Global Research on Care-Related Burden and Quality of Life of Informal Caregivers for Older Adults: A Bibliometric Analysis
Abstract
:1. Introduction
2. Materials and Methods
2.1. Search Strategy
2.2. Performance Analysis
2.3. Identification of Leading Institutions, Sources, Authors, and Collaborating Countries
2.4. Keyword Frequency Analysis
3. Results
3.1. Summary of the Papers
3.2. Trend of Publication and Citation
3.3. Most Productive Institutions, Authors, Countries, and Their Collaboration Network
3.4. Co-Occurrence, Hotspots, and Emerging Keywords
4. Discussion
Limitations of the Study
5. Conclusions
Author Contributions
Funding
Institutional Review Board Statement
Informed Consent Statement
Data Availability Statement
Conflicts of Interest
Appendix A
Population | Informal caregivers for older adults. Definition of “older adults”: individuals aged 65 and above |
Intervention | Various caregiving approaches, strategies, or support mechanisms |
Comparison | The comparison may involve different types of caregiving interventions, the absence of a specific intervention, or a comparison between different caregiver populations |
Outcome | Primary outcomes include the quality of life of caregivers and the burden experienced by caregivers while providing care to older adults |
References
- World Health Oraganization. Aging and Health. Available online: https://www.who.int/health-topics/ageing#tab=tab_1 (accessed on 1 September 2023).
- Committee on Family Caregiving for Older Adults Board on Health Care Services; Health Medicine Division National Academies of Sciences Engineering Medicine. Families Caring for an Aging America; Schulz, R., Eden, J., Eds.; National Academies Press: Washington, DC, USA, 2016; pp. 44–74. [Google Scholar] [CrossRef]
- Bekdemir, A.; Ilhan, N. Predictors of Caregiver Burden in Caregivers of Bedridden Patients. J. Nurs. Res. 2019, 27, e24. [Google Scholar] [CrossRef] [PubMed]
- Martsolf, G.R.; Kandrack, R.; Rodakowski, J.; Friedman, E.M.; Beach, S.; Folb, B.; James, A.E. 3rd. Work Performance Among Informal Caregivers: A Review of the Literature. J. Aging Health 2020, 32, 1017–1028. [Google Scholar] [CrossRef] [PubMed]
- Bom, J.; Bakx, P.; Schut, F.; van Doorslaer, E. The Impact of Informal Caregiving for Older Adults on the Health of Various Types of Caregivers: A Systematic Review. Gerontologist 2019, 59, e629–e642. [Google Scholar] [CrossRef] [PubMed]
- Tatangelo, G.; McCabe, M.; Macleod, A.; You, E. “I just don’t focus on my needs.” The unmet health needs of partner and offspring caregivers of people with dementia: A qualitative study. Int. J. Nurs. Stud. 2018, 77, 8–14. [Google Scholar] [CrossRef] [PubMed]
- van den Berg, B.; Brouwer, W.B.; Koopmanschap, M.A. Economic valuation of informal care. An overview of methods and applications. Eur. J. Health Econ. 2004, 5, 36–45. [Google Scholar] [CrossRef]
- Lambert, S.D.; Bowe, S.J.; Livingston, P.M.; Heckel, L.; Cook, S.; Kowal, P.; Orellana, L. Impact of informal caregiving on older adults’ physical and mental health in low-income and middle-income countries: A cross-sectional, secondary analysis based on the WHO’s Study on global AGEing and adult health (SAGE). BMJ Open 2017, 7, e017236. [Google Scholar] [CrossRef]
- Schulz, R.; Beach, S.R.; Czaja, S.J.; Martire, L.M.; Monin, J.K. Family Caregiving for Older Adults. Annu. Rev. Psychol. 2020, 71, 635–659. [Google Scholar] [CrossRef]
- Hazzan, A.A.; Dauenhauer, J.; Follansbee, P.; Hazzan, J.O.; Allen, K.; Omobepade, I. Family caregiver quality of life and the care provided to older people living with dementia: Qualitative analyses of caregiver interviews. BMC Geriatr. 2022, 22, 86. [Google Scholar] [CrossRef]
- Grunfeld, E.; Coyle, D.; Whelan, T.; Clinch, J.; Reyno, L.; Earle, C.C.; Willan, A.; Viola, R.; Coristine, M.; Janz, T.; et al. Family caregiver burden: Results of a longitudinal study of breast cancer patients and their principal caregivers. Can. Med. Assoc. J. 2004, 170, 1795–1801. [Google Scholar] [CrossRef]
- Holicky, R. Caring for the caregivers: The hidden victims of illness and disability. Rehabil. Nurs. 1996, 21, 247–252. [Google Scholar] [CrossRef]
- World Health Organization. World Health Report. 2006: Working Together for Health: World Health Organization. Available online: http://surl.li/imfsa (accessed on 1 September 2023).
