Search for Articles:
Title / Keyword
Author / Affiliation / Email
Journal
Article Type
 
 
Advanced Search
 
Section
Special Issue
Volume
Issue
Number
Page
 
7.3
Journals
IJERPH
Special Issues
Instruments and Interventions for Assessing, Supporting and Improving Self-Care
ijerph-logo
Submit to IJERPH Review for IJERPH Propose a Special Issue

Journal Menu

► Journal Menu

Journal Browser

► Journal Browser
share announcement

Instruments and Interventions for Assessing, Supporting and Improving Self-Care

A special issue of International Journal of Environmental Research and Public Health (ISSN 1660-4601). This special issue belongs to the section "Health Behavior, Chronic Disease and Health Promotion".

Deadline for manuscript submissions: closed (1 February 2021) | Viewed by 34284

Special Issue Editors

Prof. Dr. Tiny Jaarsma

E-Mail Website
Guest Editor
Department of Health, Medicine and Caring Sciences, Linköping Univeristy, Building Kåkenhus, Room 6631, Campus Norrköping, Sweden
Interests: self-care; instruments; intervention; cardiology; chronic illness; e-Health; psychometrics
Prof. Dr. Anna E. Strömberg

E-Mail Website
Guest Editor
Department of Health, Medicine and Caring Sciences, Linköping Univeristy, Building 511-001, Entrance 75, plan 13, Campus US, Sweden
Interests: self-care; instruments; family intervention; multidisciplinary; intervention; cardiology; chronic illness; e-Health

Special Issue Information

Dear Colleagues,

Adequate self-care is essential for all persons and includes physical, mental, social, and spiritual aspects of life. The scope of self-care includes health promotion, disease prevention, treatment, rehabilitation, and palliative care. Self-care is a process of maintaining health through health promoting and preventive practices. Although everyone (ill or healthy) is engaged in some level of self-care daily, the need for self-care and specific recommendations are more prominent once diagnosed with a disease. For patients with chronic illness, self-care is essential and the focus of most disease management programs worldwide. Patients who have more effective self-care behavior have been found to have better outcomes than those who undertake poor self-care.
There is increasing interest in improving knowledge about the different aspects of self-care. The number of self-care research studies is increasing worldwide and there is an urgent need for adequate measurement of self-care and evidence of effective interventions. In this Special Issue, we call for papers that address the measurement of self-care and papers that present findings from self-care intervention.

Prof. Dr. Tiny Jaarsma
Prof. Dr. Anna E. Strömberg
Guest Editors

Manuscript Submission Information

Manuscripts should be submitted online at www.mdpi.com by registering and logging in to this website. Once you are registered, click here to go to the submission form. Manuscripts can be submitted until the deadline. All submissions that pass pre-check are peer-reviewed. Accepted papers will be published continuously in the journal (as soon as accepted) and will be listed together on the special issue website. Research articles, review articles as well as short communications are invited. For planned papers, a title and short abstract (about 100 words) can be sent to the Editorial Office for announcement on this website.

Submitted manuscripts should not have been published previously, nor be under consideration for publication elsewhere (except conference proceedings papers). All manuscripts are thoroughly refereed through a single-blind peer-review process. A guide for authors and other relevant information for submission of manuscripts is available on the Instructions for Authors page. International Journal of Environmental Research and Public Health is an international peer-reviewed open access monthly journal published by MDPI.

Please visit the Instructions for Authors page before submitting a manuscript. The Article Processing Charge (APC) for publication in this open access journal is 2500 CHF (Swiss Francs). Submitted papers should be well formatted and use good English. Authors may use MDPI's English editing service prior to publication or during author revisions.

Keywords

  • self-care
  • self-management
  • self-care monitoring
  • measurement
  • instruments
  • psychometrics
  • patients
  • caregivers
  • interventions
  • chronic disease
  • prevention

Published Papers (7 papers)

Download All Papers
Order results
Result details
Show export options expand_more Show export options expand_less
Select all
Export citation of selected articles as:

