Death Education for Palliative Psychology: The Impact of a Death Education Course for Italian University Students
Abstract
:1. Introduction
2. Materials and Methods
2.1. Study Design
2.2. DE4PP Project Intervention
2.3. Participants
2.4. Recruitment
2.5. Data Collection
2.5.1. Quantitative Data Collection
2.5.2. Qualitative Data Collection
2.6. Instruments
2.6.1. Quantitative Measurement
2.6.2. Qualitative Measurement
- a
- Focus Group Structure
- b
- Data Analysis
- Quantitative Data Analysis
- Qualitative Data Analysis
3. Results
3.1. Quantitative Results
3.2. Qualitative Results
3.2.1. First Theme: The Positive Impact of the Course on Death and End-of-Life Care Themes
“This course has lessened my death anxiety. Is not that I don’t have it anymore now, but now I know that if I die of a progressive disease there is someone who won’t leave me alone, and this helps me when thinking about death. I don’t have negative thoughts anymore, but I’m thinking about having more fun.”
“This course has allowed me to understand that not being able to speak directly to the patient and make him say “I’m dying, I’m leaving”, I think it leaves unresolved feelings both in the caregivers but also in the patient who dies, it’s bad that the person dies not even being able to talk about what’s happening to him/her with their loved ones.”
“Personally, since I started taking this course, I also started talking about it at home [of death], because it’s something that really moved me internally, and I see that it seems that if you start talking a little bit more than before, with a little more serenity, is becoming more acceptable to the other people.”
“I studied in this course all the psychological interventions, everything that can be done for a person who is dying, and I became aware that almost none of this is applied in the health context.”
“This course was very helpful for me because it helped me understand a pain that I’m experiencing now related to anticipatory grief, and so I felt not wrong about my feelings, and being able to give it a name is reassuring.”
“Surely if someone were to talk to me about these things, I would feel more capable of dealing with these topics and I also feel more respectful towards different ideas than mine regarding death. I used to be a little ruder about that, but now I feel more respectful of the different ideas that you can have about it.”
“This course allowed me to understand that I see myself working in the area of end-of-life care in the future.”
3.2.2. Second Theme: The Role of the Arts Therapies on Death and End-of-Life Care
“I have always thought that I was not able to carry out activities like arts therapies, because I am not a creative or extroverted person, I have this limit and I thought I could not express myself in a creative way or in a different dimension from the more pragmatic one. Actually, thanks to the activities, I saw that I didn’t really have these limits and I found a new way of expression.”
“The photovoice, it was the opportunity to put myself more in the game, it was very liberating, because thanks to this activity I realized how much I have inside myself and how much I can’t explain it to myself. The activities opened a bit of a hole inside me that has allowed me to know myself better.”
“On one hand, putting myself in the shoes of the boy or the guys who were doing it made me relive some personal experiences. But at the end of the activity, I felt a sense of liberation. [...] It was also a physical sensation, during the session it was like a weight was lifted and went away, it was a true relief.”
“The arts therapies helped me to process the emotions regarding the death topics, they were comforting at times. Listening to the lectures, seeing the material made me say “okay, this thing has a name”, and it made me understand how the emotional processes related to death work.”
“This course has enlightened me. There were a whole series of things of the course that gave me answers to questions that I had about death, to understand and comprehend why I implement some behaviors” and to implement feeling more capable of talking about death, the 25-year-old female student says: “The activities allowed me to realize and speak better about the topics of end-of-life care, even at home with my parents.”
“Having a protected environment, helps you pull out something that is a burden and gives you the opportunity to get rid of some of that weight you have inside”.
“I also felt the closeness of the other participants, and therefore I also felt free to tell certain things”.
3.2.3. Third Theme: The Shortcomings of the Course
“My contribution is a little discordant from that of others, I must be honest. There were days when I knew I had to go home after work, and doing certain topics was very distressing... Knowing that I had to go home, and still deal with some challenging topics, made me feel a little down, I’m honest. I do not hide that in some moments I felt a little distressed thinking that I had to deal with certain issues.”
“When I did the practical activities, I was always scared because I thought “Ok, I will do or say what I feel”, but I didn’t know how much I should have shared. This gave me a bit of performance anxiety, I had a lot of emotional fatigue, in managing this aspect.”