- Zhou, T.; Qu, J.; Sun, H.; Xue, M.; Shen, Y.; Liu, Y. Research Trends and Hotspots on Montessori Intervention in Patients with Dementia From 2000 to 2021: A Bibliometric Analysis. Front. Psychiatry 2021, 12, 737270. [Google Scholar] [CrossRef] [PubMed]
- Wang, J.; Li, X.; Liu, W.; Yang, B.; Zhao, Q.; Lu, Y.; Xiao, M. The positive aspects of caregiving in dementia: A scoping review and bibliometric analysis. Front. Public Health 2022, 10, 985391. [Google Scholar] [CrossRef] [PubMed]
- Shi, H.; Mao, C.; Tang, J.; Liang, H. Research on the health of and interventions for family caregivers of people with dementia: A bibliometric analysis of research output during 1988–2018. BMC Geriatr. 2020, 20, 20. [Google Scholar] [CrossRef] [PubMed]
- Baldwin, C.; Hughes, J.; Hope, T.; Jacoby, R.; Ziebland, S. Ethics and dementia: Mapping the literature by bibliometric analysis. Int. J. Geriatr. Psychiatry 2003, 18, 41–54. [Google Scholar] [CrossRef] [PubMed]
- Aria, M.; Cuccurullo, C. bibliometrix: An R-tool for comprehensive science mapping analysis. J. Informetr. 2017, 11, 959–975. [Google Scholar] [CrossRef]
- Alabi, G. Bradford’s law and its application. Int. Libr. Rev. 1979, 11, 151–158. [Google Scholar] [CrossRef]
- Citak, E.; Attepe-Ozden, S.; Vaskelyte, A.; van Bruchem-Visser, R.L.; Pompili, S.; Kav, S.; Acar, S.; Aksoydan, E.; Altintas, A.; Aytar, A.; et al. Challenges and needs of informal caregivers in elderly care: Qualitative research in four European countries, the TRACE project. Arch. Gerontol. Geriatr. 2020, 87, 103971. [Google Scholar] [CrossRef]
- Amar, S.; Biderman, A.; Carmel, S.; Bachner, Y.G. Elderly Caregivers’ Awareness of Caregiving Health Risks. Healthcare 2022, 10, 1034. [Google Scholar] [CrossRef]
- Andrieu, S.; Rive, B.; Guilhaume, C.; Kurz, X.; Scuvee-Moreau, J.; Grand, A.; Dresse, A. New assessment of dependency in demented patients: Impact on the quality of life in informal caregivers. Psychiatry Clin. Neurosci. 2007, 61, 234–242. [Google Scholar] [CrossRef]
- Barben, J.; Billa, O.; Collot, J.; Collot, T.; Manckoundia, P.; Bengrine-Lefevre, L.; Dabakuyo-Yonli, T.S.; Quipourt, V. Quality of life and perceived burden of the primary caregiver of patients aged 70 and over with cancer 5 years after initial treatment. Support. Care Cancer 2023, 31, 147. [Google Scholar] [CrossRef]
- Bates-Fraser, L.C.; Mills, J.; Mihas, P.; Wildes, T.M.; Kent, E.E.; Erisnor, G.; Adams, L.; Grant, S.J. “A lot to manage and still have some kind of a life”: How multiple myeloma impacts the function and quality-of-life of Black-White patient-caregiver dyads. J. Am. Geriatr. Soc. 2023, 71, 3208–3220. [Google Scholar] [CrossRef]
- Belasco, A.; Barbosa, D.; Bettencourt, A.R.; Diccini, S.; Sesso, R. Quality of life of family caregivers of elderly patients on hemodialysis and peritoneal dialysis. Am. J. Kidney Dis. 2006, 48, 955–963. [Google Scholar] [CrossRef] [PubMed]
- Black, S.E.; Gauthier, S.; Dalziel, W.; Keren, R.; Correia, J.; Hew, H.; Binder, C. Canadian Alzheimer’s disease caregiver survey: Baby-boomer caregivers and burden of care. Int. J. Geriatr. Psychiatry 2010, 25, 807–813. [Google Scholar] [CrossRef] [PubMed]
- Bryson, G.L.; Clavel, N.A.; Moga, R.; Power, B.; Taljaard, M.; Nathan, H.J. Patient function and caregiver burden after ambulatory surgery: A cohort study of patients older than 65. Can. J. Anaesth. 2013, 60, 864–873. [Google Scholar] [CrossRef] [PubMed]
- Buhse, M.; Della Ratta, C.; Galiczewski, J.; Eckardt, P. Caregivers of older persons with multiple sclerosis: Determinants of health-related quality of life. J. Neurosci. Nurs. 2015, 47, E2–E12. [Google Scholar] [CrossRef] [PubMed]
