Mental and Physical Health and Well-Being of Individuals with Intellectual and Developmental Disabilities

A special issue of Disabilities (ISSN 2673-7272).

Deadline for manuscript submissions: 31 December 2024 | Viewed by 5960

Special Issue Editor


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Guest Editor
Department of Nursing and Community Health, School of Health and Life Sciences, Glasgow Caledonian University, Glasgow G4 0BA, UK
Interests: improving the health and wellbeing of people with intellectual disabilities and their supporters
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Special Issue Information

Dear Colleagues,

People with intellectual and developmental disabilities (IDD) have different health patterns compared to the wider population, and they experience a significant number and range of mental and physical health issues more commonly. People with IDD can also experience health inequities when their specific mental and physical health needs are not recognized or met.

This Special Issue aims to attract papers that present advances in research and practice for people with IDD, and their supporters, that have particular relevance to increasing our knowledge/awareness of specific health issues that are more prevalent in this population, as well as interventions and their evaluations to improve their health and wellbeing. Papers with a wider focus on promoting and maintaining the wellbeing of people with IDD, as well as more inclusive environments and public health initiatives, will also be beneficial. We encourage and welcome submissions on this topic from a broad range of disciplines and study types.

You may choose our Joint Special Issue in IJERPH.

Dr. Janet Finlayson
Guest Editor

Manuscript Submission Information

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Keywords

  • intellectual disabilities
  • developmental disabilities
  • health

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Published Papers (5 papers)

