Subjective Well-Being among Parents of Children with Special Educational Needs in Hong Kong: Impacts of Stigmatized Identity and Discrimination under Social Unrest and COVID-19
Abstract
:1. Introduction
2. The Well-Being of Parents of Children with SEN
3. Stigmatized Identity and Discrimination
4. Bayesian Statistics
5. Planned Analysis
6. Method and Materials
6.1. Participants and Procedures
6.2. Demographic Variables
6.3. Emotional Experience
6.4. Stigmatized Identity
6.5. Perceived Discrimination
6.6. Perceived Social Distance
6.7. Life Satisfaction
6.8. Psychological Distress
6.9. Perceived Impact of Social Events
6.10. Missing Data Handling
7. Results
7.1. Descriptive and Correlational Analyses
7.2. Linear Regressions
8. Discussion
9. Conclusions
Author Contributions
Funding
Institutional Review Board Statement
Informed Consent Statement
Data Availability Statement
Acknowledgments
Conflicts of Interest
References
- Shek, D.T.L. Protests in Hong Kong (2019–2020): A Perspective Based on Quality of Life and Well-Being. Appl. Res. Qual. Life 2020, 15, 619–635. [Google Scholar] [CrossRef] [Green Version]
- Hou, W.K.; Lee, T.M.-C.; Liang, L.; Li, T.W.; Liu, H.; Ettman, C.K.; Galea, S. Civil Unrest, COVID-19 Stressors, Anxiety, and Depression in the Acute Phase of the Pandemic: A Population-Based Study in Hong Kong. Soc. Psychiatry Psychiatr. Epidemiol. 2021, 56, 1499–1508. [Google Scholar] [CrossRef]
- Wong, S.M.Y.; Hui, C.L.M.; Wong, C.S.M.; Suen, Y.N.; Chan, S.K.W.; Lee, E.H.M.; Chang, W.C.; Chen, E.Y.H. Mental Health Risks after Repeated Exposure to Multiple Stressful Events during Ongoing Social Unrest and Pandemic in Hong Kong: The Role of Rumination: Risques Pour La Santé Mentale Après Une Exposition Répétée à de Multiples Événements Stressants d’agitation Sociale Durable et de Pandémie à Hong Kong: Le Rôle de La Rumination. Can. J. Psychiatry 2021, 66, 577–585. [Google Scholar] [CrossRef]
- Watson, S.L.; Hayes, S.A.; Radford-Paz, E. Chapter Two-“Diagnose Me Please!”: A Review of Research about the Journey and Initial Impact of Parents Seeking a Diagnosis of Developmental Disability for Their Child. In International Review of Research in Developmental Disabilities; Hodapp, R.M., Ed.; Academic Press: Cambridge, MA, USA, 2011; Volume 41, pp. 31–71. [Google Scholar]
- Heiman, T. Parents of Children with Disabilities: Resilience, Coping, and Future Expectations. J. Dev. Phys. Disabil. 2002, 14, 159–171. [Google Scholar] [CrossRef]
- Tilahun, D.; Hanlon, C.; Fekadu, A.; Tekola, B.; Baheretibeb, Y.; Hoekstra, R.A. Stigma, Explanatory Models and Unmet Needs of Caregivers of Children with Developmental Disorders in a Low-Income African Country: A Cross-Sectional Facility-Based Survey. BMC Health Serv. Res. 2016, 16, 152. [Google Scholar] [CrossRef] [Green Version]
- Mitter, N.; Ali, A.; Scior, K. Stigma Experienced by Families of Individuals with Intellectual Disabilities and Autism: A Systematic Review. Res. Dev. Disabil. 2019, 89, 10–21. [Google Scholar] [CrossRef] [PubMed]
- Quinn, D.M.; Chaudoir, S.R. Living With a Concealable Stigmatized Identity: The Impact of Anticipated Stigma, Centrality, Salience, and Cultural Stigma on Psychological Distress and Health. J. Pers. Soc. Psychol. 2009, 97, 634–651. [Google Scholar] [CrossRef] [Green Version]