- Chan, E.Y.; Lim, Z.X.; Ding, Y.Y.; Chan, Y.H.; Lim, W.S. Development of a Brief Caregiver-centric Screening Tool to Identify Risk of Depression among Caregivers of Hospitalized Older Adults. J. Nutr. Health Aging 2019, 23, 578–585. [Google Scholar] [CrossRef]
- Chen, S.Y.; Chen, C.C. Emotion-reading Nursing Care Environment Based on Facial Expression Recognition. Sens. Mater. 2023, 35, 1859–1869. [Google Scholar] [CrossRef]
- Clark, I.N.; Stretton-Smith, P.A.; Baker, F.A.; Lee, Y.C.; Tamplin, J. “It’s Feasible to Write a Song”: A Feasibility Study Examining Group Therapeutic Songwriting for People Living With Dementia and Their Family Caregivers. Front. Psychol. 2020, 11, 1951. [Google Scholar] [CrossRef]
- Day, C.B.; Bierhals, C.; Santos, N.O.D.; Mocellin, D.; Predebon, M.L.; Dal Pizzol, F.L.F.; Paskulin, L.M.G. Nursing home care educational intervention for family caregivers of older adults post stroke (SHARE): Study protocol for a randomised trial. Trials 2018, 19, 96. [Google Scholar] [CrossRef]
- Di Rosa, M.; Lamura, G. The impact of incontinence management on informal caregivers’ quality of life. Aging Clin. Exp. Res. 2016, 28, 89–97. [Google Scholar] [CrossRef]
- Dionne-Odom, J.N.; Ejem, D.B.; Wells, R.; Azuero, A.; Stockdill, M.L.; Keebler, K.; Sockwell, E.; Tims, S.; Engler, S.; Kvale, E.; et al. Effects of a Telehealth Early Palliative Care Intervention for Family Caregivers of Persons With Advanced Heart Failure: The ENABLE CHF-PC Randomized Clinical Trial. JAMA Netw. Open 2020, 3, e202583. [Google Scholar] [CrossRef] [PubMed]
- Elsheikh, M.A.; Moriyama, M.; Rahman, M.M.; Kako, M.; El-Monshed, A.H.; Zoromba, M.; Zehry, H.; Khalil, M.H.; El-Gilany, A.H.; Amr, M. Effect of a tailored multidimensional intervention on the care burden among family caregivers of stroke survivors: A randomised controlled trial. BMJ Open 2022, 12, e049741. [Google Scholar] [CrossRef] [PubMed]
- Freeman, S.; Kurosawa, H.; Ebihara, S.; Kohzuki, M. Caregiving burden for the oldest old: A population based study of centenarian caregivers in Northern Japan. Arch. Gerontol. Geriatr. 2010, 50, 282–291. [Google Scholar] [CrossRef] [PubMed]
- Grudzen, C.R.; Shim, D.J.; Schmucker, A.M.; Cho, J.; Goldfeld, K.S.; Investigators, E.M. Emergency Medicine Palliative Care Access (EMPallA): Protocol for a multicentre randomised controlled trial comparing the effectiveness of specialty outpatient versus nurse-led telephonic palliative care of older adults with advanced illness. BMJ Open 2019, 9, e025692. [Google Scholar] [CrossRef] [PubMed]
- Kim, J.Y.; Tak, S.H.; Lee, J.; Choi, H. Effects of Physical Exercise Program for Older Family Caregivers of Persons with Dementia. Am. J. Alzheimers Dis. Other Dement. 2023, 38, 15333175231178384. [Google Scholar] [CrossRef] [PubMed]
- Laks, J.; Goren, A.; Duenas, H.; Novick, D.; Kahle-Wrobleski, K. Caregiving for patients with Alzheimer’s disease or dementia and its association with psychiatric and clinical comorbidities and other health outcomes in Brazil. Int. J. Geriatr. Psychiatry 2016, 31, 176–185. [Google Scholar] [CrossRef] [PubMed]
- Lappalainen, P.; Pakkala, I.; Nikander, R. CareACT—Internet-based intervention for enhancing the psychological well-being of elderly caregivers—A study protocol of a controlled trial. BMC Geriatr. 2019, 19, 72. [Google Scholar] [CrossRef]
