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Article

‘How Your Spirit Is Travelling’—Understanding First Nations Peoples’ Experiences of Living Well with and after Cancer

1
School of Public Health, The University of Queensland, Brisbane 4006, Australia
2
Australian Institute of Health Innovation, Macquarie University, Sydney 2113, Australia
3
Southern Queensland Centre of Excellence in Aboriginal and Torres Strait Islander Primary Health Care, Queensland Health, Brisbane 4077, Australia
4
QIMR Berghofer Medical Research Institute, Brisbane 4006, Australia
5
National Centre for Naturopathic Medicine, Southern Cross University, Lismore 2480, Australia
6
College of Medicine and Public Health, Flinders University, Adelaide 5042, Australia
*
Author to whom correspondence should be addressed.
Int. J. Environ. Res. Public Health 2024, 21(6), 798; https://doi.org/10.3390/ijerph21060798
Submission received: 30 April 2024 / Revised: 8 June 2024 / Accepted: 14 June 2024 / Published: 19 June 2024

Abstract

As the number of people living with cancer increases, it is important to understand how people can live well with and after cancer. First Nations people diagnosed with cancer in Australia experience survival disparities relating to health service accessibility and a lack of understanding of cultural needs and lived experiences. This study aimed to amplify the voices of First Nations individuals impacted by cancer and advance the development of a culturally informed care pathway. Indigenist research methodology guided the relational and transformative approach of this study. Participants included varied cancer experts, including First Nations people living well with and after cancer, health professionals, researchers, and policy makers. Data were collected through online Yarning circles and analysed according to an inductive thematic approach. The experience of First Nations people living well with and after cancer is inextricably connected with family. The overall themes encompass hope, family, and culture and the four priority areas included the following: strength-based understanding of cancer, cancer information, access to healthcare and support, and holistic cancer services. Respect for culture is interwoven throughout. Models of survivorship care need to integrate family-centred cancer care to holistically support First Nations people throughout and beyond their cancer journey.
Keywords: Indigenous health; health disparities; health equity; cancer; cancer treatment; living well with and after cancer; Aboriginal and Torres Strait Islander; First Nations Peoples Indigenous health; health disparities; health equity; cancer; cancer treatment; living well with and after cancer; Aboriginal and Torres Strait Islander; First Nations Peoples

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MDPI and ACS Style

de Groot, A.; Brown, B.; Lindsay, D.; Gall, A.; Hewlett, N.; Hickman, A.; Garvey, G. ‘How Your Spirit Is Travelling’—Understanding First Nations Peoples’ Experiences of Living Well with and after Cancer. Int. J. Environ. Res. Public Health 2024, 21, 798. https://doi.org/10.3390/ijerph21060798

AMA Style

de Groot A, Brown B, Lindsay D, Gall A, Hewlett N, Hickman A, Garvey G. ‘How Your Spirit Is Travelling’—Understanding First Nations Peoples’ Experiences of Living Well with and after Cancer. International Journal of Environmental Research and Public Health. 2024; 21(6):798. https://doi.org/10.3390/ijerph21060798

Chicago/Turabian Style

de Groot, Anneliese, Bena Brown, Daniel Lindsay, Alana Gall, Nicole Hewlett, Amy Hickman, and Gail Garvey. 2024. "‘How Your Spirit Is Travelling’—Understanding First Nations Peoples’ Experiences of Living Well with and after Cancer" International Journal of Environmental Research and Public Health 21, no. 6: 798. https://doi.org/10.3390/ijerph21060798

APA Style

de Groot, A., Brown, B., Lindsay, D., Gall, A., Hewlett, N., Hickman, A., & Garvey, G. (2024). ‘How Your Spirit Is Travelling’—Understanding First Nations Peoples’ Experiences of Living Well with and after Cancer. International Journal of Environmental Research and Public Health, 21(6), 798. https://doi.org/10.3390/ijerph21060798

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