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Congenital Heart Disease: The Effects of Social Determinants of Health...
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Congenital Heart Disease: The Effects of Social Determinants of Health on Burdens and Outcomes

A special issue of Journal of Cardiovascular Development and Disease (ISSN 2308-3425). This special issue belongs to the section "Pediatric Cardiology and Congenital Heart Disease".

Deadline for manuscript submissions: 30 June 2024 | Viewed by 5597

Special Issue Editor

Dr. Dominique Vervoort

E-Mail Website
Guest Editor
1. Institute of Health Policy, Management and Evaluation, University of Toronto, Toronto, ON M5S 1A1, Canada
2. Division of Cardiac Surgery, University of Toronto, Toronto, ON M5S 1A1, Canada
Interests: cardiac surgery; global health; health policy; health economics; congenital heart disease; aortic disease

Special Issue Information

Dear Colleagues,

Congenital heart disease is the most common major congenital anomaly, and presents a lifelong condition. Globally, most children born with congenital heart disease do not have access to the care they require, whereas children and adults who receive care have different burdens, access and outcomes as a result of demographic, socioeconomic, systemic and geographical factors. This Special Issue will cover the global burden of congenital heart disease through the lens of social determinants of health. Articles may include, but are not limited to, congenital heart disease in low- and middle-income countries, small island states, and rural and remote communities, the effects of sociodemographic factors on access to and outcomes after care, and the effects of the environment on congenital heart disease.

Dr. Dominique Vervoort
Guest Editor

Manuscript Submission Information

Manuscripts should be submitted online at www.mdpi.com by registering and logging in to this website. Once you are registered, click here to go to the submission form. Manuscripts can be submitted until the deadline. All submissions that pass pre-check are peer-reviewed. Accepted papers will be published continuously in the journal (as soon as accepted) and will be listed together on the special issue website. Research articles, review articles as well as short communications are invited. For planned papers, a title and short abstract (about 100 words) can be sent to the Editorial Office for announcement on this website.

Submitted manuscripts should not have been published previously, nor be under consideration for publication elsewhere (except conference proceedings papers). All manuscripts are thoroughly refereed through a single-blind peer-review process. A guide for authors and other relevant information for submission of manuscripts is available on the Instructions for Authors page. Journal of Cardiovascular Development and Disease is an international peer-reviewed open access monthly journal published by MDPI.

Please visit the Instructions for Authors page before submitting a manuscript. The Article Processing Charge (APC) for publication in this open access journal is 2700 CHF (Swiss Francs). Submitted papers should be well formatted and use good English. Authors may use MDPI's English editing service prior to publication or during author revisions.

Keywords

  • congenital heart disease
  • congenital heart surgery
  • social determinants of health
  • global health
  • public health
  • cardiac surgery
  • cardiology

Published Papers (3 papers)