- Hayes, S.A.; Watson, S.L. The Impact of Parenting Stress: A Meta-Analysis of Studies Comparing the Experience of Parenting Stress in Parents of Children With and Without Autism Spectrum Disorder. J. Autism Dev. Disord. 2013, 43, 629–642. [Google Scholar] [CrossRef] [PubMed]
- Mofokeng, M.; Wath, A.E. van der Challenges Experienced by Parents Living with a Child with Attention Deficit Hyperactivity Disorder. J. Child Adolesc. Ment. Health 2017, 29, 137–145. [Google Scholar] [CrossRef] [Green Version]
- Spratt, E.G.; Saylor, C.F.; Macias, M.M. Assessing Parenting Stress in Multiple Samples of Children with Special Needs (CSN). Fam. Syst. Health 2007, 25, 435–449. [Google Scholar] [CrossRef]
- Cheshire, A.; Barlow, J.H.; Powell, L.A. The Psychosocial Well-Being of Parents of Children with Cerebral Palsy: A Comparison Study. Disabil. Rehabil. 2010, 32, 1673–1677. [Google Scholar] [CrossRef]
- Diener, E.; Emmons, R.A.; Larsen, R.J.; Griffin, S. The Satisfaction with Life Scale. J. Pers. Assess. 1985, 49, 71–75. [Google Scholar] [CrossRef]
- Bos, A.E.R.; Pryor, J.B.; Reeder, G.D.; Stutterheim, S.E. Stigma: Advances in Theory and Research. Basic Appl. Soc. Psychol. 2013, 35, 1–9. [Google Scholar] [CrossRef]
- Chan, K.K.S.; Lam, C.B. Self-Stigma among Parents of Children with Autism Spectrum Disorder. Res. Autism Spectr. Disord. 2018, 48, 44–52. [Google Scholar] [CrossRef]
- Corrigan, P.W.; Watson, A.C.; Miller, F.E. Blame, Shame, and Contamination: The Impact of Mental Illness and Drug Dependence Stigma on Family Members. J. Fam. Psychol. 2006, 20, 239–246. [Google Scholar] [CrossRef] [PubMed] [Green Version]
- Farrugia, D. Exploring Stigma: Medical Knowledge and the Stigmatisation of Parents of Children Diagnosed with Autism Spectrum Disorder. Sociol. Health Illn. 2009, 31, 1011–1027. [Google Scholar] [CrossRef]
- Gill, J.; Liamputtong, P. Being the Mother of a Child with Asperger’s Syndrome: Women’s Experiences of Stigma. Health Care Women Int. 2011, 32, 708–722. [Google Scholar] [CrossRef] [PubMed]
- Mikami, A.Y.; Chong, G.K.; Saporito, J.M.; Na, J.J. Implications of Parental Affiliate Stigma in Families of Children with ADHD. J. Clin. Child Adolesc. Psychol. 2015, 44, 595–603. [Google Scholar] [CrossRef] [PubMed] [Green Version]
- Norris, C.; Lloyd, G. Parents, Professionals and ADHD: What the Papers Say. Eur. J. Spec. Needs Educ. 2000, 15, 123–137. [Google Scholar] [CrossRef]
- Mak, W.W.S.; Cheung, R.Y.M. Affiliate Stigma among Caregivers of People with Intellectual Disability or Mental Illness. J. Appl. Res. Intellect. Disabil. 2008, 21, 532–545. [Google Scholar] [CrossRef]
- Corrigan, P.W.; Markowitz, F.E.; Watson, A.C. Structural Levels of Mental Illness Stigma and Discrimination. Schizophr. Bull 2004, 30, 481–491. [Google Scholar] [CrossRef] [Green Version]
- Gray, D.E. “Everybody Just Freezes. Everybody Is Just Embarrassed”: Felt and Enacted Stigma among Parents of Children with High Functioning Autism. Sociol. Health Illn. 2002, 24, 734–749. [Google Scholar] [CrossRef] [Green Version]