Research

Jump to: Review, Other

10 pages, 366 KiB  
Article
Self-Care and Health-Related Quality of Life in Patients with Drainage Enterostomy: A Multicenter, Cross Sectional Study
by Eladio J. Collado-Boira, Francisco H. Machancoses, Ana Folch-Ayora, Pablo Salas-Medina, Mª Desamparados Bernat-Adell, Vicente Bernalte-Martí and Mª Dolores Temprado-Albalat
Int. J. Environ. Res. Public Health 2021, 18(5), 2443; https://doi.org/10.3390/ijerph18052443 - 2 Mar 2021
Cited by 5 | Viewed by 3163
Abstract
The current article examined stoma self-care and health-related quality of life in patients with drainage enterostomy, described clinical and sociodemographic variables and analyzed the relationship between all of them. Trained interviewers collected data using a standardized form that queried sociodemographic and clinical variables. [...] Read more.
The current article examined stoma self-care and health-related quality of life in patients with drainage enterostomy, described clinical and sociodemographic variables and analyzed the relationship between all of them. Trained interviewers collected data using a standardized form that queried sociodemographic and clinical variables. In addition, Self-Care (SC) was measured through a specific questionnaire for Ostomized Patients (CAESPO) and Health-Related Quality of Life (HRQoL) through the Stoma Quality of Life questionnaire (S-QoL), which are not included in the electronic medical record. This was a multicenter, cross sectional study conducted in four hospitals of the province of Castellon (Spain), where 139 participants were studied. As novel findings, it was found that the level of SC of the stoma was high and was positively correlated with health-related quality of life. In relation to SC and sociodemographic variables studied in the research, women, married patients and active workers presented significantly higher scores than the rest. In relation to the clinical variables, we highlight the highest scores of the autonomous patients in the care of their stoma and those who used irrigations regularly. The lowest scores were the patients with complications in their stoma. We can highlight the validity and reliability of the CAESPO scale for biomedical and social research, and the importance of skills related to self-care of ostomy patients for a good level of HRQoL. Full article
(This article belongs to the Special Issue Instruments and Interventions for Assessing, Supporting and Improving Self-Care)
15 pages, 1693 KiB  
Article
Promoting Self-Care in Nursing Encounters with Persons Affected by Long-Term Conditions—A Proposed Model to Guide Clinical Care
by Carina Hellqvist
Int. J. Environ. Res. Public Health 2021, 18(5), 2223; https://doi.org/10.3390/ijerph18052223 - 24 Feb 2021
Cited by 5 | Viewed by 10698
Abstract
Background: Nursing interventions for persons affected by long-term conditions should focus on providing support to enhance the ability to manage disease in everyday life. Many clinical nurses feel they have inadequate training or experience to provide self-management support in a beneficial and structured [...] Read more.
Background: Nursing interventions for persons affected by long-term conditions should focus on providing support to enhance the ability to manage disease in everyday life. Many clinical nurses feel they have inadequate training or experience to provide self-management support in a beneficial and structured way. This study explores the process towards independent self-care and management of disease in persons affected by Parkinson’s disease and the support required from healthcare to achieve this. It presents a nursing model to guide nurses in providing self-management support in the clinical care encounter. Methods: The results from three previously published articles investigating a self-management support program for persons with Parkinson’s disease were combined to form a new data set, and analyzed using qualitative thematic analysis. Results: Three separate, but interrelated, themes were identified, which described the process towards self-management of disease as expressed by the participants of the self-management program. Themes describe the factors important for developing and improving self-management abilities and actions. The results were applied to Orem’s Self-care deficit theory to suggest a model of self-management support in the clinical nursing encounter. Conclusion: This study investigated factors important for self-management and highlighted the unique contribution and focus of nursing support to promote independent self-care. Full article
(This article belongs to the Special Issue Instruments and Interventions for Assessing, Supporting and Improving Self-Care)
►▼ Show Figures

Figure 1

14 pages, 686 KiB  
Article
Tools to Support Self-Care Monitoring at Home: Perspectives of Patients with Heart Failure
by Ina Thon Aamodt, Anna Strömberg, Ragnhild Hellesø, Tiny Jaarsma and Irene Lie
Int. J. Environ. Res. Public Health 2020, 17(23), 8916; https://doi.org/10.3390/ijerph17238916 - 30 Nov 2020
Cited by 10 | Viewed by 3576
Abstract
Self-care monitoring at home can be a challenge for patients with heart failure (HF). Tools that leverage information and communication technology (ICT), comprise medical devices, or have written material may support their efforts at home. The aim of this study was to describe [...] Read more.
Self-care monitoring at home can be a challenge for patients with heart failure (HF). Tools that leverage information and communication technology (ICT), comprise medical devices, or have written material may support their efforts at home. The aim of this study was to describe HF patients’ experiences and their prioritization of tools that support, or could support, self-care monitoring at home. A descriptive qualitative design employing semi-structured interviews was used with HF patients living at home and attending an HF outpatient clinic in Norway. We used a deductive analysis approach, using the concept of self-care monitoring with ICT tools, paper-based tools, medical devices, and tools to consult with healthcare professionals (HCPs) as the categorization matrix. Nineteen HF patients with a mean age of 64 years participated. ICT tools are used by individual participants to identify changes in their HF symptoms, but are not available by healthcare services. Paper-based tools, medical devices, and face-to-face consultation with healthcare professionals are traditional tools that are available and used by individual participants. HF patients use traditional and ICT tools to support recognizing, identifying, and responding to HF symptoms at home, suggesting that they could be used if they are available and supplemented by in-person consultation with HCPs. Full article
(This article belongs to the Special Issue Instruments and Interventions for Assessing, Supporting and Improving Self-Care)
►▼ Show Figures

