Palliative Care for the Youngest: Hot Topics in Perinatal and Neonatal Palliative Care across the Globe
A special issue of Children (ISSN 2227-9067). This special issue belongs to the section "Pediatric Neonatology".
Deadline for manuscript submissions: closed (5 January 2024) | Viewed by 11985
Special Issue Editors
Interests: palliative care in paediatrics; defining palliative care needs in children with life-limiting conditions; care planning and decision making; bereavement
2. Newborn Research, Department of Neonatology, University Hospital and University of Zurich, Frauenklinikstrasse 10, 8091 Zurich, Switzerland
Interests: Palliative Care in Paediatrics; Palliative Care in Perinatology, Neonatology and Infancy; identification of palliative care needs in children with life-limiting conditions; communication, care planning and decision-making; development of and implementation processes in the field in Switzerland and internationally
Special Issue Information
Dear Colleagues,
From the millions of children across the world with paediatric palliative care (PPC) needs, neonates and infants make up a large subgroup in many countries. These children often have diagnoses linked with a short life span, leading to death within the first year of life.
The first signs of a palliative condition may be detected in utero. Diagnosis and prognosis in this population are challenging.
Additionally, the best possible care needs to be provided to the mother, who has a close bond with the severely ill child. Beyond physical care, fathers, siblings and other close persons are emotionally involved and may need support.
This physical, psycho-social and spiritual care remains important beyond the child’s death.
In this Special Issue, we aim to address the following questions:
Palliative care for the youngest—what are the advances in screening for PPC needs?
How has the population changed over the last 1–2 decades? How have advances in medical technology affected this change?
How can parents be guided in the decision-making process beginning at diagnosis? What role does prognosis play in counselling families?
What must specialised PPC offer expectant/young mothers?
How does specialised PPC for the youngest differ between countries?
Are there new insights into symptom management?
We hope to provide clinicians additional evidence of and insights into the care of these patients and their families through a broad interdisciplinary selection of authors.
Dr. Eva Bergstraesser
Dr. Deborah Gubler
Guest Editors
Manuscript Submission Information
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Keywords
- perinatal palliative care
- neonatal palliative care
- screening
- diagnosis
- prognosis
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