- Lethin, C.; Renom-Guiteras, A.; Zwakhalen, S.; Soto-Martin, M.; Saks, K.; Zabalegui, A.; Challis, D.J.; Nilsson, C.; Karlsson, S. Psychological well-being over time among informal caregivers caring for persons with dementia living at home. Aging Ment. Health 2017, 21, 1138–1146. [Google Scholar] [CrossRef]
- Libert, Y.; Borghgraef, C.; Beguin, Y.; Delvaux, N.; Devos, M.; Doyen, C.; Dubruille, S.; Etienne, A.M.; Lienard, A.; Merckaert, I.; et al. Factors associated with self-perceived burden to the primary caregiver in older patients with hematologic malignancies: An exploratory study. Psychooncology 2017, 26, 118–124. [Google Scholar] [CrossRef]
- Martinez-Martin, P.; Arroyo, S.; Rojo-Abuin, J.M.; Rodriguez-Blazquez, C.; Frades, B.; de Pedro Cuesta, J.; Longitudinal Parkinson’s Disease Patient Study, G. Burden, perceived health status, and mood among caregivers of Parkinson’s disease patients. Mov. Disord. 2008, 23, 1673–1680. [Google Scholar] [CrossRef]
- McGarrigle, C.A.; Ward, M.; De Looze, C.; O’Halloran, A.; Kenny, R.A. Caring in the time of COVID-19, longitudinal trends in well-being and mental health in carers in Ireland: Evidence from the Irish Longitudinal Study on Ageing (TILDA). Arch. Gerontol. Geriatr. 2022, 102, 104719. [Google Scholar] [CrossRef] [PubMed]
- Menn, P.; Holle, R.; Kunz, S.; Donath, C.; Lauterberg, J.; Leidl, R.; Marx, P.; Mehlig, H.; Ruckdaschel, S.; Vollmar, H.C.; et al. Dementia care in the general practice setting: A cluster randomized trial on the effectiveness and cost impact of three management strategies. Value Health 2012, 15, 851–859. [Google Scholar] [CrossRef] [PubMed]
- Olai, L.; Borgquist, L.; Svardsudd, K. Life situations and the care burden for stroke patients and their informal caregivers in a prospective cohort study. Upsala J. Med. Sci. 2015, 120, 290–298. [Google Scholar] [CrossRef] [PubMed]
- Olazaran, J.; Aguera-Ortiz, L.; Argimon, J.M.; Reed, C.; Ciudad, A.; Andrade, P.; Dilla, T. Costs and quality of life in community-dwelling patients with Alzheimer’s disease in Spain: Results from the GERAS II observational study. Int. Psychogeriatr. 2017, 29, 2081–2093. [Google Scholar] [CrossRef] [PubMed]
- Onu, D.U.; Orjiakor, C.T.; Onyedire, N.G.; Amazue, L.O.; Allison, T.J. Preparedness for caregiving moderates the association between burden and health-related quality of life among family caregivers of stroke patients in Nigeria. S. Afr. J. Psychol. 2021, 52, 338–350. [Google Scholar] [CrossRef]
- Putri, Y.S.E.; Putra, I.; Falahaini, A.; Wardani, I.Y. Factors Associated with Caregiver Burden in Caregivers of Older Patients with Dementia in Indonesia. Int. J. Environ. Res. Public. Health 2022, 19, 12437. [Google Scholar] [CrossRef] [PubMed]
- Rico-Blazquez, M.; Garcia-Sanz, P.; Martin-Martin, M.; Lopez-Rodriguez, J.A.; Morey-Montalvo, M.; Sanz-Cuesta, T.; Rivera-Alvarez, A.; Araujo-Calvo, M.; Frias-Redondo, S.; Escortell-Mayor, E.; et al. Effectiveness of a home-based nursing support and cognitive restructuring intervention on the quality of life of family caregivers in primary care: A pragmatic cluster-randomized controlled trial. Int. J. Nurs. Stud. 2021, 120, 103955. [Google Scholar] [CrossRef]
- Rico-Blazquez, M.; Quesada-Cubo, V.; Polentinos-Castro, E.; Sanchez-Ruano, R.; Rayo-Gomez, M.A.; Del Cura-Gonzalez, I.; CuidaCare, G. Health-related quality of life in caregivers of community-dwelling individuals with disabilities or chronic conditions. A gender-differentiated analysis in a cross-sectional study. BMC Nurs. 2022, 21, 69. [Google Scholar] [CrossRef]
