Healthcare Professionals’ Documentation in Supported Accommodation for People with Profound Intellectual Disabilities: An Educational Intervention Study
Abstract
:1. Introduction
Theoretical Frame
- How frequent were the residents’ experiences described in EHR journal notes prior to the intervention?
- To what extent was interplay between residents and HP documented prior to the intervention?
- What was the impact of the educational intervention regarding documentation describing residents’ experiences and resident–HP interplay?
2. Materials and Methods
2.1. Setting and Sample
2.2. The Intervention
- Presenting the purpose of the study and formal documentation requirements.
- Emphasizing the importance of comprehending residents’ experiences, attuning to their emotions in daily practice, and documenting that practice. At this point, the researcher highlighted that the HP appeared to have extensive knowledge about how to meet each resident’s individual needs, but it was uncertain to what degree these approaches were reflected and documented in the notes.
- Providing selected journal notes from this accommodation to illustrate the differences between those that described HP–resident interplay and those that lacked such descriptions.
- Offering a brief explanation of how journal notes would be measured according to the SESPI. The rationale for introducing the tool to the HP was twofold: to ensure transparency in the study and to provide training on how to document HP–resident interplay. Ten journal notes from the accommodation were used for pedagogical purposes to enhance the intervention. These journal notes were selected to facilitate discussions between the researcher and the HP about what constitutes attuned interplay and how such interactions can be documented. Through this process, the HP noted that they had more extensive interplay with residents than was reflected in their documentation. The researcher acknowledged HP perspectives and highlighted the potential benefits of recording interplay. It was emphasized that the goal was to provide honest descriptions of the interplay, including unsuccessful instances. Such documentation could provide valuable insights for improving future interplay.
2.3. The SESPI Tool
2.4. Procedures
2.5. Training in SESPI and Test Scoring
2.6. Measures
2.7. Data Analysis and Statistics
3. Results
3.1. Documentation of Resident Experiences before the Intervention
3.2. Documentation of Interplay between Residents and HP before the Intervention
3.3. Documentation Prior to and after the Intervention
4. Discussion
4.1. Documentation of Experiences
4.2. Documentation of HP–Resident Interplay
4.3. Clinical Implications
4.4. Strengths and Limitations
5. Conclusions
Author Contributions
Funding
Institutional Review Board Statement
Informed Consent Statement
Data Availability Statement
Conflicts of Interest
References
- Kramer, J.M.; Schwartz, A.E.; Watkins, D.; Peace, M.; Luterman, S.; Barnhart, B.; Bouma-Sims, J.; Riley, J.; Shouse, J.; Maharaj, R.; et al. Improving research and practice: Priorities for young adults with intellectual/developmental disabilities and mental health needs. J. Ment. Health Res. Intellect. Disabil. 2019, 12, 97–125. [Google Scholar] [CrossRef]
- Penninga, W.; Nijs, S.L.P.; van Bakel, H.J.A.; Embregts, P.J.C.M. Meaningful moments of interaction with people with profound intellectual disabilities: Reflections from direct support staff. J. Appl. Res. Intellect. Disabil. 2022, 35, 1307–1316. [Google Scholar] [CrossRef]
- Simons, A.G.; Koordeman, R.; Willems, A.M.; Hermsen, M.; Rooijackers, L.M.; Otten, R. Factors facilitating or hindering meaningful staff–client interactions in people with intellectual disabilities and challenging behaviour: A systematic mixed studies review using thematic synthesis. J. Appl. Res. Intellect. Disabil. 2021, 34, 446–458. [Google Scholar] [CrossRef] [PubMed]
