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Service Preferences and Quality of Life for Older Adults and Adults with Disabilities

A special issue of International Journal of Environmental Research and Public Health (ISSN 1660-4601). This special issue belongs to the section "Health Care Sciences & Services".

Deadline for manuscript submissions: closed (31 December 2022) | Viewed by 2450

Special Issue Editors


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Guest Editor
College of Nursing and Health Sciences, Flinders University, Bedford Park 5042, Australia
Interests: aged care services; consumer preferences; disabilities services; disability employment; quality of life; lived experiences; psychosocial well-being

E-Mail Website
Guest Editor
College of Nursing and Health Sciences, Flinders University, Bedford Park 5042, Australia
Interests: aged care services; community care; consumer preferences; economic evaluation; health services research; patient reported outcomes; residential age care; social care; quality of life; psychometrics

Special Issue Information

Dear Colleagues,

The move to individualised funding and more choice and control over services and support has been a notable policy shift in recent years, here in Australia as well as internationally, for both older adults and people with disabilities. Both populations often rely on family carers to support service choices, though information on service quality to facilitate decision making is not always available or in easily accessible formats for either older adults, people with disabilities or their family members. Over-relying on internet-based resources in particular can disadvantage older adults and people with intellectual disabilities, who may have limited internet literacy, from accessing the information they need to make genuine choices about their own lives. Evidence is needed on consumers’ services preferences, how best to support choice and decision making, and on the measurement of outcomes that are most important and meaningful to older adults and adults with disabilities.

One such outcome is quality of life. That older adults and people with disabilities experience a good quality of life has been recognised as a central tenet of service provision to these populations, yet more evidence is required on what services and supports improve quality of life and how quality of life (and other relevant psychosocial outcomes) is measured in a way that is meaningful to older adults and adults with disabilities themselves.  

This Special Issue is titled “Service Preferences and Quality of Life for Older Adults and Adults with Disabilities”. We encourage submissions relevant to health and social care services to these two populations that cover either service preferences and/or quality of life or other psychosocial outcomes related to wellbeing. We also welcome papers on the perspectives of carers and their own experiences and outcomes from providing informal care to older people and adults with disabilities. Qualitative, quantitative, and mixed methods papers will be included, as well as reviews, positioning papers and methodological papers. We encourage interdisciplinary submissions. Please see the Manuscript Submission Information below for further details.

Dr. Claire Hutchinson
Dr. Jyoti Khadka
Guest Editors

Manuscript Submission Information

Manuscripts should be submitted online at www.mdpi.com by registering and logging in to this website. Once you are registered, click here to go to the submission form. Manuscripts can be submitted until the deadline. All submissions that pass pre-check are peer-reviewed. Accepted papers will be published continuously in the journal (as soon as accepted) and will be listed together on the special issue website. Research articles, review articles as well as short communications are invited. For planned papers, a title and short abstract (about 100 words) can be sent to the Editorial Office for announcement on this website.

Submitted manuscripts should not have been published previously, nor be under consideration for publication elsewhere (except conference proceedings papers). All manuscripts are thoroughly refereed through a single-blind peer-review process. A guide for authors and other relevant information for submission of manuscripts is available on the Instructions for Authors page. International Journal of Environmental Research and Public Health is an international peer-reviewed open access monthly journal published by MDPI.

Please visit the Instructions for Authors page before submitting a manuscript. The Article Processing Charge (APC) for publication in this open access journal is 2500 CHF (Swiss Francs). Submitted papers should be well formatted and use good English. Authors may use MDPI's English editing service prior to publication or during author revisions.

Keywords

  • aged care
  • community care
  • consumer preferences
  • family carers
  • individualised funding
  • long-term care
  • people with disabilities
  • social participation
  • quality of life
  • quality of care

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Published Papers (1 paper)

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Research

15 pages, 992 KiB  
Article
The Role of Web-Based Adaptive Choice-Based Conjoint Analysis Technology in Eliciting Patients’ Preferences for Osteoarthritis Treatment
by Basem Al-Omari, Joviana Farhat and Mujahed Shraim
Int. J. Environ. Res. Public Health 2023, 20(4), 3364; https://doi.org/10.3390/ijerph20043364 - 14 Feb 2023
Cited by 3 | Viewed by 1918
Abstract
Objective: To assess the feasibility of using adaptive choice-based conjoint (ACBC) analysis to elicit patients’ preferences for pharmacological treatment of osteoarthritis (OA), patients’ satisfaction with completing the ACBC questionnaire, and factors associated with questionnaire completion time. Methods: Adult patients aged 18 years and [...] Read more.
Objective: To assess the feasibility of using adaptive choice-based conjoint (ACBC) analysis to elicit patients’ preferences for pharmacological treatment of osteoarthritis (OA), patients’ satisfaction with completing the ACBC questionnaire, and factors associated with questionnaire completion time. Methods: Adult patients aged 18 years and older with a medical diagnosis of OA, experiencing joint pain in the past 12 months, and living in the Northeast of England participated in the study. The participants completed a web-based ACBC questionnaire about their preferences regarding pharmaceutical treatment for OA using a touchscreen laptop independently, and accordingly, the questionnaire completion time was measured. Moreover, the participants completed a pen-and-paper feedback form about their experience in completing the ACBC questionnaire. Results: Twenty participants aged 40 years and older, 65% females, 75% had knee OA, and suffering from OA for more than 5 years participated in the study. About 60% of participants reported completing a computerized questionnaire in the past. About 85% of participants believed that the ACBC task helped them in making decisions regarding their OA medications, and 95% agreed or strongly agreed that they would be happy to complete a similar ACBC questionnaire in the future. The average questionnaire completion time was 16 min (range 10–24 min). The main factors associated with longer questionnaire completion time were older age, never using a computer in the past, and no previous experience in completing a questionnaire. Conclusions: The ACBC analysis is a feasible and efficient method to elicit patients’ preferences for pharmacological treatment of OA, which could be used in clinical settings to facilitate shared decision-making and patient-centered care. The ACBC questionnaire completion consumes a significantly longer time for elderly participants, who never used a computer, and never completed any questionnaire previously. Therefore, the contribution of patients and public involvement (PPI) group in the development of the ACBC questionnaire could facilitate participants’ understanding and satisfaction with the task. Future research including patients with different chronic conditions may provide more useful information about the efficiency of ACBC analysis in eliciting patients’ preferences for osteoarthritis treatment. Full article
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