Exploring the Experiences of Runners with Visual Impairments and Sighted Guides
Abstract
:1. Exploring the Experiences of Runners with Visual Impairments and Sighted Guides
2. Methods
2.1. Participants
2.2. Data Collection
2.3. Data Analysis
2.4. Trustworthiness
3. Findings
3.1. Benefits
3.1.1. Health and Fitness
Becca (runner) explained:
I find that if I don’t run for a while I kind of start getting you know my mental health takes a little bit of a dip. I don’t have any diagnosed mental health problems, but I find that I’m a little more down, I don’t sleep as well, maybe a little more restless.
Stephanie (runner) seconded this notion by saying:
It’s turned running into, before running was just a way for me to lose baby weight after having two kids, something to keep me busy. It’s truly turned into a mental health, a way for me to get out of my own head and to find a place of joy.
Chris (runner) highlighted the emotional benefits he gets from running by sharing his struggle with depression while losing his vision:
I think the largest benefit is emotional. I mean it’s everything. Running is part of who I am and it’s just a part of who I am. It’s my DNA. It’s not like I run for fun, or I run because I have to, or because I run because of exercise or I’m running to something or away from something, I just run because I run that’s part of Chris. The benefits of it, I think this is true for me and for other people, but speaking just for me, a huge emotional benefit. When I finally did confront my eyesight, I went through a severe depression and that lasted about, there was a three-year time period I was working through that, and my medicine really ended up being running.”
Guides spoke about physical fitness being beneficial for them individually and in terms of guiding ability. Susan (guide) said:
Well one, it keeps me in shape, you know, like somedays when I’m thinking maybe I wouldn’t run today I’m like, I have to because I said I would. And then I also feel like it’s a service if I’m going to do it and I can help open the door for somebody else to run, then it’s going to be beneficial for both of us.
Ian (guide) explained: “I think physical fitness also played a key role because I think the more fit you are, the wider range of athletes you can take and take running with you.”
3.1.2. Friendships
Rachel (runner) shared that:
Because of running, I got a best friend. She’s still my best friend now 12 years later, which is crazy. She’s my best friend, and I think we would have been friends, but we built that really strong bond and now she’s my person, she’s my best friend and I don’t think it would have been the same without running.
Erin (runner) explained:
So, a lot of my guides are friends of mine in the real world. It’s a weird dynamic, I don’t love it but I also don’t hate it because when I first started running all of my guides were friends of mine because of course I’m going to spend hours tied to you running I might as well like you as a person and I think that’s important and I definitely have races like marathons it takes a special person to want to be tied to them for 3 to 4 h.
Phoebe (guide) expressed that:
I just like the friendship. I really enjoy being Monica’s friend. I don’t really feel like I’m doing anything extra nice. I just feel like I’m going for a run with a friend. I know for some people who volunteer it probably makes them feel really good and gives that athlete the freedom to partake in a sport. But I think it’s just really Monica and I get annoyed with life and sometimes we just need to go for a run and kind of either sprint or you know, vent about our life or whatever.
William (guide) described the benefit of friendship in his own words as:
I feel a great sense of enjoyment and accomplishment by having a blind runner achieve their goals while at the same time that comradery that I have with another individual and to be able to bond with them as a colleague and a friend. I think that I’m the type of person that if I’m going to go out and guide someone, I’m going to create that camaraderie and they’re going to create it back with me. We’re a team, we’re going to have a good time and I’m going to build a relationship with that individual as they do with me. Many of those people that I have guided we stay very much in contact either through social media or periodically we’ll just call each other and keep in touch. It’s that friendship that is very much mutual.
Stephanie (runner) spoke highly of her running group and how they have become a close-knit family:
Running has brought a community to me. My Achilles running group is not just a group of friends we’re family. We laugh together, we cry together, it’s very therapeutic.” Becca (runner) shared how running and her running group have remained constant social supports for her: “Yeah, I joined my local chapter of Achilles through running. You know it’s been a good social outlet for me when I didn’t really have anything else I always had Achilles and I always had running.
