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Thalassemia Reports
Volume 4
Issue 3
10.4081/thal.2014.4879
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Article

e-ENERCA: Telemedicine Platform for Rare Anaemias

by
Béatrice Gulbis
1,2,*,
María del Mar Mañú Pereira
3,
Emilio J. Armaza Armaza
4,
Pilar Nicolás
4 and
for the ENERCA Working Group
1
Department of Clinical Biology & Molecular Genetics, Université Libre de Bruxelles, Brussels, Belgium
2
Clinical Chemistry Department, Hôpital Erasme, Université Libre de Bruxelles, Brussels, Belgium
3
Hospital Clinic, University of Barcelona, Spain
4
Cátedra Interuniversitaria Diputación Foral de Bizkaia de Derecho y Genoma Humano, Universidad de Deusto, Universidad del País Vasco/Euskal Herriko Unibertsitatea, Bilbao, Spain
*
Author to whom correspondence should be addressed.
Thalass. Rep. 2014, 4(3), 4879; https://doi.org/10.4081/thal.2014.4879
Submission received: 25 May 2014 / Revised: 29 August 2014 / Accepted: 4 November 2014 / Published: 4 December 2014

Abstract

The creation of a telemedicine, tele-expertise platform opens a new challenge within the European Network for Rare and Congenital Anaemias (ENERCA; www.enerca.org). This is a cornerstone in the field of rare anaemias, in which national expertise is usually scarce and a significant number of patients remain undiagnosed. Experts in rare diseases are specially needed of shared knowledge platforms offering the possibility of a faster and more accurate diagnosis and the availability of a better patients’ follow-up. The platform developed by e- ENERCA will be user friendly and intuitive so it will be used by the majority of professionals without requiring a specific formation. The idea of inter professional consultation is to bring medical experts together for collaborative involvement in activities that maximize the benefits and improvement in patient care.
Keywords: rare anaemias; telemedicine; ENERCA; patients; tele-expertise rare anaemias; telemedicine; ENERCA; patients; tele-expertise

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MDPI and ACS Style

Gulbis, B.; del Mar Mañú Pereira, M.; Armaza Armaza, E.J.; Nicolás, P.; for the ENERCA Working Group. e-ENERCA: Telemedicine Platform for Rare Anaemias. Thalass. Rep. 2014, 4, 4879. https://doi.org/10.4081/thal.2014.4879

AMA Style

Gulbis B, del Mar Mañú Pereira M, Armaza Armaza EJ, Nicolás P, for the ENERCA Working Group. e-ENERCA: Telemedicine Platform for Rare Anaemias. Thalassemia Reports. 2014; 4(3):4879. https://doi.org/10.4081/thal.2014.4879

Chicago/Turabian Style

Gulbis, Béatrice, María del Mar Mañú Pereira, Emilio J. Armaza Armaza, Pilar Nicolás, and for the ENERCA Working Group. 2014. "e-ENERCA: Telemedicine Platform for Rare Anaemias" Thalassemia Reports 4, no. 3: 4879. https://doi.org/10.4081/thal.2014.4879

APA Style

Gulbis, B., del Mar Mañú Pereira, M., Armaza Armaza, E. J., Nicolás, P., & for the ENERCA Working Group. (2014). e-ENERCA: Telemedicine Platform for Rare Anaemias. Thalassemia Reports, 4(3), 4879. https://doi.org/10.4081/thal.2014.4879

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