- Sharac, J.; Mccrone, P.; Clement, S.; Thornicroft, G. The Economic Impact of Mental Health Stigma and Discrimination: A Systematic Review. Epidemiol. Psychiatr. Sci. 2010, 19, 223–232. [Google Scholar] [CrossRef]
- Corrigan, P.W.; Rao, D. On the Self-Stigma of Mental Illness: Stages, Disclosure, and Strategies for Change. Can. J. Psychiatry 2012, 57, 464–469. [Google Scholar] [CrossRef] [PubMed] [Green Version]
- Mak, W.W.S.; Kwok, Y.T.Y. Internalization of Stigma for Parents of Children with Autism Spectrum Disorder in Hong Kong. Soc. Sci. Med. 2010, 70, 2045–2051. [Google Scholar] [CrossRef] [PubMed]
- Corrigan, P.W.; Rafacz, J.; Rüsch, N. Examining a Progressive Model of Self-Stigma and Its Impact on People with Serious Mental Illness. Psychiatry Res. 2011, 189, 339–343. [Google Scholar] [CrossRef] [PubMed] [Green Version]
- Werner, S.; Shulman, C. Subjective Well-Being among Family Caregivers of Individuals with Developmental Disabilities: The Role of Affiliate Stigma and Psychosocial Moderating Variables. Res. Dev. Disabil. 2013, 34, 4103–4114. [Google Scholar] [CrossRef]
- Cantwell, J.; Muldoon, O.; Gallagher, S. The Influence of Self-Esteem and Social Support on the Relationship between Stigma and Depressive Symptomology in Parents Caring for Children with Intellectual Disabilities. J. Intellect. Disabil. Res. 2015, 59, 948–957. [Google Scholar] [CrossRef] [Green Version]
- Chiu, M.Y.L.; Yang, X.; Wong, H.T.; Li, J.H. The Mediating Effect of Affective Stigma between Face Concern and General Mental Health–The Case of Chinese Caregivers of Children with Intellectual Disability. Res. Dev. Disabil. 2015, 36, 437–446. [Google Scholar] [CrossRef]
- Marsman, M.; Wagenmakers, E.-J. Bayesian Benefits with JASP. Eur. J. Dev. Psychol. 2017, 14, 545–555. [Google Scholar] [CrossRef]
- JASP, Version 0.12.2; Computer Software; JASP Team: Amsterdam, NL, USA, 2020.
- Lee, M.D.; Wagenmakers, E.-J. Bayesian Cognitive Modeling: A Practical Course; Cambridge University Press: Cambridge, UK, 2014; ISBN 978-1-107-65391-7. [Google Scholar]
- Census and Statistics Department. Table E034: Median Monthly Domestic Household Income of Economically Active Households by Household Size; Hong Kong SAR Government: Hong Kong, China, 2021. [Google Scholar]
- Mackinnon, A.; Jorm, A.F.; Christensen, H.; Korten, A.E.; Jacomb, P.A.; Rodgers, B. A Short Form of the Positive and Negative Affect Schedule: Evaluation of Factorial Validity and Invariance across Demographic Variables in a Community Sample. Personal. Individ. Differ. 1999, 27, 405–416. [Google Scholar] [CrossRef]
- Watson, D.; Clark, L.A.; Tellegen, A. Development and Validation of Brief Measures of Positive and Negative Affect: The PANAS Scales. J. Pers. Soc. Psychol. 1988, 54, 1063. [Google Scholar] [CrossRef] [PubMed]
- Luhtanen, R.; Crocker, J. A Collective Self-Esteem Scale: Self-Evaluation of One’s Social Identity. Pers. Soc. Psychol. Bull. 1992, 18, 302–318. [Google Scholar] [CrossRef]
- Reed, A.; Aquino, K.F. Moral Identity and the Expanding Circle of Moral Regard toward Out-Groups. J. Pers. Soc. Psychol. 2003, 84, 1270–1286. [Google Scholar] [CrossRef]
- Linacre, J.M. Winsteps®, Version 4.3.1; Computer Software; Winsteps.com: Beaverton, OR, USA, 2018.