3.2. Barriers
Erin stated:
Finding people to run with. I mean you can have the biggest network in the world but sometimes when push comes to shove people just have their own training or they say they want to guide and then they realize the responsibility that comes with it, and they get nervous and back out.
Chris recalled:
You know it’s hard for me to find guides because a lot of times the guides would be giving up their own race to guide me. Like with this race in New York I mean the people who guided me probably could have finished you know top 10 at this race, but they don’t race, and they give up their race to guide me and there’s not a lot of people who will do that. People who guide me are like, people who guide blind runners are awesome to begin with.
Both Erin and Rachel spoke about the added coordination of finding guides and how it can be taxing to be continuously coordinating people to run with.
Erin said:
…but it’s exhausting to have to constantly be trying to find people to do workouts or races with. There are times where I just don’t want to have to post on social media or email a run club. You almost kind of have to pitch your case which feels kind of weird almost not dehumanizing but I feel like it gets exhausting to constantly be asking strangers to run with you and you have to meet up with them and you have to teach them how to guide which is quick but an added layer of that first run isn’t going to be great and sometimes you only run once or twice with somebody so constantly kind of having to be on guard for that.
Rachel explained:
It takes constant advocacy to really find somebody to run with and have that consistency, and I’ve lived in pretty rural areas, I would say so when you’re like hey I want to run a marathon people are kind of like you what?? It’s kind of daunting and it’s a big commitment, and so I’d say that’s it and it’s also just all that coordination. So, if you have a bunch of people to run with how’s about going to be set up and then I’m also pretty much I try not to push it a lot so if somebody says yes but then like doesn’t really answer then I have to find the line of do I keep bothering this person and advocate or do I just move on?
3.3. Advocacy
I know when I was first starting off as a runner I really got to develop as a self-advocate and got really good at kind of advocating for myself in situations that I had never had to before. I think those things kind of go beyond just the general everybody benefits from running in these ways, but I think blind runners in particular benefit from running in the like social advocacy stand points.
Erin further explained how she has incorporated advocacy throughout her running career:
Yeah, so, I mean everything from my preferences when it comes to running like what cuing I like, what timing I like to pacing. I ask my guides to manage pacing for me since I can’t actively look at a watch. To talking to race directors especially if I’m trying to qualify for something I’ll often advocate for a slightly early start similar to what you would give wheelchair runners to avoid some crowd clusters in the beginning. And then I think just the debrief after the race of what went well, what didn’t go well, what could be better, how could we improve, which I think is a very mutual conversation that you have on both ends but involves a lot of general advocacy because obviously as the blind person you know your experience the best and you know what you need the best. It’s a good tool I mean I teach it to young athletes how to advocate. I have them talk to their guides and explain what they need even if it is very general and has to be met with follow-up.
Sarah (runner) ran track in high school, where she and her coaches had to advocate for accommodation at meets and to ensure she had a guide to run with. She explained that:
Since it was mostly trying to get a guide to run with me maybe sometimes that was hard and sometimes it wasn’t. Also trying to teach them, sometimes it was “oh I have to leave” and then I had to quickly find somebody to retrain and kind of tell them what to do and what not to do. I think there was that and some of the self-advocating came from my coach. They were able to talk with the officials and get my guide wire and the person behind me running as an accommodation.
Runners expressed having had to advocate for themselves to enter races. Stephanie recalled a time when she received push-back from a race director:
It was recommended to me by my guides to sign up for a sunset half marathon which fit in to my training schedule and I also needed to start training to run in the dark since the marathon was in the dark and so the race director was not very friendly and welcoming to a blind runner running her course and so we had to do a lot of advocating. She wanted me to use a waist tether, to have my guide in front of me, she was worried that we were going to take over the road and I just really pushed back. She was still really resistant. She wasn’t ok with my guides and I running but I got so much support from the community and my guides that they all shelled out the expensive race entry and it wasn’t just me who ran that race as a blind runner but there were also two other blind runners who ran the 10K and we each had a huge group of guides who paid their own race entry because I’m sure you know that at races each blind athlete gets a free guide entry for the race.
