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Palliative Care and End-of-Life Care
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Palliative Care and End-of-Life Care

A special issue of International Journal of Environmental Research and Public Health (ISSN 1660-4601). This special issue belongs to the section "Health Care Sciences".

Deadline for manuscript submissions: closed (31 July 2024) | Viewed by 5998

Special Issue Editor

Dr. Matthew Allsop

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Guest Editor
Leeds Institute of Health Sciences, School of Medicine, University of Leeds, Leeds LS2 9NL, UK
Interests: palliative care; end-of-life care; digital technology; applied health research; user involvement; stakeholder engagement; global health research; low-resource settings
Special Issues, Collections and Topics in MDPI journals

Special Issue Information

Dear Colleagues,

The global demand for palliative and end-of-life care continues to rise as populations age, with a concurrent increase in the burden of non-communicable—as well as some communicable—diseases. Access to palliative care is limited worldwide, with only a minority of those in need receiving timely access to palliative and end-of-life care, particularly in low-resource settings. This is due to factors such as financial pressures, underdeveloped infrastructure, geographical constraints (e.g., rural settings), and environmental factors. Access to effective palliative care is a critical component of universal health coverage and needs to be achieved in ways that mitigate, circumvent, or overcome such inhibiting factors.

Many people nearing the end of their lives face challenges related to life-threatening illnesses, including but not limited to their physical, psychological, social, spiritual, and communication needs. With the early integration of the person-centered approach to palliative care, the quality of life of patients and their families can be improved.

Innovative models of palliative care delivery continue to be developed globally to increase access to care for people with life-threatening illnesses. One approach, further catalyzed by the COVID-19 pandemic, is the use of digital health capabilities and technological innovation. If developed and implemented well, digitally enabled models of care could strengthen progress towards a more equitable state of universal health coverage. However, it is critical to ensure digitally enabled models of care are implemented optimally to meet the needs of service users, their caregivers, and their healthcare providers.

This Special Issue seeks to draw together much-needed evidence to guide the development of palliative care and end-of-life care services globally, particularly with a focus on the application of digital technologies.

You may choose our Joint Special Issue in Nursing Reports. 

Dr. Matthew Allsop
Guest Editor

Manuscript Submission Information

Manuscripts should be submitted online at www.mdpi.com by registering and logging in to this website. Once you are registered, click here to go to the submission form. Manuscripts can be submitted until the deadline. All submissions that pass pre-check are peer-reviewed. Accepted papers will be published continuously in the journal (as soon as accepted) and will be listed together on the special issue website. Research articles, review articles as well as short communications are invited. For planned papers, a title and short abstract (about 100 words) can be sent to the Editorial Office for announcement on this website.

Submitted manuscripts should not have been published previously, nor be under consideration for publication elsewhere (except conference proceedings papers). All manuscripts are thoroughly refereed through a single-blind peer-review process. A guide for authors and other relevant information for submission of manuscripts is available on the Instructions for Authors page. International Journal of Environmental Research and Public Health is an international peer-reviewed open access monthly journal published by MDPI.

Please visit the Instructions for Authors page before submitting a manuscript. The Article Processing Charge (APC) for publication in this open access journal is 2500 CHF (Swiss Francs). Submitted papers should be well formatted and use good English. Authors may use MDPI's English editing service prior to publication or during author revisions.

Keywords

  • palliative care
  • end-of-life care
  • digital technology
  • health research
  • user involvement
  • global health

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Published Papers (3 papers)

