Rehabilitation of Visually Impaired People: Experiences and Relevance According to the Perception of Family Members and Patients
Abstract
:1. Introduction
2. Materials and Methods
2.1. Ethical Considerations
2.2. Participants
Patients | Age | Gender | Educational Level | Visual Impairment | Related Cause | Family Member | Relationship |
---|---|---|---|---|---|---|---|
P1 | 69 | M | Higher education | Acquired blindness | Pigmentary Retinosis | * | * |
P2 | 29 | M | Undergraduate | Acquired low vision | Traumatic Neuritis | * | * |
P3 | 22 | M | Illiterate | Congenital blindness | Toxoplasmosis during pregnancy | FM3 | Mother |
P4 | 6 | M | Middle School | Congenital low vision | Albinism | FM4/5 | Mother |
P5 | 7 | F | Middle School | Congenital low vision | Albinism | FM4/5 | Mother |
P6 | 6 | F | Middle School | Congenital low vision | Trauma during pregnancy | FM6 | Mother |
P7 | 5 | M | Preschool | Congenital low vision | Nystagmus and Photophobia | FM7 | Aunt |
P8 | 9 | M | Middle School | Acquired low vision | Retinal detachment | FM8 | Mother |
P9 | 25 | F | High School | Acquired low vision | Stargardt’s disease and Best’s disease | FM9 | Husband |
2.3. Data Analysis and Methodological Rigor
3. Results
3.1. Category A. Impact of Rehabilitation on the Autonomy and Independence of Persons with Visual Impairment
Patient | Age | Statements |
---|---|---|
P1 | 69 | “I’ve already taken a bus here at the terminal and went to São Paulo to meet my son… In my opinion, you feel much more comfortable when you have knowledge and resources, as it gives me more confidence.” |
P2 | 29 | “Sports activities are the most beneficial activities in rehabilitation. I played goalball, which helped me a lot… to learn to control my hearing and sense of space (…), in addition, swimming helped me improve my balance and direction; while kayaking and sailing helped me improve my perception of wind, which helps me know where I am. In my opinion, sports activities are the best part of rehabilitation.” |
FM3 (Family Member) | - | “My son would be in a wheelchair and maybe wouldn’t be able to speak or walk if there was no rehabilitation, so I can’t explain, but I believe that rehabilitation is essential to any disability.” |
FM6 (Family Member) | - | “She made new friends when she started going to rehabilitation… Now, it is all normal to her and I believe it’s important to people with this condition to have contact with people who also have it, so they can see it is normal… On the other hand, she may feel excluded in a place where she’s the only one with this condition.” |
FM7 (Family Member) | - | “I believe that there should be a follow-up at the school, since it’s really, really hard to get the student to understand why he can’t see… They can ask themselves ’Why am I being excluded’, right?” |
3.2. Category B. Relevance of Professional Training and Experience, Assistive Technology Resources, and Rehabilitation
Patient | Age | Statements |
---|---|---|
P1 | 69 | “I had a very interesting experience with computing (…), since I had a blind teacher who had exactly the same condition as I have. And without discrediting them, but this is different from the professionals here… It’s just an analogy, since I had both experiences. A teacher who has the same condition relates to you on a deeper level, as he understands what you are going through, but that is not to say the professionals here are any less committed.” |
P2 | 29 | “In my opinion, rehabilitation is especially important… I liked it at the beginning, but then… I mean… I was taking the computer training course, then a new student was introduced; then we had to review everything up to that point. So, if the student is absent, I can’t move on for the day… I believe that this doesn’t really help.” |
P9 | 25 | “I like rehabilitation because it is a place where I learn things and I’m fully supported by professionals who understand the disability… as they are not included in society, people affected by this condition want to isolate themselves, and rehabilitation helps in this matter… It is very important to have some guidance.” |
FM7 (Family Member) | - | “There is a great support… whoever finds that place is well-served, the equipment are particularly good, the doctors are very attentive, and the rehabilitation is very good…” |
FM9 (Family Member) | - | “The health professional present during screening is not aware that she has low vision and lets her bump on things and sit on the floor.” |
3.3. Category C. Impacts of Rehabilitation on Patients and Family Members
Patient | Age | Statements |
---|---|---|
P2 | 29 | “To be honest, I went there only twice… It wouldn’t really make a difference, so I said, ’it’s not worth it for me’ to leave my city just to learn Braille, which is something that I do not use… And I learn how to use the computer by using it, and I barely even use a cane, only at night, for that I took classes at [name of rehabilitation service].” |
FM5 (Family Member) | - | “So much has changed: the colors, objects, and they are even talking more. They used to be kind of shy… all of that, they developed a lot. They do pedagogical activities there, with different materials, this and that… The children learn in a playful way, and I believe it had a positive effect.” |
FM6 (Family Member) | - | “Since the staff helped her to read and write she improved in many ways. Her first-grade teacher said she did it easily when she was approved.” |
FM7 (Family Member) | - | “Yes, I believe it’s great. But the parents also must help at home… we can’t just leave it to the professionals… she’s taught how to do something… Then, when he goes back there in 15 days, he has already forgotten all about it. So, we come up with activities for him to do here, like a toy for him to assemble.” |
4. Discussion
4.1. Limitations of the Study
4.2. Directions and Recommendations for Future Research
5. Conclusions
Author Contributions
Funding
Institutional Review Board Statement
Informed Consent Statement
Data Availability Statement
Conflicts of Interest
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Fernandes, A.C.; de Moraes, Y.; Silva Carvalho, P.H.; Ietto Montilha, R.d.C.; Carmine, F.; Sandoval, C.; Landim, S.F.; Álvarez, N.M.; Rodriguez-Martin, D. Rehabilitation of Visually Impaired People: Experiences and Relevance According to the Perception of Family Members and Patients. Healthcare 2025, 13, 712. https://doi.org/10.3390/healthcare13070712
Fernandes AC, de Moraes Y, Silva Carvalho PH, Ietto Montilha RdC, Carmine F, Sandoval C, Landim SF, Álvarez NM, Rodriguez-Martin D. Rehabilitation of Visually Impaired People: Experiences and Relevance According to the Perception of Family Members and Patients. Healthcare. 2025; 13(7):712. https://doi.org/10.3390/healthcare13070712
Chicago/Turabian StyleFernandes, Ana Cláudia, Yara de Moraes, Pedro Henrique Silva Carvalho, Rita de Cassia Ietto Montilha, Florencia Carmine, Cristian Sandoval, Síbila Floriano Landim, Nicolás Márquez Álvarez, and Dolors Rodriguez-Martin. 2025. "Rehabilitation of Visually Impaired People: Experiences and Relevance According to the Perception of Family Members and Patients" Healthcare 13, no. 7: 712. https://doi.org/10.3390/healthcare13070712
APA StyleFernandes, A. C., de Moraes, Y., Silva Carvalho, P. H., Ietto Montilha, R. d. C., Carmine, F., Sandoval, C., Landim, S. F., Álvarez, N. M., & Rodriguez-Martin, D. (2025). Rehabilitation of Visually Impaired People: Experiences and Relevance According to the Perception of Family Members and Patients. Healthcare, 13(7), 712. https://doi.org/10.3390/healthcare13070712