At times, guides have also provided advocacy for the blind runners they guide. Phoebe explained when she advocated for the runner she was guiding during a race:
This particular 10K it got to a point where it was like a very thin pathway maybe two people across not even. I mean Monica and I had to get really, really, really close and an individual had pushed her particularly and I was not impressed with that, and I let him know that that was not acceptable, and he then had something to say about that. Yeah, I know, I was like “Hi, I’m clearly holding this person, we’re a guide and visually impaired” and he got really like rude and like “don’t run so slow or don’t box me out” and stuff like that.
Steve (runner) explained that it is important for him to be a support to his fellow runners with visual impairments and guides. He explained that:
You know if I expect others to maybe be leaders in their own community, I need to be a leader in my own community. And I need to figure out like well how do you find guides all that type of stuff and to be able to share all that information. That has also been something personally that’s really driven my ambition to do more and more and more is to create a pathway for other people, not just the not just blind people, but people that would be willing to come, alongside someone with vision loss. So, it’s a personal, it’s been personal about me, it’s about being you know, setting a positive example for my children about adversity it’s about goal setting but it’s also about you know, using my passion and experiences to help others in our community.
3.4. Communication
Typically, you know I ask those things what terrain how far, how fast, how do you want me to guide you. How much communication Do you want because I know I was running with my friend Dan, and I’m explaining, we’re running in Surri, I’m explaining the trees I’m explaining the houses and he’s like Susan, I don’t care, I just don’t care, I don’t need to know about that crap. I was like, Okay, I don’t need to tell you about anything in the environment, but sometimes people do care.
William further explained how he communicates with runners depending on the situation and how he communicates before and during the run:
So, depending on the situation, if I’m out on the trail with John and we’re running and we’ve run hundreds of times up a trail and when there’s a curb, I’m going to give my voice commands “curb up, 1, 2, 3 and curb down, 1, 2, 3, biker on the left, great looking gal on the right”. And so, I am going to be that person’s eyes and I’m going to adapt to whatever the situation is. If we’re running in a race the tether is going to be a lot tighter or a lot looser as opposed to running on a trail. It really depends on the athlete, the race, and what we’re trying to accomplish that day, but my number one goal is to keep that athlete safe and if there’s an obstacle coming up, we’re going to do arm over arm and we’re going to have those discussions first before we run to know what our technique is. I’m going to listen to them to know what his or her needs are.
Ian discussed that in order for him to become a better guide, it was important for him to be able to take feedback from the runners he was guiding. He explained:
Being able to take criticism and feedback really well, because usually I think the first few times you would go running, we were just testing things here, seeing what worked, what didn’t. And so being able to take criticism and go back to the drawing board, I think improves the experience for myself and the athletes. So even like the week of camp, we would run a lap around the track. Do we need to fix anything? No. Okay. Let’s go again. Yes. All right. Let’s think of ways to make it better.
4. Discussion
5. Limitations and Future Research
6. Conclusions
Author Contributions
Funding
Institutional Review Board Statement
Informed Consent Statement
Acknowledgments
Conflicts of Interest
References
- IPC. Sport Week: Welcome to Para Athletics. International Paralympic Committee. 2020. Available online: https://www.paralympic.org/news/sport-week-welcome-para-athletics (accessed on 3 October 2022).
- Team USA. About Para Track & Field. Available online: https://www.teamusa.org/usparatrackandfield/about-para-track-and-field (accessed on 3 October 2022).
- USABA. Track & Field and Distance Running. United States Association of Blind Athletes. Available online: https://www.usaba.org/sports/track/ (accessed on 3 October 2022).
- USABA. Visual Classifications. United States Association of Blind Athletes. Available online: https://www.usaba.org/membership/visual-classifications/ (accessed on 3 October 2022).