- Rubio, R.; Palacios, B.; Varela, L.; Fernandez, R.; Camargo Correa, S.; Estupinan, M.F.; Calvo, E.; Jose, N.; Ruiz Munoz, M.; Yun, S.; et al. Quality of life and disease experience in patients with heart failure with reduced ejection fraction in Spain: A mixed-methods study. BMJ Open 2021, 11, e053216. [Google Scholar] [CrossRef]
- Shiue, I. Caregivers had neighbourhood support but perceived it unsatisfactory and worsened: England Community Life Survey, 2012–2014. Environ. Sci. Pollut. Res. Int. 2017, 24, 10900–10905. [Google Scholar] [CrossRef]
- Shiue, I.; Sand, M. Quality of life in caregivers with and without chronic disease: Welsh Health Survey, 2013. J. Public. Health 2017, 39, 34–44. [Google Scholar] [CrossRef] [PubMed]
- Simonelli, C.; Tripodi, F.; Rossi, R.; Fabrizi, A.; Lembo, D.; Cosmi, V.; Pierleoni, L. The influence of caregiver burden on sexual intimacy and marital satisfaction in couples with an Alzheimer spouse. Int. J. Clin. Pract. 2008, 62, 47–52. [Google Scholar] [CrossRef] [PubMed]
- Singh, P.; Bennett, B.; Bailey, T.; Taylor-Stokes, G.; Rajkovic, I.; Contente, M.; Curtis, S.; Curtis, C. Real-world study of the impact of recurrent/metastatic squamous cell carcinoma of the head and neck (R/M SCCHN) on quality of life and productivity in Europe. BMC Cancer 2021, 21, 854. [Google Scholar] [CrossRef] [PubMed]
- Tai, S.Y.; Hsu, C.L.; Huang, S.W.; Ma, T.C.; Hsieh, W.C.; Yang, Y.H. Effects of multiple training modalities in patients with Alzheimer’s disease: A pilot study. Neuropsychiatr. Dis. Treat. 2016, 12, 2843–2849. [Google Scholar] [CrossRef] [PubMed]
- Tay, R.; Tan, J.Y.S.; Hum, A.Y.M. Factors Associated With Family Caregiver Burden of Home-Dwelling Patients With Advanced Dementia. J. Am. Med. Dir. Assoc. 2022, 23, 1248–1256. [Google Scholar] [CrossRef]
- Thai, J.N.; Barnhart, C.E.; Cagle, J.; Smith, A.K. “It Just Consumes Your Life”: Quality of Life for Informal Caregivers of Diverse Older Adults With Late-Life Disability. Am. J. Hosp. Palliat. Care 2016, 33, 644–650. [Google Scholar] [CrossRef] [PubMed]
- Tse, M.M.Y.; Ng, S.S.M.; Lou, V.; Lo, R.; Cheung, D.S.K.; Lee, P.; Tang, A.S.K. A Dyadic Pain Management Program for Community-Dwelling Older Adults with Chronic Pain: Study Protocol for a Cluster Randomized Controlled Trial. Int. J. Environ. Res. Public. Health 2022, 19, 12186. [Google Scholar] [CrossRef]
- Wu, M.H.; Lee, S.; Su, H.Y.; Pai, H.C. The effect of cognitive appraisal in middle-aged women stroke survivors and the psychological health of their caregivers: A follow-up study. J. Clin. Nurs. 2015, 24, 3155–3164. [Google Scholar] [CrossRef]
- Zegwaard, M.I.; Aartsen, M.J.; Grypdonck, M.H.; Cuijpers, P. Differences in impact of long term caregiving for mentally ill older adults on the daily life of informal caregivers: A qualitative study. BMC Psychiatry 2013, 13, 103. [Google Scholar] [CrossRef]
- Zwar, L.; Konig, H.H.; Hajek, A. Gender Differences in Mental Health, Quality of Life, and Caregiver Burden among Informal Caregivers during the Second Wave of the COVID-19 Pandemic in Germany: A Representative, Population-Based Study. Gerontology 2023, 69, 149–162. [Google Scholar] [CrossRef]
- Adelman, R.D.; Tmanova, L.L.; Delgado, D.; Dion, S.; Lachs, M.S. Caregiver burden: A clinical review. JAMA 2014, 311, 1052–1060. [Google Scholar] [CrossRef] [PubMed]
- Bedard, M.; Molloy, D.W.; Squire, L.; Dubois, S.; Lever, J.A.; O’Donnell, M. The Zarit Burden Interview: A new short version and screening version. Gerontologist 2001, 41, 652–657. [Google Scholar] [CrossRef] [PubMed]
- Duggleby, W.; Williams, A.; Ghosh, S.; Moquin, H.; Ploeg, J.; Markle-Reid, M.; Peacock, S. Factors influencing changes in health related quality of life of caregivers of persons with multiple chronic conditions. Health Qual. Life Outcomes 2016, 14, 81. [Google Scholar] [CrossRef] [PubMed]