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Research

16 pages, 494 KiB  
Article
Linguistic and Cultural Adaptation of a Self-Determination Scale for People with Intellectual Disabilities
by Lilian Castro-Durán, Gloria Sanzana-Vallejos, Viviana Vallejos-Garcías, Rafael Zapata-Lamana, Ana Mendoza-Mardones, Loreto Dávila-Opazo, Javiera Duhart-Carrión, Inti Huaiquipan-Ortega, Igor Cigarroa, Edmundo Espejo-Sepúlveda and Misael Sandoval-Cárcamo
Disabilities 2024, 4(4), 754-769; https://doi.org/10.3390/disabilities4040046 - 30 Sep 2024
Viewed by 753
Abstract
The main objectives of this study were to adapt the AUTODDIS scale to the cultural and social dimensions of Chile and to analyze its reliability and validity. The reliability and validity were assessed through a pilot study conducted with a population of students [...] Read more.
The main objectives of this study were to adapt the AUTODDIS scale to the cultural and social dimensions of Chile and to analyze its reliability and validity. The reliability and validity were assessed through a pilot study conducted with a population of students with intellectual disabilities (ID). The linguistic adaptation was executed according to expert judgments of each indicator: adequacy, coherence, relevance, and clarity. After the scale adaptation, a scale pilot was conducted to explore its technical properties. It was performed in a public school for students with ID. The validity coefficient result was 0.998, while the complete reliability result was α = 0.978. For the reliability subscales, the results were the following: autonomy α = 0.941, self-initiation α = 0.925, self-direction α = 0.970, self-regulation α = 0.804, and self-concept α = 0.935. The results confirm the AUTODDIS scale as a valid and reliable instrument to evaluate self-determination. However, it is necessary to apply this scale to a larger number of students with ID to generalize these results. Full article
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12 pages, 439 KiB  
Article
Dyadic Training of Communication Partners for Autistic Students: A Feasibility Study
by Eric J. Anderson, Emily Oehrtman and Nicholas Brown
Disabilities 2024, 4(3), 556-567; https://doi.org/10.3390/disabilities4030035 - 14 Aug 2024
Viewed by 733
Abstract
Access to communication is a primary challenge affecting the education of Autistic students who use augmentative and alternative communication devices. This is compounded by potential communication partners (e.g., teachers and classroom paraeducators) who have insufficient training and skills to meaningfully engage these students [...] Read more.
Access to communication is a primary challenge affecting the education of Autistic students who use augmentative and alternative communication devices. This is compounded by potential communication partners (e.g., teachers and classroom paraeducators) who have insufficient training and skills to meaningfully engage these students in communication. To address these deficits in skills and training, this feasibility study used a multiple probe across participants design to test the effects of using behavioral skills training on dyads of teachers and paraeducators in increasing teacher-delivered opportunities to respond and student communication responses. The results show that after training, teachers’ opportunities to respond and use student-specific strategies increased. Following the teachers’ implementation of the strategies, students’ prompted and unprompted communication increased. These results provide evidence that supports the use of behavioral skills training to support communication partner skill development and student communication needs. These methods showed positive social validity with participants and demonstrate a professional development method that is more feasible for use by school staff than individual training. The results of this study provide initial evidence of the effectiveness of these methods with dyads of participants as well as with licensed teachers, extending the extant research, which often focuses on the individual training of paraeducators. Full article
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13 pages, 444 KiB  
Article
Examining the Changes in Problem Behaviours and Communication of Persons with Intellectual and Developmental Disabilities after Transitioning from an Institutional Setting to the Community
by Kayla Kostal, Maria Baranowski, Hygiea Casiano, Margherita Cameranesi, Lindsay McCombe and Shahin Shooshtari
Disabilities 2024, 4(2), 290-302; https://doi.org/10.3390/disabilities4020019 - 12 Apr 2024
Viewed by 1194
Abstract
Worldwide, the community transition process away from institutions has increased in the past 30–50 years among persons with severe intellectual and developmental disabilities. This process, also known as “deinstitutionalization”, could potentially impact problem behaviors and communication. This study examined the impacts of community [...] Read more.
Worldwide, the community transition process away from institutions has increased in the past 30–50 years among persons with severe intellectual and developmental disabilities. This process, also known as “deinstitutionalization”, could potentially impact problem behaviors and communication. This study examined the impacts of community transitions on behavioural and communication outcomes in Canadians with intellectual and developmental disabilities. Data were collected using the Comprehensive Health Assessment Program and medical chart reviews. Descriptive, aggregate-level, and individual-level analyses were conducted for 32 adults who transitioned to community living. Descriptive analyses and the McNemar Chi-Square Test were conducted. Following community transitions, the study group experienced a significant decrease in problem behaviours and changes in communication. The study findings suggest that deinstitutionalization could provide effective strategies for addressing problem behaviors and fostering improvements in communication, promoting the well-being and quality of life of persons with intellectual and developmental disabilities. Full article
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13 pages, 225 KiB  
Article
Minimally Verbal Individuals with Autism Spectrum Disorders/Intellectual Disability and Challenging Behaviors: Can Strategic Psychiatric Treatment Help?
by Jessica A. Hellings, Saras Chen Singh, Sham Singh and An-Lin Cheng
Disabilities 2024, 4(2), 277-289; https://doi.org/10.3390/disabilities4020018 - 10 Apr 2024
Viewed by 1259
Abstract
(1) Background: Psychiatrists are increasingly required to treat minimally verbal (MV) individuals with autism spectrum disorder (ASD), intellectual disability (ID) and behavior problems without much published guidance. (2) Methods: We reviewed 80 charts of MV patients managed strategically for challenging behaviors, [...] Read more.
(1) Background: Psychiatrists are increasingly required to treat minimally verbal (MV) individuals with autism spectrum disorder (ASD), intellectual disability (ID) and behavior problems without much published guidance. (2) Methods: We reviewed 80 charts of MV patients managed strategically for challenging behaviors, following IRB approval. Data extracted included demographics, ASD/ID level, diagnoses, epilepsy and medications. In this descriptive study, we examined the course of assessment and treatment and made recommendations for a strategic, person-centered approach. (3) Results: Of 53 males and 27 females, mean age 34 years (range 7–76), all had ID; 75 had ASD (94%). Diagnoses included seizures in 40/80 (50%), frequent aggression (89%), self-injury (80%), attention-deficit hyperactivity disorder (ADHD) (64%) and obsessive compulsive disorder (OCD) (34%). The commonest medication classes adjusted were antiseizure medications, antipsychotics, and non-stimulant ADHD medications. (4) Conclusions: Clinical impressions suggested that this strategic psychiatric approach was beneficial, notably a review of antiseizure and all other medications for polypharmacy, behavioral and other side effects, followed by a review of possible childhood/current ADHD and a trial of low-dose non-stimulant ADHD medications if warranted. Low-dose risperidone was often effective and tolerable for irritability and self-injury. Full article
10 pages, 433 KiB  
Article
Health Checks for People with Down Syndrome: A Pooled Analysis of Three Randomized Controlled Trials
by Robert S. Ware, Catherine Franklin, Lyn McPherson and Nicholas G. Lennox
Disabilities 2024, 4(1), 101-110; https://doi.org/10.3390/disabilities4010007 - 26 Jan 2024
Viewed by 989
Abstract
Health checks have beneficial effects on health outcomes in adults with intellectual disability; however, little is known about their effect on people with Down syndrome. The aim of this study was to assess the effect of receiving a health check on the unmet [...] Read more.
Health checks have beneficial effects on health outcomes in adults with intellectual disability; however, little is known about their effect on people with Down syndrome. The aim of this study was to assess the effect of receiving a health check on the unmet health needs of people with Down syndrome. A pooled analysis of three randomized trials conducted by the same Australian research team was undertaken. The trials used the same tools but differed by participant source (adults in 24 h supported accommodation, adults in private dwellings, adolescents living with parents). The intervention was a one-off health check, and the comparator was usual care. Among 216 participants, health actions were more likely to occur for those allocated to receive health checks, including increased hearing (odds ratio = 4.4; 95% confidence interval: 1.2, 16.4), vision (2.7; 1.1, 6.7), and thyroid (2.3; 1.3, 4.2) testing, and weight recording (4.7; 2.5, 8.8). Health checks conducted at the primary-care level produced substantially increased attention to the health needs of people with Down syndrome. Full article
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