Figure 1

12 pages, 655 KiB  
Article
Development and Psychometric Testing of the Self-Care in COVID-19 (SCOVID) Scale, an Instrument for Measuring Self-Care in the COVID-19 Pandemic
by Maddalena De Maria, Federico Ferro, Davide Ausili, Rosaria Alvaro, Maria Grazia De Marinis, Stefania Di Mauro, Maria Matarese and Ercole Vellone
Int. J. Environ. Res. Public Health 2020, 17(21), 7834; https://doi.org/10.3390/ijerph17217834 - 26 Oct 2020
Cited by 14 | Viewed by 4731
Abstract
Aim: To develop the Self-Care in COVID-19 (SCOVID) scale and to test its psychometric characteristics in the general population. Methods: We tested SCOVID scale content validity with 19 experts. For factorial and construct validity, reliability, and measurement error, we administered the 20-item SCOVID [...] Read more.
Aim: To develop the Self-Care in COVID-19 (SCOVID) scale and to test its psychometric characteristics in the general population. Methods: We tested SCOVID scale content validity with 19 experts. For factorial and construct validity, reliability, and measurement error, we administered the 20-item SCOVID scale to a sample of 461 Italians in May/June 2020 (mean age: 48.8, SD ± 15.8). Results: SCOVID scale item content validity ranged between 0.85–1.00, and the total scale content validity was 0.94. Confirmatory factor analysis supported SCOVID scale factorial validity (comparative fit index = 0.91; root mean square error of approximation = 0.05). Construct validity was supported by significant correlations with other instrument scores measuring self-efficacy, positivity, quality of life, anxiety, and depression. Reliability estimates were good with factor score determinacy, composite reliability, global reliability index, Cronbach’s alpha, and test-retest reliability ranging between 0.71–0.91. The standard error of measurement was adequate. Conclusions: The SCOVID scale is a new instrument measuring self-care in the COVID-19 pandemic with adequate validity and reliability. The SCOVID scale can be used in practice and research for assessing self-care in the COVID-19 pandemic to preventing COVID-19 infection and maintaining wellbeing in the general population. Full article
(This article belongs to the Special Issue Instruments and Interventions for Assessing, Supporting and Improving Self-Care)
►▼ Show Figures

Figure 1

13 pages, 341 KiB  
Article
Perspectives of Health Care Providers on the Role of Culture in the Self-Care of Patients with Chronic Heart Failure: A Qualitative Interview Study
by Adam Jönsson, Emilie Cewers, Tuvia Ben Gal, Jean Marc Weinstein, Anna Strömberg and Tiny Jaarsma
Int. J. Environ. Res. Public Health 2020, 17(14), 5051; https://doi.org/10.3390/ijerph17145051 - 14 Jul 2020
Cited by 10 | Viewed by 2798
Abstract
Background: Self-care is important in chronic diseases such as heart failure. The cultural background of health care providers might influence their view on self-care behaviour and education they provide. The aim of this study was to describe health care providers’ perceptions of the [...] Read more.
Background: Self-care is important in chronic diseases such as heart failure. The cultural background of health care providers might influence their view on self-care behaviour and education they provide. The aim of this study was to describe health care providers’ perceptions of the role of culture in self-care and how those perceptions shape their experiences and their practices. Methods: A qualitative study was performed in Israel, a country with a culturally diverse population. Data were collected using semi-structured interviews with 12 healthcare providers from different cultural backgrounds. Interviews were recorded and transcribed verbatim and analysed using content analysis. Results: Healthcare providers experienced cultural background influenced their patients’ self-care behaviour. Perceived culture-specific barriers to self-care such as dietary traditions interfering with the recommended diet, willingness to undertake self-care and beliefs conflicting with medical treatment were identified. Healthcare providers described that they adapted patient education and care based on the cultural background of the patients. Shared cultural background, awareness and knowledge of differences were described as positively influencing self-care education, while cultural differences could complicate this process. Conclusions: Cultural-specific barriers for self-care were perceived by health care providers and they identified that their own cultural background shapes their experiences and their practices. Full article
(This article belongs to the Special Issue Instruments and Interventions for Assessing, Supporting and Improving Self-Care)