- Carey, E. Aligning with the flow of control: A grounded theory study of choice and autonomy in decision-making practices of people with intellectual disabilities. Int. J. Qual. Stud. Health Well-Being 2021, 16, 1857053. [Google Scholar] [CrossRef]
- Chalachanová, A.; Fjetland, K.J.; Gjermestad, A. Citizenship in everyday life: Stories of people with intellectual disabilities in Norway. Nord. Soc. Work Res. 2021, 13, 148–162. [Google Scholar] [CrossRef]
- Gjermestad, A.; Luteberget, L.; Midjo, T.; Witsø, A.E. Everyday life of persons with intellectual disability living in residential settings: A systematic review of qualitative studies. Disabil. Soc. 2017, 32, 213–232. [Google Scholar] [CrossRef]
- Williams, V.; Porter, S. The meaning of ‘choice and control’ for people with intellectual disabilities who are planning their social care and support. J. Appl. Res. Intellect. Disabil. 2017, 30, 97–108. [Google Scholar] [CrossRef] [PubMed]
- Chadwick, D.; Buell, S.; Goldbart, J. Approaches to communication assessment with children and adults with profound intellectual and multiple disabilities. J. Appl. Res. Intellect. Disabil. 2019, 32, 336–358. [Google Scholar] [CrossRef]
- Nakken, H.; Vlaskamp, C. A Need for a taxonomy for profound intellectual and multiple disabilities. J. Policy Pract. Intellect. Disabil. 2007, 4, 83–87. [Google Scholar] [CrossRef]
- Bos, G.; Abma, T. Putting down verbal and cognitive weaponry: The need for ‘experimental-relational spaces of encounter’ between people with and without severe intellectual disabilities. Disabil. Soc. 2022, 37, 1703–1727. [Google Scholar] [CrossRef]
- Griffiths, C.; Smith, M. Attuning: A communication process between people with severe and profound intellectual disability and their interaction partners. J. Appl. Res. Intellect. Disabil. 2016, 29, 124–138. [Google Scholar] [CrossRef] [PubMed]
- Dahm, M.R.; Georgiou, A.; Balandin, S.; Hill, S.; Hemsley, B. Health information infrastructure for people with intellectual and developmental disabilities (I/DD) living in supported accommodation: Communication, co-ordination and integration of health information. Health Commun. 2019, 34, 91–99. [Google Scholar] [CrossRef] [PubMed]
- Nijhof, K.; Boot, F.H.; Naaldenberg, J.; Leusink, G.L.; Bevelander, K.E. Health support of people with intellectual disability and the crucial role of support workers. BMC Health Serv. Res. 2024, 24, 4. [Google Scholar] [CrossRef]
- Haydon-Laurelut, M.; Nunkoosing, K.; Millett, E. ‘The seal of approval’: Referring adults with intellectual disabilities and challenging behaviour to community learning disability teams. Disabil. Soc. 2014, 29, 290–302. [Google Scholar] [CrossRef]
- Nunkoosing, K.; Haydon-Laurelut, M. Intellectual disabilities, challenging behaviour and referral texts: A critical discourse analysis. Disabil. Soc. 2011, 26, 405–417. [Google Scholar] [CrossRef]
- Quilliam, C.; Bigby, C.; Douglas, J. How frontline staff manage paperwork in group homes for people with intellectual disability: Implications for practice. J. Appl. Res. Intellect. Disabil. 2018, 31, 905–914. [Google Scholar] [CrossRef] [PubMed]
- Poppes, P.; Vlaskamp, C. Addressing challenging behavior in people with profound intellectual and multiple disabilities: Analyzing the effects of daily practice. J. Policy Pract. Intellect. Disabil. 2014, 11, 128–136. [Google Scholar] [CrossRef]
- Talman, L.; Gustafsson, C.; Stier, J.; Wilder, J. Staffs’ documentation of participation for adults with profound intellectual disability or profound intellectual and multiple disabilities. Disabil. Rehabil. 2018, 40, 2527–2537. [Google Scholar] [CrossRef]
- Collins, K.; Gratton, C.; Heneage, C.; Dagnan, D. Employed carers’ empathy towards people with intellectual disabilities: The development of a new measure and some initial theory. J. Appl. Res. Intellect. Disabil. 2017, 30, 133–146. [Google Scholar] [CrossRef]
