Quality Healthcare at the End of Life

A special issue of Healthcare (ISSN 2227-9032). This special issue belongs to the section "Healthcare Quality and Patient Safety".

Deadline for manuscript submissions: 31 March 2025 | Viewed by 2116

Special Issue Editors


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Guest Editor
Research Centre Innovations in Care, Rotterdam University of Applied Sciences, P.O. Box 25035, 3001 HA Rotterdam, The Netherlands
Interests: palliative care; public health palliative care; community care; intersectionality; education in end-of-life care; citizen science

E-Mail Website
Guest Editor
Research Centre Innovations in Care, Rotterdam University of Applied Sciences, P.O. Box 25035, 3001 HA Rotterdam, The Netherlands
Interests: living with cancer; palliative care; nurse practitioner; hope in end-of-life; education

Special Issue Information

Dear Colleagues,

Palliative care is a crucial part of integrated, people-centered health services. It aims to relieve the suffering of patients due to life-threatening illness, whether physical, psychological, social or spiritual. Palliative care improves the quality of life of patients, as well as their informal caregivers. Each year, an estimated 56.8 million people, including 25.7 million in the last year of life, are in need of palliative care worldwide; however, only 14% currently receive it. There are several reasons for this: lack of awareness about what it is and what benefits it might offer, misconceptions about palliative care (such as that it is only for patients with cancer, or for the last weeks of life) and cultural and social barriers. Even in countries where the general level of palliative care is high, we often see that there is no equal access for all who need it. For example, people with intellectual disabilities and/or mental health problems and people with an LGBTQIA+ background experience inequalities. Furthermore, due to new treatment modalities, the course of diseases, e.g., in the case of some cancers, is changing. This leads to new thoughts about palliative care.

The state of the art, as well as the need for (further) development in this rather young field relating clinical, research and policy aspects, is broad across countries. Considering the number of people who are in need of palliative care accompanied by this variety and inequalities, it is crucial that we share information, learn from each other and are able to contribute to the improvement of this area.

A public health approach to end-of-life care, viewing the community as an equal partner in providing quality healthcare at the end of life, is increasingly seen as necessary and helpful in the abovementioned challenges.

Therefore, we are pleased to invite you to share your research in palliative care with us regarding accessibility, equity and diversity, and awareness and public health.

In this Special Issue, we welcome original studies, qualitative, as well quantitative and mixed methods and (all kinds of) reviews.

We look forward to receiving your contributions.

Dr. Marieke M. Groot
Dr. Corine Nierop-van Baalen
Guest Editors

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Keywords

  • palliative care
  • public health palliative care
  • community care
  • intersectionality
  • education in end-of-life care
  • living with cancer
  • awareness

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Published Papers (2 papers)

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Research

9 pages, 254 KiB  
Article
Nurses’ Perception of Caring and Attitudes toward Caring for Dying Patients: Exploring the Relationship Using a Descriptive Cross-Sectional Design
by María del Carmen Fernández-Gutiérrez, Isabel Benavente-Fernández, Natalia Jiménez-Luque, Simón Lubián-López, Consuelo López-Fernández and Juan Manuel Picardo-García
Healthcare 2024, 12(13), 1331; https://doi.org/10.3390/healthcare12131331 - 3 Jul 2024
Viewed by 808
Abstract
This study examines the association between nurses’ perception of caring and attitudes toward caring for dying patients in end-of-life care units. We used a descriptive cross-sectional design with convenience sampling. Data were collected from May to June 2021 through self-reported questionnaires from 303 [...] Read more.
This study examines the association between nurses’ perception of caring and attitudes toward caring for dying patients in end-of-life care units. We used a descriptive cross-sectional design with convenience sampling. Data were collected from May to June 2021 through self-reported questionnaires from 303 Spanish nurses (mean age = 48 years, 78.9% female). Participants completed the Caring Dimension Inventory (CDI-25) and the Frommelt Attitudes Toward Care of the Dying scale. Demographic and training information were collected. Data were analyzed using Stata 16.0. Attitudes toward Care of the Dying Patient were significantly higher in nurses with palliative care training (β = 2.829, p = 0.018) and those who scored higher on the psychosocial (β = 0.789, p = 0.0001) and technical dimensions (β = 0.487, p = 0.011) of the CDI-25. Multivariate analysis identified the psychosocial dimension of the CDI-25 scale (β = 0.783, p = 0.0001) and palliative care training (β = 2.686, p = 0.017) as the only significant variables associated with Attitudes toward Care of the Dying Patient. Overall, nurses exhibited a positive attitude toward caring for dying patients. Our results could potentially help nursing directors identify those with the necessary qualities and training for optimal end-of-life care and to further plan training courses to provide optimal care in end-of-life situations. Full article
(This article belongs to the Special Issue Quality Healthcare at the End of Life)
10 pages, 1134 KiB  
Article
Patients’ Perspective on Termination of Pacemaker Therapy—A Cross-Sectional Anonymous Survey among Patients Carrying a Pacemaker in Germany
by Irene Portig, Elif Karaaslan, Elena Hofacker, Christian Volberg and Carola Seifart
Healthcare 2023, 11(21), 2896; https://doi.org/10.3390/healthcare11212896 - 3 Nov 2023
Cited by 1 | Viewed by 863
Abstract
Objective: To determine the opinions of patients regarding the withdrawal of pacemaker therapy. Participants and methods: A cross-sectional anonymous questionnaire was administered to patients visiting an outpatient cardiologic clinic for routine follow-up visits of pacemaker therapy or patients carrying a pacemaker admitted to [...] Read more.
Objective: To determine the opinions of patients regarding the withdrawal of pacemaker therapy. Participants and methods: A cross-sectional anonymous questionnaire was administered to patients visiting an outpatient cardiologic clinic for routine follow-up visits of pacemaker therapy or patients carrying a pacemaker admitted to a hospital between 2021 and 2022. Results: Three-hundred and forty patients answered the questionnaire. A total of 56% of the participants were male. The mean age was 81 years. The majority of respondents were very comfortable with their PM and felt well informed, with one exception: more than half of respondents were missing information on withdrawal of pacemaker therapy. Almost two-thirds wanted to decide for themselves if their pacemaker therapy was withdrawn regardless of whether they were ill or healthy. Almost 60% of patients would like the pacemaker to be turned off when dying. Women expressed this wish significantly more often than men. Conclusion: Our survey shows that patients prefer to be informed on issues regarding the withdrawal of pacemakers as early as preimplantation. Also, patients would like to be involved in decisions that have to be made at the end of life, including decisions on withdrawal. Offers of conversations about this important issue should include information on special features of the patient’s pacemaker, e.g., the absence or presence of pacemaker dependency. Knowledge about the pacemaker’s functionality may prevent distress among individuals nearing their end of life when, for example, under the false impression that timely deactivation may allow for a more peaceful death. Full article
(This article belongs to the Special Issue Quality Healthcare at the End of Life)
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