- Katz, S.; Ford, A.B.; Moskowitz, R.W.; Jackson, B.A.; Jaffe, M.W. Studies of Illness in the Aged. The Index of Adl: A Standardized Measure of Biological and Psychosocial Function. JAMA 1963, 185, 914–919. [Google Scholar] [CrossRef]
- Pearlin, L.I.; Mullan, J.T.; Semple, S.J.; Skaff, M.M. Caregiving and the stress process: An overview of concepts and their measures. Gerontologist 1990, 30, 583–594. [Google Scholar] [CrossRef]
- Perkins, M.; Howard, V.J.; Wadley, V.G.; Crowe, M.; Safford, M.M.; Haley, W.E.; Howard, G.; Roth, D.L. Caregiving strain and all-cause mortality: Evidence from the REGARDS study. J. Gerontol. B Psychol. Sci. Soc. Sci. 2013, 68, 504–512. [Google Scholar] [CrossRef]
- Schulz, R.; Beach, S.R. Caregiving as a risk factor for mortality: The Caregiver Health Effects Study. JAMA 1999, 282, 2215–2219. [Google Scholar] [CrossRef]
- Schulz, R.; Martire, L.M. Family caregiving of persons with dementia: Prevalence, health effects, and support strategies. Am. J. Geriatr. Psychiatry 2004, 12, 240–249. [Google Scholar] [CrossRef]
- Roth, D.L.; Fredman, L.; Haley, W.E. Informal caregiving and its impact on health: A reappraisal from population-based studies. Gerontologist 2015, 55, 309–319. [Google Scholar] [CrossRef]
- Schulz, R.; Sherwood, P.R. Physical and mental health effects of family caregiving. Am. J. Nurs. 2008, 108, 23–27. [Google Scholar] [CrossRef]
- Folstein, M.F.; Folstein, S.E.; McHugh, P.R. “Mini-mental state”. A practical method for grading the cognitive state of patients for the clinician. J. Psychiatr. Res. 1975, 12, 189–198. [Google Scholar] [CrossRef] [PubMed]
- Etters, L.; Goodall, D.; Harrison, B.E. Caregiver burden among dementia patient caregivers: A review of the literature. J. Am. Acad. Nurse Pract. 2008, 20, 423–428. [Google Scholar] [CrossRef] [PubMed]
- Chappell, N.L.; Reid, R.C. Burden and well-being among caregivers: Examining the distinction. Gerontologist 2002, 42, 772–780. [Google Scholar] [CrossRef]
- Zarit, S.H.; Reever, K.E.; Bach-Peterson, J. Relatives of the impaired elderly: Correlates of feelings of burden. Gerontologist 1980, 20, 649–655. [Google Scholar] [CrossRef]
- Cummings, J.L.; Mega, M.; Gray, K.; Rosenberg-Thompson, S.; Carusi, D.A.; Gornbein, J. The Neuropsychiatric Inventory: Comprehensive assessment of psychopathology in dementia. Neurology 1994, 44, 2308–2314. [Google Scholar] [CrossRef] [PubMed]
- Rigby, H.; Gubitz, G.; Phillips, S. A systematic review of caregiver burden following stroke. Int. J. Stroke 2009, 4, 285–292. [Google Scholar] [CrossRef]
- Lindt, N.; van Berkel, J.; Mulder, B.C. Determinants of overburdening among informal carers: A systematic review. BMC Geriatr. 2020, 20, 304. [Google Scholar] [CrossRef]
- Gilbertson, E.L.; Krishnasamy, R.; Foote, C.; Kennard, A.L.; Jardine, M.J.; Gray, N.A. Burden of Care and Quality of Life Among Caregivers for Adults Receiving Maintenance Dialysis: A Systematic Review. Am. J. Kidney Dis. 2019, 73, 332–343. [Google Scholar] [CrossRef]
- Li, Y.; Li, J.; Zhang, Y.; Ding, Y.; Hu, X. The effectiveness of e-Health interventions on caregiver burden, depression, and quality of life in informal caregivers of patients with cancer: A systematic review and meta-analysis of randomized controlled trials. Int. J. Nurs. Stud. 2022, 127, 104179. [Google Scholar] [CrossRef]
- Li, J.; Han, X.; Zhang, X.; Wang, S. Spatiotemporal evolution of global population ageing from 1960 to 2017. BMC Public. Health 2019, 19, 127. [Google Scholar] [CrossRef]
