditions and reduce the risk of complications. |
Whiteley et al. [60] | Develop an HIV/STI Internet intervention from publicly available websites including YouTube. Material chosen for the study is relevant to minority youth and to the IMB model. The preliminary efficacy of the intervention was tested in a small, randomized controlled trial. | Ethnic, racial, sexual minority adolescents | RCT | 18 ethnically and sexually diverse urban youth provided feedback on the relevance, comprehensibility and acceptability of selected sites and content in focus groups. | HIV and/or other STDs | Website and/or informational videos | Significant changes were found in measures of self-efficacy and the reduction in unprotected sex acts suggesting that this easily disseminated Internet content could result in changed attitudes and behavior. |
Type 3: Participation in intervention testing (9 Studies) | |||||||
Burchert et al. [61] | Adaptation of existing web-based e-mental health intervention into mobile mental health tool. | Syrian refugees residing in different countries | Qualitative | Three phases of adaptation with interviews, expert interviews and focus groups. Target group was involved in all three. | Mental health and wellbeing | mHealth/ App | User-informed approaches should be used more often in development of digital health for refugees. Usability evaluation is ongoing. mHealth for mental health feedback from target group valuable and helped adapt design and content. |
Dorfman et al. [62] | Refine and test a mobile-health behavioral cancer-pain-coping skills training protocol for women with breast cancer and pain from medically underserved areas. | Women with breast cancer and pain in medically underserved areas | Mixed Methods | 3 focus groups (Phase 1) were used to refine the initial protocol. A single-arm pilot trial (Phase 2) was conducted to assess feasibility, acceptability and changes in outcomes. | Cancer | Telehealth | Appropriately adapted mobile-health technologies may provide an avenue to reach underserved patients and implement behavioral interventions to improve pain management. |
Handley et al. [63] | Tailor an IT-enabled health communication program to promote a Diabetes Prevention Program (DPP)-induced concordant behavior change among the target group. | Postpartum Latina women with recent gestational diabetes | Qualitative | 4 focus groups (n = 22 participants) and input from a regional consortium of health care providers, diabetes experts and health literacy practitioners informed the intervention development. | Pregnancy and/or postpartum | Telehealth | Systematic use of behavioral theory to inform intervention development could represent a strategy to develop health IT intervention tools to meet the needs of diverse populations. |
Lee et al. [64] | Develop mobile text messaging intervention program, mScreening. | Young Korean American immigrant women | Qualitative | Guided by the Fogg behavior model, the mScreening intervention was developed through a series of focus groups. | HIV and/or other STDs | Text messages | This study demonstrated the processes of gathering culturally relevant information to develop a mobile phone text messaging intervention and incorporating the target population’s perspectives into the development of the intervention. |
Liss et al. [65] | Design, implement and evaluate the ER Alert app, with patients from an underserved population. | Patients from a traditionally underserved population | Mixed Methods | Quantitative outcomes on app performance and qualitative data on patient user experience. | Overall lifestyle/health | mHealth/ App | The app had moderate sensitivity and high positive predictive value for identifying regional hospital visits. |
Muroff et al. [66] | Translate and adapt an Addiction Comprehensive Health Enhancement Support system app for Spanish-speaking Latino adults with drug or alcohol disorders. | Spanish-speaking Latino/a adults | Quantitative | User data were collected for each unique user on a secure server, which captured login time stamps and services used within the CASA-CHESS app. | Mental health and wellbeing | mHealth/ App | Findings demonstrate the importance of social support in the four months following discharge for individuals with alcohol and other drug problems/mental disorders. Such evidence-based, theory-driven digital interventions can expand access to culturally and linguistically competent services. |
Quarells et al. [67] | Adapt the Project UPLIFT providing mental health self-mangement for Black and Hispanic people with epilepsy (PWE). | Black and Hispanic people with epilepsy (PWE) | Qualitative | 6 focus groups were conducted (4 PWE: People with Epilepsy; 2 MSP: Main Support Person). For PWE, there was one in-person focus group and three focus groups were conducted over the telephone. | Neurological conditions | Telehealth | The adaptation of Project UPLIFT for black and Hispanic people with epilepsy described here suggests that interventions can be successfully adapted to new populations or cultural settings through a careful and systematic adaptation process. |
Sungur et al. [68] | Develop an oncological module aimed at increasing patient participation between older migrant patients with cancer and their health care professionals. | Older Turkish–Dutch and Moroccan–Dutch patients with cancer | Qualitative | In 5 cycles that engage key stakeholders in intervention development. Listen phase, Plan phase, Do phase, Study phase, Act phase. | Cancer | Website and informational videos | Websites and informational videos to inform older immigrant patients with cancer about health-related topics in their native language is a viable approach to increase the effectiveness of health communication for this target group. |
