Living with Advanced Breast Cancer: A Descriptive Analysis of Survivorship Strategies
Abstract
:1. Introduction
2. Discussion
2.1. Known Side Effects
2.1.1. Fatigue
2.1.2. Anxiety
2.1.3. Cardiotoxicity
2.2. Risk Reduction
2.3. Areas of Need for Future Study
2.3.1. Caregiver Support
2.3.2. Financial Toxicity
2.3.3. Distress—Spiritual and Emotional
2.3.4. Long-Term Immune Therapy Effects
2.3.5. Education
2.4. Living Well with Advanced Breast Cancer (LWABC) Clinic
2.4.1. Patient Experience with LWABC
- “Even though I’ve been in Cancerland for 5 years (and thought I knew a lot), I learned quite a bit.”
- “I found it to be very helpful and it also put me in a better place emotionally.”
- “I am now armed with accurate and useful information and am less uncertain.”
- “Excellent program. I loved the time spent with me by each professional. Very good information & well presented!”
- “It makes you feel like a person and not a number.”
- “I feel very blessed to be able to have my family with me. It was very helpful for us to learn together, and it gave us a starting point for some of the more difficult discussions. Also, discussing the cancer as a journey was so helpful to me and my family because it helped us to understand we will be able to plan for things.”
2.4.2. Current Limitations
3. Conclusions
Author Contributions
Funding
Institutional Review Board Statement
Informed Consent Statement
Data Availability Statement
Conflicts of Interest
References
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Organization | Website | Phone | Assistance |
---|---|---|---|
American Cancer Society | www.cancer.org (accessed on 22 April 2022) | 800-227-2345 | Reimbursements for costs associated with cancer treatment |
Breast Cancer Assistance Fund | https://breastcanceraf.org (accessed on 22 April 2022) | 866-413-5789 | Need-based financial assistance for non-medical costs of getting a patient to treatment and other living expenses that may be incurred |
Cancer Care | www.CancerCare.org (accessed on 22 April 2022) | 800-813-HOPE | Counseling, education, support groups, need-based financial aid for treatments |
Cancer Care Co-Payment Assistance Foundation | www.cancercopay.org (accessed on 22 April 2022) | 866-552-6729 | Copay assistance |
Cancer Financial Assistance Coalition | https://www.cancerfac.org (accessed on 22 April 2022) | not applicable | Coalition of financial assistance organizations joining forces to help cancer patients experience better health and well-being by limiting financial challenges. |
Cancer Supportive Care | http://www.cancersupportivecare.com/drug_assistance.html (accessed on 22 April 2022) | Not applicable | Listing of pharmaceutical drug assistance programs with contact information. |
The Health Well Foundation | www.healthwellfoundation.org (accessed on 22 April 2022) | 800-675-8416 | Need-based financial assistance with coinsurance, copays, premiums, and deductibles. |
Needy Meds | www.needymeds.com (accessed on 22 April 2022) | Not applicable | Non-profit organization with a database of patient assistance programs to include drug discount programs and state assistance programs. |
Susan G. Komen | www.komen.org (accessed on 22 April 2022) | 877- 465-6636 | Need-based financial assistance with treatment payments |
Patient Access Network Foundation | www.panfoundation.org (accessed on 22 April 2022) | 866-316-7263 | Need-based financial assistance with copays, deductibles, and medications. |
Partnership for prescription assistant | https://www.phrma.org/patient-support (accessed on 22 April 2022) | Non-profit organization sponsored by Pharmaceutical Research and Manufacturers of America’s (PhRMA), civic groups, and patient advocacy organizations. This group is dedicated to helping patients find free or low-cost brand-name prescriptions. | |
Patient Advocate Foundation on CoPay Relief | www.copays.org (accessed on 22 April 2022) | 866-512-3861 | Need-based financial assistance with copays for prescription drugs |
Remember Betty | http://rememberbetty.com (accessed on 22 April 2022) | Helps minimize the financial burden associated with breast cancer for patients and survivors so they can focus on recovery and quality of life. | |
RxHope | https://www.rxhope.com/ (accessed on 22 April 2022) | Not applicable | Rx Hope advocates for patients and helps them navigate available assistance programs. |
Provider | Education | Time |
---|---|---|
Breast Medical Oncologist |
| 45 min |
Palliative Medicine |
| 45 min |
Integrative Medicine |
| 30 min |
Registered Dietician |
| 30 min |
Nurse Navigator |
| 10 min |
Consultations to Date | Number of Surveyed Participants | Mean Overall Experience Reported (0–5) | Participants Who Reported 5/5 Experience |
---|---|---|---|
95 | 46 | 4.83 | 33 |
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Grimm, M.; Radcliff, L.; Giles, M.; Nash, R.; Holley, E.; Panda, S.; Brophy, L.; Williams, N.; Cherian, M.; Stover, D.; et al. Living with Advanced Breast Cancer: A Descriptive Analysis of Survivorship Strategies. J. Clin. Med. 2022, 11, 3992. https://doi.org/10.3390/jcm11143992
Grimm M, Radcliff L, Giles M, Nash R, Holley E, Panda S, Brophy L, Williams N, Cherian M, Stover D, et al. Living with Advanced Breast Cancer: A Descriptive Analysis of Survivorship Strategies. Journal of Clinical Medicine. 2022; 11(14):3992. https://doi.org/10.3390/jcm11143992
Chicago/Turabian StyleGrimm, Michael, Lindsey Radcliff, Mariann Giles, Ryan Nash, Erin Holley, Shannon Panda, Lynne Brophy, Nicole Williams, Mathew Cherian, Daniel Stover, and et al. 2022. "Living with Advanced Breast Cancer: A Descriptive Analysis of Survivorship Strategies" Journal of Clinical Medicine 11, no. 14: 3992. https://doi.org/10.3390/jcm11143992
APA StyleGrimm, M., Radcliff, L., Giles, M., Nash, R., Holley, E., Panda, S., Brophy, L., Williams, N., Cherian, M., Stover, D., Gatti-Mays, M. E., Wesolowski, R., Sardesai, S., Sudheendra, P., Reinbolt, R., Ramaswamy, B., & Pariser, A. (2022). Living with Advanced Breast Cancer: A Descriptive Analysis of Survivorship Strategies. Journal of Clinical Medicine, 11(14), 3992. https://doi.org/10.3390/jcm11143992