- Passos-Ferreira, C.I.E. Empathizing with the intellectually disabled. In Latin American Interdisciplinary Perspectives on Bioethics and Disabilities; Barbosa-Fohrmann, A.P., Caponi, S., Eds.; Springer: Cham, Switzerland, 2023; pp. 3–16. ISBN 978-303-122-890-2. [Google Scholar]
- Forster, S.; Iacono, T. The nature of affect attunement used by disability support workers interacting with adults with profound intellectual and multiple disabilities. J. Intellect. Disabil. Res. 2014, 58, 1105–1120. [Google Scholar] [CrossRef]
- Stern, D.N. The Interpersonal World of the Infant; Karnac Books: New York, NY, USA, 1985. [Google Scholar]
- Myklebust, K.K.; Bjørkly, S. Development and reliability testing of the Scale for the Evaluation of Staff-Patient Interactions in Progress Notes (SESPI): An assessment instrument of mental health nursing documentation. Nurs. Open 2019, 6, 790–798. [Google Scholar] [CrossRef]
- Albarqouni, L.; Hoffmann, T.; Glasziou, P. Evidence-based practice educational intervention studies: A systematic review of what is taught and how it is measured. BMC Med. Educ. 2018, 18, 177. [Google Scholar] [CrossRef]
- Newman, M.; Gough, D. Systematic reviews in educational research: Methodology, perspectives and application. In Systematic Reviews in Educational Research; Zawacki-Richter, O., Kerres, M., Bedenlier, S., Bond, M., Butnitns, K., Eds.; Springer: Wiesbaden, Germany, 2020; pp. 3–22. ISBN 978-3-658-27602-7. [Google Scholar]
- Hoffmann, T.C.; Glasziou, P.P.; Boutron, I.; Milne, R.; Perera, R.; Moher, D.; Barbour, V.; Johnston, M.; Lamb, S.E.; Dixon-Woods, M.; et al. Better reporting of interventions: Template for intervention description and replication (TIDieR) checklist and guide. BMJ 2014, 348, g1687. [Google Scholar] [CrossRef]
- Ministry of Culture and Equality. Meld. St. 8 Human Rights for Persons with Intellectual Disabilities—It Is about Being Seen and Heard; Ministry of Culture and Equality: Oslo, Norway, 2022–2023; Available online: https://www.regjeringen.no/contentassets/49e90a1d80dd4b4bbe6ef117d548262c/en-gb/pdfs/lettlest-versjon_stmelding8_engelsk.pdf (accessed on 31 July 2024).
- Myklebust, K.K.; Bjørkly, S. The quality and quantity of staff-patient interactions as recorded by staff: A registry study of nursing documentation in two inpatient mental health wards. BMC Psychiatr. 2019, 19, 251. [Google Scholar] [CrossRef] [PubMed]
- Pérez-Toribio, A.; Moreno-Poyato, A.R.; Lluch-Canut, M.T.; Nash, M.; Cañabate-Ros, M.; Myklebust, K.K.; Bjørkly, S.; Puig-Llobet, M.; Roldán-Merino, J.F. Transcultural adaptation and assessment of psychometric properties of the Spanish version of the Scale for the Evaluation of Staff-Patient Interactions in Progress Notes. PLoS ONE 2023, 18, e0281832. [Google Scholar] [CrossRef] [PubMed]
- Pérez-Toribio, A.; Moreno-Poyato, A.R.; Lluch-Canut, M.T.; El-Abidi, K.; Rubia-Ruiz, G.; Rodríguez-López, A.M.; Pérez-Moreno, J.J.; Pastor-Bernabeu, M.V.; Sánchez-Balcells, S.; Ventosa-Ruiz, A.; et al. The nurse-patient relationship in nursing documentation: The scope and quality of interactions and prevalent interventions in inpatient mental health units. J. Nurs. Manag. 2024, 2024, 7392388. [Google Scholar] [CrossRef]
- Streiner, D.; Kottner, J. Recommendations for reporting the results of studies of instrument and scale development and testing. J. Adv. Nurs. 2014, 70, 1970–1979. [Google Scholar] [CrossRef] [PubMed]
- Ware, J.; Buell, S.; Chadwick, D.D.; Bradshaw, J.; Goldbart, J. A systematic review of research on staff training as an intervention to develop communication in children and adults with profound intellectual and multiple disabilities. J. Appl. Res. Intellect. Disabil. 2024, 37, e13201. [Google Scholar] [CrossRef]
- Matérne, M.; Holmefur, M. Residential care staff are the key to quality of health care for adults with profound intellectual and multiple disabilities in Sweden. BMC Health Serv. Res. 2022, 22, 228. [Google Scholar] [CrossRef]
- Doody, O.; Bailey, M.E. Pain and pain assessment in people with intellectual disability: Issues and challenges in practice. Br. J. Learn. Disabil. 2017, 45, 157–165. [Google Scholar] [CrossRef]