Tanner et al. [69] | Describe the preliminary impact of weCare, an ongoing intervention to support HIV care linkage and retention for the target group. | Young racial/ethnic minority men who have sex with men (MSM) and transgender women with HIV (16–34 years) | Cohort study | Intervention staff and 91 intervention participants were interviewed on their experience with weCare. | HIV and/or other STDs | mHealth/ App and text messages | Social media is an important tool, especially for young MSM and transgender women, to support individual- and community- level health. It may also be a useful tool for improving engagement with biomedical HIV prevention tools. |
Type 4: Participation throughout development process (7 studies) | |||||||
Brewer et al. [70] | Design and development of culturally relevant, cardiovascular health and wellness digital application. | African Americans in USA | Mixed Methods | Community-based participatory research approach. | Cardiac disease | mHealth/ App | Culturally relevant lifestyle interventions delivered by mobile health tools to comprehensively promote multiple cardiovascular risk factors through the Life’s Simple 7 framework can promote ideal CVH among African Americans, thereby advancing CVH equity. |
Castillo et al. [71] | To adapt and translate an English-language pregnancy mobile health app to meet the language and cultural needs of Spanish-speaking Latino immigrants living in the United States. | Pregnancy and/or postpartum migrants and/or ethnic minorities | Qualitative | 7-steps Transcreation Framework: (1) identify community infrastructure and engage partners; (2) specify theory; (3) identify multiple inputs for the new program; (4) design intervention prototype; (5) design study, methods and measures for community setting; (6) build community capacity for delivery; and (7) deliver the intervention. | Pregnancy and/or postpartum | mHealth/ App | Adaption of an mHealth pregnancy app to the needs of an emerging Latino community, by incorporating culturally sensitive Spanish language content while focusing on addressing existing health disparities. |
DeCamp et al. [72] | Evaluate impact of Spanish-language test message intervention on infant emergency department use and well care and vaccine adherence. | Spanish-language (Latino) families in USA. 157 parent–child dyads. | RCT | Interactive text messages through the child’s first year of life, developed with the Latino Family Advisory Board. From grant proposal to implementation, meetings were conducted in Spanish and attended by 12 to15 members who were Latin American immigrant women. | Mental health and wellbeing | mHealth/ App and text messages | Reduced infant emergency department use and increased flu vaccine uptake, but no difference in welfare or overall immunization between intervention and control group. |
Evans et al. [73] | Development of a theory-based mHealth intervention to promote HIV testing. | African community living in urban environments in the UK | Qualitative | Community-based social marketing process. | HIV and/or other STDs | mHealth/ App | Respondents highlighted a need for communities and professionals to work together to build a context of trust through co-location in, and co-involvement of, local communities which would, in turn, enhance confidence in, and support for, HIV testing activities of health professionals. Findings suggested that messages should: Avoid an exclusive focus on HIV, be tailored and personalized, come from a trusted source, allay fears and focus on support and health benefits. |
Ospina-Pinillos et al. [74] | Cultural adaption and co-design of Mental Health E-clinic. | Spanish-speaking young people in Australia | Qualitative | Involvement of target group in phase 1 and 4. Involvement of Spanish speaking specialists and health professionals in 2 and 3. | Mental health and wellbeing | Website | Acceptability among target group is adequate. Further tailoring is needed. |
Samkange-Zeeb et al. [75] | Development of an internet-based bilingual intelligent health assistant (IHA) and evaluate acceptance and usability. | Adults of Turkish origin living in Germany | Qualitative | Participation in all 4 phases of the development. | Overall lifestyle/health | Website and informational videos | Participants were ready to adopt and use IHA in their daily lives and thought that it needs to be tailored to their native language. However, they found some contents required cultural tailoring, while others did not. |
Wang et al. [76] | Improve rate of mammography use. | Chinese women living in USA | Qualitative | Focus groups used to understand women’s views of breast cancer, attitudes toward mammography and preferred content. Meetings with community health leaders involved in cancer care and women’s health. | Cancer | Website and informational videos | Increase in screening intervention and knowledge, risk perception for breast cancer and benefit perception of mammography. Lower reported barriers after viewing. |
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Radu, I.; Scheermesser, M.; Spiess, M.R.; Schulze, C.; Händler-Schuster, D.; Pehlke-Milde, J. Digital Health for Migrants, Ethnic and Cultural Minorities and the Role of Participatory Development: A Scoping Review. Int. J. Environ. Res. Public Health 2023, 20, 6962. https://doi.org/10.3390/ijerph20206962
Radu I, Scheermesser M, Spiess MR, Schulze C, Händler-Schuster D, Pehlke-Milde J. Digital Health for Migrants, Ethnic and Cultural Minorities and the Role of Participatory Development: A Scoping Review. International Journal of Environmental Research and Public Health. 2023; 20(20):6962. https://doi.org/10.3390/ijerph20206962
Chicago/Turabian StyleRadu, Irina, Mandy Scheermesser, Martina Rebekka Spiess, Christina Schulze, Daniela Händler-Schuster, and Jessica Pehlke-Milde. 2023. "Digital Health for Migrants, Ethnic and Cultural Minorities and the Role of Participatory Development: A Scoping Review" International Journal of Environmental Research and Public Health 20, no. 20: 6962. https://doi.org/10.3390/ijerph20206962
APA StyleRadu, I., Scheermesser, M., Spiess, M. R., Schulze, C., Händler-Schuster, D., & Pehlke-Milde, J. (2023). Digital Health for Migrants, Ethnic and Cultural Minorities and the Role of Participatory Development: A Scoping Review. International Journal of Environmental Research and Public Health, 20(20), 6962. https://doi.org/10.3390/ijerph20206962