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Review

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16 pages, 300 KiB  
Review
Health Equity and Policy Considerations for Pediatric and Adult Congenital Heart Disease Care among Minoritized Populations in the United States
by Keila N. Lopez, Kiona Y. Allen, Carissa M. Baker-Smith, Katia Bravo-Jaimes, Joseph Burns, Bianca Cherestal, Jason F. Deen, Brittany K. Hills, Jennifer H. Huang, Ramiro W. Lizano Santamaria, Carlos A. Lodeiro, Valentina Melo, Jasmine S. Moreno, Flora Nuñez Gallegos, Harris Onugha, Tony A. Pastor, Michelle C. Wallace and Deidra A. Ansah
J. Cardiovasc. Dev. Dis. 2024, 11(2), 36; https://doi.org/10.3390/jcdd11020036 - 25 Jan 2024
Viewed by 2047
Abstract
Achieving health equity in populations with congenital heart disease (CHD) requires recognizing existing disparities throughout the lifespan that negatively and disproportionately impact specific groups of individuals. These disparities occur at individual, institutional, or system levels and often result in increased morbidity and mortality [...] Read more.
Achieving health equity in populations with congenital heart disease (CHD) requires recognizing existing disparities throughout the lifespan that negatively and disproportionately impact specific groups of individuals. These disparities occur at individual, institutional, or system levels and often result in increased morbidity and mortality for marginalized or racially minoritized populations (population subgroups (e.g., ethnic, racial, social, religious) with differential power compared to those deemed to hold the majority power in the population). Creating actionable strategies and solutions to address these health disparities in patients with CHD requires critically examining multilevel factors and health policies that continue to drive health inequities, including varying social determinants of health (SDOH), systemic inequities, and structural racism. In this comprehensive review article, we focus on health equity solutions and health policy considerations for minoritized and marginalized populations with CHD throughout their lifespan in the United States. We review unique challenges that these populations may face and strategies for mitigating disparities in lifelong CHD care. We assess ways to deliver culturally competent CHD care and to help lower-health-literacy populations navigate CHD care. Finally, we review system-level health policies that impact reimbursement and research funding, as well as institutional policies that impact leadership diversity and representation in the workforce. Full article
(This article belongs to the Special Issue Congenital Heart Disease: The Effects of Social Determinants of Health on Burdens and Outcomes)
15 pages, 1180 KiB  
Review
Biological Age in Congenital Heart Disease—Exploring the Ticking Clock
by Tijs K. Tournoy, Philip Moons, Bo Daelman and Julie De Backer
J. Cardiovasc. Dev. Dis. 2023, 10(12), 492; https://doi.org/10.3390/jcdd10120492 - 10 Dec 2023
Viewed by 1888
Abstract
Over the past 50 years, there has been a major shift in age distribution of patients with congenital heart disease (CHD) thanks to significant advancements in medical and surgical treatment. Patients with CHD are, however, never cured and face unique challenges throughout their [...] Read more.
Over the past 50 years, there has been a major shift in age distribution of patients with congenital heart disease (CHD) thanks to significant advancements in medical and surgical treatment. Patients with CHD are, however, never cured and face unique challenges throughout their lives. In this review, we discuss the growing data suggesting accelerated aging in this population. Adults with CHD are more often and at a younger age confronted with age-related cardiovascular complications such as heart failure, arrhythmia, and coronary artery disease. These can be related to the original birth defect, complications of correction, or any residual defects. In addition, and less deductively, more systemic age-related complications are seen earlier, such as renal dysfunction, lung disease, dementia, stroke, and cancer. The occurrence of these complications at a younger age makes it imperative to further map out the aging process in patients across the spectrum of CHD. We review potential feasible markers to determine biological age and provide an overview of the current data. We provide evidence for an unmet need to further examine the aging paradigm as this stresses the higher need for care and follow-up in this unique, newly aging population. We end by exploring potential approaches to improve lifespan care. Full article
(This article belongs to the Special Issue Congenital Heart Disease: The Effects of Social Determinants of Health on Burdens and Outcomes)
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13 pages, 946 KiB  
Commentary
Effects of Sociodemographic Factors on Access to and Outcomes in Congenital Heart Disease in the United States
by Justin Robinson, Siddhartha Sahai, Caroline Pennacchio, Betemariam Sharew, Lin Chen and Tara Karamlou
J. Cardiovasc. Dev. Dis. 2024, 11(2), 67; https://doi.org/10.3390/jcdd11020067 - 19 Feb 2024
Viewed by 1211
Abstract
Congenital heart defects (CHDs) are complex conditions affecting the heart and/or great vessels that are present at birth. These defects occur in approximately 9 in every 1000 live births. From diagnosis to intervention, care has dramatically improved over the last several decades. Patients [...] Read more.
Congenital heart defects (CHDs) are complex conditions affecting the heart and/or great vessels that are present at birth. These defects occur in approximately 9 in every 1000 live births. From diagnosis to intervention, care has dramatically improved over the last several decades. Patients with CHDs are now living well into adulthood. However, there are factors that have been associated with poor outcomes across the lifespan of these patients. These factors include sociodemographic and socioeconomic positions. This commentary examined the disparities and solutions within the evolution of CHD care in the United States. Full article
(This article belongs to the Special Issue Congenital Heart Disease: The Effects of Social Determinants of Health on Burdens and Outcomes)
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Planned Papers

The below list represents only planned manuscripts. Some of these manuscripts have not been received by the Editorial Office yet. Papers submitted to MDPI journals are subject to peer-review.

Title: Effects of Sociodemographic Factors on Access to and Outcomes in Congenital Heart Disease
Authors: Justin Robinson; Siddhartha Sahai; Caroline Anne Pennacchio; Betemariam Sharew; Lin Chen; Tara Karamlou
Affiliation: Cleveland Clinic Children's Hospital
Abstract: Congenital heart defects (CHD) are complex conditions affecting the heart and/or great vessels that are present at birth. These defects occur in approximately 9 in every 1000 live births [1]. From diagnosis to intervention, care has dramatically improved over the last several decades. Patients with CHD are now living well into adulthood. However, there are factors that have been associated with poor outcomes across the lifespan for these patients. These factors include sociodemographic and socioeconomic positions. This commentary examined disparities and solutions within the evolution of CHD care.

Title: Patient Engagement to Optimize Congenital Heart Disease Care
Authors: Amy Verstappen
Affiliation: Global Alliance for Rheumatic and Congenital Hearts

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