- Del-Pino-Casado, R.; Rodriguez Cardosa, M.; Lopez-Martinez, C.; Orgeta, V. The association between subjective caregiver burden and depressive symptoms in carers of older relatives: A systematic review and meta-analysis. PLoS ONE 2019, 14, e0217648. [Google Scholar] [CrossRef] [PubMed]
- Heidenreich, A.; Eisemann, N.; Katalinic, A.; Hubner, J. Study results from journals with a higher impact factor are closer to “truth”: A meta-epidemiological study. Syst. Rev. 2023, 12, 8. [Google Scholar] [CrossRef]
- Tunis, S.R.; Stryer, D.B.; Clancy, C.M. Practical clinical trials: Increasing the value of clinical research for decision making in clinical and health policy. JAMA 2003, 290, 1624–1632. [Google Scholar] [CrossRef] [PubMed]
- Solomon, D.J.; Björk, B.C. Publication Fees in Open Access Publishing: Sources of Funding and Factors Influencing Choice of Journal. J. Am. Soc. Inf. Sci. Tec. 2012, 63, 98–107. [Google Scholar] [CrossRef]
- Bin Suliman, M.A.; Hanis, T.M.; Kamdi, M.K.A.; Ibrahim, M.I.; Musa, K.I. A Bibliometric Analysis of Stroke Caregiver Research from 1989 to 2022. Int. J. Environ. Res. Public. Health 2023, 20, 4642. [Google Scholar] [CrossRef] [PubMed]
- Koyanagi, A.; DeVylder, J.E.; Stubbs, B.; Carvalho, A.F.; Veronese, N.; Haro, J.M.; Santini, Z.I. Depression, sleep problems, and perceived stress among informal caregivers in 58 low-, middle-, and high-income countries: A cross-sectional analysis of community-based surveys. J. Psychiatr. Res. 2018, 96, 115–123. [Google Scholar] [CrossRef]
- Smith, E.; Hunt, M.; Master, Z. Authorship ethics in global health research partnerships between researchers from low or middle income countries and high income countries. BMC Med. Ethics 2014, 15, 42. [Google Scholar] [CrossRef]
- Kanters, T.A.; Brugts, J.J.; Manintveld, O.C.; Versteegh, M.M. Burden of Providing Informal Care for Patients with Atrial Fibrillation. Value Health 2021, 24, 236–243. [Google Scholar] [CrossRef]
Rank | Study ID [Reference] | Title | Journal | Citations | DOI |
---|---|---|---|---|---|
1 | Belasco A., 2006 [25] | Quality of Life of Family Caregivers of Elderly Patients on Hemodialysis and Peritoneal Dialysis | American Journal of Kidney Diseases | 148 | 10.1053/j.ajkd.2006.08.017 |
2 | Martinez-Martin P., 2008 [43] | Burden, Perceived Health Status, and Mood among Caregivers of Parkinson’s Disease Patients | Movement Disorders | 131 | 10.1002/mds.22106 |
3 | Laks J., 2016 [39] | Caregiving for Patients with Alzheimer’s Disease or Dementia and Its Association with Psychiatric and Clinical Comorbidities and Other Health Outcomes in Brazil | International Journal of Geriatric Psychiatry | 53 | 10.1002/gps.4309 |
4 | Black S.E., 2010 [26] | Canadian Alzheimer’s Disease Caregiver Survey: Baby-Boomer Caregivers and Burden of Care | International Journal of Geriatric Psychiatry | 39 | 10.1002/gps.2421 |
5 | Lethin C., 2017 [41] | Psychological Well-Being Over Time among Informal Caregivers Caring for Persons with Dementia Living at Home | Aging and Mental Health | 38 | 10.1080/13607863.2016.1211621 |
6 | Simonelli C., 2008 [55] | The Influence of Caregiver Burden on Sexual Intimacy and Marital Satisfaction in Couples with An Alzheimer Spouse | International Journal of Clinical Practice | 37 | 10.1111/j.1742-1241.2007.01506.x |
7 | Dionne-Odom J.N., 2020 [34] | Effects of A Telehealth Early Palliative Care Intervention for Family Caregivers of Persons with Advanced Heart Failure: The ENABLE CHF-PC Randomized Clinical Trial | JAMA Network | 34 | 10.1001/jamanetworkopen.2020.2583 |
