Psychological Experiences of Patients with Coronavirus Disease 2019 (COVID-19) during and after Hospitalization: A Descriptive Phenomenological Study
Abstract
:1. Introduction
2. Materials and Methods
2.1. Design
2.2. Setting and Participant Recruitment
2.3. Ethics
2.4. Data Collection
2.5. Data Analysis
2.6. Rigor
3. Results
3.1. Theme 1: Navigating Uncertainties with Mixed Feelings and Emotions during Hospitalization
3.1.1. Searching for an Explanation for the Infection
“I was very conscious of my hand hygiene, I wear KF94 [KF denotes Korean Filter and 94 denotes filtration efficacy] masks whenever I went outside. I still got infected with this disease and can’t help but ask myself, ‘what did I miss?’”.(P6, male)
“I understand that this disease is airborne, but I practiced social distancing and wore a mask at all times. I frequently ask myself how I became infected and what I missed [infection control measure]”.(P9, female)
“By thinking back and understanding it, at least I have some explanation as to how I became infected… (sighs). Maybe I just needed some form of explanation to make sense of all this [infection]. I was totally shocked when I tested positive in the nucleic acid test”.(P1, male)
3.1.2. Experiencing Psychological Distress as an In-Patient
“I felt powerless when I was lying on the bed while being treated with intravenous infusion as well as wearing an oxygen mask. I could see that the nurses, physicians, and other healthcare professionals were rushing about [the isolation ward]. Medical equipment alarms were blaring all over the place simultaneously with moans from other patients. It was a very stressful situation for me”.(P8, female)
“I appreciate the fact that nurses were too preoccupied with their nursing tasks. It became a luxury for us as patients to be able to get their attention for just a short period of time to discuss the treatment plan…I was facing multiple uncertainties as I have little knowledge of medicine and the nature of the infection”.(P2, female)
“…helplessness would be the right term to explain what I was feeling. The nurses and physicians have to work very hard. But we, as patients, still desperately need information related to the therapeutic effect after being administered medication….at the end of the day, any form of reassurance, regardless of how little, would have been good”.(P4, female)
“For 17 years I have been living with diabetes and only two years ago, I had to undergo cardiac catheterization. Are there further complications from COVID-19 due to my diabetes treatment? I feel depressed due to the uncertain nature of the answers given by the nurses and the physicians”.
“As we know from the experts [university professors and physicians] that appeared on TV, a person can infect others before he/she realizes that he/she is COVID-19-positive… I felt guilty because my 86-year-old mother lives with me and she was also diagnosed with this disease. Even though she did not blame me at all, I am certain I infected her because I was having headaches and sore throat three days before my mother also started displaying the same symptoms… I feel really bad for infecting anyone that came physically close to me”.(P9, female)
“For the first two days, I cried many times during admission… I felt that if my 3-year-old daughter was also diagnosed with the disease, it would totally be on me”.(P2, female)
“I would be okay if the disease only impacted me. I would feel sorry if I was the individual that spread the disease to other people in the community”.(P3, male)
“The monitors in the medical rooms were very noisy…I asked a nurse if something could be done about it because patients need to rest…The nurses ignored me and simply brushed me off by saying ‘We [nurses] have to monitor the patients. The alarms coming from these monitors are important when something is seriously wrong.’ I was angry as patients’ basic rights to rest and sleep were not protected”.(P8, female)
“Some friends assured me that the symptoms of patients diagnosed with COVID-19 were mild… but… I was scared when the news reported deaths, which were increasing getting each day”.(P1, male)
“I watched the news on the internet about new complications that were just becoming known, such as brain fog…and I was worried because I did not know that acute infection may result in long-term complications”.(P5, male)
“My mobile phone was next to me when I was in the hospital. I was in several groups on WeChat and WhatsApp…I get my news from media outlets and online messages, all messages including those that are true, false, positive, and negative. Such messages impacted my understanding of the disease and changed my thoughts on the [medical] situation that I was facing at that time”.(P17, female)
3.2. Theme 2: Adjusting Back to Normal Daily Life after Being Discharged
3.2.1. Making Up for Lost Time with Family Reunification
“I have been isolated in hospital for over 15 days because of COVID, and I hated being stuck in that environment with no opportunity to go outside. Normally, my wife and I go hiking in Sai Kung, but I missed this when I was in hospital. I plan to hike with my family in the New Territories, and I intend to maintain this a habit in the future as my familial bonds are so important to me”.(P13, male)
3.2.2. Living with Gratitude
“Prior to contracting COVID, I felt my family wanted me to work harder for them, and that this would bring them happiness, so I did not give much weight to my physical health. When I was in hospital, I had time to reflect on my choices and understood that I could not overcome the difficulties of the pandemic without my family’s support. I feel blessed to have received their love throughout this period”.(P16, male)
3.2.3. Facing Social Judgment
“Even though I was medically fit for work, my supervisor still requested that I do not return to the office for 14 days after I left hospital. This is because he was told certain cases remain infectious after being cleared from hospital, and even though the chances of spreading the virus were low, he did not want the responsibility of any such consequences”.(P18, male)
“My husband’s parents insisted that I do not go to their family dinner because of their age and wanting to be extra cautious. I was told not to visit for at least a month, but this felt like I was discriminated against because I had a slim possibility of being contagious. I believe my parents-in-law were not confident in my state of health at that time”.(P7, female)
3.2.4. Living with Economic Stress
“Previously, I would deliver take-out food on a daily basis, as a self-employed worker. I do not have medical insurance, so when I became sick and was treated at the hospital, my income was reduced to zero. Once released from hospital, restaurants were closed due to the evening dining ban in place after 6 pm. I was unable to support my family at this time, and I felt distressed at the situation”.(P20, male)
“I am the breadwinner of my family, but since I was released from hospital, I struggled to cover all our expenses as I was not earning any money when I was in hospital. My employer dismissed me from my job during my hospitalization because their business had started to fail. I did not have enough to pay for my family in my bank account and I could not pay my rent, and I felt ignored by the government at this time”.(P10, male)
3.3. Theme 3: Self-Growth after Being Discharged
3.3.1. Appreciation of the Received Social Support
“Healthcare workers offered care to their patients even though this posed a risk to their own health, and they worked hard despite difficult conditions (smile)”.
