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Article

Health-Related Quality of Life and Family Functioning of Primary Caregivers of Children with Cerebral Palsy in Malaysia

by
Kelvin Ying
1,2,
Hans Van Rostenberghe
2,3,
Garry Kuan
2,4,
Mohammad Haris Amirul Mohd Yusoff
2,5,
Siti Hawa Ali
1,2,* and
Nik Soriani Yaacob
2,5,*
1
Interdisciplinary Health Sciences Unit, School of Health Sciences, Universiti Sains Malaysia, Kubang Kerian 16150, Kelantan, Malaysia
2
Cerebral Palsy Research Cluster, Universiti Sains Malaysia, Kubang Kerian 16150, Kelantan, Malaysia
3
Department of Paediatrics, School of Medical Sciences, Universiti Sains Malaysia, Kubang Kerian 16150, Kelantan, Malaysia
4
Exercise and Sports Science, School of Health Sciences, Universiti Sains Malaysia, Kubang Kerian 16150, Kelantan, Malaysia
5
Department of Chemical Pathology, School of Medical Sciences, Universiti Sains Malaysia, Kubang Kerian 16150, Kelantan, Malaysia
*
Authors to whom correspondence should be addressed.
Int. J. Environ. Res. Public Health 2021, 18(5), 2351; https://doi.org/10.3390/ijerph18052351
Submission received: 12 January 2021 / Revised: 18 February 2021 / Accepted: 24 February 2021 / Published: 28 February 2021
(This article belongs to the Special Issue Assessment of Health-Related Quality of Life (HRQoL) in Public Health)
Versions Notes

Abstract

Caregiving for children with cerebral palsy (CP) has proved to negatively impact on the physical and psychological well-being of their primary caregivers. The aim of the current study was to examine the overall impact of caregiving for children with CP on the primary caregivers’ health-related quality of life (HRQOL) and family functioning, and to identify potential factors associated with primary caregivers’ HRQOL and family functioning. The cross-sectional study involved a total of 159 primary caregivers of children with CP with a mean age of 42.8 ± 8.4 years. Demographic data and information on the physical and leisure activities of the primary caregivers were collected, and their quality of life (QOL) was measured based on the self-reported Pediatric Quality of Life Inventory Family Impact Module (PedsQL FIM). Primary caregivers in the current study have shown good HRQOL and family functioning, with scores of 82.4 and 85.3 out of 100, respectively. Through multiple linear regression analyses, the mother’s level of education, family monthly income, sleeping problems in children with CP, and the existence of children with other types of disability have been identified as factors contributing to HRQOL and family functioning. The findings help set out the course for stakeholders to establish action to enhance the QOL of primary caregivers.
Keywords: disability; cerebral palsy; caregiver; HRQOL; family functioning disability; cerebral palsy; caregiver; HRQOL; family functioning

Share and Cite

MDPI and ACS Style

Ying, K.; Rostenberghe, H.V.; Kuan, G.; Mohd Yusoff, M.H.A.; Ali, S.H.; Yaacob, N.S. Health-Related Quality of Life and Family Functioning of Primary Caregivers of Children with Cerebral Palsy in Malaysia. Int. J. Environ. Res. Public Health 2021, 18, 2351. https://doi.org/10.3390/ijerph18052351

AMA Style

Ying K, Rostenberghe HV, Kuan G, Mohd Yusoff MHA, Ali SH, Yaacob NS. Health-Related Quality of Life and Family Functioning of Primary Caregivers of Children with Cerebral Palsy in Malaysia. International Journal of Environmental Research and Public Health. 2021; 18(5):2351. https://doi.org/10.3390/ijerph18052351

Chicago/Turabian Style

Ying, Kelvin, Hans Van Rostenberghe, Garry Kuan, Mohammad Haris Amirul Mohd Yusoff, Siti Hawa Ali, and Nik Soriani Yaacob. 2021. "Health-Related Quality of Life and Family Functioning of Primary Caregivers of Children with Cerebral Palsy in Malaysia" International Journal of Environmental Research and Public Health 18, no. 5: 2351. https://doi.org/10.3390/ijerph18052351

APA Style

Ying, K., Rostenberghe, H. V., Kuan, G., Mohd Yusoff, M. H. A., Ali, S. H., & Yaacob, N. S. (2021). Health-Related Quality of Life and Family Functioning of Primary Caregivers of Children with Cerebral Palsy in Malaysia. International Journal of Environmental Research and Public Health, 18(5), 2351. https://doi.org/10.3390/ijerph18052351

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