4. Discussion
Limitations and Future Directions
Author Contributions
Funding
Institutional Review Board Statement
Informed Consent Statement
Data Availability Statement
Conflicts of Interest
References
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Experimental Group (N = 64) | Control Group (N = 56) | Group Difference p-Value | ||
---|---|---|---|---|
Age: | 22–56; 24.47 (5.36) | 22–49; 24.52 (5.41) | 0.960 | |
Gender: | 0.360 | |||
Male | 8 (12%) | 4 (7%) | ||
Female | 56 (88%) | 51 (91%) | ||
Other | 0 (0%) | 1 (2%) | ||
Religion: | 0.591 | |||
Christian | 30 (47%) | 29 (52%) | ||
None | 34 (53%) | 27 (48%) | ||
Religious level | 1–4; 2.16 (0.86) | 1–4; 3.20 (0.70) | <0.001 | |
Formal caregiver to end-of-life clients: | 0.057 | |||
No | 60 (94%) | 56 (100%) | ||
Yes | 4 (6%) | 0 (0%) | ||
Lost someone close to you in the last two years: | 0.180 | |||
No | 37 (58%) | 39 (70%) | ||
Yes | 27 (42%) | 17 (30%) | ||
Year of master’s degree: | 0.614 | |||
1st | 49 (77%) | 39 (70%) | ||
2nd | 14 (22%) | 15 (27%) | ||
out of course student | 1 (2%) | 2 (4%) |
Variable | Experimental Group (N = 64) | Control Group (N = 56) | ||||||||||
---|---|---|---|---|---|---|---|---|---|---|---|---|
Time 1 | Time 2 | Time Effect | Time 1 | Time 2 | Time Effect | |||||||
M | SD | M | SD | t | Cohen’s d | M | SD | M | SD | t | Cohen’s d | |
TDRS total | 21.16 | 5.03 | 17.38 | 5.23 | 6.45 *** | 0.81 | 20.27 | 5.34 | 20.36 | 5.28 | −0.25 | −0.03 |
DAPR Fear of Death | 3.31 | 0.94 | 2.84 | 0.85 | 5.38 *** | 0.67 | 3.32 | 0.91 | 3.30 | 0.92 | 0.33 | 0.04 |
DAPR Death Avoidance | 2.46 | 0.99 | 1.98 | 0.77 | 5.79 *** | 0.72 | 2.79 | 0.99 | 2.76 | 1.00 | 0.29 | 0.04 |
DAPR Neutral Acceptance | 3.93 | 0.58 | 4.06 | 0.55 | −2.24 | −0.28 | 3.82 | 0.55 | 3.81 | 0.64 | 0.25 | 0.03 |
DAPR Approach Acceptance | 2.05 | 0.74 | 2.29 | 0.78 | −3.20 ** | −0.40 | 2.24 | 0.84 | 2.22 | 0.85 | 0.52 | 0.07 |
DAPR Escape Acceptance | 2.43 | 0.70 | 2.30 | 0.91 | 1.31 | 0.16 | 2.55 | 0.84 | 2.54 | 0.93 | 0.17 | 0.02 |
CCS Total | 13.94 | 3.66 | 15.20 | 4.22 | −4.01 *** | −0.50 | 10.61 | 2.87 | 11.16 | 3.07 | −2.01 | −0.27 |
CSE Total | 13.02 | 5.11 | 16.63 | 3.55 | −6.53 *** | −0.82 | 10.77 | 4.33 | 10.86 | 4.05 | −0.18 | −0.02 |
CS Greater Kindness | 17.38 | 2.07 | 17.63 | 1.87 | −1.00 | −0.12 | 16.96 | 2.10 | 16.89 | 1.88 | 0.35 | 0.05 |
CS Lesser Indifference | 6.86 | 2.09 | 6.64 | 2.06 | 0.89 | 0.11 | 6.96 | 2.07 | 7.46 | 2.21 | −2.33 * | −0.31 |
FATCOD Total | 3.89 | 0.32 | 4.12 | 0.30 | −7.56 *** | −0.95 | 3.71 | 0.32 | 3.72 | 0.31 | −0.35 | −0.05 |
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Ronconi, L.; Biancalani, G.; Medesi, G.A.; Orkibi, H.; Testoni, I. Death Education for Palliative Psychology: The Impact of a Death Education Course for Italian University Students. Behav. Sci. 2023, 13, 182. https://doi.org/10.3390/bs13020182
Ronconi L, Biancalani G, Medesi GA, Orkibi H, Testoni I. Death Education for Palliative Psychology: The Impact of a Death Education Course for Italian University Students. Behavioral Sciences. 2023; 13(2):182. https://doi.org/10.3390/bs13020182
Chicago/Turabian StyleRonconi, Lucia, Gianmarco Biancalani, Georgiana Alexandra Medesi, Hod Orkibi, and Ines Testoni. 2023. "Death Education for Palliative Psychology: The Impact of a Death Education Course for Italian University Students" Behavioral Sciences 13, no. 2: 182. https://doi.org/10.3390/bs13020182
APA StyleRonconi, L., Biancalani, G., Medesi, G. A., Orkibi, H., & Testoni, I. (2023). Death Education for Palliative Psychology: The Impact of a Death Education Course for Italian University Students. Behavioral Sciences, 13(2), 182. https://doi.org/10.3390/bs13020182