8 | Menn P., 2012 [45] | Dementia Care in The General Practice Setting: A Cluster Randomized Trial on The Effectiveness and Cost Impact of Three Management Strategies | Value in Health | 29 | 10.1016/j.jval.2012.06.007 |
9 | Olai L., 2015 [46] | Life Situations and The Care Burden for Stroke Patients and Their Informal Caregivers in A Prospective Cohort Study | Upsala Journal of Medical Sciences | 24 | 10.3109/03009734.2015.1049388 |
10 | Andrieu S., 2007 [22] | New Assessment of Dependency in Demented Patients: Impact on The Quality of Life in Informal Caregivers | Psychiatry and Clinical Neurosciences | 23 | 10.1111/j.1440-1819.2007.01660.x |
Sources | Articles | IF | JCR Category (Quartile) |
---|---|---|---|
Gerontologist | 73 | 5.7 | Gerontology-SCIE (Q1); Geriatrics and Gerontology-SCIE (NA) |
Journal of the American Geriatrics Society | 33 | 6.3 | Geriatrics and Gerontology-SCIE (Q1); Gerontology-SSCI (Q1) |
Aging & Mental Health | 27 | 3.4 | Geriatrics and Gerontology-SCIE (Q3); Gerontology-SSCI (Q2) |
International Psychogeriatrics | 24 | 7.0 | Geriatrics and Gerontology-SCIE (Q1); Gerontology-SSCI (Q1) |
Journals of gerontology. Series B, Psychological sciences and social sciences | 24 | 6.2 | Geriatrics and Gerontology-SCIE (Q1); Gerontology-SSCI (Q1) |
Stroke | 24 | 8.4 | Clinical Neurology-SCIE (Q1); Peripheral Vascular Disease-SCIE (Q1) |
International Journal of Geriatric Psychiatry | 23 | 4.0 | Geriatrics and Gerontology-SCIE (Q2); Gerontology-SSCI (Q2) |
Quality of Life Research | 20 | 3.5 | Health Care Sciences and Services-SCIE (Q2); Health Policy and Services-SSCI (Q2) |
Journal of the American Medical Association | 17 | 120.7 | Medicine, General and Internal-SCIE (Q1) |
Neurology | 16 | 10.1 | Clinical Neurology-SCIE (Q1) |
Country | Publications |
---|---|
Spain | 57 |
USA | 34 |
China | 28 |
France | 19 |
UK | 15 |
Germany | 14 |
Canada | 11 |
Brazil | 10 |
Singapore | 9 |
Sweden | 9 |
Disclaimer/Publisher’s Note: The statements, opinions and data contained in all publications are solely those of the individual author(s) and contributor(s) and not of MDPI and/or the editor(s). MDPI and/or the editor(s) disclaim responsibility for any injury to people or property resulting from any ideas, methods, instructions or products referred to in the content. |
© 2024 by the authors. Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https://creativecommons.org/licenses/by/4.0/).
Share and Cite
Zhylkybekova, A.; Koshmaganbetova, G.K.; Zare, A.; Mussin, N.M.; Kaliyev, A.A.; Bakhshalizadeh, S.; Ablakimova, N.; Grjibovski, A.M.; Glushkova, N.; Tamadon, A. Global Research on Care-Related Burden and Quality of Life of Informal Caregivers for Older Adults: A Bibliometric Analysis. Sustainability 2024, 16, 1020. https://doi.org/10.3390/su16031020
Zhylkybekova A, Koshmaganbetova GK, Zare A, Mussin NM, Kaliyev AA, Bakhshalizadeh S, Ablakimova N, Grjibovski AM, Glushkova N, Tamadon A. Global Research on Care-Related Burden and Quality of Life of Informal Caregivers for Older Adults: A Bibliometric Analysis. Sustainability. 2024; 16(3):1020. https://doi.org/10.3390/su16031020
Chicago/Turabian StyleZhylkybekova, Aliya, Gulbakit K. Koshmaganbetova, Afshin Zare, Nadiar M. Mussin, Asset A. Kaliyev, Shabnam Bakhshalizadeh, Nurgul Ablakimova, Andrej M. Grjibovski, Natalya Glushkova, and Amin Tamadon. 2024. "Global Research on Care-Related Burden and Quality of Life of Informal Caregivers for Older Adults: A Bibliometric Analysis" Sustainability 16, no. 3: 1020. https://doi.org/10.3390/su16031020