Review

Jump to: Research, Other

13 pages, 1183 KiB  
Review
Status of Theory Use in Self-Care Research
by Tiny Jaarsma, Heleen Westland, Ercole Vellone, Kenneth E. Freedland, Carin Schröder, Jaap C. A. Trappenburg, Anna Strömberg and Barbara Riegel
Int. J. Environ. Res. Public Health 2020, 17(24), 9480; https://doi.org/10.3390/ijerph17249480 - 17 Dec 2020
Cited by 9 | Viewed by 3651
Abstract
Background: Theories can provide a foundation to explain behavior, investigate relationships, and to predict the effect of interventions. The aim of the study was to clarify the use of theories in studies testing interventions to promote self-care. Method: A scoping review. PubMed, EMBASE, [...] Read more.
Background: Theories can provide a foundation to explain behavior, investigate relationships, and to predict the effect of interventions. The aim of the study was to clarify the use of theories in studies testing interventions to promote self-care. Method: A scoping review. PubMed, EMBASE, PsychINFO, and CINAHL were searched from January 2008 through January 2019. Nine common chronic conditions were included. We included studies testing a self-care intervention if they used a randomized controlled trial design. The study was registered in PROSPERO (#123719). Results: The search retrieved 9309 potential studies, of which 233 were included in the review. In total, 76 (33%) of the 233 studies used a theory and 24 different theories were used. Bandura’s social cognitive theory was the most frequently used (48 studies), but 22 other theories were used in a minority of studies. Most studies used theories minimally to justify or provide a rationale for the study, to develop the intervention, to select outcomes, and/or to explain the results. Only eight studies fully used a theory in the rationale, intervention development, choice of outcomes, and discussion. Conclusion: The use of theories to guide self-care research is limited, which may pose a barrier in accumulating knowledge underlying self-care interventions. Full article
(This article belongs to the Special Issue Instruments and Interventions for Assessing, Supporting and Improving Self-Care)
►▼ Show Figures

Figure 1

Other

Jump to: Research, Review

24 pages, 1187 KiB  
Systematic Review
Self-Care in Pediatric Patients with Chronic Conditions: A Systematic Review of Theoretical Models
by Immacolata Dall’Oglio, Giulia Gasperini, Claudia Carlin, Valentina Biagioli, Orsola Gawronski, Giuseppina Spitaletta, Teresa Grimaldi Capitello, Michele Salata, Valentina Vanzi, Gennaro Rocco, Emanuela Tiozzo, Ercole Vellone and Massimiliano Raponi
Int. J. Environ. Res. Public Health 2021, 18(7), 3513; https://doi.org/10.3390/ijerph18073513 - 28 Mar 2021
Cited by 9 | Viewed by 5160
Abstract
Background: To improve outcomes in children and young adults (CYAs) with chronic conditions, it is important to promote self-care through education and support. Aims: (1) to retrieve the literature describing theories or conceptual models of self-care in CYAs with chronic conditions and (2) [...] Read more.
Background: To improve outcomes in children and young adults (CYAs) with chronic conditions, it is important to promote self-care through education and support. Aims: (1) to retrieve the literature describing theories or conceptual models of self-care in CYAs with chronic conditions and (2) to develop a comprehensive framework. Methods: A systematic literature search was conducted on nine databases, according to the Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) guidelines. All peer-reviewed papers describing a theory or a conceptual model of self-care in CYAs (0–24 years) with chronic conditions were included. Results: Of 2674 records, 17 met the inclusion criteria. Six papers included a theory or a model of self-care, self-management, or a similar concept. Six papers developed or revised pre-existing models or theories, while five papers did not directly focus on a specific model or a theory. Patients were CYAs, mainly with type 1 diabetes mellitus and asthma. Some relevant findings about self-care in CYAs with neurocognitive impairment and in those living with cancer may have been missed. Conclusions: By aggregating the key elements of the 13 self-care conceptual models identified in the review, we developed a new overarching model emphasizing the shift of self-care agency from family to patients as main actors of their self-management process. The model describes influencing factors, self-care behaviors, and outcomes; the more patients engaged in self-care behaviors, the more the outcomes were favorable. Full article
(This article belongs to the Special Issue Instruments and Interventions for Assessing, Supporting and Improving Self-Care)
►▼ Show Figures

Figure 1

Show export options expand_more Show export options expand_less
Select all
Export citation of selected articles as:
 
Displaying articles 1-7
Back to TopTop