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Current OncologyCurrent Oncology
  • Article
  • Open Access

1 May 2009

7 Pages

Informational Stories: A Complementary Strategy for Patients and Caregivers with Brain Metastases

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1
Queen’s University, Kingston, ON, Canada
2
University of Toronto, Toronto, ON, Canada
3
Princess Margaret Hospital, Toronto, ON, Canada
4
Department of Radiation Oncology, Princess Margaret Hospital, University of Toronto, 5th Floor, 610 University Avenue, Toronto, ON M5G 2M9, Canada

Abstract

Objective: We compared the efficacy of a story-based writing style with that of a fact-based writing style for educational material on brain metastases. Methods: Identical informational content on four topics—radiation therapy, side effects, steroid tapering, and palliative care—was constructed into equivalent story-based and fact-based materials. The content and reader preference for style were evaluated using a questionnaire of 20 + 1 items. Cancer patients and caregivers were invited to evaluate the materials. Results: A total of 47 participants completed the questionnaire. The recorded preferences for facts, stories, or both were 42%, 7%, and 51% respectively (p = 0.0004). The fact-based materials were rated superior in providing factual information (for example, discussion of treatment, side effects) and selected general characteristics (clarity of information, for instance). A rating trend suggested that story-based materials were superior in describing “how it feels to have brain metastases” (21/40 fact-based vs. 26/43 story-based) and “how brain metastases affected a spouse” (17/41 fact-based vs. 21/47 story-based), and in being “sensitive to the frustrations of a patient with brain metastases” (25/40 fact-based vs. 30/44 story-based). Conclusions: Half the participants preferred to read both fact-based and story-based materials. A combined story-based and fact-based educational resource may be more effective in conveying sensitive information and should be further investigated.

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