Improving Care for Patients Living with Prolonged Incurable Cancer
Abstract
:Simple Summary
Abstract
1. Prolonged Incurable Cancer: Definition and Unique Needs
2. Palliative Care
3. Survivorship Care
4. Physical Problems
5. Psychosocial Problems
6. Improving Clinical Practice
7. Research Agenda
- What is the epidemiology of patients living with prolonged incurable cancer (prevalence, demographic characteristics and tumor types)?
- How and by whom can patients with prolonged incurable cancer be identified? Are there standardized methods by which this may be done (via medical record review, tumor registries, questionnaires, etc.)?
- What is the epidemiology of experienced physical symptoms for patients with prolonged incurable cancer? How can they best be managed?
- What is the epidemiology of experienced psychosocial symptoms for patients with prolonged incurable cancer? How can they best be managed?
- How are care pathways for patients with prolonged incurable cancer currently organized and how can these be optimized? What are the roles for different healthcare providers, including primary care (e.g., general practitioner), in the care and care coordination for patients with prolonged incurable cancer?
8. Conclusions
Author Contributions
Funding
Institutional Review Board Statement
Informed Consent Statement
Data Availability Statement
Conflicts of Interest
References
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Stegmann, M.E.; Geerse, O.P.; van Zuylen, L.; Nekhlyudov, L.; Brandenbarg, D. Improving Care for Patients Living with Prolonged Incurable Cancer. Cancers 2021, 13, 2555. https://doi.org/10.3390/cancers13112555
Stegmann ME, Geerse OP, van Zuylen L, Nekhlyudov L, Brandenbarg D. Improving Care for Patients Living with Prolonged Incurable Cancer. Cancers. 2021; 13(11):2555. https://doi.org/10.3390/cancers13112555
Chicago/Turabian StyleStegmann, Mariken E., Olaf P. Geerse, Lia van Zuylen, Larissa Nekhlyudov, and Daan Brandenbarg. 2021. "Improving Care for Patients Living with Prolonged Incurable Cancer" Cancers 13, no. 11: 2555. https://doi.org/10.3390/cancers13112555