- Williams, H.; Ball, L.; Lieberman, L.J.; Pierce, T. Running Strategies for Individuals with Visual Impairments. J. Phys. Educ. Recreat. Danc. 2020, 91, 41–45. [Google Scholar] [CrossRef]
- Rudiyati, S. Improving skills of candidate teachers of children with visual impairments as sighted guide. Dewantara Int. J. Educ. 2014, 2, 24–33. [Google Scholar]
- Ponchillia, P.E.; Strause, B.; Ponchillia, S.V. Athletes with Visual Impairments: Attributes and Sports Participation. J. Vis. Impair. Blind. 2002, 96, 267–272. [Google Scholar] [CrossRef]
- Haegele, J.A.; Zhu, X.; Davis, S. The meaning of physical education and sport among elite athletes with visual impairments. Eur. Phys. Educ. Rev. 2017, 23, 375–391. [Google Scholar] [CrossRef]
- Smith, L.; Jackson, E.S.; Pardhan, S.; Sánchez, G.F.L.; Hu, L.; Cao, C.; Vancampfort, D.; Koyanagi, A.; Stubbs, B.; Firth, J.; et al. Visual impairment and objectively measured physical activity and sedentary behaviour in US adolescents and adults: A cross-sectional study. BMJ Open 2019, 9, e027267. [Google Scholar] [CrossRef] [PubMed] [Green Version]
- Willis, J.R. Visual Impairment, Uncorrected Refractive Error, and Accelerometer-Defined Physical Activity in the United States. Arch. Ophthalmol. 2012, 130, 329–335. [Google Scholar] [CrossRef] [Green Version]
- Kirk, T.N.; Haegele, J.A. Expectancy-value beliefs, identity, and physical activity among adults with visual impairments. Disabil. Rehabil. 2019, 43, 516–524. [Google Scholar] [CrossRef]
- Haegele, J.A.; Famelia, R.; Lee, J. Health-related quality of life, physical activity, and sedentary behavior of adults with visual impairments. Disabil. Rehabil. 2017, 39, 2269–2276. [Google Scholar] [CrossRef]
- SHAPE America. Explore Physical Education. Available online: https://www.shapeamerica.org/publications/resources/teachingtools/teachertoolbox/explorepe.aspx (accessed on 3 October 2022).
- Haegele, J.A.; Ball, L.E.; Zhu, X.; Keene, M.A.; Nowland, L.A. Absent, incapable, and “normal”: Understanding the inclusiveness of visually impaired students’ experiences in integrated physical education. Adapt. Phys. Act. Q. 2022, 39, 424–445. [Google Scholar] [CrossRef] [PubMed]
- Haegele, J.A.; Kirk, T.N. Experiences in Physical Education: Exploring the Intersection of Visual Impairment and Maleness. Adapt. Phys. Act. Q. 2018, 35, 196–213. [Google Scholar] [CrossRef] [PubMed]
- Haegele, J.A.; Yessick, A.; Zhu, X. Females With Visual Impairments in Physical Education: Exploring the Intersection Between Disability and Gender Identities. Res. Q. Exerc. Sport 2018, 89, 298–308. [Google Scholar] [CrossRef] [PubMed]
- Haegele, J.A.; Zhu, X. Experiences of Individuals With Visual Impairments in Integrated Physical Education: A Retrospective Study. Res. Q. Exerc. Sport 2017, 88, 425–435. [Google Scholar] [CrossRef] [PubMed]
- Holland, K.; Haegele, J.A.; Zhu, X. “My Eyes Have Nothing to Do with How My Legs Move”: Individuals With Visual Impairments’ Experiences With Learning to Run. Adapt. Phys. Act. Q. 2020, 37, 253–269. [Google Scholar] [CrossRef]
- Lieberman, L.J.; Haibach-Beach, P.S.; Sherwood, J.; Trad, A. “We now fly”: Perspectives of adults who are blind with guide dogs trained for running. Br. J. Vis. Impair. 2019, 37, 213–226. [Google Scholar] [CrossRef]