“I was glad to have the unconditional support of my country during the fifth wave, and I feel that without it, Hong Kong would have had a much higher death and infection rate. The frontline healthcare workers involved have my endless gratitude”.
3.3.2. Becoming a Proactive Citizen to Participate in Whole-of-Society Response
“I feel indebted to society, as the Hong Kong medical system took such good care of me. After my recovery, I felt the urge to tell my loved ones about my recent experiences, and actively try to help the government in their efforts to control the pandemic by persuading those around me to get vaccinated, which is a key step”.(P14, female)
“After I caught COVID, the doctors and nurses caring for me made a huge impression on me, and I feel very grateful for their help throughout the rehabilitative period. Once I recovered, my outlook on life changed, and I started to actively try to motivate people to follow government guidelines, and I felt obliged to pay back society”.(P6, male)
4. Discussion
4.1. Strengths
4.2. Limitations
4.3. Relevance to Clinical Practice and Implications
5. Conclusions
Author Contributions
Funding
Institutional Review Board Statement
Informed Consent Statement
Data Availability Statement
Acknowledgments
Conflicts of Interest
References
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No. | Probing Questions |
---|---|
1. | Can you tell me about your overall experience after you were confirmed to have COVID-19? |
2. | How did you feel when you were hospitalized in an isolation ward (where, due to the fifth wave of the COVID-19 pandemic, family visits were not allowed)? |
3. | How did you feel when you completed the in-hospital treatment and were deemed medically fit for discharge? |
4. | When you rejoined the community following hospitalization, what were the positive and negative experiences? |
5. | Reflecting on your experience through the infection, treatment, and recovery in this fifth wave of the COVID-19 pandemic, how have your views on your future life and the society changed? |
Variables | Characteristics | N (%) |
---|---|---|
Age, year | 30–39 | 4 (20) |
40–49 | 9 (45) | |
50–59 | 5 (25) | |
≥60 | 2 (10) | |
Sex | Male | 9 (45) |
Female | 11 (55) | |
Marital status | Single | 6 (30) |
Married | 12 (60) | |
Divorced | 2 (10) | |
Occupation | Employed | 12 (60) |
Unemployed | 8 (40) | |
Index case 1 | Self | 8 (40) |
Partner | 5 (25) | |
Mother | 2 (10) | |
Father | 3 (15) | |
Mother-in-law | 1 (5) | |
Father-in-law | 1 (5) |
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Yip, Y.-C.; Yip, K.-H.; Tsui, W.-K. Psychological Experiences of Patients with Coronavirus Disease 2019 (COVID-19) during and after Hospitalization: A Descriptive Phenomenological Study. Int. J. Environ. Res. Public Health 2022, 19, 8742. https://doi.org/10.3390/ijerph19148742
Yip Y-C, Yip K-H, Tsui W-K. Psychological Experiences of Patients with Coronavirus Disease 2019 (COVID-19) during and after Hospitalization: A Descriptive Phenomenological Study. International Journal of Environmental Research and Public Health. 2022; 19(14):8742. https://doi.org/10.3390/ijerph19148742
Chicago/Turabian StyleYip, Yuk-Chiu, Ka-Huen Yip, and Wai-King Tsui. 2022. "Psychological Experiences of Patients with Coronavirus Disease 2019 (COVID-19) during and after Hospitalization: A Descriptive Phenomenological Study" International Journal of Environmental Research and Public Health 19, no. 14: 8742. https://doi.org/10.3390/ijerph19148742
APA StyleYip, Y. -C., Yip, K. -H., & Tsui, W. -K. (2022). Psychological Experiences of Patients with Coronavirus Disease 2019 (COVID-19) during and after Hospitalization: A Descriptive Phenomenological Study. International Journal of Environmental Research and Public Health, 19(14), 8742. https://doi.org/10.3390/ijerph19148742