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Healthcare
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Advances in Pediatric Palliative Care
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Advances in Pediatric Palliative Care

A special issue of Healthcare (ISSN 2227-9032). This special issue belongs to the section "Perinatal and Neonatal Medicine".

Deadline for manuscript submissions: closed (31 July 2023) | Viewed by 1405

Special Issue Editor

Dr. Hans-Ulrich Bender

E-Mail Website
Guest Editor
Pediatric Palliative Care, Department of Pediatrics, Inselspital, Berne University Hospital, 3010 Berne, Switzerland
Interests: pediatric palliative care; pediatric hematology and oncology; symptom management; quality of life; dyspnea; complex chronic condition; advance care planning; communication; end of life; pain; severe neurological impairment; rare disease

Special Issue Information

Dear Colleagues,  

Pediatric palliative care is a relatively young specialty and it is, in many aspects, fundamentally different to adult palliative care. Research in pediatric palliative care has come of age by defining the very population cared for, characterizing their needs as well as describing areas of research that will be necessary in the future.

The very pediatric aspects are multifaceted and include communication in the family setting as well as advance care planning, embracing the triad of parent and child. Symptom management strategies, regarding the population cared for, are still often deduced from adult care. Due to the varying trajectories of diseases in this population, transition into adult care, encompassing the kaleidoscope of diseases and problems, is a growing field. This enumeration is far from exhaustive, highlighting some areas unique to pediatric palliative care where advances will happen. 

This Special Issue seeks articles (original clinical studies, case series and reviews) related to the unique aspects of pediatric palliative care. This invitation is addressed to all healthcare professionals (i.e., physicians, nurses, pharmacists, psychologists, dieticians, respiratory therapists, physical therapists, occupational therapists, physical and behavioral therapists, social workers) who are involved in the care of children and young adults with life-threatening and life-limiting diseases and their families.

This Special Issue may be interesting to researchers and clinicians alike, as well as for policy makers who want to stay informed about the latest developments.

Dr. Hans-Ulrich Bender
Guest Editor

Manuscript Submission Information

Manuscripts should be submitted online at www.mdpi.com by registering and logging in to this website. Once you are registered, click here to go to the submission form. Manuscripts can be submitted until the deadline. All submissions that pass pre-check are peer-reviewed. Accepted papers will be published continuously in the journal (as soon as accepted) and will be listed together on the special issue website. Research articles, review articles as well as short communications are invited. For planned papers, a title and short abstract (about 100 words) can be sent to the Editorial Office for announcement on this website.

Submitted manuscripts should not have been published previously, nor be under consideration for publication elsewhere (except conference proceedings papers). All manuscripts are thoroughly refereed through a single-blind peer-review process. A guide for authors and other relevant information for submission of manuscripts is available on the Instructions for Authors page. Healthcare is an international peer-reviewed open access semimonthly journal published by MDPI.

Please visit the Instructions for Authors page before submitting a manuscript. The Article Processing Charge (APC) for publication in this open access journal is 2700 CHF (Swiss Francs). Submitted papers should be well formatted and use good English. Authors may use MDPI's English editing service prior to publication or during author revisions.

Keywords

  • pediatric palliative care
  • symptom management
  • advance care planning
  • neonatal palliative care
  • communication
  • transition
  • rare disease
  • policy making
  • service development
  • end of life

Published Papers (1 paper)

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Research

10 pages, 246 KiB  
Article
Healthcare Professionals’ Attitudes towards and Knowledge and Understanding of Paediatric Palliative Medicine (PPM) and Its Meaning within the Paediatric Intensive Care Unit (PICU): A Summative Content Analysis in a Tertiary Children’s Hospital in Scotland—“An In Vitro Study”
by Satyajit Ray, Emma Victoria McLorie and Jonathan Downie
Healthcare 2023, 11(17), 2438; https://doi.org/10.3390/healthcare11172438 - 31 Aug 2023
Viewed by 1191
Abstract
Background: Paediatric palliative medicine (PPM) is a holistic approach to care for children and their families. Services are growing and developing worldwide but significant disparity in service provision remains. The Paediatric Supportive and Palliative Care Team (PSPCT) at the Royal Hospital for Children [...] Read more.
Background: Paediatric palliative medicine (PPM) is a holistic approach to care for children and their families. Services are growing and developing worldwide but significant disparity in service provision remains. The Paediatric Supportive and Palliative Care Team (PSPCT) at the Royal Hospital for Children in Glasgow was established in 2019, but there is still no clear integrated role within the paediatric intensive care unit (PICU) at present. Through analysing the attitudes, meaning, knowledge and understanding of PPM in the PICU environment, we hoped to explore the experiences of those providing paediatric palliative care and to identify any barriers to or facilitators of integrated working to gain a better understanding of providing this care. Methods: This qualitative study used a survey composed of five open-ended and five closed questions. Sixteen out of a possible thirty-two responses (50%) were accrued from PICU healthcare professionals, including consultants (n = 19), advanced nurse practitioners (n = 4) and band-seven nurses (n = 9). The data were comprehensively studied and analysed by two coders using summative content analysis with assistance from data management software. Codes were further developed to form categories and subcategories. Results: Two categories were found: (1) the role of palliative care and (2) experiences of providing palliative care. A total of five subcategories were found, demonstrating that the PSPCT can enhance care in PICU through collaborative working. Barriers identified included staffing, funding and stigma around palliative care. Conclusions: This study shows that PICU professionals have a good understanding of the concepts of PPM and view it as an essential part of PICU work. Barriers related to resources and misperceptions of palliative care can be overcome through improved education, funding and staff retention, but this would require buy-in from policymakers. The perspective from our relatively small team increases generalizability to growing teams across the country. Full article
(This article belongs to the Special Issue Advances in Pediatric Palliative Care)
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