- Sandelowski, M. Focus on research methods—Whatever happened to qualitative description? Res. Nurs. Health 2000, 23, 334–340. [Google Scholar] [CrossRef]
- Zitomer, M.R.; Goodwin, D. Gauging the Quality of Qualitative Research in Adapted Physical Activity. Adapt. Phys. Act. Q. 2014, 31, 193–218. [Google Scholar] [CrossRef] [PubMed]
- Gall, M.D.; Gall, J.P.; Borg, W.R. Educational Research, 8th ed.; Allyn and Bacon: Boston, MA, USA, 2007. [Google Scholar]
- Birt, L.; Scott, S.; Cavers, D.; Campbell, C.; Walter, F. Member Checking: A Tool to Enhance Trustworthiness or Merely a Nod to Validation? Qual. Health Res. 2016, 26, 1802–1811. [Google Scholar] [CrossRef] [Green Version]
- Taylor, S.J.; Bogdan, R.C. Introduction to Qualitative Research Methods: A Guidebook and Resource, 3rd ed.; John Wiley & Sons: Hoboken, NJ, USA, 1998. [Google Scholar]
- Braun, V.; Clarke, V. Using thematic analysis in psychology. Qual. Res. Psychol. 2006, 3, 77–101. [Google Scholar] [CrossRef] [Green Version]
- Connelly, L.W. Trustworthiness in qualitative research. MEDSURG Nurs. 2016, 25, 435–436. [Google Scholar] [PubMed]
- Foulger, T.S. External conversations: An unexpected discovery about the critical friend in action research inquiries. Action Res. 2010, 8, 135–152. [Google Scholar] [CrossRef]
- Smith, B.; McGannon, K.R. Developing rigor in qualitative research: Problems and opportunities within sport and exercise psychology. Int. Rev. Sport Exerc. Psychol. 2018, 11, 101–121. [Google Scholar] [CrossRef]
- Lieberman, L.J.; Byrne, H.; Mattern, C.O.; Watt, C.A.; Fernández-Vivó, M. Health-Related Fitness of Youths with Visual Impairments. J. Vis. Impair. Blind. 2010, 104, 349–359. [Google Scholar] [CrossRef]
- Starkoff, B.; Lenz, E.K.; Lieberman, L.J.; Foley, J.T.; Too, D. Physical activity patterns of adults with visual impairments. Br. J. Vis. Impair. Blind. 2017, 35, 130–142. [Google Scholar] [CrossRef]
- Martin, J.J. Benefits and barriers to physical activity for individuals with disabilities: A social-relational model of disability perspective. Disabil. Rehabil. 2013, 35, 2030–2037. [Google Scholar] [CrossRef]
- Arndt, K.; James, A.; Lieberman, L.J. Perceptions of socialization of adolescents who are blind and their parents. Clear. House J. 2014, 87, 69–74. [Google Scholar] [CrossRef]
- Brunes, A.; Hansen, M.B.; Heir, T. Loneliness among adults with visual impairment: Prevalence, associated factors, and relationship to life satisfaction. Health Qual. Life Outcomes 2019, 17, 1–7. [Google Scholar] [CrossRef] [Green Version]
- Osaba, M.; Doro, J.; Liberal, M.; Lagunas, J.; Kuo, I.C.; E Reviglio, V. Relationship Between Legal Blindness and Depression. Med. Hypothesis Discov. Innov. Ophthalmol. 2019, 8, 306–311. [Google Scholar]
- Alcaraz-Rodriguez, V.; Caballero-Blanco, P.; Fernandez-Gavira, J.; Saenz-Lopez-Bunuel, P. Perception of visually impaired athletes and trail running guides toward barriers in the organization of competitions. J. Phys. Educ. Sport 2018, 18, 1248–1255. [Google Scholar] [CrossRef]
- McLoughlin, G.; Weisman, C.W.; Castaneda, Y.; Gwin, C.; Graber, K. Sport participation for elite athletes with physical disabilities: Motivations, barriers, and facilitators. Adapt. Phys. Act. Q. 2017, 34, 421–441. [Google Scholar] [CrossRef]