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Research

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12 pages, 314 KiB  
Article
Intensive Care Unit Nurses’ Experiences in Caring for End-of-Life Patients in Saudi Arabia: A Qualitative Study
by Naif H. Alanazi
Int. J. Environ. Res. Public Health 2024, 21(7), 931; https://doi.org/10.3390/ijerph21070931 - 17 Jul 2024
Viewed by 1017
Abstract
Background: Although extensive research on appropriate treatments has been conducted, how nurses provide care to patients at the end-of-life (EOL) is unclear, particularly among intensive care unit (ICU) nurses in Saudi Arabia. Purpose: To explore intensive care unit nurses’ experiences in providing end-of-life [...] Read more.
Background: Although extensive research on appropriate treatments has been conducted, how nurses provide care to patients at the end-of-life (EOL) is unclear, particularly among intensive care unit (ICU) nurses in Saudi Arabia. Purpose: To explore intensive care unit nurses’ experiences in providing end-of-life care in Saudi Arabia. Methods: This study utilized an exploratory, descriptive, qualitative approach. A purposive sampling technique was used to recruit ICU nurses (n = 10) working in ICUs at a tertiary teaching hospital in Riyadh, Saudi Arabia. Using a semi-structured interview guide, ten individual interviews were conducted. Data were analyzed using thematic analysis. The trustworthiness of this study was ensured by following Lincoln and Guba’s (1985) criteria. Findings: Four major themes related to ICU nurses’ experiences of providing EOL care emerged, including: “feeling challenged but driven”, “holistic caring”, “collaborative working ethics”, and “caring for the undying and dying”. Conclusions: This study adds to the body of knowledge about the experience of ICU nurses caring for EOL patients. It offers valuable insights into challenges, coping strategies, holistic caring, collaboration, and the management of critical or dying patients at EOL in the ICUs. Full article
(This article belongs to the Special Issue Palliative Care and End-of-Life Care)
13 pages, 349 KiB  
Article
Impact of Community Palliative Care on Quality of Life among Cancer Patients in Bangladesh
by Mostofa Kamal Chowdhury, Shafiquejjaman Saikot, Nadia Farheen, Nezamuddin Ahmad, Sarwar Alam and Stephen R. Connor
Int. J. Environ. Res. Public Health 2023, 20(15), 6443; https://doi.org/10.3390/ijerph20156443 - 25 Jul 2023
Cited by 4 | Viewed by 2063
Abstract
Cancer, a leading cause of mortality worldwide, is often diagnosed at late stages in low- and middle-income countries, resulting in preventable suffering. When added to standard oncological care, palliative care may improve the quality of life (QOL) of these patients. A longitudinal observational [...] Read more.
Cancer, a leading cause of mortality worldwide, is often diagnosed at late stages in low- and middle-income countries, resulting in preventable suffering. When added to standard oncological care, palliative care may improve the quality of life (QOL) of these patients. A longitudinal observational study was conducted from January 2020 to December 2021. Thirty-nine cancer patients were enrolled in the Compassionate Narayanganj community palliative care group (NPC), where they received comprehensive palliative care in addition to oncological care. Thirty-one patients from the Dept. of Oncology (DO) at BSMMU received standard oncological care. In contrast to the DO group, the NPC group had a higher percentage of female patients, was older, and had slightly higher levels of education. At 10 to 14 weeks follow-up, a significant improvement in overall QOL was observed in the NPC group (p = 0.007), as well as in the psychological (p = 0.003), social (p = 0.002), and environmental domains (p = 0.15). Among the secondary outcomes, the palliative care group had reduced disability and neuropathic pain scores. Additionally, there were statistically significant reductions in pain, drowsiness, and shortness of breath, as well as an improvement in general wellbeing, based on the results of the Edmonton Symptom Assessment Scale—Revised. At the community level in Bangladesh, increased access to palliative care may improve cancer patient outcomes such as QOL and symptom burden. Full article
(This article belongs to the Special Issue Palliative Care and End-of-Life Care)

Other

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17 pages, 1874 KiB  
Opinion
Remote Symptom Monitoring to Enhance the Delivery of Palliative Cancer Care in Low-Resource Settings: Emerging Approaches from Africa
by Omolola Salako, Adaorah Enyi, Susan Miesfeldt, Johnblack K. Kabukye, Mamsau Ngoma, Eve Namisango, Virginia LeBaron, Chenjerai Sisimayi, Bassey Ebenso, Karl A. Lorenz, Yan Wang, Julie Ryan Wolf, Corina van den Hurk and Matthew Allsop
Int. J. Environ. Res. Public Health 2023, 20(24), 7190; https://doi.org/10.3390/ijerph20247190 - 17 Dec 2023
Cited by 1 | Viewed by 2183
Abstract
This paper brings together researchers, clinicians, technology developers and digital innovators to outline current applications of remote symptom monitoring being developed for palliative cancer care delivery in Africa. We outline three remote symptom monitoring approaches from three countries, highlighting their models of delivery [...] Read more.
This paper brings together researchers, clinicians, technology developers and digital innovators to outline current applications of remote symptom monitoring being developed for palliative cancer care delivery in Africa. We outline three remote symptom monitoring approaches from three countries, highlighting their models of delivery and intended outcomes, and draw on their experiences of implementation to guide further developments and evaluations of this approach for palliative cancer care in the region. Through highlighting these experiences and priority areas for future research, we hope to steer efforts to develop and optimise remote symptom monitoring for palliative cancer care in Africa. Full article
(This article belongs to the Special Issue Palliative Care and End-of-Life Care)
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