- Wright, B.; Linacre, J.; Gustafson, J.; Martin-Lof, P. Reasonable Mean-Square Fit Values. Rasch Meas Trans 1994, 8, 370. [Google Scholar]
- Kessler, R.C.; Mickelson, K.D.; Williams, D.R. The Prevalence, Distribution, and Mental Health Correlates of Perceived Discrimination in the United States. J. Health Soc. Behav. 1999, 40, 208–230. [Google Scholar] [CrossRef] [PubMed]
- Miller, D.; Salkind, N. Scales Assessing Group Structure and Dynamics. In Handbook of Research Design & Social Measurement; Sage Publications, Inc.: Thousand Oaks, CA, USA, 2002; p. 470. ISBN 978-0-7619-2046-5. [Google Scholar]
- Andrews, G.; Slade, T. Interpreting Scores on the Kessler Psychological Distress Scale (K10). Aust. N. Z. J. Public Health 2001, 25, 494–497. [Google Scholar] [CrossRef]
- Kowarik, A.; Templ, M. Imputation with the R Package VIM. J. Stat. Softw. 2016, 74. [Google Scholar] [CrossRef] [Green Version]
- R Core Team. R: A Language and Environment for Statistical Computing; R Foundation for Statistical Computing: Vienna, Austria, 2020. [Google Scholar]
- Fan, W.; Qian, Y.; Jin, Y. Stigma, Perceived Discrimination, and Mental Health during China’s COVID-19 Outbreak: A Mixed-Methods Investigation. J. Health Soc. Behav. 2021, 62, 562–581. [Google Scholar] [CrossRef]
- Green, S.E. “What Do You Mean ‘What’s Wrong with Her?’”: Stigma and the Lives of Families of Children with Disabilities. Soc. Sci. Med. 2003, 57, 1361–1374. [Google Scholar] [CrossRef]
- Oh, J.; Neal, Z.P. Two’s Company, but Four’s a Crowd: The Relationship Among COVID-19 Stress, Household Size, and Life Satisfaction. Collabra Psychol. 2021, 7, 1–15. [Google Scholar] [CrossRef]
- Thoits, P.A. Resisting the Stigma of Mental Illness. Soc. Psychol. Q. 2011, 74, 6–28. [Google Scholar] [CrossRef]
- Vigo, D.; Patten, S.; Pajer, K.; Krausz, M.; Taylor, S.; Rush, B.; Raviola, G.; Saxena, S.; Thornicroft, G.; Yatham, L.N. Mental Health of Communities during the COVID-19 Pandemic. Can. J. Psychiatry 2020, 65, 681–687. [Google Scholar] [CrossRef] [PubMed]
- Wu, C.; Qian, Y.; Wilkes, R. Anti-Asian Discrimination and the Asian-White Mental Health Gap during COVID-19. Ethn. Racial Stud. 2021, 44, 819–835. [Google Scholar] [CrossRef]
Frequency | Percentage | Frequency | Percentage | ||
---|---|---|---|---|---|
Age | Education Level | ||||
<30 | 6 | 2.6% | High School | 40 | 17.1% |
30–39 | 84 | 35.9% | High Diploma | 85 | 36.3% |
40–49 | 99 | 42.3% | Associate Degree | 27 | 11.5% |
50–59 | 39 | 16.7% | Bachelor’s Degree | 60 | 25.6% |
60–69 | 4 | 1.7% | Postdoctoral Degree | 22 | 9.4% |
>70 | 1 | 0.4% | Missing | 0 | |
Missing | 1 | 0.4% | Monthly Household Income | ||