- Doody, O.; Lyons, R.; Ryan, R. The experiences of adults with intellectual disability in the involvement of nursing care planning in health services. Br. J. Learn. Disabil. 2019, 47, 233–240. [Google Scholar] [CrossRef]
Before Intervention, T0 (n = 742) % (n) | After Intervention, T1 (n = 834) % (n) | Total (N = 1576) % (n) | p-Value | ||
---|---|---|---|---|---|
Does the journal note describe the resident’s experience? | No | 78.7 (584) | 73.3 (611) | 75.8 (1195) | 0.025 |
Yes | 21.3 (158) | 26.7 (223) | 24.2 (381) | ||
Description of HP approach and resident response | No description of the resident’s experience | 78.7 (584) | 73.3 (611) | 75.8 (1195) | ≤0.001 |
Description of the resident’s experience, but there is no/unclear description of approach | 17.4 (129) | 14.7 (123) | 16.0 (252) | ||
Approach described, but it is unclear how the resident experienced it | 0.9 (7) | 0.2 (2) | 0.6 (9) | ||
Approach oriented toward practical solutions and not toward experiences and feelings | 0.9 (7) | 8.5 (71) | 4.9 (78) | ||
Both HP approach and resident response are clearly described | 2.0 (15) | 3.2 (27) | 2.7 (42) |
Independent Variable | Adjusted Odds Ratio (OR) | (95% CI) | p-Value |
---|---|---|---|
Description of experience (dichotomous) | 1.295 | 1.011–1.659 | 0.041 |
Shift type | <0.001 | ||
Day | (ref.) | ||
Evening | 1.149 | 0.920–1.435 | 0.220 |
Night | 0.320 | 0.208–0.490 | <0.001 |
Other | 0.718 | 0.043–12.016 | 0.818 |
Education | 0.011 | ||
Unskilled | (ref.) | ||
Healthcare worker without bachelor degree | 0.717 | 0.500–1.028 | 0.071 |
Bachelor in Social Education | 0.215 | 0.078–0.594 | 0.003 |
Bachelor in Nursing | 0.190 | 0.020–1.772 | 0.145 |
Bachelor in Child Welfare | 0.596 | 0.379–0.938 | 0.025 |
Bachelor in Social Work | 0.563 | 0.357–0.888 | 0.013 |
Age | 0.974 | 0.962–0.987 | <0.001 |
Independent Variable | Adjusted Odds Ratio (OR) | (95% CI) | p-Value |
---|---|---|---|
Degree of described resident–HP interplay | <0.001 | ||
No description of resident experience | (ref.) | ||
Description of resident experience, but no/unclear description of approach | 0.894 | 0.673–1.188 | 0.440 |
Approach described, but unclear how the resident experienced it | 0.379 | 0.075–1.910 | 0.240 |
Approach oriented towards practical solutions and not towards experiences and feelings | 9.766 | 4.388–21.737 | <0.001 |
Both HP approach and resident response are clearly described | 1.857 | 0.964–3.577 | 0.064 |
Shift type | <0.001 | ||
Day | (ref.) | ||
Evening | 1.186 | 0.948–1.485 | 0.135 |
Night | 0.430 | 0.312–0.592 | <0.001 |
Other | 0.307 | 0.015–6.436 | 0.447 |
Age | 0.972 | 0.961–0.984 | <0.001 |
Level of education | 0.753 | 0.587–0.965 | 0.025 |
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Myklebust, K.K.; Ramstad, J.B.; Vatnar, S.K.B. Healthcare Professionals’ Documentation in Supported Accommodation for People with Profound Intellectual Disabilities: An Educational Intervention Study. Healthcare 2024, 12, 1606. https://doi.org/10.3390/healthcare12161606
Myklebust KK, Ramstad JB, Vatnar SKB. Healthcare Professionals’ Documentation in Supported Accommodation for People with Profound Intellectual Disabilities: An Educational Intervention Study. Healthcare. 2024; 12(16):1606. https://doi.org/10.3390/healthcare12161606
Chicago/Turabian StyleMyklebust, Kjellaug K., Julia Bogen Ramstad, and Solveig Karin Bø Vatnar. 2024. "Healthcare Professionals’ Documentation in Supported Accommodation for People with Profound Intellectual Disabilities: An Educational Intervention Study" Healthcare 12, no. 16: 1606. https://doi.org/10.3390/healthcare12161606
APA StyleMyklebust, K. K., Ramstad, J. B., & Vatnar, S. K. B. (2024). Healthcare Professionals’ Documentation in Supported Accommodation for People with Profound Intellectual Disabilities: An Educational Intervention Study. Healthcare, 12(16), 1606. https://doi.org/10.3390/healthcare12161606