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Children
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Cerebral Palsy: Pediatric Patient- and Family-Centered Care and Clinical Research
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Cerebral Palsy: Pediatric Patient- and Family-Centered Care and Clinical Research

A special issue of Children (ISSN 2227-9067). This special issue belongs to the section "Pediatric Neurology & Neurodevelopmental Disorders".

Deadline for manuscript submissions: closed (30 November 2024) | Viewed by 537

Special Issue Editor

Dr. Nathalie Maitre

E-Mail Website
Guest Editor
Department of Pediatrics, Emory University School of Medicine, Atlanta, GA, USA
Interests: cerebral palsy; implementation; stakeholder-centered; intervention; caregivers
Special Issues, Collections and Topics in MDPI journals

Special Issue Information

Dear Colleagues,

Cerebral palsy(CP) is the most common physical disability that originates in childhood and affects the lifespan; it is NOT a terminal illness and cannot be treated as such. To change paradigms of CP care from addressing a single problem at one point in time towards managing a chronic condition over a lifetime trajectory, we need to rethink care delivery systems and research design. Beyond their role in the ICF, environment and personal factors must become critical components of systems change processes, habilitative technologies and strategies. Managing CP over the lifespan starts in childhood, with a goal of stakeholder health and empowerment.

We invite you to contribute to this Special Issue, which aims to collate the latest evidence on clinical care, implementation science and research, for infants, children, and adolescents with cerebral palsy with a focus on "stakeholder-centered interventions and health promotion". Although the primary focus is on interventions for cerebral palsy, studies that include solutions to knowledge translation problems, especially in low resource areas, are invited. The manuscripts may include any format (original research, systematic reviews, implementation science and quality improvement) that may contribute to the further development of feasible and generalizable change drivers for people with cerebral palsy and their families across the first 21 years.

You may choose our Joint Special Issue in JCM.

Dr. Nathalie Maitre
Guest Editor

Manuscript Submission Information

Manuscripts should be submitted online at www.mdpi.com by registering and logging in to this website. Once you are registered, click here to go to the submission form. Manuscripts can be submitted until the deadline. All submissions that pass pre-check are peer-reviewed. Accepted papers will be published continuously in the journal (as soon as accepted) and will be listed together on the special issue website. Research articles, review articles as well as short communications are invited. For planned papers, a title and short abstract (about 100 words) can be sent to the Editorial Office for announcement on this website.

Submitted manuscripts should not have been published previously, nor be under consideration for publication elsewhere (except conference proceedings papers). All manuscripts are thoroughly refereed through a single-blind peer-review process. A guide for authors and other relevant information for submission of manuscripts is available on the Instructions for Authors page. Children is an international peer-reviewed open access monthly journal published by MDPI.

Please visit the Instructions for Authors page before submitting a manuscript. The Article Processing Charge (APC) for publication in this open access journal is 2400 CHF (Swiss Francs). Submitted papers should be well formatted and use good English. Authors may use MDPI's English editing service prior to publication or during author revisions.

Keywords

  • cerebral palsy
  • physical disability
  • preterm infants
  • interventions
  • guidelines
  • implementation
  • caregiver-child interaction
  • stakeholder engagement
  • care transitions

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Published Papers (1 paper)

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Research

12 pages, 226 KiB  
Article
The mPower (Mother’s Power) Initiative: Improving Health Behavior Through Peer Support and Health Literacy for Mothers of Children with Cerebral Palsy in Rural Bangladesh
by Genevieve Perrins, Israt Jahan, Md. Nuruzzaman Khan, Mahmudul Hassan Al Imam, Rosalie Power, Catherine King, Mohammad Muhit, Nadia Badawi and Gulam Khandaker
Children 2024, 11(12), 1438; https://doi.org/10.3390/children11121438 - 26 Nov 2024
Viewed by 382
Abstract
Background/Objectives: Cerebral palsy (CP) affects a substantial number of children, particularly in low- and middle-income countries such as Bangladesh. Maternal health literacy is critical to the health and well-being of children with CP, particularly in low-resource settings. In this study, we sought to [...] Read more.
Background/Objectives: Cerebral palsy (CP) affects a substantial number of children, particularly in low- and middle-income countries such as Bangladesh. Maternal health literacy is critical to the health and well-being of children with CP, particularly in low-resource settings. In this study, we sought to assess how the mPower (mother’s power) community-based intervention impacted mothers’ CP-specific knowledge, as well as their utilization of rehabilitation services in rural Bangladesh. Methods: This quasi-experimental study was conducted with a group of mothers of children with CP, formed through the ongoing initiatives of the Bangladesh CP Register in rural Bangladesh. A pre-post-intervention comparison method was used to assess the outcomes of the intervention. Results: Mothers who participated in over two-thirds of the mPower sessions demonstrated a significant increase in CP-related knowledge (75.5% vs. 63.6%, p = 0.04). Additionally, mothers who attended two-thirds of the mPower sessions utilized rehabilitation services more often compared to those who attended fewer sessions (55.3% vs. 22.6%, p < 0.001). Conclusions: The mPower intervention successfully improved health literacy and likely increased rehabilitation service utilization among mothers of children with CP in rural Bangladesh. Full article
(This article belongs to the Special Issue Cerebral Palsy: Pediatric Patient- and Family-Centered Care and Clinical Research)
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