Child Age | <4000 | 7 | 3% | ||
<6 | 53 | 22.6% | 4000–6000 | 5 | 2.1% |
6–8 | 64 | 27.4% | 6000–8000 | 6 | 2.6% |
9–12 | 49 | 20.9% | 8000–10,000 | 16 | 6.9% |
13–15 | 22 | 9.4% | 10,000–15,000 | 25 | 10.7% |
16–17 | 13 | 5.6% | 15,000–20,000 | 35 | 15% |
18–30 | 28 | 12.0% | 20,000–25,000 | 24 | 10.3% |
>30 | 5 | 2.1% | 25,000–30,000 | 25 | 10.7% |
Missing | 0 | 30,000–40,000 | 24 | 10.3% | |
>40,000 | 66 | 28.2% | |||
Missing | 1 | 0.4% |
Mean | SD | Reliability | Skewness | Kurtosis | Shapiro–Wilk Test | |
---|---|---|---|---|---|---|
Stigmatized Identity | 3.61 | 1.70 | 0.62 (0.55, 0.69) | −0.12 | −0.87 | p < 0.001 |
Perceived Discrimination | 2.09 | 3.17 | 0.90 (0.88, 0.92) | 1.61 | 1.62 | p < 0.001 |
Distress | 2.97 | 0.73 | 0.92 (0.90, 0.93) | 0.04 | −0.10 | p = 0.544 |
Life Satisfaction | 2.44 | 0.76 | 0.89 (0.86, 0.91) | −0.06 | −0.61 | p < 0.001 |
Social Distance | 1.85 | 1.32 | 0.56 (0.47, 0.65) | 0.61 | −0.31 | p < 0.001 |
Positive Emotion | 2.81 | 0.54 | 0.62 (0.55, 0.69) | 0.24 | 1.04 | p < 0.001 |
Negative Emotion | 3.08 | 0.70 | 0.81 (0.77, 0.85) | 0.04 | −0.02 | p = 0.074 |
Perceived Impact | 3.13 | 0.75 | 0.76 (0.70, 0.81) | −0.25 | −1.11 | p < 0.001 |
1 | 2 | 3 | 4 | 5 | 6 | 7 | 8 | |
---|---|---|---|---|---|---|---|---|
1. Stigmatized Identity | - | 0.21 *** | 0.16 ** | −0.17 *** | 0.05 | 0.01 | 0.16 ** | 0.04 |
(0.12, 0.29) | (0.08, 0.25) | (−0.25, −0.08) | (−0.04, 0.13) | (−0.07, 0.10) | (0.07, 0.24) | (−0.05, 0.13) | ||
2. Perceived Discrimination | 0.25 *** | - | 0.31 *** | −0.27 *** | 0.27 *** | 0.06 | 0.31 *** | 0.18 *** |
(0.12, 0.36) | (0.22, 0.39) | (−0.36, −0.19) | (0.18, 0.35) | (−0.03, 0.14) | (0.22, 0.39) | (0.09, 0.26) | ||
3. Distress | 0.21 * | 0.41 *** | - | −0.37 *** | 0.13 | −0.04 | 0.54 *** | 0.23 *** |
(0.09, 0.33) | (0.30, 0.51) | (−0.45, −0.28) | (0.05, 0.22) | (-0.12, 0.05) | (0.45, 0.62) | (0.14, 0.31) | ||
4. Life Satisfaction | −0.21 * | −0.36 *** | −0.49 *** | - | −0.19 *** | 0.06 | −0.32 *** | −0.25 *** |
(−0.33, −0.09) | (−0.46, −0.24) | (−0.58, −0.38) | (−0.27, −0.10) | (−0.02, 0.15) | (−0.40, −0.23) | (−0.33, −0.16) | ||
5. Perceived Social Distance | 0.06 | 0.34 *** | 0.16 | −0.22* | - | 0.03 | 0.16 ** | 0.13 |
(−0.07, 0.18) | (0.22, 0.45) | (0.03, 0.28) | (−0.33, −0.09) | (−0.05, 0.12) | (0.07, 0.24) | (0.04, 0.21) | ||
6. Positive Emotional Experience | 0.05 | 0.14 | −0.04 | 0.08 | 0.05 | - | 0.06 | 0.01 |
(−0.07, 0.18) | (0.01, 0.26) | (−0.17, 0.09) | (−0.05, 0.20) | (−0.08, 0.18) | (−0.03, 0.14) | (−0.07, 0.10) | ||
7. Negative Emotional Experience | 0.21 * | 0.45 *** | 0.72 *** | −0.41 *** | 0.17 | 0.13 | - | 0.28 *** |
