Cerebral Palsy: Pediatric Patient- and Family-Centered Care and Clinical Research

A special issue of Journal of Clinical Medicine (ISSN 2077-0383). This special issue belongs to the section "Clinical Neurology".

Deadline for manuscript submissions: 30 November 2024 | Viewed by 810

Special Issue Editor


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Guest Editor
Department of Pediatrics, Emory University School of Medicine, Atlanta, GA, USA
Interests: cerebral palsy; implementation; stakeholder-centered; intervention; caregivers

Special Issue Information

Dear Colleagues,

Cerebral palsy(CP) is the most common physical disability that originates in childhood and affects the lifespan; it is NOT a terminal illness and cannot be treated as such. To change paradigms of CP care from addressing a single problem at one point in time towards managing a chronic condition over a lifetime trajectory, we need to rethink care delivery systems and research design. Beyond their role in the ICF, environment and personal factors must become critical components of systems change processes, habilitative technologies and strategies. Managing CP over the lifespan starts in childhood, with a goal of stakeholder health and empowerment.

We invite you to contribute to this Special Issue, which aims to collate the latest evidence on clinical care, implementation science and research, for infants, children, and adolescents with cerebral palsy with a focus on "stakeholder-centered interventions and health promotion". Although the primary focus is on interventions for cerebral palsy, studies that include solutions to knowledge translation problems, especially in low resource areas, are invited. The manuscripts may include any format (original research, systematic reviews, implementation science and quality improvement) that may contribute to the further development of feasible and generalizable change drivers for people with cerebral palsy and their families across the first 21 years.

Dr. Nathalie Maitre
Guest Editor

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Keywords

  • cerebral palsy
  • physical disability
  • preterm infants
  • interventions
  • guidelines
  • implementation
  • caregiver-child interaction
  • stakeholder engagement
  • care transitions

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Published Papers (1 paper)

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Research

12 pages, 229 KiB  
Article
A Cross-Sectional Study of Disparities in Healthcare Transition in Cerebral Palsy
by Gavin Colquitt, Mario Keko, Haresh D. Rochani, Christopher M. Modlesky, Joshua Vova and Nathalie Linda Maitre
J. Clin. Med. 2024, 13(13), 3759; https://doi.org/10.3390/jcm13133759 - 27 Jun 2024
Viewed by 449
Abstract
Background: Cerebral palsy (CP) is the most common physical disability among children, affecting their lifespan. While CP is typically nonprogressive, symptoms can worsen over time. With advancements in healthcare, more children with CP are reaching adulthood, creating a greater demand for adult care. [...] Read more.
Background: Cerebral palsy (CP) is the most common physical disability among children, affecting their lifespan. While CP is typically nonprogressive, symptoms can worsen over time. With advancements in healthcare, more children with CP are reaching adulthood, creating a greater demand for adult care. However, a significant lack of adult healthcare providers exists, as CP is predominantly considered a pediatric condition. This study compares the transition experiences of children with CP compared to those with other developmental disabilities (DDs) and typically developing children (TDC). Methods: This study utilizes cross-sectional data from the National Survey of Children’s Health (NSCH) from 2016–2020, including 71,973 respondents aged 12–17. Children were categorized into three groups: CP (n = 263), DD (n = 9460), and TDC (n = 36,053). The analysis focused on the receipt of transition services and identified demographic and socioeconomic factors influencing these services. Results: Only 9.7% of children with CP received necessary transition services, compared to 19.7% of children with DDs and 19.0% of TDC. Older age, female sex, non-Hispanic white ethnicity, and higher household income were significant predictors of receiving transition services. Children with CP were less likely to have private time with healthcare providers and receive skills development assistance compared to other groups. Conclusions: The findings highlight disparities and critical needs for targeted interventions and structured transition programs to improve the transition from pediatric to adult healthcare for children with CP. Addressing disparities in service receipt and ensuring coordinated, continuous care are essential for improving outcomes for children with CP. Full article
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