- Lieberman, L.J.; Childs, R. Steps to success: A sports focused self-advocacy program for children with visual impairments. J. Vis. Impair. Blind. 2020, 114, 531–537. [Google Scholar] [CrossRef]
- Lieberman, L.J.; Ball, L. Visual Impairment. In Adapted Physical Education and Sport; Porretta, D., Winnick, J.P., Eds.; Human Kinetics: Champaign, IL, USA, 2021. [Google Scholar]
- Lieberman, L.J.; Ponchillia, P.; Ponchillia, S. Physical Education and Sport for Individuals Who Are Visually Impaired or Deafblind: Foundations of Instruction; American Federation of the Blind Press: New York, NY, USA, 2013. [Google Scholar]
- Rich, J.; Lieberman, L.J.; Beach, P.S.; Perreault, M. Strategies to facilitate accessibility in rowing for individuals with visual impairments. Palaestra 2022, 36, 51–55. [Google Scholar]
- Braun, V.; Clarke, V. Successful Qualitative Research; Sage: Thousand Oaks, CA, USA, 2013. [Google Scholar]
Name | Age | Gender | VI Classification | Educ. | Demographic | Began Running | Events |
---|---|---|---|---|---|---|---|
Erin | 24 | F | B2 | BS | Urban | Middle Sch. | Distance and Tri |
Chris | 51 | M | B3 | JD | Suburban | Law school | Distance and Tri |
Rachel | 29 | F | B1 | MS | Suburban | Middle Sch | Distance Marathon |
Becca | 24 | F | B1 | BS | Suburban | 5th grade | Distance |
Sara | 19 | F | B2 | Associates | Rural | Middle Sch | Sprints |
Steve | 53 | M | B1 | Masters | Suburban | College | Distance Ultras |
Stephanie | 38 | F | B2 | BS | Suburban | 30s | Distance Ultras |
Name | Age | Gender | Yrs Guiding | Level of VI | Began Guiding | Events | Education Level | Demographic |
---|---|---|---|---|---|---|---|---|
Susan | 56 | F | 33 | B1–B3 | College | Distance | Ph.D. | Suburban |
William | 65 | M | 28 | B1–B4 | 30’s | Sprints Distance | Masters | Rural |
Ian | 21 | M | 3 | B1–B2 | HS | Sprints Distance | HS | Suburban |
Phoebe | 28 | F | 13 | B1 | HS | Sprints Distance | MS | Rural |
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Share and Cite
Ball, L.E.; Lieberman, L.J.; Beach, P.; Perreault, M.; Rich, J. Exploring the Experiences of Runners with Visual Impairments and Sighted Guides. Int. J. Environ. Res. Public Health 2022, 19, 12907. https://doi.org/10.3390/ijerph191912907
Ball LE, Lieberman LJ, Beach P, Perreault M, Rich J. Exploring the Experiences of Runners with Visual Impairments and Sighted Guides. International Journal of Environmental Research and Public Health. 2022; 19(19):12907. https://doi.org/10.3390/ijerph191912907
Chicago/Turabian StyleBall, Lindsay E., Lauren J. Lieberman, Pamela Beach, Melanie Perreault, and Jason Rich. 2022. "Exploring the Experiences of Runners with Visual Impairments and Sighted Guides" International Journal of Environmental Research and Public Health 19, no. 19: 12907. https://doi.org/10.3390/ijerph191912907
APA StyleBall, L. E., Lieberman, L. J., Beach, P., Perreault, M., & Rich, J. (2022). Exploring the Experiences of Runners with Visual Impairments and Sighted Guides. International Journal of Environmental Research and Public Health, 19(19), 12907. https://doi.org/10.3390/ijerph191912907