(0.08, 0.33) | (0.34, 0.54) | (0.64, 0.77) | (−0.51, −0.30) | (0.05, 0.29) | (0.01, 0.26) | (0.19, 0.36) | ||
8. Perceived Impact | 0.06 | 0.21 * | 0.32 *** | −0.34 *** | 0.15 | 0.02 | 0.36 *** | - |
(−0.07, 0.19) | (0.08, 0.33) | (0.19, 0.42) | (−0.44, −0.22) | (0.02, 0.27) | (−0.10, 0.15) | (0.24, 0.46) |
Predictor | Distress | Life Satisfaction | Negative Emotional Experience | ||||||
---|---|---|---|---|---|---|---|---|---|
B | 95% CI | BFinclusion | B | 95% CI | BFinclusion | B | 95% CI | BFinclusion | |
Intercept | 2.97 | (2.90, 3.06) | 1 | 2.44 | (2.35, 2.53) | 1 | 3.07 | (3.00, 3.15) | 1 |
Stigmatized Identity | 0.05 | (0.00, 0.10) | 13.45 | −0.06 | (−0.11, 0.00) | 12.36 | 0.04 | (0.00, 0.09) | 5.92 |
Perceived Discrimination | 0.07 | (0.05, 0.10) | >100 | −0.06 | (−0.09, −0.03) | >100 | 0.08 | (0.06, 0.10) | >100 |
Perceived Impact | 0.18 | (0.09, 0.31) | >100 | −0.23 | (−0.35, −0.12) | >100 | 0.24 | (0.14, 0.35) | >100 |
Household Income | −0.03 | (−0.07, 0.01) | 1 | 0.02 | (−0.02, 0.06) | 1 | 0.01 | (−0.03, 0.04) | 1 |
Age | −0.18 | (−0.26, −0.07) | 1 | 0.11 | (0.01, 0.21) | 1 | −0.10 | (−0.19, −0.01) | 1 |
Education Level | 0.05 | (−0.01, 0.13) | 1 | −0.05 | (−0.13, 0.03) | 1 | −0.02 | (−0.08, 0.06) | 1 |
R2 | 0.29 | 0.24 | 0.30 |
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Ye, F.T.-F.; Sin, K.-F.; Gao, X. Subjective Well-Being among Parents of Children with Special Educational Needs in Hong Kong: Impacts of Stigmatized Identity and Discrimination under Social Unrest and COVID-19. Int. J. Environ. Res. Public Health 2022, 19, 238. https://doi.org/10.3390/ijerph19010238
Ye FT-F, Sin K-F, Gao X. Subjective Well-Being among Parents of Children with Special Educational Needs in Hong Kong: Impacts of Stigmatized Identity and Discrimination under Social Unrest and COVID-19. International Journal of Environmental Research and Public Health. 2022; 19(1):238. https://doi.org/10.3390/ijerph19010238
Chicago/Turabian StyleYe, Frank Tian-Fang, Kuen-Fung Sin, and Xiaozi Gao. 2022. "Subjective Well-Being among Parents of Children with Special Educational Needs in Hong Kong: Impacts of Stigmatized Identity and Discrimination under Social Unrest and COVID-19" International Journal of Environmental Research and Public Health 19, no. 1: 238. https://doi.org/10.3390/ijerph19010238
APA StyleYe, F. T. -F., Sin, K. -F., & Gao, X. (2022). Subjective Well-Being among Parents of Children with Special Educational Needs in Hong Kong: Impacts of Stigmatized Identity and Discrimination under Social Unrest and COVID-19. International Journal of Environmental Research and Public Health, 19(1), 238. https://doi.org/10.3390/ijerph19010238